Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: Afternoon

Mar 17 2012

Headache Infusion: conclusions

Lizze had her final headache infusion session,  yesterday afternoon. She basically underwent 12 hours of pretty hardcore narcotics being pumped into her via IV.

This was split up over two days and the sole purpose was to break her five weeks old migraine.

She can only have this done one time a year,  at least as far as I know. It was almost exactly a year ago that she had this done to break a migraine that she had that lasted for months.

The good news is that it appears to have worked.  I say appears to have worked because she still pretty heavily medicated.  We should have a better idea of where we stand as time goes on. 

The downside to this is that it only treats the current migraine and doesn’t prevent it from coming back

As someone that doesn’t suffer from these debilitating migraines,  I can’t imagine what it’s like. When I asked her if it was worth it,  she replied,  any amount of time without having to feel the pain of a migraine is worth it.

Here’s to hoping that Lizze can get a well deserved break from the constant migraines. 

I want thank Lizze’s parents for watching the two oldest last night and my parents for getting her to the appointments. 

I also want to thank all of you for your thoughts and prayers. I truly appreciate it…..   :-)

**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/03/17/headache-infusion-conclusions/

Mar 08 2012

#Autism and surviving the screaming and whining

This has been the day from hell.  Thankfully,  Elliott is feeling better but he and Emmett have been at each others throats all goddamn day.

I swear they are setting out to drive Lizze and I crazy. A large portion of the problem resides with Emmett.  He has been in a really weird place for the last few days.  He’s not getting along with anyone right now.

There has been more screaming today than in the entire series of Scream movies.  I mean,  it just never stops. If the slightest thing goes wrong or the tiniest thing is out of place,  Emmett just freaks out.

The combination of Elliott whining and Emmett screaming is something that would break even the most difficult people to interrogate.  Although it does border on torture,  so I don’t know how well that would go over. 

Truth be told,  by the end of the afternoon,  I was ready to give them whatever they wanted as long as the screaming and whining stopped.

Don’t get me wrong,  I love my kids but they can scream and whine with the best of them. Elliott’s whining is related,  at least in part,  to his extreme anxiety.  Emmett’s screaming is most likely related to his speech and language delays as well as overstimulation. It’s not their fault but that really doesn’t make it any easier to cope with.

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Permanent link to this article: http://lostandtired.com/2012/03/08/autism-and-surviving-the-screaming-and-whining/

Mar 07 2012

Shots and bloodwork

Elliott has his 6 year check up today and I believe that he needs his boosters and also some routine bloodwork.  He is going to completely lose it if that happens.  His anxiety is already high enough as it is.

Plus to make things more interesting,  Gavin has to have his bloodwork done this afternoon as well.

Lord have mercy… This is going to be one of those days that I wish I had slept through.

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Permanent link to this article: http://lostandtired.com/2012/03/07/shots-and-bloodwork/

Feb 29 2012

#Autism and Animals: The Amazing Victory

Sometimes the stars align and we have a victory. Today was one such day. I introduced you all to Bella, the newest member of the Lost and Tired family. I talked about how she seems to be helping Emmett with a few of his challenges.

I know this may not be the case for everyone out there but animals and Autism have been a good combination, at least for my kids.

We had a major breakthrough this afternoon with my littlest minion, Emmett. Emmett is very sensory sensitive and really struggles in that department. He has to feel the ground to see if it’s wet before walking outside. He doesn’t like getting water, dirt or mud on his shoes. I can’t tell you how many meltdowns we have had over something this simple.

Today however, something happened. Just watch and see if you see what happened. I’m so thrilled with this and I’m glad I was able to record this happening. I know our good friend Julia will probably catch this right away.

Please watch the video and celebrate today’s amazing victory.

YouTube Preview Image

Permanent link to this article: http://lostandtired.com/2012/02/29/autism-and-animals-the-amazing-victory/

Feb 29 2012

An apple a day keeps the doctor away

We have all heard the saying,  and apple a day keeps the doctor away. I’m here to say that an apple a day doesn’t really keep the doctor away. Don’t believe me,  just ask Emmett.

Emmett is currently at the pediatricians office.  He’s in the middle of a fever flare and is now actually sick as well.

He is just a miserable little kid right now. His mouth is completely filled with cold sores,  and they look horrible.

We don’t normally run to the pediatricians office for a cold but in Emmett’s case,  we aren’t sure what’s what. Does that make sense? We do know what is actual illness and what is just part of the fever flare.

Lizze is feeling well enough to take Emmett to the doctors but I will be taking Elliott to the psychiatrists this afternoon as Lizze will be completely spent.

We still have Dr.  Pattie tonight before we can call it quits for today.

Permanent link to this article: http://lostandtired.com/2012/02/29/an-apple-a-day-keeps-the-doctor-away/

Feb 28 2012

#Autism and Anxiety: Interfering with life

Elliott is so extremely anxious that he is literally an emotional ticking time bomb. He hates school now because,  well honestly,  I don’t know why. We literally have to carry him,  kicking and screaming to the car.

There isn’t anything going on at school that would explain this.  I think he literally counts the minutes until he comes home.

I hate that life has become so challenging for him. I wish I could magically fix everything for him but I can’t. We see Dr.  Reynolds tomorrow afternoon to discuss medication options again. 

After the Zoloft disaster,  I’m a bit nervous to try anything else.  :-(

Permanent link to this article: http://lostandtired.com/2012/02/28/autism-and-anxiety-interfering-with-life/

Feb 21 2012

Four more….

In about 2 hours the appointments for the day begin. 

Lizze will get things started for us this morning. Shortly after that,  Emmett will get his turn with OT and Speech this afternoon.

Tonight Emmett has therapy with Dr.  Pattie.

Thankfully,  that should be it for the day. Tomorrow will bring with it a return to Akron Children’s Hospital,  only this time it will be Elliott’s turn at the Rheumatologist.

I hope everyone has as good a day as possible.  :-)   Best wishes to all of you.

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

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Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Permanent link to this article: http://lostandtired.com/2012/02/21/four-more/

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