Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Category Archive: Educational Video

Sep 29 2012

Reactive Attachment Disorder: The Tantrum (Viewer Discretion Strongly Advised)

Before you even watch the following video, we must be clear on a few things.

You should read Behavioral Crisis: Here’s what happened first for background.

A few things to keep in mind:

1) This is not an #Autism related meltdown. It’s a RAD related tantrum. Big difference and must be handled differently.

2) Gavin has complete control over this behavior. You don’t have to like it, but it’s a fact.

3) The self-injurious behavior is meant to manipulate us into removing the consequence he’s facing for his previous actions. We cannot intervene.

4) This is not easy or pleasant to watch. Turn your volume down and don’t let young children view, until you have seen the whole video.

5) I’m not without compassion for Gavin, however, this has to be handled in a very specific way.

6) As bad as this sounds, he does not need comfort. Remember, this is a temper tantrum not a sensory related meltdown.

7) I document these for a couple of reasons:

a) proof as to how his injuries occured

b) behavioral documentation for his doctors and specialists

c) educational purposes

 

Having said all of the above. Here is the footage, documenting what happened this morning. Again, please remember that while Gavin does have aspergers, this is a reactive attachment disorder related temper tantrum.

This is handled in a manner that is significantly different from a sensory related meltdown, common to people on the spectrum.

By sharing this, I hope to provide insight into what families like mine are trying to cope with.

Lizze and I both want something positive to come out of this nightmare. Hopefully, by helping to educate the public, people can become more aware of what some special needs families are going through.

Again, this video is unpleasant but important to watch. Please be aware this is very loud and Gavin is very violent towards himself. Viewer discretion is strongly advised.

Also, the only thing you will really hear me say during this video is basically reminding Gavin to scream into his pillow and keep the tantrum on the mattress.

 

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Permanent link to this article: http://lostandtired.com/2012/09/29/reactive-attachment-disorder-the-tantrum-viewer-discretion-strongly-advised/

Aug 02 2012

#Autism and The Anger Management Cheat Sheet

First of all, I want to say that this was totally Gavin’s idea. He’s wants to share something that is helping him to manage his anger and frustration. I really think he likes the idea of being able to help other kids that are challenged by anger and frustration. I’m really proud of him. :-)

Here’s a little background. This came about the other day while at therapy. Because Gavin is struggling with neurological degradation, one of the issues is that he has lost some control over his tongue. This means that sometimes he can be difficult to understand. This can be very frustrating for him, especially if someone asks him to repeat himself.  That’s what prompted him to work with his 

speech therapist and create this list. 

He came up with this and she helped him to physically put it together and print it out.

He’s so excited to have created this little anger management cheat sheet and asked if I would help him share it with the whole world,  as he put it.

So here you go.

Below, you will find Gavin’s little explanation video about what this is and how and why he uses it. I only helped a little tiny bit towards the end. Below that you will find a picture of his anger management cheat sheet. By clicking on the image you will be able to download a copy in .pdf format. Gavin would like you to have ability to get your own copy of his plan, so you can use it for yourself, if you think it could help. :-) Lizze and I both are so proud of how well he’s been doing recently. I think maybe, providing him with the means to help others can help him to not only feel good about himself but also feel like he’s making a difference.Please feel free to leave any and all positive feedback you would like to. He will be thrilled to know what you think.

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Permanent link to this article: http://lostandtired.com/2012/08/02/autism-and-the-anger-management-cheat-sheet/

Jul 05 2012

The MegaMeltdown

Today has been a rough day to say the least.  We were all disappointed that our plans to go out of town for the day fell through.

However,  things only got worse as the day went on.

Gavin had,  what I can only describe as MegaMeltdown. Every time this happens,  I always find it to be worse than the previous meltdown,  which is a scary trend.

What happened this afternoon was that Gavin was not being nice to his brothers and when they tried to get help from Lizze and I,  Gavin tried to stop them. Lizze caught him red handed and immediately intervened, sending Gavin downstairs to me.  She spoke with the boys and I spoke with Gavin.

We have to pick our battles with Gavin because any time he is disciplined,  he melts down.

Today was no different.

I’m fact,  this is probably the worst meltdown in recent memory. The whole reason he melted down was because he was held accountable for his actions.

The reason we opted into this battle was because under no circumstances should Gavin prevent his brothers from seeking us out for help. That is absolutely unacceptable and will not be tolerated.

I wouldn’t let anyone prevent Gavin from  seeking help and I certainly won’t permit Gavin doing that to his brothers.

That’s a huge safety issue.

The consequence was that Gavin would have a bowl of oatmeal,  I stead of a hamburger,  for dinner. He had fruit and vegetables as well,  so nothing was actually withheld,  just substituted. It’s the only thing that has a number bering on him.

Throughout this meltdown,  you will see a few times where he stops the meltdown on a dime. He does this in order to wipe his nose,  look at his leg and various other reasons.  So we know that he can stop.  He just wouldn’t stop.

The level of self-injury was much greater than usual. Most of this is actually for manipulation purposes and used as a means of trying to get what he wants or punish us for not giving it to him.

With that said,  I also feel like he’s simply coming unglued and we very clearly need to intervene.  The problem is what exactly are we supposed to do?

I don’t know what he needs and neither do the specialists.

No one really understands what is going on with him and so knowing what to do is even more evasive.

This is no way to live and I don’t think we can continue allowing this to go on.

Editors note:

Before I even finished this post,  Gavin had his 2nd MegaMeltdown of the afternoon. He was playing with his brothers in the dining room,  as I supervised. Gavin was repeating the same behavior that got him in trouble earlier this afternoon. He just doesn’t respect/understand his brothers boundaries and certainly isn’t learning from his mistakes.

 

PLEASE TURN YOUR VOLUME DOWN. THIS IS NOT KID FRIENDLY. 

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Permanent link to this article: http://lostandtired.com/2012/07/05/the-megameltdown/

Apr 15 2012

#Autism: The art of redirection

As a father to 3 special needs boys, I learned a very long time ago that one of the very best ways to counter some of the behavioral challenges is by using redirection. Redirection doesn’t always work but it’s my go to approach when things start to go down hill. I wanted to share a video of me redirecting Emmett’s attention the other day. You may remember that I had Emmett to the pediatricians office recently because he has hit a second fever flare, immediately following a previous one. 

Emmett did not want to be at the doctors office and was doing everything he could to get out the door and run away, while we were waiting for the doctor to come in.

He got really upset and began to have a meltdown. I decided to try and redirect his attention away from the fact that he was somewhere he didn’t want to be. I tried reading him books or letting him play with my phone. Nothing worked and so I had to take a more aggressive approach. About halfway through I realized that I should record this because someone may benefit from watching how I distracted Emmett.

Redirection is really an art form because it’s not always easy to pull off and it can be exhausting, in-and-of-itself.

However, when you get a feel for how to effectively do this, it does get easier. You will learn the types of things that will capture your child’s attention away from what is upsetting them. It does however, take a bit or trial and error before finding something that will work, at least part of the time. In my opinion, this is one of those situations where the end justifies the means. It may take some work but I think anytime you can avoid a meltdown or your child feeling distressed, it’s well worth the effort.

In this video, you will not see the meltdown because I didn’t record anything until I was actually using the camera on my phone as part of the redirection.

 

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Permanent link to this article: http://lostandtired.com/2012/04/15/autism-the-art-of-redirection/

Apr 03 2012

#Autism, Animals and Independence

I wanted to share with you all another victory Emmett has experienced since getting his puppy, Bella. Bella is a Boxer puppy and Emmett’s new best friend. Our hope was that she would help to bring Emmett out of himself a little bit and we could continue to make some forward progress. I wanted to empower Emmett with a sense of independence, as well as responsibility. So far, Bella has not only made a great addition to the Lost and Tired family, but she has helped Emmett to do things that he has never been willing to do before.

He will now walk in the mud to go bring Bella back into the house after she goes potty. He as some significant sensory issues that have always interfered with him getting dirty. He normally will not tolerate his shoes getting muddy or wet. However, if Bella is involved, he is willing to do whatever it takes to care for her.

In the short video below, you will see Emmett, patiently trying to groom Bella. I only got the tail end of the process on film but you’ll get the point. He feels a sense of responsibility for her and wants to interdependently care for her as much as possible. She provides comfort for him when he is upset and consoles him when he’s in a fever flair and in lots of pain.

Animals and Autism can be a truly amazing combination. Please feel free to share your experiences with Animals and your Autistic child or child with special needs. :-)

 

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Permanent link to this article: http://lostandtired.com/2012/04/03/autism-animals-and-independence/

Apr 01 2012

#Autism: How I manage a meltdown and self-injurious behavior

The Lost and Tired family is once again struggling with daily meltdowns and ever increasing self-injurious behaviors. This is one of my very least favorite things to deal with because there is no clear cut right or wrong answer. As my son gets older and stronger, the severity of these meltdowns and self-injurious behaviors becomes greater and greater. We have been coping with severe meltdowns and self-injury for many, many years.

What makes this particularly challenging for me is the fact that more traditional methods or interventions don’t work with Gavin.

As with many Autistic children, everyone is unique in their own right and so it would stand to reason that behavioral interventions would vary as well. In Gavin’s case, we have had to employ a more aggressive approach. It’s not fun for me or my wife but it does have a proven track record of success. I’ll be real honest with you, when you’re dealing with meltdowns of this caliber, it becomes more about  bringing it to an end, than taking a softer approach.

When these occur, the entire family is thrown into upheaval. The younger siblings are terrified and there is the constant fear or someone getting hurt, not mention that one of my neighbors are going to call the police.

The priorities are to immediately ensure everyone’s safety. That often times means evacuating the the rest of the family to an upstairs bedroom, while I deal with the meltdown. When self-injury becomes a problem, I have to find a way to restrict his movement without making physical contact, at least as much as humanly possible. If he is being unsafe with his hands, I require him to sit on them, until they are once again under control and not a threat to anyone or anything.

Likewise, when his feet and legs become dangerous, he is instructed to sit like a pretzel. This, at least in theory, limits his movement and ability to kick anyone or anything.

When these events occur, it’s not about making Gavin comfortable, it’s about literally surviving the meltdown and limiting the risk of injury.

As Gavin gets older and struggles more and more with self-injury, it becomes so important that I document as much as possible because there needs to be a clear record of what happened and why he’s injured. It’s sad, but we have to protect ourselves in the event that any of Gavin’s injuries are ever called into question. If you asked me 11 years ago if I ever thought I would have to be taking these measures, I wouldn’t even be able to imagine why that would ever be necessary.

Time changes many things and sometimes, those changes are not for the better.

 

In this video, this is meltdown number 2 for that day. I’m out of patience and it was really hard to remain as calm as I did. I have to use a very gruff voice and be very direct with him. I can’t play into anything that he says because a large portion of what he says if for the sole purpose of manipulating me by attempting to make me feel bad. There is a long documented history of this type of manipulation. I’m not being cruel, this is simply the only way we can survive these meltdowns and minimize the fallout. 

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Permanent link to this article: http://lostandtired.com/2012/04/01/autism-how-i-manage-a-meltdown-and-self-injurious-behavior/

Mar 24 2012

#Autism: How I manage a meltdown

For many years we dealt with meltdowns in solitude. We didn’t ever let anyone see these because we didn’t think they would understand.  It seemed like something we should keep private. However, all that did was further isolate us from the rest of the world. We would explain to our friends and family about the meltdowns but never allowed them to witness one. Anytime Gavin would get all worked up we would leave and deal with that at home, away from everyone else.

That was one of the biggest mistakes we could have made. I say that because, there is no way I could expect anyone to understand the gravity and impact of one of these meltdowns. I mean, how could they. It’s difficult to put into words what not only Gavin experiences but we experience as well. When we would tell someone, that we couldn’t come over because it would inevitably lead to overstimulation and then a huge meltdown, they didn’t understand. The problem that their definition of meltdown and what we were experiencing with Gavin were completely different. We were told we were overreacting or making a bigger deal out of it than we should. After all, Gavin was so cute and small, how could he possibly do the things we were saying he does?

At some point and I don’t remember when, it hit me that the only way they would ever understand is if they experience it first hand. This meant that when we were at someone’s house and Gavin was winding up, we would deal with it onsite, meltdown and all.

Needless to say, it only took once before most people finally got it. They could not believe what they were seeing. Maybe this is wrong of me but there was something liberating about someone else witnessing what we went through every single day. I was such an awesome moment to know that people were finally starting to understand.

I can’t tell you how many of our family members, teachers, therapist and doctors have told us that if they hadn’t seen it with their own eyes, they would never have believed what he was capable of.

Having said everything above, I want you to understand why I share these videos.

I truly think that people won’t understand until they experience it themselves or at least witness it first hand. I’m not ashamed that Gavin has these meltdowns and neither should he. In Gavin’s case, he is emotionally about 3 or 4 years of age, when his body is a 12 year old boy. Gavin reacts like this at times it affects the entire Lost and Tired family. We do our best to help him work through them in the only way that works for him. To someone without first hand knowledge of Gavin and what works and what doesn’t, might think this approach is cruel or without compassion. All I can say is that we have tried everything over the years that we could think of and this approach is the only one we have ever had success with.

Plus, we have other children to worry about as well. If it were just my wife and I, perhaps we could afford to handle things a bit differently. However, our two other boys are terrified during these meltdowns and so I have to try and defuse them as rapidly as possible.

Gavin doesn’t have these as often as he used to but they are still very intense and disruptive. Lately, he has begun the whole self-injury thing again. In this video you even hear me remind him what happens if that starts up again.

My hope is that these videos will help others to better understand what we mean when we use the word meltdown. Every child is different, but I think this will help get the point across.

 

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Permanent link to this article: http://lostandtired.com/2012/03/24/autism-how-i-manage-a-meltdown/

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