Creating #Autism Awareness and Providing Support Through Honesty and Android
Posts tagged "Autism Speaks"
9th Antibody Infusion: Arrived
01 month ago
We have finally made it over to Oncology for Gavin’s 9th antibody infusion. The infusion was scheduled to begin about an hour ago, so we had to make special arrangements for today.
They were awesome about working with us on the scheduling today.
We are just waiting to get his vitals and preparation medications… Everyone missed lunch and we’re all a bit on the grouchy side. Hopefully, this More >
Houston we have seizures
01 month ago
by Lost and Tired
in Autism
I’ll provide more details later but we are dealing with seizures, at least with Gavin. Gavin’s were more obvious.
Elliott is needing a 24 hr EEG to verify. Elliott had 2 small episodes during the EEG and they want to see what is going on by doing a longer study…….
More to come later….
Kat, I’m going to need to speak with you. Please..
**Thanks for reading**
-Lost and More >
#Autism, Seizures and EEG’s: 03/20/2012
01 month ago
by Lost and Tired
in Autism
I’m at the neurodevelopmental clinic at Akron Children’s Hospital, with Elliott and Gavin.
Elliott is actually doing pretty good today. He isn’t freaking out as is usually for him. However, he’s a bit on the hyper side today. Gavin is doing just fine, as is the norm for him.
Gavin’s appointment is first and Elliott’s is after.
We will get the results of the EEG’s today and hopefully, More >
On the road again
11 month ago
by Lost and Tired
in Autism
Akron Children’s Hospital, here we come.
Elliott seems to be fine this morning. Emmett on the other hand, is fighting his fever again.
It looks like I’ll be taking the boys to Akron Children’s Hospital today and Lizze will stay with Emmett. Having Elliott present for Gavin infusion makes me nervous.
As a special needs family, we have to be able to evolve and meet the current circumstances. More >
God, we need to have another talk
01 month ago
by Lost and Tired
in Autism
God,
I know we have talked about this before but I feel we need to revisit the topic once again. I thought we were on the same page. Clearly, I was wrong about that.
I know you must think that I can handle the challenges associated with being a parent to 3 special needs boys. I appreciate your confidence in me, I really do but sometimes I really think that confidence is misplaced.
Do you More >
Emmett’s fever has broken
11 month ago
by Lost and Tired
in Autism
Emmett’s fever has broken. That’s great news, as it looks as though we can avoid the ER tonight. However, Emmett has been vomiting for the last 30 minutes.
It’s safe to say the he’s returned all the Tylenol we gave him.
Now all we need to do is keep him hydrated and hope his fever stays away until he can have more Tylenol and Advil, in a few hours…
It’s heartbreaking to see how he reacts More >
Please say a prayer for Mr. Emmett John
21 month ago
by Lost and Tired
in Autism
We just heard back from the pediatrician’s office about Emmett. We were told today, that on the off chance his fever hits 103°F, we need to call in.
When they called us back a little bit ago, they told us to give him some Tylenol on top of the Advil he had over an hour ago. If his fever doesn’t break in the next 90 minutes, we have to get him into the ER.
Lizze’s parents are on standby to More >
A 104°F wrench in our plans
01 month ago
by Lost and Tired
in Autism
To further complicate matters, Emmett’s fever has almost hit 104°F. I think this is going to put a wrench into our plans for tomorrow.
It’s one thing to send him to my parents with just a bad cough but with a fever of 104°F, I don’t want him going anywhere. It looks as though Lizze and I will have to split up in the morning. I hate having to do this because this is a pretty big appointment More >
#Autism, Anxiety and Risperdal: Day 6
31 month ago
by Lost and Tired
in Autism
Today is day 6 of Elliott’s journey with Risperdal. For those new to the Lost and Tired blog, Elliott struggles with rather extreme levels of anxiety.
His anxiety had reached a point that it was/is interfering with his life, not to mention, driving those around him crazy. The poor kid worried about everything and we don’t want that for him. I wanted to share with you all how the first week More >
