Creating #Autism Awareness and Providing Support Through Honestly and Android
Posts tagged Fit for Autism
A very honest post
01 year ago
Lizze posted something I her blog tonight. I know it took a lot for her to open up and say the things she did. Please read it and see what a mother of 3 special needs kids can feel like….
Death of a bouncy house
71 year ago
by Lost and Tired
in Autism
I regret to inform you that as of 12am this morning the bouncy house is no longer with us. I was running around last night charging batteries and gathering blankets when I noticed. She just didn’t look the same. Even from a distance I knew something was wrong. She was all slumped over in the corner. My instincts kicked in and tried to resuscitate her with mouth to mouth. Despite my best efforts it wasn’t enough. I quickly moved to the already charged (so as not to awaken the kids) air compressor because I knew time was of the essence. She responded and thought we were in the clear but then I heard the sound no one wants to ever hear coming from a bouncy house, whoosh. It was a fruitless effort. Sure we could keep her hooked up to
the compressor but what kind of life is that. It just wasn’t fair. So at 12am this morning Feb 2, 2011 I pulled the plug and it was over. I will look back fondly on the 3 days of memories we had with her. She will be laid to rest in a large square box, gently placed in the back of the van and driven back to Toy’s R Us so I can get my $150 back for this stupid,defective piece of sh!t. 
Ice Storm 2011 Hits the Lost and Tired Family
11 year ago
by Lost and Tired
in Autism
We are4 getting pummeled by a MASSIVE ice storm. I have never seen one this bad. Lizze and I stepped outside a few minutes ago and in the 5 minutes we were standing out there we witnessed trees literally falling apart and crashing to the ground. We keep hearing things that sound like cannons going off. There are trees (big ones) just falling to pieces. It’s actually getting scary because people are losing power and they are saying to expect sustained outages. We have at least an inch of ice on everything. It’s become EXTREMELY dangerous. My fear is losing power and heat. The kids won’t be able to handle that well. As I’m writing this the power is beginning to flicker. I’m going to finish this from my phone later and get the flashlights and blankets out. Good lUck everyone and please say a prayer for us.
-lost and tired
Cleveland: Here we come….
01 year ago
Lizze just got off the phone with Case Western. This is where he needs to go for weekly therapy. Akron Children’s Hospital HIGHLY recommends this program. If Emmett would benefit from this then we will have to figure out a way to make it work. It takes us about
1 hr and 2- minutes to get there.
I don’t know how this is going to happen especially with the van. How do you put a price on your child’s future? When the doctors tell you “he needs this” how do you say anything other then yes, absolutely yes? I will do ANYTHING to secure him a brighter future. That said, I have to be able to manage the logistics of everything. That’s where I hit the road blocks. I need to get the van into service and get it fixed once and for all. I need to figure out the scheduling of all of this. This intervention is “Free” how “free” comes at the cost of 2 trips to Cleveland per week for at least the next year. I’m looking at hundreds of dollars in gas alone. Right now it’s about $60 + to fill the gas tank in the Van. Figure filling up 2 times per week between Cleveland and trips to Akron, other local Doctor’s, school and OT, Speech,PT. That cost alone makes me nervous. Then I have to worry about arrangements for the other 2 kids twice a week as well. Anyone with Autistic kids will tell you that “arrangements” are not easy to make.
We have to talk to them again in the morning and get more details. We have a list of questions we need to ask as well.
Crash Room Progress…..
61 year ago
Tax return came in last night and so II was able to start setting up our crash room. We don’t have much (thanks to the money pit that is our “new” van) but we got a 6×6 bouncy house. We also got a ball pit. We already had a trampoline and a tunnel. This will hopefully help Emmett to decompress. It gives him a safe place to do the things that he needs to do in order to “ground” himself. I will also help to build the under-developed muscles in his legs. I’ll get pictures up later……
Has anyone set up a crash room in their home before? Do you have any suggestions? I would love to hear them..
Creating Discussion…….
71 year ago
What can I do to help foster more discussion and/or interaction on this blog?
