Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: glue

Mar 22 2012

The Lighter Side of #Autism: Peek-a-boo

Along with all the heartache and struggle the Lost and Tired family faces on a daily basis, we also experience a much lighter side to #Autism as well. I want to share some of these moments with all of you. I think it’s important to paint as accurate a picture of our lives as possible as a means of helping educate people and spread Autism Awareness.

Sometimes the positive experiences I have are far outweighed by all the meltdowns, struggles, screaming and yelling. The positive things seem to drown in an ocean of chaos and struggle.  I have to really work hard to remind myself not to miss out on these moments. It’s these moments that act like glue and help hold me together through the rest of the more difficult times.

 

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Jan 16 2012

The road of life

Sometimes it’s easy to get swept up by the raging tides and forget about just how beautiful the ocean can be. The same thing cannot be said about Autism.

In my own personal situation with the Lost and Tired family,  I find myself failing to see the beauty behind the challenge.

It’s so easy for me to get overwhelmed by all the challenges we face,  day in and day out.  Honestly,  the weight or responsibility and be absolutely crushing at times.

So many times,  I’m asked how I manage.

I never really know what to say to that question. In truth,  I really don’t know.

However,  after thinking about this for some time,  I have come to have a better understanding of how and why I keep going.

While the challenges facing the Lost and Tired family may be different than yours,  the driving force behind behind our seemingly never ending strength is, I think, the same as many of yours.

As a parent to 3 special needs boys,  I never imagined the challenges I would face while traveling the road of life with my family. 

This road has many twists and turns as well as blind corners.  These blind corners are some of the toughest to cope with because many times all you have if faith that you’ll safely navigate your family through.

It’s true that all three of my boys are in the Autism Spectrum.  It’s true that some of our boys are dealing with other health issues,  some minor,  while others are more serious. It’s also true that we struggle with behavioral issues just about every single day. 

It seems like we are always,  either going to or coming from an appointment or therapy session.

It’s exhausting,  overwhelming and demoralizing at times.

With all that said,  there is something else you need to know a out my boys. Despite the challenges associated with raising them,  they never cease to amaze me.

My boys are intelligent, loving,  compassionate, creative, generous, courageous, brave, courteous, inventive, genuine, inspiring and most importantly,  well worth the effort that goes into helping them to navigate the road of life. 

I think that’s why I keep going.

As to the how,  I really don’t have a solid answer for that.  I just think that when it comes to my children, I will cross raging ocean waters and climb the highest of mountains for them.  I’ll fight anyone or anything that gets in their way. 

My wife taught me,  that no matter what the odds,  you never give up.  She is the glue that holds the Lost and Tired family together much of the time.

I’m not really that different than anyone else. 

I get overwhelmed, beaten down,  demoralized and sometimes even want to give up. Lost and Tired is a way to basically sum up how I feel much of the time.

As special needs parents,  I think we’re all hero’s, maybe not the conventional type.  However, when the rest of the world would have given up,  we keep pushing forward and never give up on our precious little angels. We are absolutely hero’s to our children.

I think it’s very important that we never lose sight of that.

Just because I choose to write about my adventures doesn’t make me any more amazing than you.

My hat’s off to all of you…..

Cheers.

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