Autism,Aspergers Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: Lostandtired.com

Apr 04 2012

Managing a behavioral crisis: We’re home


I’m really tired but I wanted together you all know what happened.  The quick and dirty version is that Gavin is home again.  They had no beds available and our only option would be a treatment facility that was about 90 minutes away.
We opted to forgo that for several reasons.  One being we physically, couldn’t afford the trip but the other being it would be pointless to send him at this point. 

I’ll have a big write up in the morning,  I promise but for now I need sleep.  Thank you for your thoughts and prayers :-)

**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/04/04/managing-a-behavioral-crisis-were-home/

Apr 04 2012

Managing a behavioral crisis: 04/04/2012


Please be aware that we are in the midst of handling a behavioral crisis with Gavin. We are in the process getting Gavin a psychiatric evaluation at Akron Children’s Hospital. He may actually be admitted to the psychiatric unit once again. There is a great deal of time spent just waiting right now so I want to document the process so that you can experience some of what we are going through right now. This is not easy and I hate having to make these types of decisions but it’s part of being a special needs parent.

We had a very difficult decision to make this afternoon. Gavin has experienced a significant personality shift in the last month or so.

We have been seeing a significant increase in the number and severity of his meltdowns. Self-injury has escalated as well. This afternoon, Gavin had the worst meltdown he’s had in over a year. He cut his leg up and significantly escalated in the land of self mutilation.
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His meltdown terrified the other boys and he literally shook the entire house. The screaming, I’m afraid, is going to earn us a visit from the police.

Watching this video will be an eye opener for some, others will more easily relate. It’s very loud and some of the footage may be a bit on the disturbing side.. However, I think it’s important that people see the reality of what my family faces because there are so many others out there going through something similar. It’s not easy, in fact, it just plain sucks.

My hope is that by sharing our experience, maybe those going through something similar won’t feel so alone.

I also want people to see what a serious meltdown can be like. It’s one thing to know what having a meltdown meansand it’s another thing entirely to actually witness one. A meltdown like this is experienced with many senses. I see what’s happening, I hear what’s happening and I feel what’s happening.

I’m writing this from an interview room in the behavioral health side of the ER at Akron Children’s Hospital. This is a long and unpleasant process and most of the time is spent waiting. Writing this is helping me stay sane.

I don’t feel good and I don’t want to be here. I hate this part of special needs parenting.

Please be aware that this video is very loud and at times is violent. This is not child Friendly at all. This is for educational purposes only.

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Permanent link to this article: http://lostandtired.com/2012/04/04/managing-a-behavioral-crisis-04042012/

Apr 04 2012

The Lighter Side of #Autism: 04/04/2012


Emmett appears to be coming into another fever flare.  He’s super grouchy and ended up missing speech therapy due to this friggin PFAPA. 

Despite him being miserable and grouchy,  I’m wanted to share some positive moments I have with Mr.  Emmett John today.

As challenging as things are for the Lost and Tired family,  I try my best to find the positive in each day and share it with you all by showing you The Lighter Side of #Autism.   Enjoy…

Me and Emmett :-)

Me and Emmett :-)

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Emmett comforted by Bella

Emmett comforted by Bella

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**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/04/04/the-lighter-side-of-autism-04042012/

Apr 04 2012

#Autism: The challenge of eye contact


While I was out walking yesterday,  something occurred to me.  There is something to be said about the difficulties of making eye contact,  even for the neurotypical person.

For whatever reason,  I never made the connection until yesterday,  but it’s really not that easy to make eye contact,  especially with strangers.

I know that as a parent to three boys on the spectrum,  I always encourage my boys to look me in the eyes when talking to me.  I only encourage but never require.  I also know that there seems to be a push to make people with Autism make eye contact. 

Making eye contact is an important part of the diagnostic process as well. 

However,  I have to say again, from a neurotypical perspective,  eye contact isn’t as easy as it sounds.

I realized this while walking at the part for Fit4Autism yesterday afternoon.  There are so many people at the park we I’m walking.  I literally pass countless people on the walking track.

I noticed that as I’m approaching someone going the opposite direction on the track,  they rarely make eye contact with me. I always make it a point to try and at least smile at them.  However,  to be perfectly honest,  even I have a hard time looking people in the eye,  especially of I don’t know them.

More often than not,  I find myself looking at the ground in front of me,  while I’m walking past someone.  I make a concerted effort to remember to look people in the eyes and smile,  nut it isn’t as easy as it sounds. 

So I decided to do a pseudo social experiment.  Nothing high quality and this would never hold up in court but here is what I found.

I started forcing myself to look people in the eyes and smile as I walked by them.  Not in a creepy way either.  Basically,  it was just acknowledging their presence and smiling to sorta say hello. More often than not,  the smile and eye contact were not returned.  Most people focused either straight ahead,  straight down or off to the side.

Only a few people would return the eye contact and smile back to me. I was really surprised by that.. Is I realize that I would be considered a stranger but still…..

I guess my whole point is that I wonder if we should be pushing eye contact so hard with our kids on the spectrum. 

I’m not Autistic and I don’t really lack confidence but eye contact is still difficult and often times uncomfortable for me.  I can’t even imagine what it must be like for a child or adult on the spectrum.

I have heard people with Autism,  describe eye contact as even being painful.  I can honestly understand where they are coming from and I don’t face the same sensory processing issues as many of those with Autism do.

I just wanted to share this with all of you.  Realizing this has really changed my perspective on the eye contact thing,  at least as far as my kids go. 

I think eye contact is important but in some cases,  maybe we push a little to hard. 

Do your own little social experiment.  Next time you are out and about,  see how many people will actually make eye contact with you. You might be surprised by what you find. 

I was a real eye opener for me.  :-)

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/04/04/autism-the-challenge-of-eye-contact/

Apr 04 2012

Three days of chaos


The next three days are going to be crazy.  Beginning in a few hours,  both Emmett and Elliott will be at Speech and OT.  Well actually,  Emmett will be at speech and Elliott will finally have his OT evaluation. This has been a long time coming and all I can say is,  thank God it’s here,  because he friggin’ needs it.

Elliott has a difficult time writing or coloring for any extended amount of time because his hands will hurt.

Hopefully,  if OT and PT can both kick in,  he will be able to get the help he needs to strengthen his body to help compensate for his extremely low muscle tone and loose joints.

Tomorrow afternoon will bring with it the beginning of Elliott’s 24 hour EEG at Akron Children’s Hospital. 

Originally,  I was going to take Elliott but Emmett appears to be at the beginning of another fever flare and it may be easier for Lizze to go with Elliott and I will stay home with Emmett and Gavin. When Emmett hits these flares,  he’s extremely challenging. 

I don’t know for sure,  what we are going to do for tomorrow.  I think we are going to play it by ear.

It seems that we never know for sure what is going on. 

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/04/04/three-days-of-chaos/

Apr 04 2012

#Autism, Anxiety and Risperdal: 04/04/2012


It’s been a little while since I updated everyone on how Elliott has been doing on Risperdal.  For those of you just tuning in,  Elliott is my 6 year old with Asperger’s and extreme anxiety. 

His anxiety had become crippling for him and we need to do something.  We initially tried Zoloft and that was a complete disaster. 

After a few weeks of letting the Zoloft clear his system,  we began low dose Risperdal.  The Risperdal has been working pretty well.  We did have to bump him up from the initial dose of .5mg BID to 1mg BID.  He’s handled the medication very well and his anxiety has been significantly reduced.  Unfortunately,  he seems to be experiencing more anxiety lately.

However,  at this point,  his quality of life has improved drastically and so right now,  we’re feeling pretty good about the results.

With his anxiety level decreased,  he is more apt to learn and utilize new coping skills.

So,  at this point,  I would say that the overall experience with Risperdal has been a positive one. 

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/04/04/autism-anxiety-and-risperdal-04042012/

Apr 03 2012

Today’s Victory: 04/03/2012


Today’s Victory is brought to you by none other than me.  It’s been a crazy day but some really cool things have taken place.
I thought I would share some of it with you.

1.) I just finished an article for a major news network.  I’ll have more information on that when I get the ok to share more.

2.) This afternoon I was offered another writing opportunity that I’ll tell you all about when I know more for sure.

3.)  I was asked to speak to a class of preschool teachers and education majors about Autism at Stark State College.  They want me to talk about Autism from a parents perspective.  I’m totally honored and have already accepted the offer.  I’m not a huge fan of public speaking but this is really good opportunity to spread some Autism Awareness and give back to the community.  I’m excited and nervous,  all at the same time.

4.)  I put in almost 4 miles today with Fit4Autism.  I’m really excited to get back at it, as well as lose some weight and lower my overall cholesterol score.

While today has not been without it’s challenges,  I think overall,  we can add this to the win column…?

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/04/03/todays-victory-04032012/

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