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Tag Archive: biological father

Jul 17 2012

Nature vs Nurture


I’m writing this post because I believe that we have reached a point in Gavin‘s life where but has become very clear that nature has won. 

For those of you unfamiliar with nature vs nurture here’s the best way I can explain it.

Gavin‘s biological father is sociopath.  Most,  if not all of Gavin‘s psychological issues were genetic birthday presents,  from his biological father,  Nick.  The aspergers is likely linked to Lizze,  just to be fair.

Without intervention,nature would like haveGavingrow up to be like Nick. 

However, we had always hoped that by nurturing Gavin and providing unconditional love and support, we would be able to derail that plans that nature had in store for him.

Does that make sense?

Having said that, I want to make it clear that Gavin has a great many fantastic qualities. He’s bright, creative, helpful and polite. These are just a few things off the top of my head.

The problem is that Gavin has a very dark side to him that is becoming more and more prominent. In many ways, this dark side is winning and becoming his dominant personality, if you will.

You are likely already familiar with the meltdowns we deal with on an almost daily basis. He’s also becoming very vocally degrading to Lizze. Basically, he treats her like garbage and as time goes on, it’s getting worse and worse. He is however, very careful not to do this in my presence because he knows how quickly I would put him in his place.

It’s very much like he’s 2 people. When he’s around people that are more likely to give him what he wants, he’s polite and respectful. However, when it comes to people that hold him accountable and don’t let him do whatever he wants, he is very, very unpleasant.

This is very much in line with Nick. He’s one way when people are watching and another when they aren’t. Nick also likes to manhandle the women in his life.

This has been coming on for a very long time and actually started when he very young. He began targeting women with violence and would assault Lizze frequently. While it’s been a long time since he physically went after Lizze, the trend continues.

We have done everything we can possibly do to help Gavin overcome Nicks legacy. He’s been in counciling for many years and we have done nothing but love, nurture and support him.

While we have no intention of giving up, we are realizing that sometimes, nature can’t be overcome.

It breaks my heart to even say this but it’s the truth.

**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/07/17/nature-vs-nurture/

Oct 22 2011

The Adoption


I thought I would post this in honor of the 3 year anniversary of the day I adopted Gavin.   This is the actual letter I wrote to the judge about why I wanted to adopt Gavin.   I often return to this letter to help me put things into perspective……… I was finally able to adopt Gavin on October 22, 2008 after fighting for 10 years to protect him from his abusive biological father and paternal grandmother. 

I love you Gavin :-)

Why do I want to adopt Gavin?

I have been asked the question, Why do I want to adopt Gavin?

This should be very simple to answer but it’s not.  There is so much going on in our lives that I don’t really know how to answer this question anymore.  In truth I have been working on this letter for quite some time. There is so much joy and pain involved in writing this.  I wanted to take my time and do right by Gavin, so here it goes.

Let me start by introducing myself, I’m Rob.  I am almost 30 years old today. I am a husband of 5 years to my amazing wife Lizze and a father to my two miracle babies Elliott Richard (2 years) and Emmett John (7 weeks).  I met Lizze a few months before September 11, 2001.  I was at the tail end of paramedic school and about to suffer a major, life changing back injury. We met each other while walking our dogs at the park. There was a connection right away. However, it was a while before I met Gavin.

The first time I met him was at Meldrum’s, a restaurant in Massillon.  I met them there for dinner.  Gavin and I bonded instantly.  This was uncommon for him as he was very shy. While we sat there coloring and waiting for our food, he spilled an entire glass of ice cold lemonade in my lap.  Lizze thought for sure I was gone after that.  I never really told her but that was the moment I fell in love with her.  We were married about 2 years later.

Since the day I met Gavin I have taken responsibility for every aspect of his life. Not because I had to, because I wanted to.  Lizze and I have raised him together since then.

What does it mean to be a father?

I would like to introduce you to Gavin now.  Gavin is 8 years and 7 months today.  He is a sweet, compassionate, loving and selfless little boy, whom I’ve had the privilege of raising as my own since he was about 1 1/2 years old.  Gavin loves to build with his Lego’s and draw his comic books. Gavin has been through more in his short time on this Earth then most people will in a life time. He has been the middle of a tug of war for almost 8 years.  We have fought very hard to shield him from this, insure his best interests and to get him the help he needs, which most recently included a DNA case in Stark County Family Court against Gavin’s biological father and paternal grandmother; which was triggered by Gavin’s doctors.

Gavin was diagnosed with Asperger’s syndrome in 2005 by Dr. Reynolds and Akron Children’s Hospital. Asperger’s is a form of Autism. Gavin has also been diagnosed with PTSD, ADHD, OCD, and Sensory Integration Disorder. Recently we have been treating him for bipolar disorder as well. Every day is literally a struggle to survive.  Gavin is emotionally about 3 years of age. We live in a world where Gavin “melts down” over everything.

As he gets bigger and stronger he is getting much more difficult to manage. Words cannot describe how difficult this summer has been.  He was extremely difficult to manage and has more recently become very violent.  Gavin hurts himself when he gets angry or frustrated.  He is very dangerous to be around when he is raging. We have built our lives around Gavin’s needs. Meeting Gavin’s needs requires great sacrifice from all of us.  We have involved every available means of support in order meet his needs.  This is extremely difficult to do because what’s best for Gavin is rarely what’s best for Emmett and Elliott. Finding a balance that allows us to keep everyone safe is very challenging.

We have once again begun discussing a residential treatment program for medical stabilization with his doctors because we have to ensure the safety of everyone in the house, including Gavin. When things are out of his control, he panics and lashes out but he would never hurt anyone on purpose. That being said, when he lashes out and melts down, anyone and anything in his path will be collateral damage. We have been working with Dr. Pattie and Dr. Reynolds (for years) to try to stabilize him.  For several years we were taking Gavin to 5 or 6 appointments per week.

His Doctors have told us many times that we have done everything that we can possibly do for him.  They constantly re-assure us and help us get up back up when things get really bad and we begin to doubt ourselves.

We have found a very delicate balance in our lives that has allowed us to tread water.  This balance has required great sacrifice on our part. Gavin can rarely be taken anywhere because of his behaviors. We need multiple baby sitters if Lizze and I ever leave to go anywhere (which rarely happens). He has no real friends because he cannot connect with other children and because it isn’t safe for them. He struggles with most social situations and really struggles with expressing himself. We do our best to provide him with a safe environment where ever he goes. We do all of this and more for him while still keeping the best interests of our other 2 children at the forefront of our minds.

Things are extremely difficult but we pull together as a family and we push forward because no one gets left behind. Elliott in many ways has become Gavin’s “big brother”. We have worked so hard to give Gavin a chance to live a quality life and reach his potential. We have found him a great school.  He attends Summit Academy.  Every one of the teachers and staff are angels. They have made such a difference in his life as well as our own. Lizze and I are very active in the school as she is the president of the PTA.

All of this has helped manage the situation but as terrible as it sounds the Gavin we knew died many years ago.  What is left is a little boy who is lost in his own imagination. A little boy who rarely makes any real connections with anyone. A child who struggles in every aspect of his life. We no longer live in the same place at the same time, if that makes sense.

I cannot begin to describe the pain of losing a child to Autism. I catch myself thinking back to when he was little. I try to remember if there was something I missed. Have I failed him? What could I have done differently? I always come to the same one wish.  I wish I could go back to when he was 3 or 4 and I took him fishing for the first time at Price Park.  He caught a blue gill all by himself.  He was so proud and so happy that day.

That is the day I always return to. That was one the best and worst days of my life all at the same time. It was great because we had so much fun and I was so proud of him. We were connected that day. We were in the same place at the same time.

It was the worst day because that was the last day I can remember we had like that.

He began slipping away after that (although we were not sure why at the time). I wish I could go back and make that day last just a little while longer.  I wish I would have known that would be one of the last times we would have to spend together in that place. That place where we were connected and he knew I loved him. I wish I could have said goodbye.  It seems like the next day I woke up and everything was different.  I’m really struggling to write this because I try not to think about those days because I can’t stop crying. It hurts to cry anymore.  I miss him so much.

Even though I live with him every day we aren’t connected the same way anymore.  Gavin likes to spend his time alone in his room working on his Lego inventions with his imaginary friends.  That seems to make him happy.  We are told that Gavin does not perceive things like we do.  I often wonder if he knows how much we love him.  We tell him all the time but I don’t think he gets it.   We constantly worry about his future.  We worry about everything.

Probably the most difficult part about this whole thing is we know he’s still in there.  Every once in a while we get a glimpse of him. It’s like he’s trapped inside the fog but sometimes he fights his way through and we get our little boy back.  These glimpses last only a few moments and before you realize it they are gone.  Dr. Patti calls it the Swiss cheese effect.  Sometimes all the holes line up and we can see through.  We live for those moments. They are few and far between.

I love Gavin for who he is and morn for who he was.  I would never try to change him to fit a mold. I try to guide him though his journey as safely as possible. I’ve been there for him through everything.

I’ve been there for all the nightmares, meltdowns and injuries.  I’ve also been there for all the little victories like brushing his teeth and getting himself dressed for school.  I was there for all his karate awards and school plays.  I’ve been to all his appointments and to pick him up from school. I’ve made sure the tooth fairy doesn’t forget to visit.  I make sure he has clothes to wear, food to eat, and a roof over his head.  I make sure that the spaghetti sauce doesn’t have any “specks” in it because I know he won’t eat it if he sees “specks” of seasoning.

I make sure our house is as safe for him as possible. I gave up my career so I could work out of my house because Gavin requires Lizze and me both to be there.  I sold most of my possessions so I could give him what he needs. I have made countless sacrifices in my life so I could meet his special needs better and be there for him. I live each and every day in constant physical pain because of my back injury but I push through it because my wife and children need me to.

We have gone bankrupt in the process. The only help we ever receive is from our families and Gavin’s amazing doctors and teachers. These people amaze us because they don’t have to get into the trenches with us but they do anyway because Gavin has touched their lives. We have received no help from his biological father.

Gavin’s father is an alcoholic and a drug addict.  He has shown up to court in Stark County, twice over the legal limit and has 2 DUI’s. He has yet, to our knowledge, completed any drug and alcohol counseling and or treatment.  He also did not complete his DNA case plan after almost 2years. This is why Jobs and Families finally moved to terminate their involvement (because of his lack of cooperation).

We voluntarily chose to enter into an agreement with his father and grandmother.  This agreement put Gavin’s doctor’s in charge of their visitation, specifically Dr. Pattie. This legally binding agreement is on file in Stark County.

This will be my second adoption attempt.  The first time Judge Park granted the adoption. It was appealed and overturned. We then went to the state supreme court only to lose again. The Ohio Supreme Court didn’t hear our case, thereby upholding the ruling of the Fifth District Court of Appeals.

Gavin’s father and paternal grandmother fought feverishly to get the adoption over turned and succeeded in taking it away. However, here we are almost four years later and not a single child support payment has been made.  In fact, they have not had any type of contact with Gavin in well over a year.

Lizze and Dr. Pattie decided to move their supervised visits to the YWCA because it was a better fit for Gavin and his special needs. It was more of a therapeutic environment and they would help Gavin’s biological father and paternal grandmother learn how to interact with Gavin appropriately. They refused to show up at the visits as a “matter of principle” because they don’t believe they need to be supervised.  They allowed pride and principle to separate them from Gavin. Nick then received his 2nd DUI, went to jail and the visits stopped all together.

At no time did we ever discourage them from seeing him or him from wanting to see them. To this day, Gavin’s father still has yet to set up his visits at the YWCA.

We have recently been drug into court in Muskingum County to face contempt charges claiming we were “not allowing Pam (Gavin’s paternal grandmother) to exercise her visitation”. We have been following the Stark County Court Order to the letter (an order we all – myself, my wife, Gavin’s biological father and paternal grandmother – agreed to follow and signed).

We were found in contempt for doing so by Muskingum County court and my wife now faces jail time if she does not turn him over.  We have the full support of all Gavin’s doctors in perusing this adoption again. Our lives are so fragile and Gavin’s is even more so.  All we want is to be a family and move on as best we can.

Granting this adoption will allow us to do just that, move on, and live as a family.  Fundamentally nothing will change because I‘m the only father figure he has ever known.  I’m the one he goes to when he is scared. I’m the one that shields him from all of this needless court drama. I’ve seen him through all the broken promises and missed visits. We have made up countless excuses for why his biological father and grandmother will not come to see him.  All while ensuring Gavin that it’s not his fault.

We tell him they have “homework” to do before they see him at the new visitation.  For a while he would ask us why they weren’t doing their homework.  Eventually he stopped asking and now rarely ever mentions them anymore. Believe it or not that’s heart breaking for me as father. God has given him many challenges in life already, he doesn’t need this one.

Nothing will change the fact that I’m his father, even though he calls me his “Robby”.  I have never encouraged him to call me dad because that’s just a name and it means nothing. I know what he means when he calls me “his Robby”. No matter what happens I will still be here doing the same things I have been doing for 7 years, along with my wife. I will never be one of those who abandon him, never.  I will be here waiting patiently for the next time Gavin finds his way through the fog.  I will try to reach out and grab his hand and hold on to him for that moment because it is so precious.

I will try very hard to remember to ask him if he’s happy, if he knows we love him and how lucky we are to have him. I just need to know he is happy with his life, that he knows how much I love him and how proud I am to be a part of his life. I want him to know if there was a way I could take all of this away from him I would. Sadly, I know I cannot take this burden from him but I will walk by his side through his entire journey. I absolutely believe that if anyone can rise above these difficulties it will be Gavin and I will be here for him no matter what happens.

I humbly ask, please grant Gavin and me this adoption and help me to put this all behind us. Please help me give Gavin the stability and consistency that he so desperately needs and deserves. Please help us give him a fighting chance.

Respectfully,

Rob Gorski

 

Permanent link to this article: http://lostandtired.com/2011/10/22/the-adoption/

Jul 07 2011

Aspergers, choices and the behavior plan


Gavin and I met with Dr. Pattie for about an hour tonight. There were no snacks and no prizes at the end. We sat there and talked. We tried to get a better understanding of where Gavin is coming from when he makes the choices he does. I don’t think we are any better off right now because Gavin really didn’t make a whole lot of sense when he was talking. At a few points he started to get worked up but we quickly responded and defused the situation.

While we don’t have a better understanding of his motives he did put together a pseudo behavior plan. Gavin made a list of ways he can “defuse” himself when he gets frustrated. These would be better options then melting down or hurting himself. What concerns me the most right now is that he was only upset tonight because he couldn’t have a snack and because he had to have oatmeal. At no point did he show remorse for injuring and terrifying Elliott or waking up his sick little brother, seemingly on purpose. He didn’t give them a single thought. That worries me because we are already concerned about sociopathy and the fact he only seems to care about what happens to himself and not about the other people affected by his behavior makes me nervous.

Dr. Pattie said that it’s very self-centered but that it could simply be Aspergers and adolescence. It could also be coming from a darker place and right now we just don’t know. We have to continue to hold him accountable for his actions as he CLEARLY knows what he’s doing. I’m worried that he is slowly turning into his biological father or heading down that same path and that would NOT be a good thing as evidenced by the fact that he abused and abandoned Gavin. Hopefully we can find a way to reach him and keep him from going down that path. Gavin is a GOOD kid that just makes “LESS THAN GOOD” choices. I believe he can prevail but it’s going to take some work…..and patience…….AND……a whole lot of outside the box thinking.

Permanent link to this article: http://lostandtired.com/2011/07/07/aspergers-choices-and-the-behavior-plan/

May 09 2011

My 2 cents


Rob doesn’t want me to stoop to ThyGuyX’s level. He said that I should say my piece but not stoop that low. I’ll be honest with y’all here; I don’t know that I am capable of doing that. I know that of all the things I wanted my first “guest post” on Rob’s blog to be about, some douche bag wasn’t even on the list. Yet, here we are.

 

ThyGuyX, you are a douche bag. I won’t refer to you with a “Mr.” because that is giving you a level of respect that I don’t feel you deserve. Period. You were coward enough to attack children. Yes, true, you did so through their parentage but you were attacking children nonetheless. How sad and bored you must be to sink so low.

 

Now, allow me to address your comment because while my husband is a better person than I and won’t sink to your level; I will address what you’ve said. Line by line. Word by word.

 

I am seeing red right now; that’s how angry I am with you and your ignorance.

 

“Let me get this straight… you have three retarded kids.

No, you are wrong. I have three beautiful, wonderful, loving special needs children.

That means that not only are you our your wife are making genetic failures,

First of all, we are not making genetic failures.

you kept right on breeding afterwards. Maybe you didn’t now about the first one immediately, and possibly didn’t know about the first by the time you had the second, but wtf at the third.

First, of all “know” is spelled with a “k”. Just to be clear since we seem to be attacking intelligence levels and whatnot.

We didn’t know about Gavin until I was well into my pregnancy with Elliott Richard (#2). While Gavin has Aspergers, a large part of Gavin’s issues are because of the treatment he received from his biological father and his paternal grandmother. They are both sociopaths and played horrible, horrible head games with a small boy doing irreparable damage. Elliott Richard also has Aspergers as well as ADHD. As do most children in America today, guess the nation is full of “genetic failures”. As for Mr. Emmett John, Elliott Richard hadn’t presented with either issue when I became pregnant with Mr. Emmett John. There was no way of knowing that he would be diagnosed with Autism as well at the time. Oh, and just in case you are reading this, I happen to have ADHD and Aspergers as well. Only I just found out about my Aspergers diagnosis.

Do you plan on caring for these things their entire lives or do the taxpayers eventually have to baring the load of even more unwanted animals.”

As for whether we plan to care for them their entire lives or “do the taxpayers eventually have to baring the load”? Believe it or not, we are responsible parents. We plan to care for them until the moment of our deaths. Then we have Last Will and Testiments in place to be sure that they are cared for by loved ones. So worry not, ThyGuyX, my babies will never be your responsibility, which is for the best since I wouldn’t want you raising them to hate themselves simply for existing.

 

Finally, do not EVER refer to my children as “things” or “unwanted animals” again. They are human beings with feelings, intelligent thoughts and emotions – all things you obviously lack. They have goals and aspirations in life. As their mother, I will love them and do all that I can to see that they reach those goals. Unfortunately for you, I am what is often referred to as a “mama bear”. Meaning there is very little I won’t do to protect my children. Luckily for you, there are laws protecting scum like you – for some unknown reason – and I am of no good to my children in jail. Now please stay away from my family. We have enough troubles of our own. We do not need bottom feeders like you raising my blood pressure and as I previously stated, being a douche bag.

Permanent link to this article: http://lostandtired.com/2011/05/09/my-2-cents/

Apr 12 2011

Autism and it’s complexities..


Autism complicates everything for my family. Gavin is by far the complex child we have. By complex I mean he has the most difficult issues to deal with. Here’s the latest example. Gavin has a history of chest pain. We’ve had him checked out many times and everything is always ok. The reason for the concern is that on his biological father’s side of the family there is a history of spontaneous aortic ruptures or tears. Gavin’s biological aunt died recently during child birth and she was barely 30 years old. Gavin’s biological has heart related issues as well. We only have bits and pieces of information because they no longer have contact with us and even when they did they wouldnt tell us. So the concern is for good reason.

Gavin has myocardia (spelling is off and maybe the name as well). Basically his heart is in the middle of his chest instead of off to the side. Not necessarily a problem just unusual, I guess. Anyway, the problem is that all Gavin can tell us is that his chest hurts. He can’t do into more detail then that. If he tries it just doesn’t make any sense. So when his chest hurts we can’t ascertain any more information then “his chest hurts”. I was a paramedic for a long time and if I could get accurate information from Gavin then we could pick a direction to go in. Gavin is VERY general and so “chest hurts” could literally mean any number of things. So because we can’t take any chances we have to pack him up and take him to the hospital.

I’ve lost track of how many times we have done that. We do this because we have to and because we can’t get reliable information from him. Also the “one” time we don’t go it will end up being something serious. We can’t afford to take any chances with his life. So in that spirit, we will be putting everything on hold once more because Gavin says he is having “chest pain” again.

So after we see Dr. R for Gavin’s hallucinations we will be driving up to Akron Children’s Hospital to visit the cardiologist for another echo to make sure everything is ok. This may have been avoidable if we could get more reliable information from Gavin. This impacts more then just us because we have to pull Gavin out of school and find someone to watch the other 2 boys (and pick Elliott from school). This is all last minute so it’s not easy to find the help we need.

If Gavin were not Autistic then he would likely be in a position to better articulate what he is experiencing. This is just one of the MANY ways Autism makes everything so much more complicated then it might otherwise be.

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Permanent link to this article: http://lostandtired.com/2011/04/12/autism-and-its-complexities/

Dec 01 2010

Resentment,Grief and Guilt (A very honest post)


This is how I will always remember him

I want to talk about a very personal situation and share my feelings on this particular subject. Most of my posts revolve around Gavin, my 11 year old son. Honestly, that’s because Gavin’s behaviors are one of my single biggest source of stress. Please, notice I said “Gavin’s behaviors” and not “Gavin”.  Gavin is a very unique and very complicated person. I want to be very honest about my feelings in this post in order to give the world a better understanding of what our lives are like.

I also want people to understand that it’s okay to feel the way you feel. Raising a child on the spectrum is no easy task, but in the end, is totally worth while.

Gavin came into my life when he was about 15 months old. His biological father and my wife’s ex-husband,  was a drug addicted, alcoholic, wife beater and child abandoning loser. While that may sound harsh, every bit of it’s true. I said I was going to be honest. This is me being honest.

When Gavin and I met we bonded instantly. I grew to love him more than anything in the world (I would even fight, in court to protect him, for the better part of a decade at great expense).

One day, when he was 3 or 4 years old, everything changed. We put him to bed one night “Gavin” and he woke up someone else.

Most people won’t understand what I’m talking about and honestly, I don’t fully understand it myself. The truth is, it literally felt like he changed overnight. I know how crazy that sounds but it’s the God’s honest truth. He looked exactly the same as he did the night before, but it was no longer him. I remember thinking that someone must have come into his room in the middle of the night and stole him from us. In exchange we were left with someone we didn’t know.

This person looked just like Gavin, but at the same time, wasn’t. The light in his eyes was gone. His entire personality shifted and he became disconnected, violent and mechanical. He was a different person.

No matter how I try to explain this it will never make any sense and likely come across wrong unless you have experienced this tragedy yourself and even then…… That said, I’ll do my best to explain.

The Gavin I knew and loved, the one I had raised for almost 3 years had, for all intents and purposes, died. I hate reliving this because it is so incredibly painful to remember. Few people will ever experience this unique type of loss and I’m thankful for that. This type of loss is truly a torturous one, because while the child you loved is essentially gone, their body isn’t. Every single day I wake up, I see my son and for a split second, I forget what happened. However, without fail, I come crashing back to reality the moment I try to engage with him.

Even after all these years, it never really gets easier.

We sought the help of anyone and everyone that could tell us what had happened and how to fix it. When we heard the word Autism for the first time, it was like my world had been made of glass and with one word, shattered into millions of tiny pieces, never to truly be put back together.

We learned that Gavin was very rare and that he may continue to regress (which he has). I will never forget that feeling or that moment. I thought putting a name to what had happened would make it easier, but it doesn’t, it just gives you something to hate. For those of you out there, that for some reason consider Autism a blessing, I’m sorry if this offends you. I hate Autism. I hate Autism with every ounce of who I am.

However, let me say that while I hate Autism, I draw a very distinct line between Autism and Gavin. Gavin is my son and Autism is the force that has censored him, for lack of a better word.

As the years went on we battled this force, this Autism that had taken him from us. During this battle, we have discovered other forces at work as well.

Gavin has been diagnosed with Schizoaffective disorder, Pica, ADHD, OCD, PTSD, Sensory Integration disorder, Psychosis, Primary Immunodeficiency and a yet to be identified Degenerative Neurological Disorder.

Honestly, this battle has come at great cost and has been largely fruitless. It seems that no matter how much we poor into Gavin, not much seems to really stick. We have seen countless experts from Akron Children’s Hospital to the Cleveland Clinic, however, we are left with more question than answers. The only consistent thing we hear, is that no one has really ever seen a child like Gavin. I can’t tell you how frustrating it is to hear that over and over and over again.

When it was just Lizze and I, we were the only ones that paid the price of that fight. Now we have Elliott and Emmett to worry about as well. All 3 of our boys are on the spectrum and all unique in their own way. Elliott is very high functioning Aspergers. Most people would never know he was an ASD child. He does however, have a ton of anxiety, and as of late, has begun to struggle a bit. Elliot has nightmares because of the scary things Gavin tells him.

Emmett is pre-verbal and significantly developmentally delayed. As such, he has limited ability to communicate and is also sensory nightmare. His world is very difficult for him to navigate. We are involved heavily with early intervention and are currently battling the school system on his behalf.

Gavin’s behaviors effect the entire family. Gavin can be very violent. Usually it’s toward himself or his surroundings but on the rare occasion he can attach those around him. Until recently it was believed that some or most of the behaviors were outside of his control. However, it is very clear that most of Gavin’s behaviors can be willful. It has become clear that Gavin’s purpose is to simply disrupt his environment and those around him. He is more prone to outbursts but typically, he’s incapable of controlling himself, he just doesn’t……

In fairness to Gavin, none of this is truly ever his fault. Sure he makes the choices he does but there is so much more going on underneath the surface. The largest one being the extent of which he is emotionally delayed. Gavin is pegged at about 3 or 4 years of age, emotionally. This means that Gavin is basically a toddler trapped in the body of an almost teenager. When he gets angry, upset, happy or sad, he responds like a 3 or 4 year old would. So while he is making the choice at times to be disruptive, it’s just not that cut and dry.

The problem is that while he may only be 3 or 4 years old on the inside, he is much bigger and stronger on the outside. If a 3 or 4 years old had a meltdown or temper tantrum they would be nowhere near as dangerous or destructive as Gavin can be.

It’s challenging enough trying to raise a child on the Autism Spectrum. However, when you have child with Autism and an ever growing list of other problems it becomes ever more challenging.  The other major thing that factors into this is when he is purposefully disruptive as means of manipulating a situation. We are very compassionate and understanding when things are outside of his control. Where the compassion ends is when he terrorizes everyone in the house with his meltdowns. The resentment begins to form after years of being a prisoner in our own home. For so many years we have been held hostage by Gavin’s meltdowns and that only adds to the feelings of resentment.

The other side to the coin is that we are a blended family. Trying to blend two families into one is a challenging task to begin with. Instinctively, I want to protect Elliott and Emmett from Gavin’s behaviors and influence. My relationship with Elliott and Emmett is very different than my relationship with Gavin.

As much as I truly hate to admit it, there is a difference between Gavin and my biological children. Maybe it has to do with the fact that my Gavin, the Gavin I knew for so long, has gone away. Regardless of the reasons, it doesn’t make me feel any less guilty about it. I’m told that this is very normal. That no matter how much I love Gavin, there simply isn’t that biological connection. This is very difficult for me to deal with, but it’s something I’m working on.

I hate the fact that Gavin continues to behave the way he does.  He doesn’t seem to care how it effects everyone around him. There is talk of Gavin heading down the road of becoming a sociopath. No one knows what he is even capable of feeling, if anything at all. Simply typing that last sentence makes me feel sick to my stomach. Believe me, I know how bad that sounds. I also know how horrible it feels hear that about your son in the first place.

A really good example is when you get a hug from Elliott or Emmett, it’s warm and genuine. However, if you get a hug from Gavin it is mechanical and empty. It’s very uncomfortable and often times creepy. It’s heartbreaking for me because it never used to be that way. It wasn’t like that before Autism.

I don’t always know what to do with these feelings of resentment, not to mention the subsequent guilt.  All of the people involved on a more intimate level tell me that feeling this way is normal. After all, I’m only human. Gavin is sinking the ship. The question becomes where or not he knows he is and if he does why is he doing that to the only people who have stood by him through everything. Why would he want to hurt us? The simple and crushing truth is that it just isn’t Gavin anymore. The problem is that no one knows for sure what is going on and what his motives are. It become “easy” to resent the stranger in the house that is hurting Elliott and Emmett. It becomes easy to resent the behavior that has cost us our freedom and safety. It is also easy to resent Autism for taking Gavin away from us in the first place and leaving us with a shell of who he was. The irrational part comes in when I resent the Gavin that is here with us because his being here cost the life of the Gavin that was. There is so much grief and guilt that I feel everyday. What did I miss? What did I do wrong? I wonder all the time if Gavin is still in there somewhere locked away.  Everyday is an internal struggle to try to keep a perspective on everything. I have chosen to embrace my feelings both good and bad because if I don’t then the resentment could grow into something more. I understand that it’s ok to resent his behaviors and the choices he makes. It’s ok to resent the fact that he does these things on purpose. Sometimes it’s ok to even resent him for doing everything he does to every person in this house. But just because I feel resentment doesn’t mean I can’t still love him. Loving Gavin isn’t always easy but it will never go away…

Permanent link to this article: http://lostandtired.com/2010/12/01/resentmentgrief-and-guilt-a-very-honest-post/

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