Autism,Aspergers Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: ace

Dec 30 2011

6th Antibody Infusion: IV placed


Gavin’s IV is finally in ace and the IgG infusion has begun.  The whole process takes a few hours but as time goes by,  and his body continues to tolerate the infusion,  the process will be sped up.

He did pretty well with the IV placement. He repeatedly asked the same questions over and over again but he’s didn’t scream.

They drew blood so that he doesn’t need a second needle poker on Monday in order to refill his Clozapine prescription.

He’s back to playing Phineas and Ferb on the PS3 and has phased everyone,  and everything,  out.

Now we just wait…….

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Sep 29 2011

Priorities


I have spoken on occasion,  that I have decided I need to make some changes,  re-prioritize if you will.

I like to think that I can handle much more than I probably should. What happens is that because I’m stretched myself so thin,  I can’t seem to get much done or at least done right. 

I think that sometimes it’s important to take the time to reevaluate things in my life and make sure that my focus is where it should be.  Does that make sense?

When you are a special needs parent to 3 boys on the spectrum,  there’s never a shortage of responsibility or things that need to get done.

The problem is that distraction,  at least for me,  is inevitable.

I’ll start on something and get pulled away to manage something else and then get pulled away from that in order to do something else.  This goes on and on and eventually I sorta get off course. When this happens,  I need to start trying to put some things down in order for me to be able to pick up and continue.

As a special needs parent,  my priority is always my children. I always want to keep trying to help my wife to feel better.  We have endless bills to pay as well.  I also want to keep this blog growing,  so I can reach more and more people.

All of these things require time and resources that are in short supply.

Decisions have to be made and things have to be put down or put of hold. Figuring out what to put down and what to pick up can be challenging to say the very least.

However,  I think that recognizing this is a first step in the right direction.  We can’t change what we do acknowledge so admitting to myself that I’m in over my head is a great ace to start.  From there I have to decide what’s the most important things and what aren’t as important. 

Everything that can wait,  will have to do just that…..wait.

This can be difficult but it’s important because our journey is not a race but rather a test of endurance. 

Have any of you found yourself in a similar situation?  Have you ever needed to re-prioritize things or put things down in order to be able to pick something else up?

- Lost and Tired

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