Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: jump

Apr 17 2012

#Autism: Battling the insurance companies

Do you recall how Emmett has been refused speech therapy?  Do you also remember that the reasoning behind was that he hasn’t made enough progress and he’s not expected to catch up?

As if that wasn’t bad enough,  they have now denied him occupational therapy as well.  The reasoning is that it isn’t medically necessary. The justification for that is based on a numbered scale,  where aparantly Emmett tested a few tenths of a point to high and so he no longer needs therapy

You’ll have to excuse my language but that is fucking bullshit. This is like jump into your waders because the shit is getting deep kind of bullshit.

A few tenths of a point? He’s not not expected to achieve? Are you fucking kidding me?

Clearly they are not and so that means that we now have another battle to fight in the war that already rages on multiple fronts.

We are going to go through the proper channels. However,  if the proper channels produce nothing, well,  than I’m going to make this very,  very ugly for them.

Emmett is not the first child with #Autism to be kicked to the curb and abandoned by an insurance company and he very likely won’t be the last. Who holds these companies to any sort of moral or ethical standard?  The answer is no one? These companies answer to the almighty dollar. 

I realize that companies have to draw the line somewhere, however,  who dictates where that line is to be drawn and who in the hell has decided that Emmett will never catch up in the speech and language department?

We aren’t talking unnecessary therapies either.  To a child with #Autism,  speech and language therapies can literally means the difference between remaining silent and learning to speak. How is that not vital?

To a child with #Autism and serious sensory processing issues,  occupational therapy is absolutely essential for learning to cope with or overcoming the sensory obstacles in their way. This allows them to better live in and navigate our extremely unsensory friendly world we live in.

These types of services shouldn’t be a luxury,  they should be each and every child’s right.

As it stands,  there is absolutely no way that we could pay out of pocket for the amount of services Emmett desperately needs each week. Right now,  we are expecting to see physical therapy gone as well. 

I’m one angry papa bear and I will fight to the death for the betterment of my cubs.

**Thanks for reading**

       -Lost and Tired

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Nov 01 2011

Sensory Bombs [Giveaway]

I have partnered with the Jillian McCabe, the maker of Sensory Bombsto provide three of my readers with five FREE Sensory BombsSensory Bombs are a tool to help your special needs and/or typical children with bath time and subsequently bed time..

Sensory Bombs are calming tools that offer a highly effective sensory experience. In essence, they are like a weighted blanket for the bathtub; they make the water heavier and provide evenly distributed pressure that “hugs” the muscles and joints. As a result, the child is relaxed, moisturized and able to transition into a restful sleep.

 

 

 

 

 

 

 

 

 

 

 

 

 

You can also read my review (See: Sensory Bombs [Review])

 

Jump in and enter to win 5 FREE sensory bombs, shipped directly to your doorstep.  This giveaway is once again run using Rafflecopter. Should you have any questions, please feel free to Contact Me.

 

 

 

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Oct 22 2011

Superman

Emmett did some very cool things this week in OT.  He climbed the rock wall and superman jumped off the platform and crashed into the giant pillows. He also did the washing machine as well.

The rock wall was for strengthening and the superman jump provided the impact type input that he needs.  However,  the coolest thing was the washing machine.  They filled a giant cloth bag with balls from a ball pit.  Then,  Emmett climbed inside and they sorta shook the bag so that he was kinda tumbling in the balls.  It basically,  works to help desensitize him.  He loved it.

He did really well once again and I’m very proud of him.  B-)

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- Lost and Tired

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Jul 12 2011

Preserving the family

The past few days have been pretty rough ones for Gavin. Last night he had a huge meltdown. He once again began to self-injure, biting,hitting and scratching himself. Today the struggle continued, as Gavin’s choices lead to both Elliott and Emmett getting hurt.

When he had his bloodwork this afternoon it was a complete disaster. Gavin was in pure drama mode and was so out of control that he made the lab tech jump while she was switching tubes.

Lizze’s mom called and we decided to send Gavin to stay with her parents for a little while. Sometimes you have to preserve the needs of the many over the needs few. Gavin right now needs to be in a different environment and we need the break. We will still struggle with Emmett but Gavin was VERY destabilizing and so something had to give. He’s safe and honestly, having a good time so I’m not worried.

When you are a parent to special needs kids you are likely to have to make the “tough” decisions. This is one such decision. Dr. Pattie is on board and thought it was a good idea. Elliott is not happy with this so we are taking advantage of the time and have some fun together. We are camping out in the living room and having snacks while he plays Viva Pinata on the XBOX 360. In a few minutes we will be turning that off and continuing our Harry Potter Marathon.

I think Elliott will benefit from the attention and the break in the never ending Gavin drama. Hopefully this will help the entire Lost and Tired family to get a short nut much needed break. Gavin will be missed but his behaviors won’t. Hopefully that males sense.

- Lost and Tired

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