I wanted to share one of my favorite pictures of my little Emmett John. This is the actual color of his eyes. I just made the rest black and white.
His eyes are absolutely amazing. I absolutely LOVE this picture.
Autism,Aspergers Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,
Permanent link to this article: http://lostandtired.com/2012/06/27/emmett-johns-blue-eyes/
Mar 03 2012
I wanted to take this opportunity to say Thank You. Thank you for all the love and support you have shone my family. I have been so humbled by your generosity and kindness. I have tried to respond to each and every one of you with a personal email and/or thank you card. As you know, things don’t always go as planned for us. I’m just want you to know how much you all mean to us.
I really feel honored to call you friends.
We love reading your letters and emails. The boys love getting the postcards ect in the mail as well, so thank you for thank as well.
I’m always here is you need anything. I really want to help as many people as I can.
Please think about joining the Lost and Tired Community Autism Support Forums. It’s free and we could use your experience.
Register and join in or start your own conversation.
Permanent link to this article: http://lostandtired.com/2012/03/03/from-the-bottom-of-my-heart-thank-you/
Feb 16 2012
YOU CAN FIND THE ARTICLE BY CLICKING HERE ———–> ”AUTISTIC BOYS’ DAD USES BLOG AS OUTLET“.
Some very special friends of ours have been trying to help us get out of our house and into a safer neighborhood. They launched the “Move The Gorski’s” fundraiser“. We are eternally grateful for their love and support. Please take a minute and visit their blog and read their amazing story: Autistic London Unlocking Our Ewok.
Along the way, our story was picked up by the Canton Repository. The Lost and Tired family was interviewed last month and the article finally printed this morning.
It’s a great article, however, I may be a bit biased.
The article is by Denise Sautters and she did a really good job. The article is entitled “Autistic boys’ dad uses blog as outlet“.
Denise was wonderful and a pleasure to speak with. She made the time to sit down and speak with Dr. Pattie, the boys psychologist and learned as much as she could about what we were all going through as a special needs family.
Please take a second and check out the online version. Post your thoughts either here or at cantonrep.com.
I would like to thank the McCabes for being who they are and for all the love and support.
I would also like to thank Denise for writing such a great article and taking the time to really learn about us.
1) 10 Things My Autistic Kids Wished You Knew (over 10,000 “Likes”)
2) My Broken Heart (about 600 “Likes”)
4) How YOU could help a Special Needs Parent
5) Why Autism Awareness is Broken
6) Climb off Your High Horse Already
7) We’re on the same team….right?
8 Please lose the word “Retard” from your Vocabulary
Permanent link to this article: http://lostandtired.com/2012/02/16/lost-and-tired-has-made-the-newspaper/
Feb 07 2012
Today’s Victory is brought to you by my youngest minions, Elliott and Emmett.
While these two are typically at each other’s throats, mostly because Emmett enjoys picking on Elliott, they got along really well this morning while Mommy was at the doctor’s.
The two of them actually snuggled on the couch and watched TV.
I wish I knew how or why this happened so I could reproduce this on demand but I may never know.
Either way, I’m grateful for the time they did spend together in peace and harmony.
I’d certainly call that a victory.
Gotta love that cheesy grin
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Permanent link to this article: http://lostandtired.com/2012/02/07/todays-victory-02072012/
Feb 05 2012
My friend Jeff Stimpson periodically does guest posts here on my blog. I love his writing and love being able to share these posts with you all.
You can contact/follow Jeff at the below locations.
jeffslife.tripod.com/alextheboy
Twitter: @Jeffslife
Books: Alex: The Fathering of a Preemie and Alex the Boy: Episodes From A Family’s Life With Autism
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Opinions
My 13-year-old son Alex and I get into the elevator with a neighbor. Perfectly normal thing to do after the end of a perfectly normal day. The door slides shut and the neighbor says, “Five, please” when I ask what floor she wants. Then perfectly normalcy ends.
This violates my new rule of avoiding, if I can, elevators with neighbors when I’m riding with Alex. He still presses the buttons for a load of extra floors.
Alex presses three (not our floor) and nine (our floor). “Alex, press five, please.”
“Noooo!” he says. “Alex, press five.” “Noooo!”
Once, I would’ve felt the neighbor’s eyes on my back. I don’t this time. I try to press five and Alex grabs my hand; my other hand holds a grocery bag. “Alex, press five now.”
Noooo!
I could put down the bag and, suddenly needing both my arms for this 13-year-old, force his hand to the five button. I guess I still feel the eyes for a moment, though, because I don’t force his hand.
We get to three. Alex dashes to the door, in front of the neighbor, and stares out. He curls the fingers of two hands to make his own 3.
Eventually we get to five. I forget how, but I may have pressed the button myself. “Have a good night,” I say to the neighbor. “Take it easy,” she says. “Take it easy,” Alex says.
Alex, walk this way… Alex, press five, please … Those times he doesn’t, I grunt like Basil Fawlty in comedic exasperation even as I know that whatever Alex is doing is no passing instant but the way things are and the way they’re going to be. I’m getting lain old pissed at the idea that not every parent has a son who’s going to have to be a grown-up amid the wreckage of our special-needs budgets. Some doctor put it best 14 years ago: “You’re at the mercy of everybody with an opinion.” At that time, I believed he was talking about just Alex’s year in a hospital. Now I think he was talking about the rest of Alex’s life.
What must people must think when they see Alex? I pity the parents. Why do they let him do that? Why don’t they find a home for him somewhere?
He has a home. The opinions we have of him there will do for now.
Jeff Stimpson is a native of Bangor, Maine, and lives in New York with his wife Jill and two sons. He is the author of Alex: The Fathering of a Preemie and Alex the Boy: Episodes From a Family’s Life With Autism (both available on Amazon). He maintains a blog about his family at jeffslife.tripod.com/alextheboy, and is a frequent contributor to various sites and publications on special-needs parenting, such as Autism-Asperger’s Digest, Autism Spectrum News, Fatherville.com, and The Autism Society news blog.
Permanent link to this article: http://lostandtired.com/2012/02/05/opinions-a-guest-post-by-jeff-stimpson/
Jan 22 2012
There are many things about special needs parenting that can be very challenging. One of the things that I find to be exceptionally difficult is managing the resentment that can arise from having different rules for different kids. Let me clarify what I mean by resentment and where it’s coming from.
When you have more than one child, one of which has Autism, things can get very complicated.
I’ll use my family as an example. In the Lost and Tired family, all three of our boys are on the Autism Spectrum. Each of our children face different challenges and their ability to cope to with things varies greatly as well. Gavin, our oldest, is by far the most complex. He faces more than his fair share of challenges. His threshold for stimulation is also the lowest of the three boys. This means that he’s the easiest to overstimulate and is overwhelmed by things that Elliott and Emmett do fine with.
This presents a unique problem.
Whether you have multiple children on the Autism Spectrum or a child with Autism and a neuro-typical child, there will likely be different rules and limitations for each child. I’ll give you an example. Gavin is the oldest of our three boys and loves video games. However, Gavin doesn’t handle playing video games very well and becomes overstimulated and aggressive quite quickly. He has always been this way.
Over the years, we have tried all kinds of ways to incorporate video games into his life in a way that is healthy for him but have been met with little success.
The only thing that has ever really worked was to simply not allow him to play. Elliott and Emmett on the other hand, share Gavin’s love and talent for video games but don’t have the same issues with playing them. Gavin gets upset at times that he’s the oldest and yet he can’t play video games.
Remember how I mentioned resentment earlier, this is where it comes into play.
In the Lost and Tired family, it has become necessary to have different rules for each of the boys. In many cases, Elliott and Emmett get much more freedom and latitude than Gavin does. This is a necessary evil because we have to try and keep Gavin as stable as possible. It’s not about playing favorites or punishing anyone.
It simply comes down to doing whats best for each of our kids by providing them with the least restrictive environment possible. This means that there will be things that Elliott can do that Gavin won’t be allowed to do. Similarly, there may be things that Emmett can do the both Gavin and Elliott will not be permitted to do, There will also be times that Gavin will be doing things that Elliott and Emmett can’t. I think you get the point.
We have found that their age has little to do with what they can or cannot do.
We have to look at each child as an individual and do whats best for them, while at the same time allowing the others to spread their wings.
However, there is a potential downside to this and that is resentment. Resentment is something that I think everyone experiences at one time or another. Having said that, when your dealing with kids that struggle with emotions, boundaries. anger, frustration or some other type of challenge that would make experiencing resentment a much more difficult feeling to cope with, unique problems can present themselves.
We have been told over and over again by our doctors and specialists that we have to be very careful that Gavin doesn’t get resentful because he could take it out on his brothers. At the same time, we are told that we will have to have different rules for each child, based on their unique and individual needs. Each of our boys is different as are their abilities and limitations.
Luckily, thus far, we haven’t experienced much in the way of resentment. However, that doesn’t mean we can let our guard down either. We do see meltdowns over things like this. When my kids get frustrated, they can lash out at each other, usually in the form of screaming.
We always have to do our best to make sure that our kids have the least restrictive environment possible, while still ensuring that necessary limitations are in place.
What is your experience in this area? Do you find yourself having to have different rules for different kids? Do any of your kids get resentful or angry over this?
I would love to hear from you on this issue. I think this is one of the things that can make special needs parenting so exhausting. it would be so much easier at times to just let things slide but sometimes you just have to do what’s best for your child regardless of their feelings on the issue.
Permanent link to this article: http://lostandtired.com/2012/01/22/autism-and-managing-resentment/
Jan 20 2012
The Lost and Tired family met dawn this morning, after a night without incident. The last time I remember looking at my phone it was approaching 4am.
Sleep over came me sometime after that.
I did my best and luckily, last night, my best was just enough.
Thank you everyone for all the love and support. It means a great deal.
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Permanent link to this article: http://lostandtired.com/2012/01/20/all-is-well/
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