Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

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Jul 19 2011

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Thank you for judging me…..

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If you were to walk into my house at any given time, you would find many things. Among them, the floor covered with toys and the kitchen with a sink full of dirty dishes. If you ventured into the basement you would see a mountain of dirty laundry patiently waiting to be washed. Look around some more and you would find unmade beds, stacks of unpaid bills and even some shut off notices. Some people would look at this and judging me, say that this is a reflection of me as a parent or my ability to take care of my family.

To those people, I say thank you.

Why in the world would I thank someone for saying something like that? The answer is both simple and complex all at the same time. While under different circumstances I would be insulted, hurt or even angered by those judgmental and thoughtless comments. However, I have 3 boys on the Autism Spectrum and a wife with chronic and often times disabling health issues.

They require ALL of my time and energy. I’m always taking the kids to therapy or to and from school. Working on language skills and even learning and teaching ASL. I make sure they are fed and clothed and as many of their unique sensory needs are met as possible. I deal with meltdowns, nightmares, sleepless nights and I must ensure everyones safety.

I need have priorities and these things are at the very top of the list. That means everything and everyone else will take a back burner.

So when you walk into my house, see the disaster and think that it’s a reflection of me or go so far as to judge me as a parent, I say thank you. I say thank you because it means I’m doing my job. It means my priorities are in the right place. Make no mistake, I would LOVE to have a clean house and be able to pay my bills. However, raising 3 Autistic boys is all consuming, especially when one parent has chronic health issues.

There is only so much time in the day and only so much of me to go around. Choices have to be made. If I have to choose between a clean house, perfect credit and my kids, I will pick my kids every single time.

So thank you.

Thank you for judging me.

Thank you for showing for me that I’m doing the right thing.

Thank you for reinforcing that my priorities are in the right place.

Thank you for pointing out that everything that doesn’t really matter in life is still there waiting for my attention because it means those that do, are getting everything I have.

 

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70 comments
KathrynRogers
KathrynRogers

Your kids come first, and that's being a good parent.  All that other stuff can wait.......

Batty
Batty

Carol--I feel for you!  I Have been where you are.  Ended up divorced after 17 years of his growing mental disorders and increasing problems with the children's special needs.  Today my house, too, is a wreck, but my children are loved and cared for before anything else.  If my husband had put ANY of us ahead of himself, we would likely still be married, but Narcissism doesn't allow for anyone to be important other than himself.

K~ 

dudgeoh
dudgeoh

Another great piece of honesty. :)

 

Our house is a huge effing disaster. As well as sounding like yours, we have a few busted out windows, too, thanks to some meltdowns and tantrums...

Emily
Emily

Awesome. I, too, live in a Disaster House. I so appreciate your message and I'm going to share it. Tired of being judged for stupid crap and having my strength and accomplishments ignored!  

KarimanElgoharyShama
KarimanElgoharyShama

The energy it takes for raising our kids is tremendous. I always look at my house too and think, well kitchen is a mess, clothes are unwashed, and ive forgotton to pay bills too, but you know what, the kids are safe. They are fed, and healthy. I don't think any of those who judge you or us could last a day and do what we do. My hats off to you Rob, you are an awesome parent who does so much for his family. 

DeeBrake
DeeBrake

like looking into my house as well. minus the basement of laundry we dont have a basement. our laundry hampers stuffed to the brim are in each bedroom and one in the laundry room for "household dirties" like towels. most of these things are a mommy and daddy actually have a day off together kind of thing. YA we spent our together time cleaning up the house. YAY for us. not like we have finances for a night on the town anyways...

lostandtired
lostandtired

I want to makes sure that people understand how all encompassing special needs parenting can be. WE AREN'T LAZY.

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StefanieSacks
StefanieSacks

@lostandtired lol ok i get it now my parents have been there at times to people who no nothing about your disibiluiuys all ways seem to think they no more then the pros lol

lostandtired
lostandtired

 @StefanieSacks  @lostandtired No worries at all. The point was just that so often parents get judged for things without people either caring or knowing whats going on behind the scenes. Sure, some people just keep a messy house. However, sometimes things are that way, not because of laziness but because of other, more important priorities. 

 

This was meant to be an example of that. :-) 

A13xiaH
A13xiaH

Love it!!! Good job Rob! Keep up the good work, we will too... Our kids will remember how much they enjoyed spending time with us. I don't think they'll focus on the neglected house work.

StefanieSacks
StefanieSacks

i no some that have home like that an have nt kids .i have autism an ld an my home i grew up in wasnt like that .im not judging you but i dont think it just becuse you have a child with autism .some pople are like that have kids with autism an there homes arent like that some have nt kids an it looks like a striom belw thew ,

lostandtired
lostandtired

 @StefanieSacks I think you may have missed the point. :-)

StefanieSacks
StefanieSacks

@lostandtired oh sry lol what were you saying i do struggle with stuff if it not what what it means im miss lertial lol

shannon
shannon

My heart goes out to you! I could have very well have written this myself! We have 3 boys, age 10 (Asperger's and ADHD), age 5 (speech delay and delay of fine motor skills), and 3(Autistic, ADHD, speech delay, hyperlexic, anger issues, and a growing fascination for fecal matter!). I have had anxiety/depression (Diagnosed) for the last 5 years. I also have a reoccurring problem with kidney stones. Add that to my husband's back being messed up and you make for an interesting situation. I'll still have dirty clothes and dishes and crumbs in the floor probably for a long time to come, however, I'll also have children who know that they come first in Mommy and Daddy's life!!!

Carl
Carl

Perfect!

Marie Brown
Marie Brown

I re-posted on Facebook - on my page "Support for Children with Autism" Thanks.

Lost_and_Tired
Lost_and_Tired

I just want to say how honored I am that my words have resonated with all of you. I think that you are all doing a fantastic job of prioritizing and if my opinion is worth anything, I think that putting the housework off in order to care for your child is a necessary evil, for lack of a better word. However, the fact that you actually do it, speaks volumes about you as a parent. I'm proud to know all of you. Keep it up and stay strong..... :-)

MIKA THARRENOU
MIKA THARRENOU

HI ROB.READING ABOUT THE SITUATION OF YOUR HOUSE ,I RECOGNIZE MY HOUSE SITUATION.I HAVE ONLY A CHILD INTO AUTISM SPECTRUM AND EVEN IF I OFTEN FEEL THAT I AM A BAD HOUSEKEEPER I I PUT MY PRIORITIES TO BE OUTSIDE WITH BOTH MY CHILDREN AND THE DISHES CAN EASILY WAIT THEIR TURN TO BE WASHED. MIKA RHODES ISLAND GREECE.

Karen
Karen

Thank you do much for posting this, I have spent so long worrying about all the things I don't find time to do and wasting energy judging myself. I am going to print this out, laminate it (ASD homes ALWAYS have a laminator!) and place it prominently in my hallway for all visitors to read x

Chantal Sicile-Kira
Chantal Sicile-Kira

Rob, I love your posts! I don't usually have time to comment because my laundry room is calling me, and the sink of dirty dishes is as well - and I only have one child with autism. I always say my house looks lived in. People who come over either feel like they are in a junk store (if they are from new nicely decorated homes, or if they smile and feel at home (usually the young people who come to support Jeremy). Take care, Chantal My recent post Expressing Gratitude

@Senushemi
@Senushemi

<much cheering, clapping, and foot-stomping in the background> Thank you, you made my day. :-)

Lisa Shields
Lisa Shields like.author.displayName 1 Like

My daughter was Special Needs---not Autistic, but I wish I could buy you a mug of cocoa for writing this. I used to have a (mostly) neat house. But when my daughter's issues were finally diagnosed when she was 10, other stuff became more important. Finding the right placement for her, when the IEP team in district were clearly insane was job One. Desi has Dyspraxia, and Dysgraphia---both of them deal with fine and gross motor skill development. The district IEP team wanted her on Ritalin. "But she's not ADD."."Well we think it will help." HUH? So ten years ago, dusting, and picking stuff up took a back seat to helping my child. I wish more people would spend time LEARNING about these things, instead of either judging, or worse offering "helpful suggestions". My daughter's best friend is Autistic. She and Desi have been thick as thieves since they were 13...and I've witnessed the frustrations, the challenges---and oh YES..the triumphs which mean so much more to us. Yes...my house is a wreck. But my kid? She's doing great! Bully for you!

Carol
Carol

Rob, you are a wonderful father and husband. I have 3 children, only 1 that is autistic and is in a residential/school placement, only home every other weekend and school breaks, yet my house is a mess, we are in debt, and everyday chores are difficult to complete as I also suffer from mental illness. If my husband was like you are to your family, I wouldn't have fallen out of love with him and my children would have respect for him. A divorce is in the process and I'm moving out, with the children soon.

Mary Desormeau
Mary Desormeau

Hi Rob! You just described what my house looks like. I only have one son on the spectrum and sometimes feel overwhelmed. I can't begin to imagine having three. I love reading your stories and pictures, and I think you are an amazing father. You have so much to deal with, so many obstacles, yet you always put your family first. I think you're wonderful. Keep up the good job and keep writing. You're so good at it!!

chickiepea
chickiepea

I absolutely needed this today as I am struggling to cook for our extended family, since my kids have such restricted diets and we must host. I know that many will feel that I am a terrible parent for not having a model home, but it's really just the opposite. A great post- kudos!

Forgotten
Forgotten

I wish I had the money to send to help you out with someone to clean & do laundry for you. I'm a single mom w/ twin boys (both autistic) & a lil girl whom I'm watching closely right now, too. I completely agree. My house is covered in toys, blankets, cups, & other random bits of life but it is all signs that life is going on under our roof. My boys were just dxed this summer so I've been up to my eyeballs getting everything worked out. I understand what you are going through. There are only so many hours in the day... My recent post Autism really is a spectrum...

Lee Burgos
Lee Burgos

as a single parent with multiple sclerosis taking care of three boys, ages 7,6 and 4, 2 of which are on the spectrum and the other who has issues due to fetal alcohol syndrome and being born at 24 weeks. i am identifying with all of the things you post! its hard to go through all of this by myself and to read that there are other going through much the same things gives me courage. thank you for being so open with your private life. also i am going to be trying your rom on my epic 4g as soon as i get a spare moment o r two to flash it. times are crazy right now as i am in what seems to be a flare up or just a phase of progression with my ms and we just moved which means all the kids switched schools which created a TON of stability issues. but we are coming out the other side now and getting back on track. keep up the good work and keep leting those of us that are alone in our part of the worls that we are not alone in the big picture

Barefoot Liz
Barefoot Liz

My house looks the same. I'm a single mom of a special needs child. I may not have multiple children to care for, but this one boy takes ALL of my time/energy.

Lost_and_Tired
Lost_and_Tired

Hey, everything is relative. I have only respect for you doing this on your own. Thank you for sharing :-)

Julie Fletcher
Julie Fletcher

Hey Rob, mom of 6 here, 1 with Autism, another with SPD, and the others are highly spirited. You know, the best thing their Dad has done when they were scribbling on the walls? He joined IN. We had a Call of Duty theme going on. :-) My recent post Fruit Smoothie Recipe

Amanda
Amanda

I think you are amazing! Keep on doing a fantastic job :)

Julie Costanten
Julie Costanten

Instead of judging perhaps family and friends can act like they should and HELP!!!!! Just a thought! prayers to you Rob and keep up being the awesome parent and husband you are! :)

Lynda
Lynda

Hi I can so relate. I have # boys & one has child Autism & I have MS...Hubby works as much as he can just so we can sorta make ends meat. ) I was dx with MS while he was on tour in Iraq the baby was dx with Autism when he came home He is out of the military now so he could help me) I have given up on a clean house because I am just tired & would love to spend time with our boys than spend it cleaning. lol Some days getting up is hard enough with my illness. My son doesn't need the stress of mommy over doing it & being stuck on IV steriods... Be Blessed &thanks for the wonderful post!!! Lynda

Lost and Tired &raquo; My broken heart
Lost and Tired &raquo; My broken heart

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Alex
Alex

Rationalization. The chaos makes it worse for the kids. When will you stop with the pity? When will you do the right thing? When will you get support? When will you stop with the excuses? You're not helping your children, your wife, yourself.

shannon
shannon

How many autistic children do you have? None you say???? Then shut up! I don't care if you are a doctor, therapist or whatever else!! If you don't have autistic children then you have no idea what our day to day is like!!!!!!!!!!!!! Support??? Yes, if you can find a means of support for us, please let me know!!!! There is no one who will even sit with my children long enough for me and my husband to have dinner together!!!! So unless you are going to buy us all a maid and a nanny, keep your thoughts to yourself!!!!!!!!!!!!

Lisa
Lisa

Alex, one word... "REALLY?" For most of us we don't have time for pity and excuses! Our family does not qualify for assitance in any way shape or form. Respit care in our area, provided by the county no less, is $22 an hour. No one in our community is stepping up to help either. Feel free to contact me, I'll get you my address so you can come help. Better yet, let me know where you're at! My Jake, a.k.a Captin Chaos, will show you how well he LOVES an unkept home. Rob, you ROCK!

@Senushemi
@Senushemi

When will I get support? As soon as you get your butt over here and support me. Too busy? So is everyone else. The man is busting his hump and you think you need to harass him for that? Sorry, but it's time you wake up and smell the b.s.

Sherie
Sherie

Wow... how do you know all that, Alex? I *KNOW* that perfectly clean, orderly places put my ASD kiddo on edge, actually. He overloads in places like supermarkets, because of all that order to all that stuff. But give him a moderately cluttered house, and he's calm. It might be different for someone else's kiddo, but I know mine, and you would be wrong in so many ways if you said that about him. In fact, it sounds to me like this dad is doing a pretty smashing job of supporting his family, and getting the support that *he* needs in order to keep doing his very best for him and his. What exactly would you rather see him do? Run away from "the problem" like my son's father? Ignore his kids' breakdowns and his wife's needs in order to run another two loads of laundry? Come on and stop with the internet diagnosis already, you sound like someone just trying to make themselves feel better by putting someone else down.

Lost_and_Tired
Lost_and_Tired

Thank you for making my point for me. Clearly you have no idea what it's like. We have all the help we can find right now. As with many families in our situation, we are on our own much of the time. This isn't about pity or excuses. What exactly is the right thing? I wish you the best my friend but you completely missed the point of this post.

Stacy
Stacy

Thank you for putting a positive spin on this! I'm a single mom with four kids all under age ten, the oldest with aspergers. It is crazy on most days and getting the house clean is virtually impossible. I must say the picture you posted looks very tidy compared to what my house is like. I can get one room tackled, turn around and the next morning it is already a mess again! Thanks for encouraging us all to do the right thing. I think I sometimes worry about the mess too much and get frustrated with the kids, but if we could just get rid of that 'pressure' we feel from others, then we could enjoy the fact we put our kids' needs first!

Lost_and_Tired
Lost_and_Tired

No problem. Thank you for sharing your thoughts and experience.

jacqui
jacqui

Very inspiring! Your priorities are definitely in the right place! My recent post The P.S. Email…

Lost_and_Tired
Lost_and_Tired

Thanks alot. I do my best to keep them there. :-)

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