Autism,Aspergers Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Category Archive: Bipolar

Jul 27 2012

One down, three to go


Gavin had his first of four blood draws today.  This will be checking his lithium levels to make sure he’s maintaining the property levels. 

More blood will be taken Monday,  Wednesday and Friday of next week,  for the same purpose.

The hope is that these tests will provide more information about how the lithium is being processed in his body.

He did really well today and didn’t scream.  He was polite and respectful as well.  Before going back,  I reminded him of how he should act while he is there. 

Great job Gavin.  One down,  three to go.

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**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/07/27/one-down-three-to-go/

Jun 26 2012

#Autism and talking at the speed of light


Something we haven’t had to deal with for awhile is Gavin’s excessive chatter. Gavin goes through these periods of time,  usually when manic,  where he literally talks nonstop. Much of the time he’s either himself or seemingly just stringing words together.

We have hit another one of these cycles recently. Let me tell you,  it really takes a great deal of effort to cope with the incessant talking.

It reaches the point,  as it has today,  where I simply start tuning him out. I don’t do that willfully either,  it’s like a defense mechanism that kicks in after hearing the same friggin thing,  over and over and over again.

Already today,  I have made several requests of God to please not let this be a manic phase. I do think knowhow we would manage to survive Gavin being manic right now.

If you have personal experience with a child that has a bipolar type mental illness,  you likely know what I’m talking about.  If you have not experienced this,  count yourself lucky. It’s exhausting and frustrating and sometimes even dangerous.

Gavin has hit a true manic phase in awhile,  so he’s probably due.  However,  with any luck,  he will hang on until we find a new psychiatrist.

At least we see Dr.  Pattie tonight. 

**Thanks for reading**

       -Lost and Tired

Please join our Autism Help Forum

Look for “Autism Help” app at the Google Play Store

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/06/26/autism-and-talking-at-the-speed-of-light/

Nov 12 2011

I think Gavin’s manic


I think that Gavin may be hitting a manic phase once again. When we had his bloodwork done this week,  we had them check his Lithium levels as well..just be on the safe side.

He’s been getting up very early in the morning,  which is typical for him when he’s manic.  He’s talking essentially,  which is another sign as well.

Hopefully,  if the Lithium levels are off we can correct things before it gets worse.

In the spirit of trying to remain positive,  at least if he is manic,  he hasn’t reached the point where he thinks he can fly.  When he begins having delusions of grandeur,  I know we are in trouble.

- Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

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Permanent link to this article: http://lostandtired.com/2011/11/12/i-think-gavins-manic/

May 25 2011

Blood work here we come


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On our way to get Gavin’s weekly blood work done. This time we are also looking at Lithium levels as well. We just need to make sure we are good there because we are seeing some cycling.

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Permanent link to this article: http://lostandtired.com/2011/05/25/blood-work-here-we-come/

May 25 2011

A Clozapine review


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Gavin and I are at Dr. R’s. We are following up on the Clozapine and reviewing Gavin’s progress.

While I completely agree with the medications I do have my concerns. Gavin’s chest pain for one. Most likely nothing, but it could also be related to the Clozapine. Gavin is also still forgetting things more frequently now. However, the hallucinations seemed to have stopped and that’s a GOOD thing.

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Permanent link to this article: http://lostandtired.com/2011/05/25/a-clozapine-review/

Apr 13 2011

Wanna feel like me…


Trying to describe what it feels like to lose a child to the regressive form of Autism is impossible. I know that most people won’t understand when I say “it’s like Gavin died” but that’s exactly what it feels like. Gavin was born typical and then one day a switch was flipped and the Gavin we had known and loved for the first 3 or 4 years of his life was gone. I don’t think there is any way to describe the grief I feel every single day.

Everything we had planned on and wanted for him faded away into nothing. The hardest part is seeing him every day and knowing that he’s no longer who he was. Not many people will understand but it is the reality I live in.

Danny Gokey did this song for his wife that died. This song means a lot because it articulates how I feel in a way that my own words couldn’t. I hope it touches you as much as it has me.

YouTube Preview Image

 

-lost and tired

Permanent link to this article: http://lostandtired.com/2011/04/13/wanna-feel-like-me/

Mar 28 2011

Something I hadn’t considered……


Something Lizze and I both failed to consider is whether or not Gavin is suffering from delirium. When he was at the Cleveland Clinic last year that’s what they diagnosed him with. They told us it’s a life threatening condition.  I don’t know how we overlooked that. We got caught up and focused on the hallucinations and wanting to stop those for him that we failed to see the larger picture.

Gavin sees someone at Dr. R’s office today and we will figure out what needs to happen. As much as I mentally prepared for this conversation I’m not ready to have it.

Putting aside for a second what Gavin may need, what about the rest of the family. How will we survive with this added pressure? How can we be two places at once. Dividing and conquering is no longer a realistic option. If Lizze goes with him and stays then she can’t take her meds. That will have a devastating impact on her. She can’t physically watch the kids by herself either because again she couldn’t take her meds. If no one stays then we will be driving back and forth almost everyday and we CANNOT afford that either. There’s also the physical and emotional toll. As I said Lizzie will probably have to stop at least some of her meds either way. That will disrupt the fine balance she maintains with fibromylagia (if you you even want to call that a balance).

Then we have to guilt factor….and whether it should be or not it weighs heavy on us.

2:45pm we go in to figure out what we are supposed to do. We need everyone on board to make this as painless for everyone as possbile…..

Please say a prayer today around that time…….

-lost and tired

Permanent link to this article: http://lostandtired.com/2011/03/28/something-i-hadnt-considered/

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