Creating #Autism Awareness and Providing Support Through Honesty and Android
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Lost and Tired family update
01 year ago
It’s been a few days since I really updated anything. So here it goes. Gavin is recovered from his spinal tap. No problems as of today. They can happen at any point within the first 5-7 days we were told by the doctor. That said, Gavin is basically completely psychotic. He has lost touch with reality and movements have also gotten worse. Behaviorally he is doing ok. He is hurting himself and More >
Autism and bridging the communication gap…
01 year ago
The most difficult part of having a non-verbal (or pre-verbal) child on the spectrum is finding a way to communicate. People take communication for granted. Imagine if you were hungry or scared and you couldn’t ask for help. That is what Emmett experiences all day every day. We have been working on sign language and it’s starting to take. Emmett will ask for “more, please” without being reminded More >
I’m soooooo tired…..
01 year ago
So I got up this morning at 5am to a screaming Emmett. I got him back to sleep for about 10 minutes till I got sick (stress), Then I cried for a bit cause I missed my wife and I was completely overwhelmed. I took the kids over to my parents house and did some running around. I had to go to Sprint (more on that later) and Best Buy. Then to the post office and then to fill the 5 gallon water jugs. More >
My inner thoughts…
01 year ago
I have been sitting here trying to distract myself from the idea of going to bed and not having Lizze there next to me. Last night I suggested to Lizze that maybe this would be good for her. I wan’t trying to push her out but I need her to get better. And to be completely honest what she is experiencing is very destabilizing and very, very fine balance we have been trying to maintain. I don’t More >
This is what psychotic is for Gavin…..
11 year ago
Psychotic simply means losing touch with reality. We all see things on TV about psychotic people but in our “real life” dealings with psychosis this is largely what we find. This is a brief video of a conversation I had with Gavin before Emmett interrupted. It’s really easy to say this is just his imagination but it goes so far beyond that. He truly doesn’t know that these things are not real. He More >
Gavin Update…..Tough Decisions…
11 year ago
We haven’t heard back yet from Dr. R…. I don’t know if Lizze and I should just make a decision and go?
After all the redness on Gavin’s head went away there are no visible marks. So that’s a good thing. Is that enough of a reason to not take him? He seems perfectly fine now, like nothing ever happened (which is extremely frustrating, because everyone else is still dealing with the stress that More >
Day2 starts out with a bang…well more of a crash
11 year ago
I got Lizze up this morning to take her meds. They have fully kicked in now as she is very sedated. She went to get the pill container down and the lid popped off and dozens of pills went every where in the kitchen. The pill organizer is kind of a bad design. I’ll have to do something about that at a later time. I have spent the past 1.5 hours trying to locate the last 4 pills and can’t find More >
Autism and Anxiety (Video Blog)
101 year ago
Today’s brief topic is on Autism and Anxiety. I want people to understand how even the simplest things (most take for granted) are significantly more complicated for families like mine raising Autistic children.
Pampers actually refused to help us out. We wanted to simply order and pay for just one kind of diaper. We are going through 80 -100 diapers every week or so because Emmett destroys the More >
