Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: anyone

Jun 12 2012

What’s wrong with this picture?

Curious.  Can anyone point out something about this sign that bugs them?

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Mar 14 2012

Need a good laugh?

If anyone could use a laugh or one of those,  that is to stinking cute moments, check out this picture of Bella.

She sleeps in the weirdest positions sometimes.

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**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/03/14/need-a-good-laugh/

Mar 09 2012

Please say a prayer for Elliott

Elliott woke up this morning complaining about his arm hurting.  He had received two booster vaccines 2 days ago so it seemed that tenderness was to be expected.

However,  when I looked at his arm,  I was taken aback.  His entire upper arm is swollen and and stiff.  The skin is very hot to the touch.  This appears to be a rather serious reaction.  We are calling the pediatrician to find out whether we should there or straight to Akron Children’s Hospital.

Elliott is freaking out and I’m a bit worried myself. This was not like this last night. This has occurred within the last few hours. 

Has anyone ever seen this.

The pictures don’t show all the redness but you can see what I’m concerned about.

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Please say a prayer that this ends up being ok.  Thank you so much.

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

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Feb 19 2012

#Autism and the little treasures

This is more of a question really but also a sharing of my experience.

Do any of your kids collect. Little treasures?

I ask because of our 3 boys on the Autism Spectrum,  both Gavin and Elliott have a history of collecting

Well actually,  in Gavin’s case,  it’s more like hoarding. Gavin will hoard all the Lego’s, Hot Wheels and stuffed animals.

In Elliott’s case, he collects these little treasures

These little treasures are usually,  odd little trinkets that have broken off of other toys. 

From what I understand,  this is a way of him exerting control over his life,  and to be completely honest,  he has very little control over his life otherwise.

I was just wondering if anyone else sees this type of behavior?  He’s not stealing or anything like that.  These are just small and otherwise unwanted little things.

I appreciate any and all feedback…  :-)

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Permanent link to this article: http://lostandtired.com/2012/02/19/autism-and-the-little-treasures/

Feb 11 2012

#Autism and Sexually Aggressive Behavior

We have found ourselves once again dealing with inappropriate touching.  It’s been a little while since this has been an issue but today it has returned.

Long story short,  Elliott came downstairs and told me that when he was trying to come downstairs,  Gavin grabbed him and wouldn’t let him go down the steps.

Elliott then explained that Gavin kissed him twice,  without asking Elliott’s permission.

According to Elliott,  Gavin kissed him on the side of the head,  both sides actually.

While that may not seem like a big deal,  it really is.  Gavin either has no concept or no respect for other people’s boundaries.

Sometimes it seems like a simple boundary issue and other times his behavior is clearly predatory in nature. I don’t know what today falls into but I do know that Gavin knowingly broken the rules.

We sat him down with Dr.  Pattie and discussed how this type of thing is inappropriate.  We explained that once you get to a certain age -and we used Gavin’s current age at the time- its no longer OK to make physical contact without permission.

We went further and explained what physical contact meant.  He should not be putting his hands on anyone without that person having given permission. We told him that he should hug or kiss anyone without the other person saying it was OK.

He is also not supposed to hug or kiss his brothers without Mommy or I present and watching.

This has to be this way in order to protect our other kids.  Gavin has a history or being sexually aggressive.  In the past week have caught him sneaking into Elliott’s room at night to give Elliott a proper kiss goodnight.  It’s really creepy and I’m not the only one to say that.

So after Elliott told us what happened,  I called Gavin down and asked him what had happened.  His story was a bit different than Elliott’s but it basically ended the same way,  Elliott was touched in an inappropriate way.

We have a zero tolerance policy for this type of behavior.

Gavin was immediately grounded. By grounded,  he was done watching TV for the day and he would be having oatmeal for dinner instead of roast.

He completely lost it. A horrendous meltdown soon followed.

After making sure Lizze and the other boys were OK -because Elliott and Emmett scurried over and buried themselves behind Mommy on the couch- I went upstairs to keep Gavin under control.

I’ll be very honest with you.  When this happens, it’s very difficult to keep my cool because no one and I mean no one will ever hurt any of my babies.

I did the best I could to remain calm and keep control over the situation but I probably could have done a better job.

The video below shows part of the meltdown.  I didn’t get to him right away so I missed something of it.

The really frustrating part is that he has no remorse.  He’s upset because he wanted roast for dinner not because he did something wrong.

How do you teach a child right from wrong when they just don’t get it?

 

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Permanent link to this article: http://lostandtired.com/2012/02/11/autism-and-sexually-aggressive-behavior/

Feb 07 2012

Feeling Blue

So you all know we had to get a new van recently.  Well,  part of the deal included the dealership completing a few things,  as well as some minor repairs.

There were 3 little paint chips on the hood.  They were supposed to touch these spots up.  I wasn’t expecting perfect,  as my main concern was preventing rust.

However,  this is what they provided me.  I’m a bit disappointed in not only the quality of the work but that fact that they used the wrong freaking color.

Does anyone else agree that this looks like the wrong color?

They are going to look into it when it goes back in to have the seat belt fixed.

So,  I need your opinion. Does this look like the right color?  Also,  does it look sloppy to you?

I appreciate your opinion.

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Permanent link to this article: http://lostandtired.com/2012/02/07/feeling-blue/

Jan 16 2012

The road of life

Sometimes it’s easy to get swept up by the raging tides and forget about just how beautiful the ocean can be. The same thing cannot be said about Autism.

In my own personal situation with the Lost and Tired family,  I find myself failing to see the beauty behind the challenge.

It’s so easy for me to get overwhelmed by all the challenges we face,  day in and day out.  Honestly,  the weight or responsibility and be absolutely crushing at times.

So many times,  I’m asked how I manage.

I never really know what to say to that question. In truth,  I really don’t know.

However,  after thinking about this for some time,  I have come to have a better understanding of how and why I keep going.

While the challenges facing the Lost and Tired family may be different than yours,  the driving force behind behind our seemingly never ending strength is, I think, the same as many of yours.

As a parent to 3 special needs boys,  I never imagined the challenges I would face while traveling the road of life with my family. 

This road has many twists and turns as well as blind corners.  These blind corners are some of the toughest to cope with because many times all you have if faith that you’ll safely navigate your family through.

It’s true that all three of my boys are in the Autism Spectrum.  It’s true that some of our boys are dealing with other health issues,  some minor,  while others are more serious. It’s also true that we struggle with behavioral issues just about every single day. 

It seems like we are always,  either going to or coming from an appointment or therapy session.

It’s exhausting,  overwhelming and demoralizing at times.

With all that said,  there is something else you need to know a out my boys. Despite the challenges associated with raising them,  they never cease to amaze me.

My boys are intelligent, loving,  compassionate, creative, generous, courageous, brave, courteous, inventive, genuine, inspiring and most importantly,  well worth the effort that goes into helping them to navigate the road of life. 

I think that’s why I keep going.

As to the how,  I really don’t have a solid answer for that.  I just think that when it comes to my children, I will cross raging ocean waters and climb the highest of mountains for them.  I’ll fight anyone or anything that gets in their way. 

My wife taught me,  that no matter what the odds,  you never give up.  She is the glue that holds the Lost and Tired family together much of the time.

I’m not really that different than anyone else. 

I get overwhelmed, beaten down,  demoralized and sometimes even want to give up. Lost and Tired is a way to basically sum up how I feel much of the time.

As special needs parents,  I think we’re all hero’s, maybe not the conventional type.  However, when the rest of the world would have given up,  we keep pushing forward and never give up on our precious little angels. We are absolutely hero’s to our children.

I think it’s very important that we never lose sight of that.

Just because I choose to write about my adventures doesn’t make me any more amazing than you.

My hat’s off to all of you…..

Cheers.

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Permanent link to this article: http://lostandtired.com/2012/01/16/the-road-of-life/

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