Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: impact

Apr 01 2013

I’m the #3 Autism Blogger

I’m honored and beyond humbled to announce that I have been name to the Sharecare Top 10 Autism Bloggers list.

Check out the Sharecare site for more about the individuals on this list.

Here is a link to the official Press Release

More information below:

 

Methodology:

Sharecare Social HealthMakers (formerly SharecareNow Online Influencers) are among the most influential people in health and wellness on the Web, literally driving “conversations on the leading edge.” They address a wide range of issues within specific topic areas while demonstrating consistent impact across multiple interactive channels–such as Twitter, Facebook, video and blogs. This impact is measured through a proprietary algorithm based on more than 100 individual metrics developed and powered by WCG, the marketing-leading digital communications agency, quantifying topic relevance, syndication, presence and reach. Sharecare has identified Social HealthMakers in weight loss, infertility, heart disease, prostate cancer, Alzheimer’s disease and more.

About Sharecare:

Sharecare is a health and wellness social network that connects people with experts, ranging from doctors and specialists to hospitals, healthcare companies and health-conscious consumers. The power behind the site‘s unique Q&A format is its collective wisdom, providing health-seeking consumers with answers reflecting multiple expert perspectives–greatly simplifying the search for quality information. Created by Jeff Arnold and Dr. Mehmet Oz in partnership with Harpo Productions, Sony Pictures Television and Discovery Communications, Sharecare allows people to ask, learn and act upon questions of health and wellness, creating an active community where knowledge is shared and put into practice–simply said, sharing care. Launched in 2010, Sharecare is based in Atlanta, GA.

 

 

HealthMakers - Autism Release Final_Page_1

 

HealthMakers - Autism Release Final_Page_2

Permanent link to this article: http://lostandtired.com/2013/04/01/sharecarenow-has-listed-lost_and_tired-as-the-3-autism-blogger/

Dec 02 2012

What a difference a kitten makes

Something happened today that has never happened before, at least that I can remember. 

Elliott took a 4 hour nap yesterday afternoon.  He’s never been relaxed enough to really do something like that.

He was snuggled up with his kitten, Dean, and sleeping away like a baby. I was actually quite amazed. Normally, if you even bring up the idea of a nap, Elliott will freak out.  However, with Dean snuggled up with him on his bed purring, Elliott was just out like a light. 

I’m really hoping that Dean with have a positive impact on him. If yesterday was any indication, this could indeed be very positive.

I also don’t mean this in the sense that it’s Dean’s job to make Elliott feel better. 

However, much like Bella helped Emmett, I’m hoping Dean has the same type of positive effect on Elliott.  In my experience, animals can have a tremendous impact on a child with #Autism. 

Bella brought Emmett out of his shell

I’m hoping that Dean and Elliott continue to grow a bond that can provide Elliott with companionship.

It really is amazing to see how different Elliott is when he’s with his new friend Dean. I really hope this continues.  :-)

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Permanent link to this article: http://lostandtired.com/2012/12/02/what-a-difference-a-kitten-makes/

Jul 19 2012

Everything blends together

I don’t even know what day it is anymore.  This last stint at the hospital has thrown everything out of whack. 

The boys are all thrown off and the friggin dogs are so stressed out that they have diarrhea,  not that you wanted to know that.
Neither Lizze nor I have gotten much sleep in the last 7 days.  We’re going to look at this week as sort of a reboot week.  Basically,  we’re trying to get our bearings and taking this week to do so. 

I can’t stress enough how much of an impact something like your child spending a week in the hospital has on a special needs family. It think it would impact any family. 

Hopefully,  things will clear up and I’ll at least know what day it is without having to look at my phone.  ;-)

**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/07/19/everything-blends-together/

Jun 28 2012

The impact of bad news

Lizze has had a really rough day.  Her pain has been unbearable,  both physically and emotionally. She has pushed through it for the sake of the kids but at great personal expense.

I doubt that tomorrow will be any better.

One of the ways that I know just how bad things are for her is the collection of animals around her.

When she is in as much pain as she is,  the animals seem to know and refuse to leave her side. It really is an amazing thing and it happened again tonight.

Lizze fell asleep on the couch tonight and is buried under a blanket of animals. They act as a pseudo weighted blanket and provide her with comfort,  while often times annoying her at the same time. They don’t take no for an answer but they mean well. 

I hate to even wake her because she’s sleeping so peacefully. However, I think that while she may be comfortable now, she will wake up in even more pain if I don’t help her get upstairs and in bed.

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**Thanks for reading**

       -Lost and Tired

Please join our Autism Help Forum

Look for “Autism Help” app at the Google Play Store

MyFreeCopyright.com Registered & Protected

This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/06/28/the-impact-of-bad-news/

Feb 23 2012

Life After My Broken Heart

A message from the author, Rob Gorski:

This post is a day late and a dollar short. I have been wanting to write a follow up to My Broken Heart for quite sometime now. It’s really hard for me to put into words just how much meeting the bare-handed man has affected me. I was so upset and depressed in the months following this experience that I ended up back on antidepressants. I just couldn’t understand how this kind of thing could happen and I still don’t. We live in a world that has its priorities in the wrong places.

As a society, we seem to value money, power, fame and fortune. We can put a man on the moon and pay an athlete millions of dollars a year to play a game. However, when it comes to helping those in need, the ones that society has failed and forgotten or otherwise devalued and dehumanized for being different it’s a whole other story. That is something I will never understand or accept.

Life After My Broken Heart

It was one year ago today, that I met the bare-handed man for the first time.  I say for the first time because I have actually met him several other times this past year. I have wanted to write about this for awhile but to many things happened this year that captured my attention and held it hostage. Among those things were my youngest and middle child both being diagnosed, officially, with Autism.

Meeting the bare-handed man last year, was a truly profound experience. There are few things in my life that have had this type of complete, all encompassing impact on me.  The most important of these life altering events being the birth of my children. Trying to put the impact these events had on me into words is no easy task.

It’s like somewhere,  buried deep inside me, is this pocket of emotion.  Very much like the magma buried deep beneath the cauldron of a volcano. This pocket of emotion, over time, builds up pressure. As more time passes, it works its way closer and closer to the surface and yet never quite reveals its presence. It takes a truly earth shaking event to trigger a release of this built up pressure. When it does eventually release, it’s in the form of an uncontrollable eruption. In the case of the the volcano, the eruption consists of hot ash and molten rock. In my case, it’s an eruption of uncontrollable emotions.

When I witnessed the birth of my children, I experienced one of these emotional eruptions to such a degree that I literally wept and was unable to stop.  There is such a vulnerability attached to this type of experience and perhaps that’s why they are so few and far between.

Meeting the bare handed man and witnessing the cruel way in which he was treated, led to the only other time I have experienced such an emotional eruption. Since I first met him on February 22 of last year,  I have spoken with him several times.  I’ve never set out to find him but it seems he always finds me. To be honest, I’m not sure how I feel about that and I don’t mean that in a negative way. I suppose I just wasn’t prepared to go through this multiple times.

A few months after I wrote My Broken Heart our paths crossed again for the first time since that snowy afternoon. This time however, I was at the Walgreens by my house, picking up prescriptions. What I thought was amazing was that he actually remembered me. I’m not sure why that really surprised me, but it did. I took the opportunity to introduce myself and learn more about him.

I introduced myself as Rob and asked him what his name was. He told me his name was Tim and he told me where he lived. Although he used the word stayed and not lived. I have a feeling that was significant. We spoke for a few minutes and he asked me for help again. I couldn’t drive him anywhere but I gave him what little I had before we parted ways, this time as friends…or at least knowing each other a little better.

Each time I’ve met him since, I was with someone.

Hands_by_rE_Fuuused

The second time I saw him again, I was with my wife at the Giant Eagle Get-Go putting gas in the car. Ironically, that encounter took place just across the parking lot from where I initially met him. I didn’t have much to offer him, other than the change in my car. He didn’t remember at first but I reminded him that we had met twice before and that seemed to spark something and the memory returned.

The third time we ran into each other, I was with my Dad. We had stopped to pick up some ice cream at the local shop. As we were leaving, I saw Tim approaching people in the parking lot.  It soon became our turn and I introduced him to my Dad. My Dad reached out to shake his hand. I could tell that Tim wasn’t accustomed to the friendly gesture and so to say it was a bit awkward would be an understatement. I didn’t have anything to offer him that night, however, my Dad gave Tim all he had on him at the time. My whole family already knew the story. They knew I had experienced something truly profound on that fateful 22nd day of February. However, being able to meet Tim put things into perspective.

I guess it would be like wearing glasses for the first time. Once you put on the glasses, everything changes. Well, in reality, everything is the same but you just see more clearly. It was a really amazing experience.

My path has crossed with Tim’s only a few times this year. While the few encounters were brief, the experience has taught me a great deal. When I look back over this past year, I realized that meeting Tim had opened my eyes to things I had been closed off to or simply unaware of. I learned just how important it is for me to see what lies just beneath the surface. I learned that beneath the tattered, inappropriately dress for the weather surface, lies a person that needs our understanding and compassion.

You see, there are people out there, all around the world. Just like my friend Tim. They are real and not only need but deserve our love, understanding, acceptance. They are people, human beings and were once, if not still, someone’s child.

Meeting Tim, for me, was like being graced with a glimpse of the future. While there was much about that day that should never have happened, some good did come of it. I was reminded that someday, my kids will be all grown up and I may not be around anymore, something that oddly enough, had escaped me until then. Reality can sometimes leave you feeling like you were kicked in the gut and this was one of those times for me. However, I have become much more aware of what needs to be done in order to both prepare my kids for the world and prepare the world for my kids.

I would like to think that my experience that day, the things I witnessed those people do in that frozen parking lot to my friend Tim, was an isolated incident. Sadly, I know it’s not. Things like this happen all the time. To this writer and father of 3 beautiful boys on the Autism Spectrum, this is simply unacceptable.

We need to make sure that this kind of thing doesn’t happen to anyone else. We need to do what we can today to help the world better understand kids and adults with Autism. I’ll be completely honest with you. I’m terrified of what the future might hold for my children. I have witnessed just how cruel and unforgiving the world can be to people that are perceived as different. It an ugly reality but one that I’m working to help change.

By working together, we can help those in need and at the same time, lay the foundation in which to help build a better future for our own kids. This blog is dedicated to spreading Autism Awareness and providing support to those traveling on this most challenging of journeys.

Life AfterMy Broken Heart isn’t easy but nothing worth having ever is. Please help spread Autism Awareness, even if it’s one person at a time. Remember that the Autistic children of today will be the Autistic adults of tomorrow. Let’s help to ensure that what happened to my friend Tim in the parking lot of the Giant Eagle, doesn’t have to happen to anyone else, ever again.

 


Permanent link to this article: http://lostandtired.com/2012/02/23/life-after-my-broken-heart/

Jan 30 2012

I have one thing to say about the DSM V

Admittedly,  I’m not an expert on the changes being made and I don’t own a crystal ball in order to predict how each person and family will be affected. 

However,  it doesn’t take a rocket scientist to see that at least part of the motive behind these changes,  is to curb an epidemic without actually addressing the problem.

Having said that,  I do have one thing to say to those making these changes.

“By changing the definition of what Autism is,  you’re not making anything better. Sure,  fewer people will be diagnosed, but that’s only because you’re choosing to ignore the rest that are not as obviously affected by it”.

Maybe the change is needed but perhaps it should be put off until we better understand the impact these changes will have.

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Permanent link to this article: http://lostandtired.com/2012/01/30/i-have-one-thing-to-say-about-the-dsm-v/

Jan 27 2012

Stealing from a special needs family: update 6

I spoke with the total loss department at State Farm this afternoon.  The only thing we don’t know for sure at this point is whether or not they will take into account all the repairs we had done this year.

I have all the paperwork and I will send it back on Monday.  They will then overnight the check.

I was also informed that they will be pulling the rental car on Wednesday of next week,  so I’m kinda under the gun.

Elliott,  Gavin and I stopped by Downtown Ford on the way home from school today.  We needed to collect our personal belongings from the van.

Elliott is very clearly struggling with this because he spent much of the time crying. He really liked that van and is devastated that he will never see it again.

This is the part of this whole mess that really makes me angry. We had enough to worry about without having to buy a new van.  Even worse is the impact those thieves choice has had on my family,  especially the boys.  That’s what really pisses me off.

All I have been able to do thus far is try to reassure them that Daddy will make everything better and they have nothing to worry about.

Elliott is now hiding some of his things because he doesn’t want them to come back and steal his stuff.  Heartbreaking,  and as my boys are Autistic,  they tend to hang on to these experiences for a much longer time then they might otherwise. 

They also generalize a whole lot as well. Because the van was stolen,  they now fear everything is going to be stolen as well.

This is going to take awhile to recover from,  in more ways than one.

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Permanent link to this article: http://lostandtired.com/2012/01/27/stealing-from-a-special-needs-family-update-6/

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