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Posts tagged adhd

How I got a PlayStation Vita

0
1 month ago
by Lost and Tired in

This is more for the techies out there that like video games. 

I have been playing video games since before Nintendo was even know the radar. I was always fascinated by them. 

Fast forward to present day and my kids have all followed in my footsteps. I’m sure you have heard me talk about Elliott and his 3DS -thanks to Best Buy- as well as Gavin obsession with video games.

I have had a game More >

When you have more questions than answers

3
1 month ago
by Lost and Tired in

I’m feeling quite overwhelmed as of late.  We keep receiving more and more bad news.  I mean,  bad news is probably the wrong word choice but it’s pretty darn close.

The latest addition to the Lost and Tired family symptoms list is now seizures. I was positive that I was going to get the EEG results back for both Gavin and Elliott and everything would be normal.  I wasn’t prepared to hear that More >

#Autism, Seizures and EEG’s: Gavin

1
1 month ago
by Lost and Tired in

Sorry for the delay is getting this up but I fell asleep early last night..

I already shared what happened with the neurologist,  as far as Elliott is concerned.  What I haven’t done yet is getting into what went down with Gavin. Traditionally,  Gavin is significantly more complex and honestly,  that an understatement.  I’m gonna keep this short and sweet because I’m just super tired today and More >

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9th Antibody Infusion: A bit on the rough side

0
1 month ago
by Lost and Tired in

This was by far the worst Gavin has done at an infusion.  I had taken Elliott to the cafeteria to eat lunch while they were putting the IV in.  He didn’t want to see that part.

When we got back,  about 20 minutes later,  it was done and Gavin was back to his video games.

The nurse told me what happened and said that she had never seen him like this.  Thankfully he didn’t fight her,  he just More >

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#Autism, Seizures and EEG’s: Elliott

0
1 month ago
by Lost and Tired in

Elliott’s appointment was pretty straight forward.  They got a detailed history and reviewed the EEG. I chose to go with Elliott first because he was the easiest or least complicated.

Elliott was very well behaved and just played his 3DS for most of the time. The doctor was totally awesome and was great with the boys.  You could tell that he loves his job.

Now for the bad news.  Elliott had 2 More >

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9th Antibody Infusion: Arrived

0
1 month ago
by Lost and Tired in

We have finally made it over to Oncology for Gavin’s 9th antibody infusion. The infusion was scheduled to begin about an hour ago, so we had to make special arrangements for today.

They were awesome about working with us on the scheduling today.

We are just waiting to get his vitals and preparation medications… Everyone missed lunch and we’re all a bit on the grouchy side.  Hopefully,  this More >

Houston we have seizures

0
1 month ago
by Lost and Tired in

I’ll provide more details later but we are dealing with seizures,  at least with Gavin.  Gavin’s were more obvious.

Elliott is needing a 24 hr EEG to verify.  Elliott had 2 small episodes during the EEG and they want to see what is going on by doing a longer study…….

More to come later….

Kat,  I’m going to need to speak with you.  Please..

**Thanks for reading**

       -Lost and More >

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#Autism, Seizures and EEG’s: 03/20/2012

0
1 month ago
by Lost and Tired in

I’m at the neurodevelopmental clinic at Akron Children’s Hospital,  with Elliott and Gavin.

Elliott is actually doing pretty good today.  He isn’t freaking out as is usually for him. However,  he’s a bit on the hyper side today.  Gavin is doing just fine,  as is the norm for him. 

Gavin’s appointment is first and Elliott’s is after. 

We will get the results of the EEG’s today and hopefully,  More >

On the road again

1
1 month ago
by Lost and Tired in

Akron Children’s Hospital,  here we come.

Elliott seems to be fine this morning. Emmett on the other hand,  is fighting his fever again.

It looks like I’ll be taking the boys to Akron Children’s Hospital today and Lizze will stay with Emmett. Having Elliott present for Gavin infusion makes me nervous.

As a special needs family,  we have to be able to evolve and meet the current circumstances. More >

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