We heard from Dr. R yesterday. He has made the arrangements with the pharmacy and they will receive their supply of Clozapine for Gavin on Monday morning. That means we will have to have blood work done on Monday morning in order to get the results in time to begin the new medication on Monday. …
View full postThis is just an FYI. I have listed a new Samsung Transform Ultra from Sprint. There is no contract required and the ESN is clean. I’m selling this 2 week old phone in order to bring in some extra money to cover the travel expenses for next weeks doctors visits. We have a couple appointments …
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We just had our 4th and final appointment at the Cleveland Clinic in the last 5 days. We have a short reprieve but begin all over again very soon. Today, Lizze had to be in radiology for a Barium swallow study. This was because she’s been choking a great deal lately. Apparently, after the study …
View full postMy poor little Emmett John is having a rough time. He’s been absolutely miserable because of this stupid fever flare. I wish I could make this go away but there’s nothing I can do accept try like hell to comfort him. He’s not always easy to console. However, I did manager to get him comfy …
View full postI wanted to update you all as to what is going to happen this week with Gavin. At this point, honestly, I think he’s coming home. I don’t like the idea because I know that nothing has changed with Gavin and it will only be a matter of time before this happens again. I don’t …
View full postYesterday I had mentioned we received some concerning news about Emmett. Unfortunately, it was drown out by all the Gavin drama. However, Emmett therapists are concerned that Emmett is retreating back into his shell. Before Emmett came out of his shell last year he never spoke. It was actually believed that he was deaf because he …
View full postElliott and Emmett are in rare form as of late. They can get along wonderfully one minute and than be at each others throats the next. I had the boys for 6 or 7 hours yesterday while Gavin was receiving his infusion. I pretty much lost my mind, at least what’s left of it. Elliott …
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I’m working really hard to partner with companies that want to provide products for giveaways. My recent partnership with Idolian means that I will be able to giveaway android tablets on a regular basis. To me, this is really cool. My goal has always been to help people. My hope is that by providing the …
View full postChildhood disintegrative disorder: Our Journey Begins Shortly after noon today we will begin our journey to discover the truth behind what’s happening to our oldest son, Gavin. I’m scrambling today to get as many records as possible on such short notice. I’m really nervous about today and I’m not entirely sure what to …
View full postAs the morning goes on the worse and worse I feel. I think I finally caught what the boys had/have….. sigh
View full postMay 08 2013
Welcome once again to the #Autism Blogroll for 2013 I’ve brought back my #Autism Blogroll for 2013 and we are starting fresh. If you added your link in the past, you should do so again. Every year I have to purge the database because there are simply too many links. So it’s time to add …
Permanent link to this article: http://lostandtired.com/2013/05/08/join-my-blogroll-and-increase-traffic-to-your-site-for-free/
May 22 2013
I was having a very emotionally difficult evening yesterday. That’s no secret. I had to take a time out from my struggles and take the boys to see Dr. Patti, their psychologist. Such is our Tuesday evening ritual. Lizze and I were bring Dr. Patti up to speed on all that has transpired in the …
Permanent link to this article: http://lostandtired.com/2013/05/22/emmetts-lego-creation-the-rectangle/
May 21 2013
Elliott came home from school baring gifts of artwork for Mommy and I. This time it was a space setting, complete with a sun and planets. There’s even a satellite. Something that I look forward to everyday is seeing what new creation he brings home. To me, what he draws can provide insight into how …
Permanent link to this article: http://lostandtired.com/2013/05/21/elliotts-artwork-the-planets/
May 21 2013
At this moment, I’m hiding in my bedroom pretending for a few minutes that I have the luxury of quiting. Quiting everything and just running away.. Of course, I don’t have that luxury and even as I sit here, trying to be invisible, it’s clear as day that I can’t run away from anything, even …
Permanent link to this article: http://lostandtired.com/2013/05/21/i-dont-have-the-luxury-of-quiting/
I wanted to share this with my readers because I think that it’s so important to remember that our actions have consequences.
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May 21, 2013
Permanent link to this article: http://lostandtired.com/2013/05/21/never-forget/
May 21 2013
We’ve all heard, third times a charm before. For us today it’s the second times a charm. About 15 minutes into our 1st attempt, I got sick. Lizze couldn’t drive so I had to turn around and go home. After resting a little while, I felt better and was able to attempt a second run. …
Permanent link to this article: http://lostandtired.com/2013/05/21/returning-the-holter-monitor-to-akronchildrens-take-two/
May 21 2013
Update: Since the writing of this post, I’ve learned that kids with allergies will be offered an alternative lunch. Having said that, while the effort is a nice one, it’s still not a good idea because of cross contamination. On Thursday of this week, the Akron Aeros baseball team, based in Akron Ohio, is doing …
Permanent link to this article: http://lostandtired.com/2013/05/21/akronaeros-are-excluding-kids-with-allergies-by-changing-the-lunch-menu/
May 21 2013
The boys are getting to school a bit late this morning in because Gavin had to finish the heart monitoring before we left. It didn’t make sense to take Elliott to school and then take Gavin, 30 minutes later. After dropping them off, we will be making our way to Akron Children’s Hospital to drop …
Permanent link to this article: http://lostandtired.com/2013/05/21/returning-the-holter-monitor-to-akronchildrens/
Rob Gorski is a husband and father of 3 boys on the Autism Spectrum. Gorski began his writing career in June of 2010 with his multiple award winning blog Lost and Tired: Confessions of an Autism Dad. Recently cited as the 3rd most influential Autism Blogger on the internet by Dr. Oz's Sharecare website, where he is an expert on Autism.
His mission is to create dialogue, spread Autism Awareness, educate the public on how technology can benefit a special needs family and do so in ways that society can relate to and understand.
Gorski advocates for special needs families and those on the Autism Spectrum, both young and old.
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