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Lost and Tired

Lost and Tired

(1080 comments, 2386 posts)

I'm Rob Gorski and I started this blog in January 2010 as a means of sharing my family's real life journey raising 3 boys on the #Autism Spectrum.

It's important for people to understand what Autism can really be like and the impact it has on the family. We aren't a TV show and there are no actors. This is our struggle, our journey...and it's all true.

I am "Lost and Tired" and
this is "My Reality #Autism".

Home page: http://lostandtired.com

Posts by Lost and Tired

Dysautonomia: Summing things up 05/17/2012

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We made it home safely. The return trip was much easier then the trip up there. We met with the doctor for about an hour and had a very interesting conversation. He took an extensive background medical history.

After the history,  he did a through physical exam.  Believe it of not,  the doctor actually found Gavin’s lower reflexes.

What he showed us is that Gavin’s reflexes are actually More >

Dysautonomia 05/17/2012: The vitals

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They just took Gavin’s vitals. He is experiencing orthostatic bp issues.  That means that his bp drops when sits or stands.

At least we are in the right place.

**Thanks for reading**

       -Lost and Tired

Please join our Autism Help Forum

Look for “Autism Help” app at the Google Play Store

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Dysautonomia: Arrival at the Cleveland Clinic 05/17/2012

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We have arrived at the Cleveland Clinic,  exactly on time. Traffic was horrible and Gavin is already out of it

We are all checked in and waiting to go back.

**Thanks for reading**

       -Lost and Tired

Please join our Autism Help Forum

Look for “Autism Help” app at the Google Play Store

function resizeCrossDomainIframe(id, other_domain) { var iframe = More >

Dysautonomia: Our quest begins with the first step

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We are on our way to hopefully find answers.  It’s about an hour and twenty minute drive,  not including traffic. I have a feeling that this is going to be a really long day.

I want to thank our parents for taking Elliott and Emmett last night.  This allowed Elliott to get to school and Emmett to just be able to relax. Thank you all for the help. 

Please say a prayer for us today.  Perhaps More >

Dysautonomia: 8 years in the making

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Tomorrow is a big day for the Lost and Tired family.  We will make our trip to the Cleveland Clinic in search of answers to Gavin’s continuous decline in health.

For those of you new to this blog and our story,  I give you some brief back story.

Gavin is an extremely rare child. Not only is he an awesome kid but he has a huge list of very serious health issues.

So far this is what we know for More >

Dysautonomia, Epilepsy and Today’s Followup: 05/16/2012

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So we made it home today from Gavin’s appointment.  It actually went really well. Nothing has changed but I think that we’re even more sure that he is definitely dealing with with some form of Dysautonomia.

We had to take Emmett with us as well. He did really well while we were there because he just loves Dr.  Brown.

However,  all the way up and all the way back,  he screamed at the top of his More >

Dysautonomia: Following up from the hospital stay

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Gavin in will be returning to see the neurologist in the morning.  This is an epilepsy and Dysautonomia follow up.

While he hasn’t been officially diagnosed with Dysautonomia,  we expect that to be soon.  When he was admitted 2 weeks ago, that’s what they treated him for.

Tomorrow is a follow up from the EEG and the hospital stay.  Hopefully,  it will be uneventful and quick and painless.

I’m More >

Screw you Apple (UPDATED)

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I’m so pissed off right now. I have dozens of reasons for disliking Apple and all they stand for but this latest issue has affected me directly. We switched back to Sprint in order to save money over Verizon. We were able to trade our phones in and get phones at Sprint for free. I am, or was, going to be trading mine in on Friday for the new HTC EVO 4G LTE. It’s the same price as my Galaxy Nexus More >

My accomplishments of the day: 05/15/2012

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While today started out really crappy,  it ended up pretty well. I actually got quite a bit accomplished.

I took Elliott to school,  got caught up on some emails,  wrote two articles,  made a few important phone calls,  hit the post office,  cleaned the fish tank,  picked up Elliott from school, picked up groceries,  stopped at the pharmacy, cut the grass,  cleaned up after the dogs,  filled the More >

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