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Tag Archive: balance

Dec 15 2012

Life is a balance


Lizze family has an annual Christmas Party and this year it’s today. Typically, we don’t go because we have the kids and as you probably know from your own experience, that doesn’t always go well. 

These types of events are generally considered to be overstimulation

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However, this year we have decided to let Gavin go and spend time with his cousins. Lizze‘s parents want to take him and so the fallout, if any, will be their to deal with. 

Part of the reason we decided to okay this is because we’re starting to look at things a bit differently. 

With Gavin, we are looking at quality of life issues. 

With everything he has going on with his health, no one knows where he’s going to be in the future. Gavin is still accountable for his actions but we are going to be more flexible with things he’s allowed to do. This is of course, pending good behavior.

Lizze and I will be trying to make an appearance tonight as well. 

Lizze wants to spend some time with her aunt and I’m in total support of that. 

The boys however, will be with my parents because it’s best that we shield them from as much of this possible.

I hope that tonight goes well for everyone. In this case, the end justifies the means. Life is a balance. Trying to ensure that balance can be exhausting to say the least. Sometimes, it’s best to throw caution to the wind and do take a leap of faith. 

Does that make sense?

Permanent link to this article: http://lostandtired.com/2012/12/15/life-is-a-balance/

Dec 14 2012

How do you balance healthy eating vs eating anything at all?


I’ve been on the subject of dietary needs lately.  Many families struggle to get their child on the #autism spectrum to eat, on daily basis.

This is something that the Lost and Tired family is currently working through.

I got to thinking this morning about something and I wanted to share it with you and get your thoughts.

Basically, I was wondering how you balance eating healthy with vs eating anything at all? Does that make sense? Let me give you an example of what I mean.

Right now, the only thing that Elliott will eat, is pretty much East of Chicago pizza. I don’t know what it is about it that agrees with him but he will almost always eat that if offered.

My concern is that he can’t live on East of Chicago pizza, nor can we afford for him to live on it. 

However, in the absence of any other viable options, what are we supposed to do?

When you have a picky eater that isn’t just being difficult, how to you balance healthy eating vs eating anything at all?
Does that make sense?

Permanent link to this article: http://lostandtired.com/2012/12/14/how-do-you-balance-healthy-eating-vs-eating-anything-at-all/

Dec 12 2012

Picking up the pieces, moving forward and finding balance


One of the big things that we have to do as a part of Operation Hope is trying to get our lives back together.

Of all the things that we have to accomplish and all the challenges that must be met, the most difficult for me is picking up the pieces and moving forward.

I realize that may sound a bit cliche but it is what it is. 

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Trying to get our lives in track is no easy task.  In fact, at times I feel it’s impossible. 

I so desperately want to be free from all the baggage we’ve collected over the years.  I want to see the boys happy and healthy. I want to be caught up on our bills and dramatically improve our living environment.

However, to do this is challenging. 

As I walked around my house, I’m completely overwhelmed by chaos.  We love in a really old house and so dust is a big problem.  It’s an even bigger problem when you have kids with asthma.

I’m not lazy, I’m just constantly running around putting out one fire after another, with no end in sight.

When I do find time to straighten up, it’s undone before I can even sit down and enjoy the fruits of my labors.  It’s very much like raking leaves in the middle of Fall.  No sooner do you get the leaves raked and bagged, you turn around and the trees have vomited leaves all over the yard once again.

After a little while, it becomes discouraging and even demoralizing.

Aside from the housework, just staying on top of everything the boys need is a full time job in and of itself.

I haven’t figured out how to even know where to start and I think that’s key.

Permanent link to this article: http://lostandtired.com/2012/12/12/picking-up-the-pieces-moving-forward-and-finding-balance/

May 15 2012

Special Needs Parenting: The delicate balance


I’ve been doing the whole special needs parenting thing for the better part of a decade now.  People always ask me what is the most difficult part. 

They are always surprised by my answer. To me,   the most difficult part of special needs parenting isn’t the kids,  it’s everything else. 

If all I had to do was physically care first my kids,  I could do that.  However,  everything else in life gets in the way and makes it even more challenging.  The biggest issue revolves around money. I have to be able to pay the bills.  If not,  we’d lose our home,  our car and that wouldn’t be good for anyone. 

If all I had to do was worry about bringing in an income,  I could do that.  The problem is that when you have a special needs child, especially 3 and with major health issues,  something always comes up to pull you away from work.

So,  honestly,  the toughest part of special needs parenting is find that ever so delicate balance that allows me to care for physically and provide for family,  all at the same time.

I would guess that many of you out there face the same struggle. 

This is the most recent example of what I mean by this struggle with finding balance. Maybe reading this will help people in general to better understand the constant,  never ending struggle that some families with special needs face in a daily basis.  Many people assume the challenge is the kids themselves but that’s not always the case.

The Balance

Last night was a rough night.  I camped out of the couch because Lizze was having issues with her restless legs syndrome and I figured that if she had more room,  maybe she could get comfortable. 

The couch isn’t the best for someone with chronic back problems and I going to pay for that for the next day or so.

I got Elliott off to school and will hopefully,  God willing,  get some work done today.  Lizze will at least be home today so that will be a big help.  I know that she will try her best.

This is a really fine balance because I have to weigh the importance of what I have to do against Lizze’s limits, which aren’t very high right now. I need to write in order to bring in an income,  but Lizze isn’t physically able to keep up with the boys,  especially Emmett. I usually have to put work on hold and deal with the boys during the day. 

If Lizze pushes herself to much,  she will be down for days,  like literally can’t get out of bed for days.

I’m also very worried about her health.  It has declined so much in the last year. The stress of everything is destroying her body. Asking her to do anything,  is just adding to the problem.  At the same time,  if I don’t work,  we don’t survive.

It’s one of those situations where doing the right thing is really difficult to do.  For starters,  figuring out the right thing to do isn’t easy,  and no matter what you decide,  someone pays a price.

It always feels like an impossible situation and it puts a great deal of stress on me because no matter what I do,  it won’t be good enough.

On the positive side,  I think we will be changing insurance carriers and so I’ll be able to get Lizze to the Cleveland Clinic for help.  That will be huge for the Lost and Tired family.  We need to get her back on her feet so she can once again enjoy and participate in life. 

Much easier said than done but that’s my mission at this point.

**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/05/15/special-needs-parenting-the-delicate-balance/

Mar 21 2012

When you have more questions than answers


I’m feeling quite overwhelmed as of late.  We keep receiving more and more bad news.  I mean,  bad news is probably the wrong word choice but it’s pretty darn close.

The latest addition to the Lost and Tired family symptoms list is now seizures. I was positive that I was going to get the EEG results back for both Gavin and Elliott and everything would be normal.  I wasn’t prepared to hear that they are having seizures.

Honestly, I don’t even know what to do with that information.  The only experience I have with seizures is as a paramedic. 

I always say that I hate going to an appointment looking for answers and end up with more questions. That has been the status quo for as long as I can remember. Yesterday was one of those rare occasions where we actually got answers. 

However,  we got just enough information to worry.  We simply don’t know enough yet and so more tests are going to be needed.

I have to say,  the most frustrating part for me is that we still don’t know why any of this is happening in the first place.  I have no health problems, aside from my cholesterol is out of balance.  Lizze has tons of health issues but most of these are caused by long term stress and not something that would necessarily be passed down to the kids.

Why is it then, that they have all these bizarre health issues?  We’re not even talking common disorders.  I mean,  some of these issues are very rare.

I just don’t know what to do at this point.

Seizures are the newest problem that we have to contend with.  They have likely been there all along,  just undetected.  We were blissfully ignorant for all this time and now that we know about the seizures,  we are worried.

I don’t think there are enough. Antidepressants in the world to even take the edge off.

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/03/21/when-you-have-more-questions-than-answers/

Feb 06 2012

Help, I’m an overprotective parent.


Something I have slowly come to realize is that in my attempts to protect my kids from themselves, I’m robbing them of the independence they are capable of having. It’s very true that I have to protect my kids from themselves. This is especially true when it comes to Gavin.

Gavin lacks common sense and as harsh as that sounds it’s the truth.

When I say he lacks common sense, I mean that he is oblivious to things that would be obvious to most other people. As an example, if I have something cooking on the stove, Gavin will reach for something, almost burning himself. I never occurs to him that the stove is hot. In fact, I could tell him several times and he would still do the very same thing.

He has also been known to walk into the street and straight into oncoming traffic.

For whatever reason, these common sense type things just don’t register with him. As a result, my wife and I have had to protect him from himself. Does that make sense? Developmentally, Gavin is about 3 years old and so we have been very careful with what we allow him to do on his own, and while this has help to keep him safer , it also servers to stile his independence.

I have always justified these actions because, In my mind, his safety must come first.

The problem is that I have become overprotective. While our doctors and therapists say we are doing whats best, I occurred to me that this might not be the best approach, at least all the time.

I spend a great deal of time and energy constantly reminding Gavin not to do certain things because he’s going to get hurt. I have to remind him not to run up and down the stairs, or tell him not to touch something because it’s hot.  I also have to stop him many times because he is going to hurt someone else. No matter how many times we remind Gavin, he never seems to remember.

It’s literally like try to catch water in a sieve. Everything we say and do, all the time and energy we spend, just slips right through the cracks and is gone.

However, last night something happened that has had me thinking. In fact, I wrote about it in yesterday’s, Today’s Victory.

Basically what happened was this. I was bathing Elliott and Gavin still needed his shower. I was a bit overwhelmed and exhausted from the day. Gavin came in and asked if he could take his shower. I told him that I would help him when I was done with Elliott. A bit later he came back and said he could do it by himself.

To be completely honest, and I know how terrible this sounds, but I kinda filter him out anymore. He’s constantly talking and it gets to the point where I just sorta smile and nod. Well, that’s kinda what happened last night. I figured that I was able to listen to what he was doing and the hot water was basically gone anyways. So I told him to go ahead and take his shower.

To my complete and utter amazement, he did just fine on his own. Never in a million years would I have thought he could do that, and yet he did.

Last night I realized that while Gavin absolutely needs close supervision, he might not be as helpless as I had thought. He was able to turn the water on, get the temperature that he found comfortable and then take his shower.

This got me wondering how many other things could Gavin be doing on his own now?

While my overprotective nature is more than justified, the stifling of his independence is an unwanted side effect. As his father, I need to find a way to better balance  protecting him and nurturing his independence.

Just because Gavin was able to take a shower on his own this time, doesn’t mean it will work out the next.

Just so we’re clear, Gavin can take his physical shower on his own. What he needed help with has been turning on the water and making sure it wasn’t to hot.

Regardless of what happens the next time, this event really has me thinking about my parenting and whether or not I’m too overprotective in other areas of his life. Maybe it wouldn’t be so bad if every once in awhile, he learned a lesson the hard way.

After all, he has to fall in order to learn to pick himself back up…..right?

Permanent link to this article: http://lostandtired.com/2012/02/06/help-im-an-overprotective-parent/

Jan 01 2012

Lost and Tired in 2012


Happy New Year everyone.  I hope it went well for all of you. I thought I would make the first post of 2012 relate to what this year has in store.
I have many plans for this year.  Some involving my blog and many more involving my family.

One of my main goals this year is going to be relocating my family to a safer area.  That will be a huge undertaking and finding a new home will be challenging as I can already attest to. 

Something else that will happen this is getting a better understanding of what Gavin is suffering from.  I’m hoping 2012 will bring with it some much needed answers. I also pray that Gavin’s deterioration comes to a halt as well.

We will be finding Emmett a new school. This will require us to battle the local school district.  When it comes to my kids,  I’m not someone they want to mess with.  I’m highly educated,  I know my rights and if push comes to shove, I have a really good attorney.

I have some big things planned for my blog as well.  Some things I have made public and others I haven’t yet.

One of those things is Android4Autism.  This is something very near and dear to my heart.  My goal is to finally have this up and running in 2012. However,  my family will come first and can and will likely cause delays.

I want to focus on my health this year as well.  I want to lose weight and bring my cholesterol back into balance.  With all the stress is endure on a daily basis,  I need to make sure my body can cope.

I also want to focus on finding Lizze some relief from her constant pain and help her to regain her life back or at least as much of it as she can.

I will be spending lots of time with Elliott this year as well. I want to make sure he doesn’t get lost in the shuffle and continues to move forward.

Right now,  those are my main goals for the year.  Some will likely not happen,  while others will.  Things are always changing here in the Lost and Tired family,  so things may need to shift around a bit as new things come up.

What are your plans for the new year? 

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Permanent link to this article: http://lostandtired.com/2012/01/01/lost-and-tired-in-2012/

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