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10 Things my Autistic kids wished you knew

Written by me, Rob Gorski (Lost and Tired) and dedicated to my amazingly beautiful children. 

1. I’m sorry I have fits but I’m not a spoiled brat. I’m just so much younger on the inside than I am on the outside.

2. I’m easily overwhelmed because I see and hear everything. I hear the lights hum and clock tick. Everything is so loud it makes my head hurt all the time and my eyes hurt from all the bright lights.

3. I’m not stupid, I’m actually very smart. I just don’t learn the way you want me to. Please learn about Autism so you know how to help me better understand what you are trying to teach.

4. Please don’t be mad at mommy and daddy because we don’t come over for holidays or birthdays. They really want to go but I don’t do well at another person’s house. It’s too overwhelming for me and they know that. They don’t go because they love me, NOT because they don’t like you.

5. Please have patience with me. I try really hard to make good decisions but I can be very impulsive at times.

6. Yes, I have Autism but that doesn’t mean I’m less of a person because of it. If anything, I’m actually more of a person in spite of it.

7. My house might be messy sometimes. It’s because my mommy and daddy spend all their time trying to find new ways to help me or teach my brother to talk..

8. Just because I can’t talk doesn’t mean I don’t understand what you are saying. My feelings can be hurt just like yours.

9. I wish my mommy and daddy knew how much I love them. I have a really hard time with emotions and I don’t always like to be touched. But I love them more than anything in the world, even more then my Lego’s.

10. I know I can be frustrating but don’t tell me I won’t amount to anything because I have Autism. If you love and support me I WILL do great things in my life in spite of my challenges.

I recently put together this little movie based on the above post. They are basically the same message, one is in written words and one is spoken word. :-)

If you liked this piece, please read My Broken Heart or Thank You For Judging Meyou may appreciate these as well.

 

Please feel free to use this piece for educational purposes or to help spread Autism Awareness. Please DO NOT use this for personal monetary profit. I also ask that you provide proper credit and a link back to my blog (if you post it online).

Recommended Reading on Lost and Tired

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About the author

Lost and Tired

I'm Rob Gorski and I started this blog in January 2010 as a means of sharing my family's real life journey raising 3 boys on the #Autism Spectrum.
It's important for people to understand what Autism can really be like and the impact it has on the family. We aren't a TV show and there are no actors. This is our struggle, our journey...and it's all true.

I am "Lost and Tired" and
this is "My Reality #Autism".

Permanent link to this article: http://www.lostandtired.com/2011/04/15/10-things-my-autistic-kids-wished-you-knew/

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118 comments
rjones22
rjones22

great list. when my kid was in the hospital the stupid nurse told my son she didnt see that he needed adderal since he didnt work or go to school. he is 21. it was just one insensitive comment. she didnt know that he wants to go to school and he wants to work but he doesnt because of his uncontrolled bechets diesease. i am glad i wasnt there when she said it as i would have had to stay calm while she was hurting my kids feelings. even though he doesnt have cancer he was on the cancer floor. she didnt know he didnt have cancer which makes it worse that she said it. i know my son is very sick but thank God no cancer (cause he recovered) but what if he had cancer and was depressed with his situation, there was no way ever her comment could have been helpful. people need to kept there mouth shut saying negative stuff like that.

ALEXRINDERER
ALEXRINDERER

I never have been able to put into words what people with Autism go through and this just fit it perfectly. Graduating in May as a Special Education Teacher I hope to remember these top 10 things when I have students with Autism in my classroom. I find them to be so interesting because I can never understand how they are feeling. Thank you for being such a strong role model for your children and to others who have loved ones with Autism! 

JonGilbert
JonGilbert

Beautiful!  The same comments my own kids would make!

amautone1
amautone1

This also is beautiful.  I tweeted it and will post this on my Facebook fan page.  I have a brother in law (in his 50's) with autism.  I don't blog about him as much as I should.

phyllis
phyllis

This is truly beautiful.  I am sure that many people who deal with Autism more closely can benefit from your blog.  For me, I learned a little bit more about the struggle.  Thank you!

Michelle
Michelle

This is so correct it made me tear up. I sent it to all my other 4 children to hope it will help them UNDERSTAND our son with autism. THANK YOU!!

HeatherESedlock
HeatherESedlock

As stated many times by yourself and others, of course this list isn't going to describe every child/adult with autism. Sometimes, they may be on the opposite side (i.e. sensory seekers), etc. But I would love to see one change--the removal of the phrase "in spite of"... He (your son(s)) may be more of a person BECAUSE of autism. Go ahead-say it. :) I had wonderful friends after middle school. They loved me just the way that I am (still friends today) and not IN SPITE of my autism--but because of it. Because it made me into the person that I am. You cannot separate neurology from personality. I am autistic. And I'm awesome--because of it and other things :)

kat13
kat13

Great video!

MarcelaCFSaiffe
MarcelaCFSaiffe

If you are so kind, I would like to do a spanish voice over of a translation of this video, My english have an accent in voice over but me and my friends can help giving it human voice in english and spanish,  so it will be easier tfor viewers.  reach me on twitter @saiffe  I have asperger syndrome and I would love to help the cause  =)

 

sher
sher

thank you for sharing this video.

pinkangel
pinkangel

you took the words right out of my mouth.....your ten things are so true to me & i always struggle putting things into words,explaining to people how difficult life with autism is..so il b sharing,thankyou xoxox

whynotfathers
whynotfathers

I wish that we could push this through triberr. then I could reblog it. :) You say things that we all wish we could say as eloquently.

@MostlyTrueStuff
@MostlyTrueStuff

So amazingly and perfectly put. Thank you for putting into words what our sweet kids cannot.

Iliana Hernandez
Iliana Hernandez

I cried when I read this. You said it all. I have a 17 yr old son with autism. You summed it all up in 10. You are an inspiration. Posted it to my FB page to raise awareness. Luv your blog. God bless you and your wife and your 3 beautiful sons. I believe that God will help find a cure for our children and all with autism. If I don't ever get to see it, I hope my son will. Thanks.

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Data
Data

It's rather scary reading that and nodding in understanding - both from my own perspective and from that of my little boy. But it does need to be said so that those who without experience can begin to understand. Maybe it'll even get a point through to those who bully simply because "that kid's different"

Heather McCuish
Heather McCuish

Thanks for sharing, this post inspires me to continue working on helping families, dealing with a child or adult with autism.

Autistic London
Autistic London

[...] He created a movie of his popular post, “10 Things My Autistic Kids Wished You Knew.” [...]

Claire
Claire

All great points. Will share. My recent post The Magical Classroom

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Nola
Nola

This was so lovely, my son suffers from autism. And I sometimes struggle to understand it! THANK YOU XXX

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autismpodcast
autismpodcast

Thanks for sharing Rob. Always nice to see another father reach out and share their jouney. My recent post Episode 98 | Wretches and Jabberers

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Alyssa
Alyssa

Beautifully done, thank you!

momma
momma

Don't let those comments upset you. My son is so clever but he to is younger on the inside. His choice of toys are " baby toys" all the other children his age play with things my son is not ready for yet. That doesn't make him not clever, it just makes him a little younger on the inside. I am sure in time he will catch up but for now he is so busy studying and enjoying the same toys he played with as a baby. Not only is it his choice in toys but his interests. I am not saying he is not smart, I know he will get to where he needs to be. People should not be so quick to hate and judge. As a parent with a child with autism we should all support one another and realize each of our children are different

Lost_and_Tired
Lost_and_Tired

If you intend to only spam, please do it elsewhere.

jessica
jessica

Thank you for all the information in your site . My 2 1/2 year old little girl was diagnosed with mild autism last november and i have no support group aside from her three teachers that come into my home Monday ~ Friday... It helps havin someone like you as a power of example and that iam not alone... thank u again

lostandtired
lostandtired

@HeatherESedlock Very well said. Thank you so much for sharing . :-)

jessica
jessica

Reading your post really helped me a lot.... as a mom of a mildly autistic little girl (with a developmental delay) I see in her a younger child too. I do not have a support group or children her age to interact with so i felt so alone but thanks to Robs(lost and tired web site) strength. I see people like you who i can look up to and learn from THANK YOU SO MUCH I DON'T FEEL ALONE NO MORE

Lost_and_Tired
Lost_and_Tired

It really is just a word and adults with Autism prefer to be called Autistic. To me it\'s simply a discriptive term used to describe the condition. I call my kids by their names. We really need to try and be open minded because Autistic is not degrading in any way. Some are more comfortable with one word over another but we need to be tolerant of everyone preference. Most importantly, we should defer to what our kids prefer when they are old enough to know what they want.

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