Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: dishes

Dec 27 2011

Christmas: The Aftermath


I was wondering how everyone’s holiday went?  At the Lost and Tired house we are seeing overstimulation out the wazoo.  My kids are all running around like chicken’s with their heads cut off.

Gavin has been completely out of it and I don’t know how to help him. He almost seems manic but his Lithium level was just test the other day and everything is fine. He’s back to having to tell me every single thing that he is thinking about.  I’ve told him many,  many times now that I don’t need to hear everything that he’s thinking but it doesn’t seem to work.

When I say he tells me everything,  I mean everything.  The constant talking is maddening and I truly mean that.

All the boys,  in general, have a very short fuse right now.  Elliott is super duper whiney and Emmett is screaming like a someone is trying to break his arm or something.  Mr. Gavin is having meltdowns more frequently than before and they are becoming more aggressive and once again include self-injury.

Lizze is really struggling with life right now.  Her migraine is still there and she isnhavng to use her cane to walk around again.  The stress of the holidays and the constantly changing weather is killing her. She is physically and emotionally exhausted to the point she literally can’t stay awake.

To give you a better idea just how difficult things are for her,  here’s an example.  Lizze will go into the kitchen and try to wash dishes because she wants to help.  She’s only able to wash a handful of dishes and when shesndone,  she’s literally down for the rest of the day. Something as simple as that will cause her so much pain that she can’t move the rest of the day.  That’s how bad.

I’m stressed out and trying to keep everyone above water and if you have ever tried to rescue a drowning person,  you know how difficult it is to do because the person you are trying to keep afloat is panicking and so they fight your attempts to help.  Well,  it’s sorta like that anyway.

I wish I had more time to write as it’s something I have grown very passionate about. Maybe someday things will slow down enough to allow me to allocate more time to my therapeutic passion.

I hope your family fared better and that the holiday and the days following,  were peaceful and enjoyable.

If you have any tips you would like to share with the rest of the class,  fee free.  I for one,  can always use some good advice and a new perspective.

Posted from WordPress for Android

Permanent link to this article: http://lostandtired.com/2011/12/27/christmas-the-aftermath/

Sep 30 2011

Precious Moments


I was making dinner and finishing up some dishes.  I had a pot of water boiling on the stove and had the box of pasta sitting on the table in the kitchen along side the jar of sauce.

I turned around because I thought I had heard something.  Everything seemed fine so I finished up what I was doing.

When the water was sufficiently boiling I went to add the pasta only to find it was missing.

I went crazy (I know…hard to believe) looking for it.  I would have sworn that I had set it on the table but clearly I was mistaken…or was I?

As I’m looking through the pantry trying to find the elusive box of pasta,  I heard something.  It was faint at first and then grew louder with each passing second.

It was the sound of a giggling 3 year old little boy.  I followed the sound of his giggling as though he were the Pied Piper and I was  helplessly drawn to the sound of his laughter.

I come to find my little one all comfy on the couch giggling with his blanket and munching on the uncooked pasta that he had helped himself to,  as though it were popcorn.

You know something?  It’s times like these that really form the amazing memories I will treasure my entire life. As frustrated as I was that I couldn’t find at the time,  what I thought I needed,  Emmett managed to show me what I actually needed…a bit of laughter and a smile….

Sometimes we just need to slow down a little bit and own our kids lead.  Whether it’s looking for a missing box of pasta or going over the Daddy-Do List you just received from your 5 year old,  these will be the precious moments you will carry with you..

 

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- Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

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Permanent link to this article: http://lostandtired.com/2011/09/30/precious-moments-2/

Sep 11 2011

Autism Complicates…. Let me count the ways.


I have mentioned on at least a few occasions,  how Autism can complicate just about every situation imaginable. Please keep in mind that I’m speaking only from my own personal experience.  I don’t believe in telling others how to think or feel. Instead I just share my personal experience and knowledge.

Emmett just had surgery on Wednesday morning and came home Thursday afternoon.  We went through the same discharge summary that anyone else having a child that had just undergone surgery to remove their tonsils and adenoids would have heard. The only difference being that Emmett is not like most other children.
Emmett has Autism and Autism has a nasty little habit of making things more complicated….at least in my experience.

We are dealing with that right now. During Emmett’s 2 week recovery he is on what is essentially a liquid diet. This is not going over very well. Emmett’s diet is already pretty restricted due to food allergies and much of the liquid or soft food diet is not possible. The reason for that is because he is either allergic to it or can’t tolerate the texture due to sensory issues.

I have heard from many other parents and they say there child is the same way with food.  So it appears to be a common problem amongst kids on the spectrum.

It would be hard enough for any kid to go through this type of diet change but when you factor in Autism, along with special dietary, developmental and sensory needs it gets really complicated.

Emmett is already difficult to feed because of sensory related issues.  His food has to be a certain color,  texture,  temperature and served only on certain color dishes.  Nothing can mix and typically different types of food have to be on different plates.

When we deviate from this he will refuse to eat.  So having to drastically change his diet doesn’t go over very well.  He can’t drink his favorite milk and he can’t eat his chicken nuggets either.

While it may not seem like a huge deal,  to Emmett it’s a significant event in his life and creates a great deal of anxiety.

I had to go shopping again today and I just went shopping a few days ago. I needed to stock up on all the things that Emmett can and will, hopefully eat over the next 2 weeks. So far, the jello and coconut milk ice cream are the only things he has been willing to touch. Because his throat hurts so badly he associates eating or drinking with pain, so getting him to do either is difficult.

He doesn’t understand why we won’t let him eat his regular food or why he’s in pain for that matter, so he’s frustrated and angry at times. When Emmett gets frustrated and and angry he tends to lash out and/or meltdown.

Another huge complication that Autism brings to the table is the speech and language delays.  While Emmett has made great strides in his speech and language abilities,  we have a long way to go.  His expressive language is sorely lacking.  Expressive language is the part of communication where Emmett can express things like, how he’s feeling, frustrations,  pain ect…. Emmett can’t just come out and say something like,  my head hurts or my tummy’s upset.

The types of things that Autism Spectrum Disorder impacts with Emmett, makes many already difficult situations all that much more difficult. This due to Autism’s impact on overall communication and sensory perception.  We experience this quite often when it comes to our boys,  especially Emmett and Gavin.

What types of things do you experience when it comes to the complications associated with Autism?

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Permanent link to this article: http://lostandtired.com/2011/09/11/autism-complicates-let-me-count-the-ways/

Jul 02 2011

Autism, Aspergers and Puberty…..Oh My


So I have to say that one of the scariest things about raising a child with Autism is when they hit puberty. Everything changes……everything changes. In my experience with Gavin, have seen his reactions to medications change as his hormones begin to take flight. The meltdowns…yeah. they are WAY worse now but far less frequent. He’s just stronger now and does’t know his own strength. Gavin is also starting to grow a mustache and is getting some arm pit hair as well. He pretty proud of it, so I thought it worth mentioning. One of the “problems” we are seeing is with his coordination. I mean, he drops everything, literally. He falls both up AND down the steps. Today alone, he dropped his water bottle several times. He also dropped a few bowls (cereal not the other kind…really?) and glasses as well…oh and he fell out of his chair and knocked a table over.

I’m thinking this has something to do with puberty and growing……right? Please tell me it’s just a phase because we are running out of dishes. I’m having to remind him to SLOOOOOW down. He’s WAY more likely to trip and fall when he’s not paying attention to what he’s doing or when he’s doing it to fast. It’s frustrating for him and so we just try to remind him without making him feel bad. Please God let this be a phase and there is a light at the end of this tunnel. Oh and PLEASE, PLEASE, PLEASE don’t let the light at the end of the tunnel be a train.

On the positive side, yes there is a positive side, we have finally found a group of medications that “seem” to be working well…or as well as can be expected. Gavin has actually settled down quite a bit. While the meltdowns we experience are MUCH more severe, they are far less frequent. I can ABSOLUTELY live with that. Gavin is MUCH stronger then he used to be so when we have to physically intervene during a meltdown, we kinda roll the dice as to whether or not we will be collateral damage. Luckily, Gavin doesn’t lash out at people anymore. Despite our recent challenges, he has honestly settled down a lot since puberty. My understanding is that it either goes one way or the other when they hit this phase of life. Dare I say it? Perhaps we are lucky? Knock on wood….

Have any of you experienced your Autistic child hitting puberty and lived to tell about it?

Permanent link to this article: http://lostandtired.com/2011/07/02/autism-aspergers-and-puberty-oh-my/

May 15 2011

Things accomplished


This has been a fairly productive weekend so far. My dad came over and helped me get the gutters cleaned out so it no longer rained inside our house. Since I hurt my back I haven’t been able to work off a ladder so my dad laddered the house and emptied out the gutters for me.

I got some work done inside the house as well. I did a few loads of laundry and cleaned out the cats litter box. I also did some dishes and scrubbed the stove. I vacuumed the pet hair and even brushed Maggie.

Lizze’s parents to Elliott last night so he could get out odd the chaos for a while. I still have to scrub the bathroom floor and that will be it for today. I feel pretty good about actually accomplishing something. 

Permanent link to this article: http://lostandtired.com/2011/05/15/things-accomplished/

Feb 14 2011

Autism and feeling defeated….


There comes a point, I think, in every parents life that they feel defeated. I think it happens much more often for parents of Autistic kids. For me, raising 3 boys on the spectrum is a nealry impossible feat on the very best of days. Factor in Lizze’s health issues and you have a recipe for feeling defeated.

Right now I feel completely defeated. I feel like nothing I can do will ever be enough. I am physically exhausted and emotionally drained. To me, it feels like our lives are falling apart. I can’t keep up with anything. I have laundry piled up and dishes in the sink. I literally have a stack of colllections letters and shut off notices that I can do nothing about. Every ounce of my attention is spent keeping Emmett form either hurting himself or someone else. If I’m lucky I can stop him from breaking things as well. The rest of my time is spent trying to show Gavin how to tell if the things he sees and hears are REAL or not… Try taking that “little” project on. That alone is a full time job. I also have to keep working on ASL with Emmett as we are beginning to make progress. All while making sure Elliott doesn’t slip through the cracks (which he unfortunately often does) and taking care of Lizze.

There is literally no time for anything else. I try my best to brush things off and tell myself, “priorities”. I say to myself, ” I need to focus on the immediate and everything else can wait”. The problem with that is that the “immediate” is ALWAYS there and the “everything else” NEVER sees the light of day let alone get a chance to be a priority. No one seems to get that. After awhile the “everything else’s” begin to pile up and eventually become something so overwhelming and out of control that even if I had the time, money or energy to deal with it, I couldn’t.

Having 3 Autistic children changes EVERYTHING. I KNOW this is something the world as a whole doesn’t understand. I realize that I still have responsibilities but damn, cut me a break. I bet most parents with Autistic (or other special needs) kids have more on their plates then most “typical” families. I know that everyone’s problems are relative but let’s be honest how would most people survive raising 3 Autistic kids? My guess would be not very well. I can’t tell you how often I wonder if my kids would have been better off with different parents (or at least a different me). I say that only because my kids need and DESERVE so much better then I can do.  As I was driving Elliott to school today (late mind you, cause for some reason we didn’t think he had school today) I  was once again questioning the “divine” part in God’s “divine plan”. People who DON’T understand or DON’t know what to say always resort to it’s God’s plan. The absolute worst is when someone says “God never gives you more then you can handle”. Those people, well intentioned as they may be, have NO IDEA what they are saying.

Today is just a really bad day for me personally. I am run down and have to many things that HAVE to happen this week and not enough  time, energy or other resources to make this stuff happen. I have to get the house “picked up” even though I know it doesn’t really matter to anyone but me. Emmett is part of a Autism study being done by Case Western called “Project Bridge”. This is a major study being done my a major University and we are lucky enough to be a part of it. BUT they are coming to my house on Wednesday. I hate having people over when my house is a mess. I know they don’t care but it just makes me feel like that much more of a failure….

Today I am a sad panda…….

Permanent link to this article: http://lostandtired.com/2011/02/14/autism-and-feeling-defeated/

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