Creating #Autism Awareness and Providing Support Through Honestly and Android
Posts tagged examiner.com
A very honest post
01 year ago
Lizze posted something I her blog tonight. I know it took a lot for her to open up and say the things she did. Please read it and see what a mother of 3 special needs kids can feel like….
Death of a bouncy house
71 year ago
by Lost and Tired
in Autism
I regret to inform you that as of 12am this morning the bouncy house is no longer with us. I was running around last night charging batteries and gathering blankets when I noticed. She just didn’t look the same. Even from a distance I knew something was wrong. She was all slumped over in the corner. My instincts kicked in and tried to resuscitate her with mouth to mouth. Despite my best efforts it wasn’t enough. I quickly moved to the already charged (so as not to awaken the kids) air compressor because I knew time was of the essence. She responded and thought we were in the clear but then I heard the sound no one wants to ever hear coming from a bouncy house, whoosh. It was a fruitless effort. Sure we could keep her hooked up to
the compressor but what kind of life is that. It just wasn’t fair. So at 12am this morning Feb 2, 2011 I pulled the plug and it was over. I will look back fondly on the 3 days of memories we had with her. She will be laid to rest in a large square box, gently placed in the back of the van and driven back to Toy’s R Us so I can get my $150 back for this stupid,defective piece of sh!t. 
Ice Storm 2011 Hits the Lost and Tired Family
11 year ago
by Lost and Tired
in Autism
We are4 getting pummeled by a MASSIVE ice storm. I have never seen one this bad. Lizze and I stepped outside a few minutes ago and in the 5 minutes we were standing out there we witnessed trees literally falling apart and crashing to the ground. We keep hearing things that sound like cannons going off. There are trees (big ones) just falling to pieces. It’s actually getting scary because people are losing power and they are saying to expect sustained outages. We have at least an inch of ice on everything. It’s become EXTREMELY dangerous. My fear is losing power and heat. The kids won’t be able to handle that well. As I’m writing this the power is beginning to flicker. I’m going to finish this from my phone later and get the flashlights and blankets out. Good lUck everyone and please say a prayer for us.
-lost and tired
Crash Room Progress…..
61 year ago
Tax return came in last night and so II was able to start setting up our crash room. We don’t have much (thanks to the money pit that is our “new” van) but we got a 6×6 bouncy house. We also got a ball pit. We already had a trampoline and a tunnel. This will hopefully help Emmett to decompress. It gives him a safe place to do the things that he needs to do in order to “ground” himself. I will also help to build the under-developed muscles in his legs. I’ll get pictures up later……
Has anyone set up a crash room in their home before? Do you have any suggestions? I would love to hear them..
“Voice4u” Free Give-A-Way!!!!!
01 year ago
I received a copy of Voice4U (from the developer) to give away to one of my readers.. This version is designed for Apple iPod/iPhone or iPad. I haven’t decided if I will do that here or at Daily Mommy Survival yet. I own this for Android and it is AMAZING……. Details to come VERY SOON……. Anyone Interested?
UPDATE: THE DRAWING WILL BE TAKING PLACE OVER AT DAILY MOMMY SURVIVAL.
UPDATE:
The winner was announced today at 5:30pm. See the above link for details….
Processing…..The first 24 hours…
51 year ago
So after a long, restless nights sleep (especially for Lizze) I have begun to process everything. The first things that pop into my mind is how are we going to survive this physically, emotionally and financially. We’re barely surviving as it is. I know nothing fundamentally has changed but the dynamic has. Before today we had hope (admittedly little, but hope none-the-less) that Emmett would pull out of this or just start talking. I was hoping, praying that he was just going to start talking late little happens sometimes. I was hoping that if we planned for the worst and hoped for the best it we would come out on top. Part of me knew we wouldn’t but that didn’t matter.
Now everything has changed. Where as before we were in “Let’s figure out what’s wrong with Emmett” mode now we are in “we need to get Emmett into as many early intervention [Things] as possible” mode. The doctor told us to get Emmett into a study at Case Western dealing with “early Intervention”. It’s free and she said he needs as much intervention as possible. That call will go out this afternoon.
She is also referring us to a metabolic specialist for evaluation as well. The specialist is new to Akron Children’s but is internationally known for specializing in cases like this she said. So that will be coming down the shoot. We also have to have him tested for seizure activity.
All of this is VERY overwhelming. I don’t know how we can handle all of these things. The logistics and financial woes associated with all of this will be difficult to manage. I guess the next step (aside for all the interventions) is to get him on disability. I hate the idea of it but we had to do that with Gavin as well. It opens MANY doors that would otherwise be closed. So we will start that process soon….. This is all just a lot to take in… We cannot even have time to just “be” right now cause everything going on around us won’t stop long enough to allow for that. We have a very long, tough road ahead but what choice do we have? Emmett deserves a fair shake at life and I’ll be damned if we don’t give that to him….whatever the cost…….
