Autism
Today’s Victory: 05/15/2012
2The boys were all driving me crazy and I mean banging my head into a wall crazy. In a last ditch effort to broker a peace deal, I took them outside, which is something we don’t always like to do in our neighborhood.
We got the tee ball set out of the garage and set it up.
Elliott and Emmett took turns hitting while Gavin played outfielder. Gavin didn’t get to hit because he would have likely More >
Special Needs Parenting: The delicate balance
1I’ve been doing the whole special needs parenting thing for the better part of a decade now. People always ask me what is the most difficult part.
They are always surprised by my answer. To me, the most difficult part of special needs parenting isn’t the kids, it’s everything else.
If all I had to do was physically care first my kids, I could do that. However, everything else in life More >
Migraines: A last ditch effort for relief
8Lizze was at the neurologist today for her migraines. She almost always has a migraine. They don’t respond to medications and she is miserable all the time.
It has gotten to the point where the only left that they can do is Botox injections. Apparently, people have found relief from chronic migraines with Botox. Lizze isn’t excited about the idea but I think at this point, she dislikes the More >
Every day is a trial of patience
2My kids are really, really trying my patience. Emmett was in a mood already this morning, however, upon Elliott arriving home this afternoon the screaming began.
Lizze had two appointments that basically lasted all afternoon. I had all three boys for most of the day and have become a Daddy on the edge.
Emmett either doesn’t or can’t listen, I’m not sure which. Elliott really struggles More >
Thank you Samsung
0I wanted to share this with the community because I’m really proud of Samsung for stepping up and providing me with the means to give away the Galaxy Tab 8.9 a couple of weeks ago.
Often times we never get to see the direct impact that generosity such as this has.
Robert, the winner of the giveaway, sent me this last night. It’s a picture of his daughter using the Galaxy Tab. She’s More >
This week’s fever flare
0We woke up this morning to Emmett hitting another fever cycle. His mouth sores are popping up again and he is extremely grouchy.
We kinda figured something was wrong when Emmett was asking for his special ice cream yesterday.
He only asks for this when his tongue is breaking out in sores.
This is going to be a tough cycle because we can’t give him anything for the cycle. The infectious More >
Moving Forward
1Putting all the crazy from this past week behind us, we are moving forward. This is another really big week for the Lost and Tired family.
Gavin will finally make it to the Cleveland Clinic and be seen by the Dysautonomia specialist. If you recall, he was supposed to be there about 2 weeks ago but ended up stuck in the Hospital because he couldn’t maintain his own blood pressure. This will More >
#Autism: Discovering a hidden talent
3Gavin has tons of talent in many areas but I’m completely blown away by the emergence of his latest hidden talent.
Gavin has been drawing in his room for most of the day. He’s been really focused on drawing today for some reason. While Gavin has always loved to draw, they have always been very simple and featured more stick figure type drawings.
Tonight he showed me his sketch book and I More >
Enough is Enough
17I have decided to move this conversation into the public forum. I’m doing so because I want to make sure there is a public record for what I have to say. At this point, I don’t want to leave any room for further misunderstanding and I want proof of what is going on.
Over the past few days this person has been harassing Lizze, telling her that I’m abusive and that she needs to take the kids More >











