Creating #Autism Awareness and Providing Support Through Honesty and Android
Posts tagged babble.com
When you have more questions than answers
31 month ago
by Lost and Tired
in Autism
I’m feeling quite overwhelmed as of late. We keep receiving more and more bad news. I mean, bad news is probably the wrong word choice but it’s pretty darn close.
The latest addition to the Lost and Tired family symptoms list is now seizures. I was positive that I was going to get the EEG results back for both Gavin and Elliott and everything would be normal. I wasn’t prepared to hear that More >
#Autism, Seizures and EEG’s: Gavin
11 month ago
by Lost and Tired
in Autism
Sorry for the delay is getting this up but I fell asleep early last night..
I already shared what happened with the neurologist, as far as Elliott is concerned. What I haven’t done yet is getting into what went down with Gavin. Traditionally, Gavin is significantly more complex and honestly, that an understatement. I’m gonna keep this short and sweet because I’m just super tired today and More >
9th Antibody Infusion: A bit on the rough side
01 month ago
by Lost and Tired
in Autism
This was by far the worst Gavin has done at an infusion. I had taken Elliott to the cafeteria to eat lunch while they were putting the IV in. He didn’t want to see that part.
When we got back, about 20 minutes later, it was done and Gavin was back to his video games.
The nurse told me what happened and said that she had never seen him like this. Thankfully he didn’t fight her, he just More >
#Autism, Seizures and EEG’s: Elliott
01 month ago
by Lost and Tired
in Autism
Elliott’s appointment was pretty straight forward. They got a detailed history and reviewed the EEG. I chose to go with Elliott first because he was the easiest or least complicated.
Elliott was very well behaved and just played his 3DS for most of the time. The doctor was totally awesome and was great with the boys. You could tell that he loves his job.
Now for the bad news. Elliott had 2 More >
9th Antibody Infusion: Arrived
01 month ago
We have finally made it over to Oncology for Gavin’s 9th antibody infusion. The infusion was scheduled to begin about an hour ago, so we had to make special arrangements for today.
They were awesome about working with us on the scheduling today.
We are just waiting to get his vitals and preparation medications… Everyone missed lunch and we’re all a bit on the grouchy side. Hopefully, this More >
Houston we have seizures
01 month ago
by Lost and Tired
in Autism
I’ll provide more details later but we are dealing with seizures, at least with Gavin. Gavin’s were more obvious.
Elliott is needing a 24 hr EEG to verify. Elliott had 2 small episodes during the EEG and they want to see what is going on by doing a longer study…….
More to come later….
Kat, I’m going to need to speak with you. Please..
**Thanks for reading**
-Lost and More >
#Autism, Seizures and EEG’s: 03/20/2012
01 month ago
by Lost and Tired
in Autism
I’m at the neurodevelopmental clinic at Akron Children’s Hospital, with Elliott and Gavin.
Elliott is actually doing pretty good today. He isn’t freaking out as is usually for him. However, he’s a bit on the hyper side today. Gavin is doing just fine, as is the norm for him.
Gavin’s appointment is first and Elliott’s is after.
We will get the results of the EEG’s today and hopefully, More >
On the road again
11 month ago
by Lost and Tired
in Autism
Akron Children’s Hospital, here we come.
Elliott seems to be fine this morning. Emmett on the other hand, is fighting his fever again.
It looks like I’ll be taking the boys to Akron Children’s Hospital today and Lizze will stay with Emmett. Having Elliott present for Gavin infusion makes me nervous.
As a special needs family, we have to be able to evolve and meet the current circumstances. More >
God, we need to have another talk
01 month ago
by Lost and Tired
in Autism
God,
I know we have talked about this before but I feel we need to revisit the topic once again. I thought we were on the same page. Clearly, I was wrong about that.
I know you must think that I can handle the challenges associated with being a parent to 3 special needs boys. I appreciate your confidence in me, I really do but sometimes I really think that confidence is misplaced.
Do you More >
