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My broken heart

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To my readers:

The story in the below post happened to me on February 22, 2011. This event has forever changed my life. Please help me share it. This is why we desperately need Autism Awareness. Thank you for reading and helping me share my story…

-LT

My broken heart: The Story of The Bare-Handed Man

It’s been a few days since I have spoken with all of you. Something happened to me a few days ago that I have been struggling to deal with it. I hope you all truly hear what I’m about to share with you. I want everyone to read this and know what happened. Not because of what I did but because of what I learned… Please share this story and help spread awareness.

A few days ago I went to Giant Eagle to pick up some groceries. We had a winter storm on the way and I needed to pick up a few things in case we got snowed in again. I pulled into the parking lot and found a spot right in front of the entrance. My back is out again so I can’t walk very far. As I was pulling into the spot I had to wait for some people to move out the way. They were just standing in the parking spot. Their car was in the next spot over but they just stood there and shot me a few dirty looks,  like “who was I to expect them to move”. I just waited, it wasn’t a big deal. I wasn’t even upset. They eventually started to get into their car and moved out of the way so I could pull in.

The snow had already started to fall and we were getting about 1″ per hour. I sat there a second collecting what I needed to take into the store. I just happened to look over at the people that were still getting into their car and I saw a large black man standing there. I didn’t see where he came from but in one minute he wasn’t there and the next minute he was.  Then I realized what he was doing. He was wiping the snow and ice off their windshield with his bare hands. The woman looked at him, like, “how dare you touch my car”.
She was clearly disgusted just breathing the same air. Instead of asking him to stop or giving him a few dollars she tried to run him down. She gunned the car forward so fast that her friend who was trying to get into the back seat had the back passenger door slammed on him and he was left standing in the snow. The man who had been trying to clean the windshield was knocked back. This woman just kept shouting things to the man with the bare hands.

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I was in shock. I had never seen anything like that before and I never want to again. A few seconds later the man gets up and walks over to me and knocks on my window. I hadn’t even begun to process what I had just seen. Now he was coming over to me and I had no idea what I was going to say. Shamefully, I was thinking “please not now, I just want to get what I need and get home”. Where I live it’s not uncommon for people to approach you for money. So I knew what was probably about to happen. I took a deep breath and started to open the door. The bare handed man opened it the rest of the way, being careful not to hit the car next to me.

The bare handed man was under dressed for the weather and obviously cold. He asked me for change. I gave him everything I had, $2.37. He started talking to me but couldn’t look me in the eye. As he was telling me how cold and hungry he was, I watched as he was unable to control his hands. It was like he was playing an invisible piano. He had a very hard time talking to me and I could see he was much more uncomfortable then I was. He clearly had boundary issues but I never felt threatened in any way. He kept staring off and would occasionally look in my direction but never at me and I never saw his eyes. He stood about 1 or 2 feet in front of me and asked me to drive him to a shelter because it’s “warm there and they have food”.  He informed me that he was “homeless and very hungry”. He then told me that he “was not lying to me”. He said “if I lie to you then you might not help me”. He asked me to buy him some food and gloves. I thought about what to say. I knew he would have hard time understanding. I don’t have any money. My family is struggling to survive each day. I would literally be taking away from what little my family has and I just couldn’t. I was trying to figure out how to explain to him that I couldn’t help him. I was lost for words.

Then something happened that shook me to the core and completely broke my heart. As I was trying to form the words I needed to tell him “no”, he looked me in the eyes. All of the sudden I was looking at Gavin. Gavin is the oldest of our three special needs boys (all Autistic). Gavin is 11 years old and is also diagnosed with schizoaffective disorder as well. Looking at the bare handed man was looking through some special window at my son Gavin, 20 or 30 years from now. It was a kick in gut. I was overcome with emotion. It was like I was run over by a freight train. I can’t put words together to really describe what that moment was like.

He again asked me to buy him food because he was hungry and gloves because his hands were cold. Something about him was so familiar and yet I’d never met him before. I looked at him and told him I would buy him some food. He smiled in my direction and took my hand (without looking at me) and led me into the store. He didn’t fit in with the rest of the people in there. His clothes were old, beat up and didn’t smell very good. He had clearly been through a great deal in his life and it showed in his face. I noticed the looks people gave me as I walked with the bare handed man into the grocery store. He asked me to buy him a gift card so he could buy food later on when he is hungry again. So we walked over to the rack and he picked out a Giant Eagle gift card. He asked for other ones but I just couldn’t. We went to the register to ring it up and I explained how to use it. I put $25 on the gift card and the cashier asked if I wanted any cash back. I had them give me $25 cash back. I gave it to the bare handed man and asked him to please buy himself some gloves and a bus ride to the shelter. The last thing he asked was to have the receipt so “when the police stop me, I can prove I didn’t steal this”.

He told me again that he wasn’t lying. I told him I knew he wasn’t. He turned to walk away and he stopped and looked in my direction as to say “Thank You” but didn’t. What he did said more than a simple thank you. He showed me his eyes again for a brief moment before he turned around and left. I stood there completely heartbroken as I watched my son Gavin walking away into the cold.  I was beside myself with grief. How could someone I didn’t know have such a profound effect on me?

I just couldn’t shake just how much the bare handed man reminded me of Gavin. I tried to finish the shopping I had to do but I couldn’t remember anything I was supposed to get. I walked up and down the aisles on “autopilot” doing everything I could not to burst into tears. I got to the end of the store and realized I still had an empty cart. All I could think was “how does that happen”. I was smacked in the face with reality. Someday I won’t be here to take care of my kids. What if this happens to them? What if they are the ones wiping off a windshield with their bare hands and almost getting run over by someone who clearly doesn’t care.

I screwed up grocery shopping. I just couldn’t focus on anything. I got what I could remember with what little I had left and drove home.  I was completely lost at that point. I just couldn’t process what had just happened. All I could think about was not allowing this to happen to my kids in the future. The horrifying truth is that someday I won’t be here for my kids and I pray they are never in that same situation. I truly hope that if they are, someone will show them kindness and compassion. These are my babies and I get sick to my stomach thinking about what their future holds.

I got home and unloaded the groceries and was in the kitchen with Lizze. I wasn’t going to say anything to her about it but I had to because we already were struggling and now things were going to be even tighter and she deserved to know why. I looked her in the eyes and told her what had happened. I just sobbed and sobbed on the floor in my kitchen. I couldn’t control myself or keep my emotions in check. That has only ever happened to me when I watched Lizze give birth to our kids. The past few days have been rough because I just can’t seem to get past this. All I can think about is my kids and their future. My heart has been broken and I live with the reality that this could be one or more of my kids in the future.

This has been very difficult for me to write. I’m still very emotional. Most parents will never know this fear but I do. Parents of special needs kids live with this indescribable fear each and every day. I wanted to share this story because we CANNOT allow this to happen to our kids. Please help me spread Autism Awareness. I don’t care what it takes but the world needs to be better. These people NEED compassion and understanding. My kids need your compassion and understanding… Please give them that much, I beg you….

 

If you liked this piece, you might also like: 10 Things My Autistic Kids Wish You Knew or Thank You For Judging Me

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum


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One helluva meltdown

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Gavin just had a helluva meltdown.  This was by far,  the worst one we have seen in about 9 months. 

He dropped his sucker and instead of just asking for a new one,  he chose to through a fit.  I tried to defuse it before he went nuclear but it was just to late.  He completely lost it and was screaming like someone was ripping his finger nails off or something.

This lasted for a solid 20 minutes. Then,  as quickly as it began, it ended. 

Now he’s acting as if nothing had happened. That is one of the most frustrating things for me.  The moment that Gavin ends the meltdown,  he moves on. Everyone else is still trying to process what just happened and Gavin just picks up and moves on as if the meltdown never happened.

We never get any type of closure or resolution and that takes its toll.  Does that make sense? 

Any of you wonderful people out there experience anything similar?  If so,  does it drive you crazy,  or is it just me?

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

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Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Learning the hard way

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Sometimes lessons have to be learned the hard way.  No matter how many times I try to explain to my kids why we do something a certain way,  sometimes they just have to learn on their own.

The other day,  Emmett snuck out of the house.  Now,  I was out with Maggie in the yard at the time.  However,  he let himself out and without a coat on.

It was in the 50′s out so it wasn’t that cold.

However,  he refused to go back into the house.  When Lizze and I both tried to get him,  he ran deeper into the yard.

We explained that he’s not allowed to let himself out of the house.  Did he understand that?  Probably not,  but it feels like the right thing to do,  even if he doesn’t get it.

Anyway,  we were at a standoff.  Then from out of nowhere,  a huge drop of water landed on his shoulder. I thinking was from melting ice in the tree.

He immediately freaked out cause he hates getting wet and he hates his clothes getting wet even more.

He ran right back into the house.

I had to laugh to myself because of that wasn’t a natural consequence,  I don’t know what is.

Don’t get me wrong,  I’m not laughing at him but more at the situation and how it seemed to resolve itself.

You just can’t beat natural consequences

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

MyFreeCopyright.com Registered & Protected

Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Rheumatology Take 2: The weigh in

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Elliott has been weighed, measured and had his BP and temperature taken.

Would you believe that Elliott only weighs about 6 pounds more than Emmett.  Elliott will be 6 years old in about 2 weeks and Emmett is only 3 years old. 

Elliott is just really tiny I guess.  It’s just crazy to think that our 3 and almost 6 year old are almost the exact same size and weight.

Is that weird?

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**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

MyFreeCopyright.com Registered & Protected

Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Rheumatology Take 2: We have arrived

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We have arrived at the Rheumatologist located in Akron Children’s Hospital.  I would like to also add that we are actually early.

Isn’t there a rule somewhere,  that you can’t be given bad news when you arrived early to an appointment? Especially,  being early and having to get 3 boys on the Autism Spectrum ready.

If not,  then there should be.   :-)

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**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

MyFreeCopyright.com Registered & Protected

Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Rheumatologist: Take 2

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The day has arrived that contains Elliott’s appointment to see the Rheumatologist.  You may recall that Emmett was just there 2 days ago.

Elliott is going for a very different reason. 

Elliott’s muscle tone is extremely low.  The other,  more pressing issue is his joints and tendons. 

Elliott’s joints and tendons are extremely loose.  They are causing him pain and discomfort. He is asking at risk for injury because he can’t stop himself when he falls.

Elliott has been exceedingly nervous about today. However,  he seems to be okay this morning.  Hopefully,  today will go well and the Rheumatologist will be able to help him get OT and PT.

We still have 3 other appointments today so this will have enough to go off without a hitch. 

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

MyFreeCopyright.com Registered & Protected

Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Today’s Victory: 02/21/2012

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Today’s Victory is brought to you by Emmett and Elliott. Despite all their fighting and with neither one of then feeling well, they managed to spend some quality time together.

The PS3 seems to bring them together.

While this didn’t last very long, it’s still a victory in my book and I’m choosing to celebrate it.

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