Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: curve

Nov 28 2011

Medication Monday

I met with Dr.  Reynolds this morning about Gavin.  Beginning tomorrow,  Gavin’s Clozapine dosage will be increased from 100mg in the AM and 200mg in the PM to 200mg in the AM and 200mg in the PM. 

Gavin is manic and so we have to adjust accordingly in order to stay ahead of the curve. 

He also said that we should stay home over the Christmas holiday.  He said Gavin can’t take the excitement and will likely become more unraveled.  We can’t let that happen so we will just have to make do.

We also decided that I need to have the uncomfortable conversation with the school about Gavin’s sexual aggression.  Not a pleasant conversation,  trust me.

We go back in 2 weeks for a medication follow up. Sigh….

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Aug 20 2011

The juggling act

I’m going to be very honest and say that I’m beyond overwhelmed right now.  There is just so much going on and not enough time or me for that matter, to go around.

We had the whole school debacle and while we had addressed the immediate need of locating Elliott a new school,  I’m not prepared to let this go just yet.  What happened to Elliott is one of the many reasons we need to fix Autism Awareness.  If the public was better educated about the spectrum part of Autism Spectrum Disorder,  this would not have happened to Elliott.

Gavin is a mystery,  all wrapped up inside of an enigma and dunked in our obscurity.  I mean,  I’ve lost track of the number of doctors we have seen on our journey to help him and yet the issue remains elusive.  I don’t blame the doctors or anyone for that matter. 

With that said,  you would think that Gavin has earned the right to catch a freakin’ break already.  Gavin has survived things that most could only imagine and yet he still has to suffer these degenerative illnesses.  It’s frustrating for me as a father to have to stand by and not be able to fix this or make it better for him. 

Honestly,  at this point,  I’d settle for at least know the identity of what we are fighting.  I think that would at least be something. 

Lizze is back to using a cane again.  She’s in pretty rough shape and I haven’t seen her this bad in a while.  We have a crazy busy week ahead with alot of traveling and I’m not sure how she will handle that. I wish there was a way to make her feel better.  Once again it’s frustrating to have my hands tied and not be able to help her.
Elliott is….on edge alot lately.  He is very anxious and very sad that he’s not going to be with his friends anymore.  His little life is out of his control and he is having a rough time with that.  He needs to be around people his own age and just be aloud to be a kid. 

Emmett starts school this week and I’ll have a post about that later.  He’s doing pretty good and that’s always a good thing.  Hopefully school will continue that positive trend.

As far as I go,  I’m overwhelmed and tired.  I have so much going on and I’m doing my best to stay ahead of the curve but that’s not going very well. 
I’m very excited to get Android4Autism started and already have my first device ready to be donated.  It feels good to be able to give back and actually help another family.  I think it’s a very good experience for the boys as well.  I let them all help in some way so they have contributed to helping someone else.

I feel like my boot has started to slide a bit and I want to address that.  Most of my blogging is done on my phone and for the past few months I have having issues with my Nexus S 4G and so blogging has been difficult.  However,  I am now using a Motorola Photon 4G thanks to Sprint and will be back up and running soon. 

Last night my boot took a dump after a major theme update and so it took me most of last night to get things back up and running.  I basically had to start from scratch.  But I think I have most of it back to normal.

Then there is the usual stuff like bills and the other everyday things that I never seem to be caught up with.  Oh well,  in the spirit of positive thinking,  it could always be worse…

- Lost and Tired

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Permanent link to this article: http://lostandtired.com/2011/08/20/the-juggling-act/

Mar 25 2010

AAAAHHHHHH!!!!

Gavin had an interesting day. By interesting I mean bad. I am becoming more frustrated with Gavin’s school situation as a whole.

We get a summary of his day, every day. They use moon’s as the behavior grading system. Full moon is great and new moon is bad. So when we ask Gavin how his day was he says “8 full moons” as an example.

We have been struggling with this because it doesn’t appear to be very accurate. Gavin was sent to the principles office again today (this has become a daily occurrence) because he was out of control. He missed all of reading class because of his behavior. He received a 3/4 moon for a class he didn’t even attend. Are they grading on a curve? On what planet does that qualify as a 3/4 moon.

Maybe I’m being strict or expecting to much from Gavin but in my opinion any day he is sent to the principles office is a BAD day. He goes to the principles office at least once a day for behavioral issues. I don’t understand how that helps him. If he gets sent to the office during a class because of choices he has made then that should be a “new moon”. Right?

I mean as he gets older he won’t be able to get away with the things he gets away with now. Our stance is that his only real chance (ha ha that rhymes) is to ride him pretty hard now to curb the behavioral issues. No one is going to be understanding when he’s older and still doing these things. Does any of this make sense? He will simply go to jail.

I don’t know how to get the school to grasp this concept. It’s pretty simple in my opinion. There has to be natural consequences and realistic expectations. Gavin’s therapist is having a meeting with the school next week to clear up any confusion as to what his capabilities are.

I’m not going to hold me breath. I will probably just continue to bang my head into the wall out of frustration until this is resolved.

Lost and Tired

Permanent link to this article: http://lostandtired.com/2010/03/25/aaaahhhhhh/

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