Autism,Aspergers Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: 10 years

Jun 02 2012

The world’s most annoying kids shows


My kids love cartoons,  as I did when I was their age.  However,  is it just me,  or the cartoon getting more and more annoying. Maybe I’m just getting old or perhaps,  my tastes have changed.

Anyway,  I was wondering what you think is the world’s most annoying cartoon or kids show?

While we don’t have cable,  we stream Netflix.  This gives the kids access to decades worth of cartoons and kids shows.  Their current obsession is Sonic the Hedgehog.  The cartoon is over 10 years old and has my vote for the most obnoxiously annoying cartoon.

Permanent link to this article: http://lostandtired.com/2012/06/02/the-worlds-most-annoying-kids-shows/

Nov 17 2011

Has this ever happened to you?


Over the past 10 years or so, we have been through many things, as far as special needs parenting goes.

I was looking back on the last decade and I started thinking about something and I thought I would pose this to you folks to see what your experience is.

When Gavin was in kindergarten, he was diagnosed with Aspergers Syndrome. Despite having two independent, very repudiable doctors confirm this diagnosis, the kindergarten teacher wouldn’t accept it. I don’t want to drag all that drama up again but you needed some background.

Anyway, this teacher was a complete nut job. She was convinced that Gavin problems were food allergies and would openly express her opinions to Gavin. Gavin became convinced that everytime he ate anything with sugar that he would get sick. Anytime he make a bad choice it was because of yellow dye. The list goes on and on.

She would look over the ingredients of his lunch and decide where or not he could have it. We had no knowledge of this until much later.

My point is that, this woman’s actions have profoundly affected Gavin, even to this day. If he gets a tummy ache, he will say something like, “I must of had to much sugar”.

Many of the dietary issues we have had with him stemmed from this idiot teacher.

It has taken a great deal of therapy over many, many years to begin to overcome this problem.
Gavin is finally doing better now but occasionally we still have problems that resurface.

So my question is, has someone ever said something to your child, regardless of intentions, that has affected them in a way that was very difficult to work past?

Does that make sense?

Permanent link to this article: http://lostandtired.com/2011/11/17/has-this-ever-happened-to-you/

Oct 22 2011

The Adoption


I thought I would post this in honor of the 3 year anniversary of the day I adopted Gavin.   This is the actual letter I wrote to the judge about why I wanted to adopt Gavin.   I often return to this letter to help me put things into perspective……… I was finally able to adopt Gavin on October 22, 2008 after fighting for 10 years to protect him from his abusive biological father and paternal grandmother. 

I love you Gavin :-)

Why do I want to adopt Gavin?

I have been asked the question, Why do I want to adopt Gavin?

This should be very simple to answer but it’s not.  There is so much going on in our lives that I don’t really know how to answer this question anymore.  In truth I have been working on this letter for quite some time. There is so much joy and pain involved in writing this.  I wanted to take my time and do right by Gavin, so here it goes.

Let me start by introducing myself, I’m Rob.  I am almost 30 years old today. I am a husband of 5 years to my amazing wife Lizze and a father to my two miracle babies Elliott Richard (2 years) and Emmett John (7 weeks).  I met Lizze a few months before September 11, 2001.  I was at the tail end of paramedic school and about to suffer a major, life changing back injury. We met each other while walking our dogs at the park. There was a connection right away. However, it was a while before I met Gavin.

The first time I met him was at Meldrum’s, a restaurant in Massillon.  I met them there for dinner.  Gavin and I bonded instantly.  This was uncommon for him as he was very shy. While we sat there coloring and waiting for our food, he spilled an entire glass of ice cold lemonade in my lap.  Lizze thought for sure I was gone after that.  I never really told her but that was the moment I fell in love with her.  We were married about 2 years later.

Since the day I met Gavin I have taken responsibility for every aspect of his life. Not because I had to, because I wanted to.  Lizze and I have raised him together since then.

What does it mean to be a father?

I would like to introduce you to Gavin now.  Gavin is 8 years and 7 months today.  He is a sweet, compassionate, loving and selfless little boy, whom I’ve had the privilege of raising as my own since he was about 1 1/2 years old.  Gavin loves to build with his Lego’s and draw his comic books. Gavin has been through more in his short time on this Earth then most people will in a life time. He has been the middle of a tug of war for almost 8 years.  We have fought very hard to shield him from this, insure his best interests and to get him the help he needs, which most recently included a DNA case in Stark County Family Court against Gavin’s biological father and paternal grandmother; which was triggered by Gavin’s doctors.

Gavin was diagnosed with Asperger’s syndrome in 2005 by Dr. Reynolds and Akron Children’s Hospital. Asperger’s is a form of Autism. Gavin has also been diagnosed with PTSD, ADHD, OCD, and Sensory Integration Disorder. Recently we have been treating him for bipolar disorder as well. Every day is literally a struggle to survive.  Gavin is emotionally about 3 years of age. We live in a world where Gavin “melts down” over everything.

As he gets bigger and stronger he is getting much more difficult to manage. Words cannot describe how difficult this summer has been.  He was extremely difficult to manage and has more recently become very violent.  Gavin hurts himself when he gets angry or frustrated.  He is very dangerous to be around when he is raging. We have built our lives around Gavin’s needs. Meeting Gavin’s needs requires great sacrifice from all of us.  We have involved every available means of support in order meet his needs.  This is extremely difficult to do because what’s best for Gavin is rarely what’s best for Emmett and Elliott. Finding a balance that allows us to keep everyone safe is very challenging.

We have once again begun discussing a residential treatment program for medical stabilization with his doctors because we have to ensure the safety of everyone in the house, including Gavin. When things are out of his control, he panics and lashes out but he would never hurt anyone on purpose. That being said, when he lashes out and melts down, anyone and anything in his path will be collateral damage. We have been working with Dr. Pattie and Dr. Reynolds (for years) to try to stabilize him.  For several years we were taking Gavin to 5 or 6 appointments per week.

His Doctors have told us many times that we have done everything that we can possibly do for him.  They constantly re-assure us and help us get up back up when things get really bad and we begin to doubt ourselves.

We have found a very delicate balance in our lives that has allowed us to tread water.  This balance has required great sacrifice on our part. Gavin can rarely be taken anywhere because of his behaviors. We need multiple baby sitters if Lizze and I ever leave to go anywhere (which rarely happens). He has no real friends because he cannot connect with other children and because it isn’t safe for them. He struggles with most social situations and really struggles with expressing himself. We do our best to provide him with a safe environment where ever he goes. We do all of this and more for him while still keeping the best interests of our other 2 children at the forefront of our minds.

Things are extremely difficult but we pull together as a family and we push forward because no one gets left behind. Elliott in many ways has become Gavin’s “big brother”. We have worked so hard to give Gavin a chance to live a quality life and reach his potential. We have found him a great school.  He attends Summit Academy.  Every one of the teachers and staff are angels. They have made such a difference in his life as well as our own. Lizze and I are very active in the school as she is the president of the PTA.

All of this has helped manage the situation but as terrible as it sounds the Gavin we knew died many years ago.  What is left is a little boy who is lost in his own imagination. A little boy who rarely makes any real connections with anyone. A child who struggles in every aspect of his life. We no longer live in the same place at the same time, if that makes sense.

I cannot begin to describe the pain of losing a child to Autism. I catch myself thinking back to when he was little. I try to remember if there was something I missed. Have I failed him? What could I have done differently? I always come to the same one wish.  I wish I could go back to when he was 3 or 4 and I took him fishing for the first time at Price Park.  He caught a blue gill all by himself.  He was so proud and so happy that day.

That is the day I always return to. That was one the best and worst days of my life all at the same time. It was great because we had so much fun and I was so proud of him. We were connected that day. We were in the same place at the same time.

It was the worst day because that was the last day I can remember we had like that.

He began slipping away after that (although we were not sure why at the time). I wish I could go back and make that day last just a little while longer.  I wish I would have known that would be one of the last times we would have to spend together in that place. That place where we were connected and he knew I loved him. I wish I could have said goodbye.  It seems like the next day I woke up and everything was different.  I’m really struggling to write this because I try not to think about those days because I can’t stop crying. It hurts to cry anymore.  I miss him so much.

Even though I live with him every day we aren’t connected the same way anymore.  Gavin likes to spend his time alone in his room working on his Lego inventions with his imaginary friends.  That seems to make him happy.  We are told that Gavin does not perceive things like we do.  I often wonder if he knows how much we love him.  We tell him all the time but I don’t think he gets it.   We constantly worry about his future.  We worry about everything.

Probably the most difficult part about this whole thing is we know he’s still in there.  Every once in a while we get a glimpse of him. It’s like he’s trapped inside the fog but sometimes he fights his way through and we get our little boy back.  These glimpses last only a few moments and before you realize it they are gone.  Dr. Patti calls it the Swiss cheese effect.  Sometimes all the holes line up and we can see through.  We live for those moments. They are few and far between.

I love Gavin for who he is and morn for who he was.  I would never try to change him to fit a mold. I try to guide him though his journey as safely as possible. I’ve been there for him through everything.

I’ve been there for all the nightmares, meltdowns and injuries.  I’ve also been there for all the little victories like brushing his teeth and getting himself dressed for school.  I was there for all his karate awards and school plays.  I’ve been to all his appointments and to pick him up from school. I’ve made sure the tooth fairy doesn’t forget to visit.  I make sure he has clothes to wear, food to eat, and a roof over his head.  I make sure that the spaghetti sauce doesn’t have any “specks” in it because I know he won’t eat it if he sees “specks” of seasoning.

I make sure our house is as safe for him as possible. I gave up my career so I could work out of my house because Gavin requires Lizze and me both to be there.  I sold most of my possessions so I could give him what he needs. I have made countless sacrifices in my life so I could meet his special needs better and be there for him. I live each and every day in constant physical pain because of my back injury but I push through it because my wife and children need me to.

We have gone bankrupt in the process. The only help we ever receive is from our families and Gavin’s amazing doctors and teachers. These people amaze us because they don’t have to get into the trenches with us but they do anyway because Gavin has touched their lives. We have received no help from his biological father.

Gavin’s father is an alcoholic and a drug addict.  He has shown up to court in Stark County, twice over the legal limit and has 2 DUI’s. He has yet, to our knowledge, completed any drug and alcohol counseling and or treatment.  He also did not complete his DNA case plan after almost 2years. This is why Jobs and Families finally moved to terminate their involvement (because of his lack of cooperation).

We voluntarily chose to enter into an agreement with his father and grandmother.  This agreement put Gavin’s doctor’s in charge of their visitation, specifically Dr. Pattie. This legally binding agreement is on file in Stark County.

This will be my second adoption attempt.  The first time Judge Park granted the adoption. It was appealed and overturned. We then went to the state supreme court only to lose again. The Ohio Supreme Court didn’t hear our case, thereby upholding the ruling of the Fifth District Court of Appeals.

Gavin’s father and paternal grandmother fought feverishly to get the adoption over turned and succeeded in taking it away. However, here we are almost four years later and not a single child support payment has been made.  In fact, they have not had any type of contact with Gavin in well over a year.

Lizze and Dr. Pattie decided to move their supervised visits to the YWCA because it was a better fit for Gavin and his special needs. It was more of a therapeutic environment and they would help Gavin’s biological father and paternal grandmother learn how to interact with Gavin appropriately. They refused to show up at the visits as a “matter of principle” because they don’t believe they need to be supervised.  They allowed pride and principle to separate them from Gavin. Nick then received his 2nd DUI, went to jail and the visits stopped all together.

At no time did we ever discourage them from seeing him or him from wanting to see them. To this day, Gavin’s father still has yet to set up his visits at the YWCA.

We have recently been drug into court in Muskingum County to face contempt charges claiming we were “not allowing Pam (Gavin’s paternal grandmother) to exercise her visitation”. We have been following the Stark County Court Order to the letter (an order we all – myself, my wife, Gavin’s biological father and paternal grandmother – agreed to follow and signed).

We were found in contempt for doing so by Muskingum County court and my wife now faces jail time if she does not turn him over.  We have the full support of all Gavin’s doctors in perusing this adoption again. Our lives are so fragile and Gavin’s is even more so.  All we want is to be a family and move on as best we can.

Granting this adoption will allow us to do just that, move on, and live as a family.  Fundamentally nothing will change because I‘m the only father figure he has ever known.  I’m the one he goes to when he is scared. I’m the one that shields him from all of this needless court drama. I’ve seen him through all the broken promises and missed visits. We have made up countless excuses for why his biological father and grandmother will not come to see him.  All while ensuring Gavin that it’s not his fault.

We tell him they have “homework” to do before they see him at the new visitation.  For a while he would ask us why they weren’t doing their homework.  Eventually he stopped asking and now rarely ever mentions them anymore. Believe it or not that’s heart breaking for me as father. God has given him many challenges in life already, he doesn’t need this one.

Nothing will change the fact that I’m his father, even though he calls me his “Robby”.  I have never encouraged him to call me dad because that’s just a name and it means nothing. I know what he means when he calls me “his Robby”. No matter what happens I will still be here doing the same things I have been doing for 7 years, along with my wife. I will never be one of those who abandon him, never.  I will be here waiting patiently for the next time Gavin finds his way through the fog.  I will try to reach out and grab his hand and hold on to him for that moment because it is so precious.

I will try very hard to remember to ask him if he’s happy, if he knows we love him and how lucky we are to have him. I just need to know he is happy with his life, that he knows how much I love him and how proud I am to be a part of his life. I want him to know if there was a way I could take all of this away from him I would. Sadly, I know I cannot take this burden from him but I will walk by his side through his entire journey. I absolutely believe that if anyone can rise above these difficulties it will be Gavin and I will be here for him no matter what happens.

I humbly ask, please grant Gavin and me this adoption and help me to put this all behind us. Please help me give Gavin the stability and consistency that he so desperately needs and deserves. Please help us give him a fighting chance.

Respectfully,

Rob Gorski

 

Permanent link to this article: http://lostandtired.com/2011/10/22/the-adoption/

Sep 03 2011

Shot to the leg


Well today hasn’t really gone as planned.  Although, honestly, I didn’t really have any plans. 

Emmett will be going to her parents in a little bit and spending the night.  As soon as that happens,  I will be giving Lizze a special injection into her leg to help battle her migraine. 

Her migraines are occurring every single day.  Her preventative medications haven’t worked in a really long time. Now they are so bad that her pain medications are really working either.  She hates taking the pain killers because they are very high dose and they put her completely out of commission for about 6 hours or so.

Her neurologist gave her this injectable medication to use in the event the pains meds don’t work.  These are standard injections either.  They are an air powered,  needless delivery system. 

She has only used this once before. Let me just that needless does not mean painless.  In all my years as a medic,  I have never used one of these on anyone. It’s pretty straightforward but very painful.  This thing put a good size hole in her leg the last time we used it. 

Despite the pain associated with the delivery of the medication,  it did help. However,  she goes to sleep for the rest of the day.  So when she gets the shot in a little bit,  she will wake up in the morning sometime and hopefully feel better. 

I kinda sucks cause it’s our anniversary but I don’t want her to be in pain,  so it is what it is. In all our years together, I don’t know that we have ever really been able to celebrate our anniversary.  Something always seems to come up but that’s the nature of our lives I guess. 

Someday, I would like to actually celebrate and do something nice like go out to dinner.  I think that being together for over 10 years and being married for 8 of those years is quite an accomplishment.  In our lives together,  we face obstacles and stress that many will never face and yet we have survived anyway. 

I’m very proud of that,  whether we actually celebrate or not.  So if she can spend the day without pain then I think she has absolutely earned that.

- Lost and Tired

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Permanent link to this article: http://lostandtired.com/2011/09/03/shot-to-the-leg/

Jun 28 2011

The 10 year toll.


So I have been preoccupied lately with worrying about things are aren’t really a problem. These past 10 years have begun taking their toll on me. Sometimes I find it harder to cope with life then others. The past few days have been some of the tougher days I can remember. I have been raising Gavin for the better part of a decade now and it hasn’t been easy.

The stress just seems to build up over time and come to a head during times like this where I just feel buried. I worry about stuff that is tangible because most of the rest of our lives is outside of my control.

I’m trying to develop better coping skills as I’m sure that will help. Sometimes though, life just really sucks and no amount of positive thinking will make it better. However, that doesn’t mean that life has to be bad. I want things to get better. I also want to be able to enjoy life and not be so stressed out all the time.

How do you guys handle stress? Do you have any pointers or advice?

- Lost and Tired

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Permanent link to this article: http://lostandtired.com/2011/06/28/the-10-year-toll/

Jun 25 2011

Stress


I have decided to make a change in my life. I realized today that the stress I have been enduring for about the last 15 years is taking its toll on my body.  I have to figure out a better way of coping with all this stress.

I figured the very least I can do right now is pick up the pace with my walking/running. Tonight I did just that and you can view that here. I shaved 10 minutes off of my time tonight. Whenever I get to tired I just push through it for my boys. Lately I have been preoccupied with my morality. I worry about the stress taking years off my life and I NEED to be there for them as long as possible. In order to do this I’m going to have to reduce my stress. I need to get better stress management options. I was thinking about it tonight I realized just how long I have been dealing with extreme levels of stress. It started in medic school and then was 10 years in court fighting for Gavin and well…….you know the rest.

I’m going to work very hard to live a more physically active life style. I’m going to do this for my kids and my wife. Every day I want to be better and better so I can give my family more and more.

- Lost and Tired

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Permanent link to this article: http://lostandtired.com/2011/06/25/stress/

May 07 2011

We are FINALLY getting out……


Thanks to both sets of grandparents for taking the boys for a bit tomorrow. I’m taking Lizze out to a movie for Mother’s Day. I know it’s not really anything special but I just want her to get a break from all the stress. I also just want to send some ALONE time with my best friend. She has yet to decide on a movie but I’m sure she’ll figure that out.

Lizze and I never get time to just be together and be away from the kids. Please don’t get me wrong, I love my kids and would rather be with them then away from them. However, our lives are EXTREMELY stressful and sometimes it’s important for Lizze and I to get away. We have been doing this for 10 years now and have NEVER been on vacation or had a night to ourselves without the kids. I’m really looking forward to hanging out with her tomorrow.

Permanent link to this article: http://lostandtired.com/2011/05/07/we-are-finally-getting-out/

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