Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

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Jul 20 2012

Calling the police on your own child

Today is the worst day in Lost and Tired family history.  Gavin was caught lying after repeatedly being told not to do something. 

Upon questioning,  he completely lost it.

He had the worst meltdown I have personally ever seen. This meltdown included coming after me,  taking a swing at the dog and putting a hole in the wall.  There was self-injury and violence like we have never seen.

It was so bad that I came extremely close to actually calling the police and having them remove him from the house. 

That has never happened before and I feel sick to my stomach for even thinking about it.

Lizze was in the phone with Dr.  Pattie who backed us up in the whole police thing.  We decided that he needs to go somewhere but that it isn’t safe for us to take him ourselves. She also pointed out that this could be related to the removal of the depakote this week.

Depakote is a mood stabilizer and an anti-convulsant.  It may been helping to smooth out his moods and once removed,  all hell breaks loose.

It’s possible but he was headed down this road anyway, even on the depakote.

Not that I ever know what to do but at this point,  I’m completely lost. I have no idea what to do anymore. I don‘t know where to take him or how to get him there.

I told him that I love him but that violent people have no place in this house.

After close to an hour, Lizze finally gave him to the count of 3 to get under control or she was going to call the police herself and have them take him to the hospital (this is something that brought tears streaming down her face).

How did Gavin react? He simply shut it off, like nothing had happened,  before she reached the count of 3.

I truly don‘t know what to do.  We have begun gutting his room of anything that could be used as a weapon.  He will be left with his mattress,  blanket and pillow,  at least for now.  He will also not be leaving his room today,  with the exception of using the bathroom….

This of course pissed him off even more. As far as I’m concerned,  he has lost all freedom and privileges.  These will have to be earned back over time.

Right now that’s all we know. We are trying to help the other boys relax and feel safe. 

You should understand that sending your child away,  regardless of the reason, is much easier said than done.  There is a huge emotional hurdle to overcome first. Then there is the guilt and feelings of failure or giving up that will haunt you decision. 

Then there are the logistics.  You have to find a place,  then that place has to have an open bed and be willing to take him. 

Majority of the time,  you have to go through the ER and follow the proper channels.  This can take a very long time. In fact, one of the last times we sat in the ER at the Cleveland Clinic for over 12 hours. 

I don‘t relish the idea of doing that again.

The other thing to think about is the out of pocket expenses involved.  While money should never be a deciding factor,  the truth is,  it can be. If Gavin goes somewhere farther away,  we will have a great deal of commuting ahead of us.  You don‘t just drop your child off and leave.  You are heavily involved,  from being to end.

Travel expenses may exceed your resources and then what do by our do?

We have been there and done that more times than I care to remember.  That’s one of the reasons that I truly don‘t know what to do. Even if we go through with this,  there’s no guarantee that anything will actually help him. Clearly it hasn’t up to this point.

It can turn into to one of those situations where the means aren’t justified by the end result. The problem is that we don‘t know anything until then, accept for the fact that this can’t be allowed to continue.

We are going to spend the rest of the day making calls and trying to figure out what to do… 

I could use any and all advice that you can throw my way…. PLEASE.

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**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/07/20/calling-the-police-on-your-own-child/

May 19 2012

Published on Akron Children’s Hospital Blog

I’m really honored and incredibly excited to share with you all that Akron Children’s Hospital has asked for permission to post one of my articles on their official blog. Awhile back I had done a review of their mobile app. They somehow discovered that review and wanted to publish it on their site next Tuesday.

For those of you that aren’t familiar with Akron Children’s Hospital, they are among the very best in the entire country. People come from all over the world to have their child treated here.

As you know, our kids are frequent patrons of their fine facility. When the post goes live, next week, I share the link with all of you.

Thank you Akron Children’s Hospital for taking such amazing care of my family and literally countless others.

Permanent link to this article: http://lostandtired.com/2012/05/19/published-on-akron-childrens-hospital-blog/

May 13 2012

Enough is Enough

I have decided to move this conversation into the public forum.  I’m doing so because I want to make sure there is a public record for what I have to say.  At this point,  I don’t want to leave any room for further misunderstanding and I want proof of what is going on.

Over the past few days this person has been harassing Lizze,  telling her that I’m abusive and that she needs to take the kids and move to a shelter.  These comments were posted to her youtube channel and we’re later deleted by the original author. Later, comments were left to some of my videos as well as right here on my blog.

I think introductions are in order. You already know who I am so now it’s time to shine the spotlight on the person that has choosen to insert herself into our lives.

I would like to introduce you to grandmasbabees or Diane Cxxxxxxxxx. She claims to be a writer,retired psychotherapist and college prof(psychology),former military behavior psychologist, grandma, mom,wife,kittymom, veteran(WAC), at least according to her twitter account.

While I firmly believe that everyone has the right to their own opinion, publicly accusing us of something that is both untrue and unfounded, is crossing the line. Continuing this for days, is a bit excessive.

Basically, I’m being accused of abusing Gavin and Lizze is being accused of allowing this to go on. Her approach to Lizze is encouraging her to basically grow a backbone, grab the boys and move to a shelter. She has chosen to play the advisory role to me.

Here are some of the comments she has left Lizze as well as the links to the YouTube videos they are attached to.

 

grandmasbabees has made a comment on Stolen van R 1.19.2012 Video Blog:

 

“get strong and protect gavin from your husbad, it is clear he emotionally abuses gavin, stop whining it is only a van that is what insurance is for, you ned to protect gavin”

grandmasbabees has made a comment on Meltdowns aren’t just for Gavin M 6.6.2011 5y:

“this is to you mom, you need to protect gavin from his stepfather clearly he is emotionally abusive and favors the other two. you are gavins mom take responsibility and defend and protect him, stop humiliating gavin all over the internet for “informational purposes” bullsh*t”

grandmasbabees has made a comment on Vlog June 24, 2011 12:53 PM:

“be strong for your boys, protect gavin, you can go to a shelter,, stop making excuses”

If you follow the links back to the comments page, you will find the comments have been removed. We never removed anything, I have to assume that it was the original author.

This woman seems very, very upset at the videos of Gavin having a meltdown. In all honesty, I can understand, that without bothering to read the posts attached to these videos, they could be misunderstood. However, if you’re going to be accusing me of abusing Gavin, I would suggest you do your research. If you are indeed a professional you would know that.

 

Here are some of the comments she has made to the videos on my YouTube channel.

 

grandmasbabees has made a comment on Autism and Routine:

“switch to target brand with no characters and tell him grover diapers all gone”

grandmasbabees has made a comment on Gavin Crisis 04 04 2012:

“i couldnt watch the whole thing so dont know the end… it looks like a battle of will between you two. i think it is too much on him. i would try to comfort him instead of drill sgt approach… you are not giving in to be kind and comfort”

grandmasbabees has made a comment on #Autism Meltdowns and selfinjury:

“you are too hard on him, so what about what others think your son has autism and this approach frustrates. you need to understsnd sensory, he hurts, he isnt being bad”

 

grandmasbabees has made a comment on Autism and Communication Struggles:

“seems like you are so much harder on the older one than younger one wondering if older boy is a step? in other videos my heart goes out to him”

grandmasbabees has made a comment on Gavin Meltdown 11 13:

“please get help i have watched a few of your videos and looked at your website you are cruel to gavin, you need help, it is clear you do not care about him compared to the other boys”

grandmasbabees has made a comment on Another Meltdown:

“Have you considered that this child is in pain? Real pain? Sensory issues hurt. Consider comforting him, and never use food as punishment.”

While some of these comments are tactful and appropriate, others are clearly not. I was prepared to let these go and just not pay attention to them. However, she wasn’t done there. This comment was posted on my blog and subsequenlty reported by one of my readers.

 

This comment was in response to #Autism: Sexually Inappropriate Behavior

I have to be honest here, i have watched your UTube videos too, you are very hard on Gavin. You surely favor your biological boys, and perhaps you are looking for any excuse to get rid of Gavin? Own it, if you can’t stand him that is how you feel, perhaps foster care would be a better alternative for Gavin? When I see you make him sit on his hands for so long and not comfort him when upset, it breaks my heart. I really believe CPS shoud get invoved. And stop whining and asking for money. There are plenty of social service programs, call your County. If your wife can get onine and video blog she is well enough for you to work. Just sayin it like I’m seein it. Yes it is tough having special needs kids, but there is no excuse for how you treat Gavin.

 

This is when I began to really get frustrated. Now I realize this is just some random person online and I shouldn’t care…

However, Diane claims to be a professional and psychotherapist. If that is indeed the case this is even more concerning to me as she has or had, access to people in real life.

I posted earlier today asking for her to stop and contact me directly if she would like to discuss what’s bothering her. She did so in email form. I would like to respond to her email but I’m concerned that anything I write will be twisted to fit her agenda. So I have decided that it would be best to address this publicly. This way there is never any question as to how I handled this person and responded to her email.

 

This is the email I received a few hours ago.

 

I am mandated by law to report what I suspect as child abuse  To continue to film your stepstop gavin on you tube, in extreme emotional pain, for the profit of your website is horrible.  You please cease and desist publicly humiliating him and using him to promote your website.  There are numerous tapes where you have coldly filmed him in “meltdown” and made him sit on his hands until he falls asleep.  Be careful what you put out on the web.  People watch and will report.   I’m doing my research now, what I see I don’t like at all.  I am an advocate for austistic children.  And by the way, in your header, you mispelled “honesty” just letting you know.  You know who I am?  I know who you are, we are even.

Now, I would like to reply to this and hopefully put this to rest because I really do have bigger things to worry about.

Diane,

I really do appreciate your concern for Gavin. However, accusing me of abusing him and trying to convince my wife to take our boys and run to a shelter is beyond irresponsible. You haven’t bothered to actually research why I handle Gavin in the manner I do. I hate having to address him like that. I’ve said that many times before. However, things aren’t always as they seem on the surface. As a psychiatric professional, I’m sure your aware of that. Perhaps you simply forgot. It happens to the best of us.

I’m not going to justify my actions because I have already explained, countless times in the posts attached to the videos you are so concerned about. Read and you shall discover the information you are looking for.

You also expressed concern about me making Gavin sit on his hands. You even went on to say that he does this for so long that he falls asleep. That is simply a fabrication and I challenge you to show me where you have seen that. Having personally, been there when these events occurred, I can tell you that Gavin has never fallen asleep while sitting on his hands. The only reason Gavin sits on his hands is for his own safety. If he didn’t sit on his hands he would be punching himself in the face and slicing his face, arms and legs with his finger nails. He has been admitted for psychiatric care due to self-injurious behavior many times and this is very well documented. We have to ensure not only his safety but the safety of those around him. He only has to sit on his hands until he can keep his hands safe. It puts him in control of when he can get off his hands. This practice was born out of necessity, not a desire to treat him in a cruel fashion.

As far as the whole oatmeal thing goes, that was something we tried out of desperation. Gavin is not even close to your typical child with Aspergers, not that any are, as each are unique in their own right. Gavin is extremely complicated and has layer upon layer of mystery surrounding him. Again, if you were indeed a professional, you would have likely picked up on that already. However, you don’t need to be a professional to pick up on this. All you have to do is read from the literally hundreds and hundreds of posts here on this very blog about that very issue.

Gavin is a master of manipulation and very often uses these meltdowns as a means of trying to get what he wants. These meltdowns occur when he is being held accountable for his actions. I would never do anything to hurt any of my children and I’m honestly beside myself that a professional, such as yourself, would make such a public claim based on zero first hand knowledge and a knee-jerk reaction to something you saw on YouTube and clearly misunderstood.

If you are indeed an Autism advocate, you would likely know that your approach to this entire situation was flawed from the very beginning. Not only was your approach unprofessional but it was reckless as well. Someone in your position, shouldn’t handle themselves in the manner in which you have. What gives you the right to tell my wife to leave and go to a shelter? You have no idea why things are the way they are because you never bothered to investigate further.

My wife will be sharing her own thoughts when she is in a better place to do so. You have upset her greatly and caused her undo stress.

You have worn out your welcome and I will ask you once again to please go away.

Permanent link to this article: http://lostandtired.com/2012/05/13/enough-is-enough/

Apr 10 2012

What’s worse than 1 child with mouth sores?

What’s worse than 1 child with mouth sores?  How about someone else getting them as well.  As you may recall,  Emmett has a fever disorder that goes by the acronym PFAPA.  It’s not very common and causes Emmett to run a fever for about 10 days every 3 weeks.

Along with the fever, he also gets really horrible mouth sores.

We have been told that these sores are contagious and we have been told that they aren’t contagious.  So we have just assumed they were contagious and we’re very careful during one of his flare ups.

These are herpes related at all,  like typical cold sores.  These are somehow tied to these fevers.

Up until now, we haven’t had any issues as far as these sores spreading to anyone else.. That was until about 30 minutes ago when we noticed more mouth sores had appeared in Emmett’s.  These sores showed up after his last dose of prednisone,  so there is nothing we can do for them.  

The problem is that Lizze now has the same mouth sores in her mouth. This likely occurred from Emmett sneaking a sip from her water bottle. 

I think that answers the question as to whether or not these are contagious.

Now the question becomes, WTF do we do about it? Emmett has been updated since about 4am this morning.  He took a really short nap but we knew something was going on.  We ended up canceling his therapies for today and tomorrow because we knew something was not right.

We thought he was actually getting sick and never thought the another cycle was kicking in.  This totally sucks and we are going to have to get him in to the doctors tomorrow.  I just don’t know which doctor.  We also need to discuss the whole contagious aspect of these mouth sores because that will play a huge role when school comes around. 

It’s only friggin Tuesday and we still have the rest of the week to go.  Sigh…

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/04/10/whats-worse-than-1-child-with-mouth-sores/

Apr 08 2012

Lost and Tired + CNN = #Autism Awareness

I have been working on something and have been pretty hush hush about it. However, I think I can let the cat out of the bag, so to speak. :-)

I’m soooooo excited to share with you all that I have written my 1st article for CNN. I’m told the article will go live sometime tomorrow. This article is for #Autism Awareness month and I really hope it helps to educate those that aren’t as familiar with #Autism and help them to have a better understanding of what lies beneath the surface. It’s so important for the future of not only my kids but all children and adults with #Autism, that the world see them for who they really are. They are all amazing people in their own unique way and deserve our respect, compassion and understanding.

Hopefully my words will help to foster this. If even one single person learns something from my experience, I think that’s a step in the right direction :-)

I’ll pass along the link when the article goes live. It’s supposed to be published on Monday, April 9th. When it does go live, please take a few minutes and check it out. I would love to hear your feedback.

Thank you all for being so amazingly supportive :-)

Update:The article has not gone live yet. As soon as it does, I’ll pass along the link and I would love to get some feedback on the CNN site. :-)

Thanks

 

Permanent link to this article: http://lostandtired.com/2012/04/08/lost-and-tired-cnn-autism-awareness/

Mar 23 2012

Helping to heal

Bella,  the newest member of the Lost and Tired family has really had a positive impact on the boys. We’re still working the links out but when I see things like this,  it makes the challenge worth it.

Bella loves the boys and tends to glue herself to them when they aren’t feeling well.

Tonight,  Bella curled up on Elliott’s legs as he slept on the couch last night. It’s her way of providing him comfort in his time of need.

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**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

MyFreeCopyright.com Registered & Protected

Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/03/23/helping-to-heal/

Mar 21 2012

Time to join me and get Fit4Autism

I came up with the idea of “Fit4Autism“ last year. It’s kind of a play on word’s. However, it’s way more then that. As special needs parents we need to be able to take care of our children for as long as possible. The unfortunate truth is that many of us dedicate so much time and energy to our children that we fail to take care of ourselves.

Fit4Autism“ is a challenge I’ve issued to myself and now to you. That challenge is to start doing things to improve your overall health and fitness. Simple things like eating healthier and becoming more physically active. Parking farther away from the store (when possible) or simply walking. As a father to 3 special needs kids (all Autistic) I know how difficult it is to make the time to do this but honestly we can’t afford not to. Who will be their for our kids if we aren’t. We owe it to them as well as ourselves to be as happy and healthy as possible for as long as possible.

If you would like to join “Fit4Autism“ send and email to rob@lostandtired.com

I’ll get an invite off to you right away. Everything is tracked via www.endomondo.com. My hope is that I get as many people to join as possible. There’s motivation and encouragement in numbers. Endomondo works no matter where you are in the world. The more we have the more attention we can get and the more Autism awareness we can spread. Anyone wanting to support the cause is welcomed to join. We owe our kids healthy parents and this is what I’m doing to make sure my kids have that. Join “Fit4Autism” today and improve your health while increasing Autism Awareness.

My Daily Workout

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Permanent link to this article: http://lostandtired.com/2012/03/21/time-to-join-me-and-get-fit4autism/

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