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Monthly Archive: October 2010

Oct 31 2010

I meant they come in 4′s

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Aspergers, Autism, Bipolar, Emmett John, Gavin, Lizze, Parenting, School, Sensory, Stress, Unpleasant Truth, Vaccines

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October 31, 2010


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I think Lizze is the last one standing. I’m not feeling very well. Took something for the nausea so I can maybe push through this. It seems to be helping.

With everyone vomiting all willy billy we have been washing sheets and blankets all day. Lizze just informed me the washer has stopped working and is making a buzzing sound. The barrel is full of water so I will have to drain it. We have also lost our wireless network due to a dead router. That may sound trivial but EVERYTHING was connected via wifi. Can’t afford to replace it right now so I need to find the old one that is password locked and hardreset it so we can be all connected again.

Elliott and Emmett seem to be feeling better. I turned our old sprint android phone in a multimedia device/pokedex for Elliott. I put a few dozen movies on the sd card and he is snuggling with Emmett and watching Lady and the Tramp.

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Oct 31 2010

They come in 3′s

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Aspergers, Autism, Bipolar, Emmett John, Family, Gavin, Parenting

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October 31, 2010


Just got a call from Lizze’s mom. Apparently Gavin vomited while at the store. I was really hoping he would be spared. Gavin is a really bad sick person. If he throws up just once he will make himself throw up for days. It’s something that has developed over the years and it has become a problem.

If his tummy hurts (even if he’s there is no nausea) he will make himself throw up. We never know if he’s actually sick or not. The other problem is he goes unmedicated during this time ands that’s not good for him.

We are in for a very long couple of days.

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Oct 31 2010

Fit 4 Autism Update

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Aspergers, Autism, Bipolar

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October 31, 2010


I wanted to update everyone on my Fit 4 Autism movement. As of today 10/31/2010 we have walked,ran,hiked and biked over 9890 miles. That is is an AMAZING accomplishment. The truly amazing part is that we only have about 12 active members right now. Think of what we could accomplish with many more people. I want to say special THANK YOU to my new friend in Europe for joing the cause and giving a a massive boost.  Thank you to everyone involved.

I came up with the idea of ”Fit 4 Autism“ a few months ago. It’s kind of a play on word’s. However, it’s way more then that. As special needs parents we need to be able to take care of our children for as long as possible. The unfortunate truth is that many of us dedicate so much time and energy to our children that we fail to take care of ourselves.

“Fit 4 Autism” is a challenge I’ve issued to myself and now to you. That challenge is to start doing things to improve your overall health and fitness. Simple things like eating healthier and becoming more physically active. Parking farther away from the store (when possible) or simply walking. As a father to 3 special needs kids (all Autistic) I know how difficult it is to make the time to do this but honestly we can’t afford not to. Who will be their for our kids if we aren’t. We owe it to them as well as ourselves to be as happy and healthy as possible for as long as possible.

If you would like to join “Fit 4 Autism” send and email to Fit4Autism@gmail.com

I’ll get an invite off to you right away. Everything is tracked via www.endomondo.com. My hope is that I get as many people to join as possible. There’s motivation and encouragement in numbers. Endomondo works no matter where you are in the world. The more we have the more attention we can get and the more Autism awareness we can spread. Anyone wanting to support the cause is welcomed to join. We owe our kids healthy parents and this is what I’m doing to make sure my kids have that. Join “Fit 4 Autism” today and improve your health while increasing Autism Awareness.

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Oct 31 2010

Emmett John status update

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Aspergers, Autism, Bipolar, Doctor's, Emmett John, Family, Gavin, Lizze, Parenting, Schizophrenia, School, Sensory, Stress, Unpleasant Truth

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October 31, 2010


Emmett John is our pre-verbal 2 year old little blessing. Emmett John has always struggled with communication. We are learning or trying to learn sign language. Emmett John has no way to communicate with us or us with him. It’s honestly heartbreaking to watch him struggle.

Lately we have been seeing more and more meltdowns. He is shrieking now when he gets upset and that’s something new in the past few weeks. We have to get the earily intervention in place. Unfortunatly that will most likely require us to triage our kids. In other words we are going to gave to prioritize.

We are going to focus our limited resources on those who will receive the most benefit. That is Elliott and Emmett. Thy have the brighest future. All the experts and have told us that Gavin is not going to get better and that we have to preserve the health of the healthy. No matter how much we pour into Gavin nothing ever sticks. They tells us that in the past 6 years something should have taken root. We have literally tried everything and nothing works.

We have to make some tough decisions ahead but we will have to figure something out in order to give our kids the best and brightest future we can.

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Oct 31 2010

A very long night

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Aspergers, Autism, Bipolar, Emmett John, Family, Lizze, Parenting, Sensory, Stress

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October 31, 2010


Elliott was up almost all night. His tummy was upset but he didn’t vomit anymore so that’s a good sign. I believe Emmett slept through most of the night. Lizze sent me to bed and kept the kids away so I could get a few hours of sleep. She’s so good to me. Thanks honey.

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Oct 30 2010

10 Things my Autistic child wishes you knew

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Aspergers, Autism, Bipolar, Emmett John

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October 30, 2010


10 Things my Autistic child wishes you knew

  • July 21st, 2010 12:01 pm ET
 
1. I’m sorry I have fits but I’m not a spoiled brat. I’m just so much younger on the inside then I am on the outside.

2. I’m easily overwhelmed because I see and hear everything. I hear the lights hum and clock tick. Everything is so loud it makes my head hurt all the time. My eyes hurt from all the bright lights.

3. I’m not stupid, I’m actually very smart. I just don’t learn the way you want me to. Please learn about Autism so you know how to help me better understand what you are trying to teach.

4. Please don’t be mad at mommy and daddy because we don’t come over for holidays or birthdays. They really want to go but I don’t do well at another person’s house. It’s too overwhelming for me and they know that. They don’t go because they love me, NOT because they don’t like you.

5. Please have patience with me. I try really hard to make good decisions but I can be very impulsive at times.

6. Yes, I have Autism but that doesn’t mean I’m less of a person because of it. If anything, I’m actually more of a person in spite of it.

7. My house might be messy sometimes. It’s because my mommy and daddy spend all their time trying to find new ways to help me.

8. Just because I can’t talk doesn’t mean I don’t understand what you are saying. My feelings can be hurt just like yours.
9. I wish my mommy and daddy knew how much I love them. I have a really hard time with emotions and I don’t always like to be touched. But I love them more than anything in the world, even more then my Lego’s.

10. I know I can be frustrating but don’t tell me I won’t amount to anything because I have Autism. If you love and support me I WILL do great things in my life in spite of my challenges

Author: Rob Gorski

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Oct 30 2010

My poor babies

Categories:

Aspergers, Autism, Bipolar, Emmett John, Gavin, Lizze, Parenting, Puberty, Schizophrenia, School, Sensory

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October 30, 2010


Well Elliott and Emmett are both sick now. Elliott went most of the afternoon without vomiting but can’t keep aything down now. Emmett isn’t vomiting but has the same intestinal “issues” Elliott has right now. These guys are completely miserable and it’s going to be another very long night.  Thankfully Gavin is at Grandma’s tonight and not around for this. He doesn’t handle this type of situation very well. I had to call my parent to make a run to Giant Eagle to get Gingerale, Kids Motrin and Benadryl. I think Elliott is vomiting do in part to some post nasal drip. The Benadrul should clear that right up.

Needless to say, Trick or Treat will be cancled for these guys. We were going to hold Gavin back from going anyway but with these guys all sick he is going to go with Lizze’s mom for alittle bit on Sunday. At this point we have bigger problems with the kids sick. Hopefully it will stay low key and he won’t get over stimulated but if he does he’ll be over stimulated away from home. Ffo righh now I  can deal with that.

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