Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: everyone

Dec 14 2012

Another successful meeting


We got our 2nd team wraparound meeting underway a bit late today. However, despite the delayed start, the meeting went really well.  As far as I’m concerned, this meeting was very productive and we had some great ideas brought to the table. 

Our initial goal is to reduce the overall stress in the family.

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The reality is that Gavin will likely be home for 2 weeks over Christmas break. There really isn’t anything we can do about this.

As you already know, I prefer to deal with reality and so we are putting together a plan to make this as liveable for everyone as possible. 

The boys principal had a great idea about setting a really ridged schedule/routine that is as close to what occurs at school as possible. She is going to meet with us next week to set this schedule up.  She is such a big help. 

We also located an indoor playground that we can take the boys to in order to get them some more exercise. That will help as we.

We see going to also work on setting up what needs to be done in order to get our case manager. This case manager will likely be our wraparound coordinator and that will work out well. 

We brought Gavin into the meeting to share with him all of the positive things everyone had to say about him.

He’s doing really well at school and that’s awesome. 

Like I said, the meeting was very successful and we have some things to get done before our next meeting, right after the New Year. 

Thank you to everyone for attending and sharing some really good ideas.  We appreciate your time and thank you for your help.  :-)

Permanent link to this article: http://lostandtired.com/2012/12/14/another-successful-meeting/

Dec 13 2012

The Autism Help Forums are moving


I wanted to let everyone know that I’m in the process of moving the Autism Help Forums to a dedicated site. I want the site to be more easily found and by doing this, it will be.

Right now the forums are down as I will be migrating soon.

I hope to have them back up and running after a few security patches and upgrades.

Thank you for all your patience and support and we continue to work through our growing pains.

Permanent link to this article: http://lostandtired.com/2012/12/13/the-autism-help-forums-are-moving/

Dec 12 2012

Lost and Tired plans for 2013


The approach that I have taken with Lost and Tired is why I think it’s so successful.  I don’t believe in telling people how to do things. I think that everyone‘s situation is different. There may be similarities but also differences.

I’m a huge proponent of simply sharing ones experience and allowing others to take from it what they may.

The way I see it is, I’m Lost and Tired, who am I to tell you that to do. 

Having said that, I also believe in leading by example. I like to share with you all what has worked for my family and what hasn’t.  What this does is present information that you can use to put something together that works for you family or situation.

By bringing everyone together and creating an ongoing dialog, we are all able to learn from each other.

I’m my opinion, experience in the best teacher.  Sometimes it’s comforting to hear from someone who’s actually lived through what you are struggling with.

It helps to know that you’re not alone and that someone has already been down this path before and can offer advice or guidance if needed.

This of course, should never replace competent medical advice but it’s sometimes good for peace of mind. 

I’m really proud of how well this site is doing and how many people are sharing there knowledge and experience. I’ve personally made so many friends and to be quite honest, I feel like a big family.

I hope you all feel the same way. 

As we carry into the holiday season and cross the threshold into the new year I hope to continue to grow, learn and share, in new and exciting ways.

You have all taught me so much.  I only hope I have been able to do the same.  :-)

Permanent link to this article: http://lostandtired.com/2012/12/12/lost-and-tired-plans-for-2013/

Dec 11 2012

Coping with #Autism and Food Allergies


The Lost and Tired family isn’t new to food allergies.  However, past food allergies weren’t as serious as what we are now dealing with.

In the advent of Elliott‘s newly diagnosed tree nut allergy, I trying to figure out what the best approach is to eliminate those things from his diet

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I guess my question is, if your child has a tree nut allergy, do you simply remove it from their diet or the entire house?

In our case, Elliott is the only one with this allergy and trying to find a balance between food he can eat and food everyone else can eat has been difficult.

Many times, Elliott simply refuses to eat because he either can’t eat what everyone else is eating or he is afraid that his food will make him sick.

As a child with aspergers and high levels of anxiety, he has a very difficult time with change. 

I’m wondering if we should move the whole family away from tree nuts.

To me, it seems like it would be easier to adjust the meals for everyone than it is to make two of everything.  I also think it might help Elliott to feel safer because he would know that everything in the house was safe to eat.

The school has already made sure that the lunch menu is allergen free and it is. 
We will be meeting with a nutritionist in the near future to further fine tune things. 

I just wanted to know what you folks thought. It’s one thing to hear something from someone who likely doesn’t live with or deal with the same struggles.  It’s another thing entirely to hear from people who are dealing with the same thing, day in and day out. 

Any advice would be greatly appreciated.  Also feel free to pose your own questions as well.  This is a very important topic and let’s cover this thoroughly.

Thanks

Permanent link to this article: http://lostandtired.com/2012/12/11/coping-with-autism-and-food-allergies/

Dec 02 2012

Lizze’s Grandfather just past away


Please keep Lizze‘s Grandfather Hank, in your prayers.  He passed away a few minutes ago.  Please keep Lizze and her family in your thoughts and prayers as well.

This is a very difficult time for everyone

Permanent link to this article: http://lostandtired.com/2012/12/02/lizzes-grandfather-just-past-away/

Nov 30 2012

How often do you use the word #Autism?


It occurred to me the other day that I almost never use the word #Autism anymore.  On occasion, I use it in the title of a post, mostly for SEO reasons.  However, most of the time when I talk about my kids anymore, I don‘t use the word #Autism.

It got me thinking.  Does that mean something? Is me not using the word #Autism as often anymore have some deeper meaning?

The only time that I’m aware of using the words #Autism in regards to my kids anymore is usually when I’m sharing stories about our experience or maybe talking to their therapist.

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To me, my boys are just my boys.  I’ve never defined them by their diagnosis and so majority of the time #Autism never crosses my mind.

Perhaps, over time, I have come to truly accept their #Autism just as I accept everything else about them? I mean, in the beginning, all I talked about was #Autism this and #Autism that.  Maybe that was my way of trying to process what was happening?

Either way, I absolutely adore my kids.  #Autism is part of who they are. Who knows where one ends and the other begins?

I used to want to remove #Autism from their lives.  However, as I have grown wiser with age, I realized that while it would be nice to be able to remove their challenges, I would also be removing a huge part of who they are.

Having said that, I completely understand why a parent would want to free their child from #Autism.  For some, they are much, much more profoundly affected. 

I would never judge some one for feeling that way.  It’s a similar but different journey for everyone

My point is, that for me, I think that time and experience has taught me to see things from a different perspective.

Not everyone will share my opinion and you know what, that’s okay. Likewise, I certainly don‘t share the same opinions as everyone else.

As far as I’m concerned, our differences should help bind us together and not keep us apart. 

So I was wondering where you stand. How often do you use the word #Autism in your life? Why do you that over time, we tend to move beyond the diagnosis? Do you think that we simply come to truly accept our child‘s diagnosis and almost lose the word #Autism for our vocabulary?

I would really be interested to get your thoughts and opinions on this, regardless of what they happen to be.  :-)

Permanent link to this article: http://lostandtired.com/2012/11/30/how-often-do-you-use-the-word-autism/

Aug 16 2012

Three boys and three different meals


This is a typical meal at the Lost and Tired house.  Granted we haven’t put out the fruit, drinks and veggies but you can see that everyone has something different. 

It’s damn near impossible to make one thing that is acceptable to everyone

Each of the boys has different sensory needs and those needs impact what types of foods the tolerate.  I can safely say that I no longer enjoy cooking because it has become way to big of an ordeal to please everyone

In all fairness though,  please is probably the wrong word.  They have no control over this and I don‘t blame them one bit. 

Having said that,  it doesn’t mean I still don‘t get frustrated.

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Again, this picture just has the three different main course meals.  They hadn’t been served everything else yet.  I just wanted to show the three different meals.  :-)

**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/08/16/three-boys-and-three-different-meals/

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