Autism,Aspergers Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: blog

Jan 13 2013

Progress is a relative term


What does it mean to make progress?? That’s a pretty good question and one not easily answered.

With everything the Lost and Tired family has been enduring for so long, it sometimes feels like we never make any progress. For me personally, it’s frustrating and overwhelming to feel like we are just spinning our wheels. 

Over the past few days, I’ve come to realize something.

Progress is a relative term and can mean something different for everyone.  Much the same way that autism is different for everyone. 

I think that I sometimes have my expectations set a little bit too high.  I want to see us moving forward at a faster pace because we have so much ground to make up. However, I’ve recently realized that sometimes moving forward can simply mean not slipping backwards.

Looking at things from that perspective, I think that we are making some progress and I thought I would share that with my readers.

Since moving Gavin out of the house, it’s been a period of adjustment for everyone.  As we are finally beginning the long road to recovery, we are beginning to accomplish just a bit more than we were before. 

One of the biggest things that I’ve noticed is how clean the upstairs bathroom and the living room have been.  These have been long time pet peeves of mine.  It’s so nice to be able to walk into a clean bathroom or walk into a clean living room. 

Everyone is making a concerted effort to keep up with these two rooms and it’s really showing. 

I have to give mad props to Emmett because he’s been a huge help.  Today, he brought down the empty toilet paper rolls from the bathroom without being asked.  Everyone is doing just a little bit more than they used to and it’s making a difference. 

Don’t get me wrong, we have only just started down the long,  winding and treacherous road to recovery. 

Having said that, I’m so proud of how everyone is pulling together so far. 

Permanent link to this article: http://lostandtired.com/2013/01/13/progress-is-a-relative-term/

Jan 07 2013

Fun with Grandpa


I wanted to share this picture from either Christmas or New Year’s. I can’t remember and I’m to look at the Meta data. :-)

Anyways, just look at Emmett’s face and he’s goofing around with my dad.

I love to see him smile and my dad is really good at making him smile.  :-)

image

Permanent link to this article: http://lostandtired.com/2013/01/07/fun-with-grandpa/

Nov 27 2012

Never judge a book by it’s cover


My new article is up over at the Childswork blog. I would really appreciate it if you stop by and check it out. Please “Like” it and share it with your friends on Facebook.

I would also love to hear your feedback in the comments sections.

Thanks again everyone, I really, truly appreciate.

 

Never Judge a Book by It’s Cover

Permanent link to this article: http://www.childswork.com/blog/2012/11/never-judge-a-book-by-its-cover/

Aug 01 2012

Lizze is going to be moving……


I wanted to let everyone know that Lizze is going to be moving to a new blog and rebuilding from scratch.  What did you think I meant?  :-P

As you are aware,  Google detected malware awhile ago. 

There was a bad plugin that caused the problems. 

Even though Google now recognizes that the dailymommysurvival.com is clean and safe, it takes a great deal of time for things to be reindexed. As a result,  it appears as though her site is dangerous. 

I have requested a review through Google’s webmaster tools but the process can take months.

Basically,  Lizze is faced with the decision to wait it out or start from scratch. After with our fellow blogging friends,  it was decided that she would have to start over from scratch, with a completely new blog

This is very frustrating for her because she has put many years of her heart and soul into dailymommysurvival.com only to have to start from scratch.

I’m asking that all of you please consider making the switch with her.  When the new sites goes live,  I post all the information.  If you could please update your bookmarks to reflect the changes at that time,  I would really appreciate, as would Lizze.

She going through a great deal and this was not something that she needed to do.

Please show your support and follow her to her new blog,  when it goes live in the next few days.  :-)

**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/08/01/lizze-is-going-to-be-moving/

Jun 01 2012

#Autism Spotlight: Miche Mozaix puzzle piece jewelry


I would like to introduce you to Miche Mozaix. This is a company that makes handmade jewelry ,home decor and art from Mosaic Tile. They are a local business, based out of Cleveland, Ohio. They make some pretty incredible stuff. They also make some amazing #Autism Awareness pieces as well. See some examples in the picture below.

What’s even cooler about this company and something that you don’t see very often, is that 100% of all puzzle piece jewelry sales benefit #Autism causes. One of those causes is Lost and Tired. Basically, anytime puzzle piece jewelry is purchased and the buyer adds “lost and tired” to the notes to seller, 20% of that sale goes to help the Lost and Tired family and Lost and Tired blog, including the Autism Help Forums. 

Now I want to share with you the absolute coolest part of this company, at least for me. I would like to introduce you to the Clay Sculpting Aficionado behind Miche Mozaix. 

[scribd id=83944229 key=key-14gytievehkdh56sknkx mode=list]

If you are looking for any type of handmade jewelry, home decor and art, created from Mosaic Tile, look no further. If you are looking for something to help spread #Autism Awareness, their puzzle piece jewelry is absolutely perfect. Not only will people stop and ask you about what your wearing, but you are also helping to support #Autism causes at the same time.

Miche Mozaix contact information:

 

http://michemozaix.etsy.com
http://michemozaix.com

Permanent link to this article: http://lostandtired.com/2012/06/01/autism-spotlight-miche-mozaix-puzzle-piece-jewelry/

May 22 2012

Check out my featured post on the Akron Children’s Hospital Blog


I’m honored and honestly really excited to be featured on the Akron Children’s Hospital blog. The post is titled: #TechTuesday: Akron Children’s App Puts Vital Health Data In Palm Of Your Hand. This post is my review of their Care4Kids app that is available on both Android and iOS devices.

It’s really cool because Akron Children’s Hospital has taken such amazing care of our boys that a chance to do something like this is just awesome for me. :-)

Check out the Akron Children’d Hospital blog. Read my review and leave some feedback. I really appreciate it :-)

 

#TechTuesday: Akron Children’s App Puts Vital Health Data In Palm Of Your Hand.

Permanent link to this article: http://lostandtired.com/2012/05/22/check-out-my-featured-post-on-the-akron-childrens-hospital-blog/

May 19 2012

Dear God, Please help me to understand…


 

 

Dear God,

Please help me to understand because I don’t.

I’ve had migraine headaches since I was pregnant with Gavin. That’s 13 years now, in case you lost track. I’ve lived with this curse. I’ve learned to function with them. I’ve found a way to fight my way through the pain, at the expense of myself and those closest to me. Only to have my country tell me that they are “simply headaches and everyone gets headaches”. Only to have them get worse now, after 13 years.

Why?!

I suppose I should feel lucky – and I’m sure some will tell me I should – because I’ve made it this long with the pain maintaining a status quo even if the frequency has increased. But I don’t feel lucky and I won’t. I can’t. How can I when I’m now losing sleep because of them? How can I when I’m now waking up and making a mad dash for my Zofran, praying – to you ironically enough – that I take it in time to avoid vomiting. I’ve never vomited from a migraine before but that’s all changed now.

Now my anti-nausea medications rarely work. Now I can’t eat because it all sits heavy and tastes horrible because of the pain in my head and the nausea in my stomach.

Now I am making mad dashes for the bathroom, the kitchen sink, the shower room tub, anywhere away from Rob and the Boys so that I might be alone when I lose the contents of my stomach.

I read somewhere once that migraine sufferers vomit to help release the pressure in our heads. That vomiting is actually supposed to help the pain. Why doesn’t it help mine?

I’m losing weight because of the pain. Because I can’t eat. Because I can’t keep food down.

God, help me.

Please!

What am I supposed to do?

It’s so bad that I tried to take my pain medication and anti-nausea medication a little while ago and I had to physically fight to get the pills down. And then I had to fight again to keep them down. I almost lost the battle at one point. How long am I supposed to go on like this?

While we have this open dialog going, God, there are a few more things I would like to ask you about, if you don’t mind.

I’ve heard – repeatedly – that you never give anyone more than they can handle – and while that’s a lovely sentiment, it would be really nice if you could put your trust and faith into someone else for a while. I mean no disrespect when I say that. I’m merely asking for a break in the seemingly endless onslaught of crap.

I had a therapist tell me once…

Elizabeth, everyone gets crap. Some get a little bit of crap at time, in a steady onslaught. (Like me.) Some get a little bit of crap here and a little bit of crap there but they get bigger loads of crap than the first person because it’s spaced out. Then there are the people who get big, heaping loads of crap in 50 gallon drums at a time. (This would be my ex-husband.)

While I don’t want to be either of the other two people because I can hardly handle being me, I don’t know how I would survive with larger loads then I already have.

I need a break!

ROB NEEDS A BREAK!

We are breaking. Crumbling. Falling apart at the seams, slowly but surely, from the constant onslaught of crap.

While we are on the topic of breaking, crumbling and falling apart…I’m not sure you knew what you were doing when you gave me this life. No offense (and yes, I understand that I just told you I don’t think you know/knew what you were doing) but honestly, I sincerely think you missed the mark on this one.

I can barely hold it together under the strain and pressures of my illnesses. Then you add three children with basic special needs. Then you add major health issues for two of those children. I’m drowning and I haven’t even gotten to our living situation, lack of support (save a few people), or our financial situation.

You’ve given me too much for any one person and thank you for sending me Rob so at least I’m not alone. Even still, you’ve given us too much for two people. We are buckling under the pressure of it all.

God, please help me.

Help me to carry these “burdens” better, more effectively, more gracefully, more patiently, more compassionately.

I am not a very good mother or wife. I am not a very effective, patient or compassionate member of my family partly because of the pain (not all the time but sometimes, on days like today) and partly because I’m just in so far over my head. I want to be better for my family. They deserve better than the wife and mother they are current living with.

I am not a very good daughter or grand-daughter. I am not very appreciative or faithful. I should visit my grand-parents. They are both within a 5-10 minute drive so there’s really no excuse. And someday I will wish I had gone to see them both more than I have but it will be too late.

I am not a very good friend either. I am not a very good listener nor am I very patient or faithful. I should call my friends more than I do. I need to maintain my friendships because they aren’t going to maintain themselves and I only have a very few friends, whom I can’t afford to lose – nor do I want to because I love them dearly and for once in my life I’ve found people who actually accept me for me, as I am. Which is something I’ve never had before.

God, please help me to survive this and maybe ever learn to live and not just survive.

Please help me to understand.

Please help me.

Elizabeth

Permanent link to this article: http://lostandtired.com/2012/05/19/dear-god-please-help-me-to-understand/

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