Autism,Aspergers Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: minute

Dec 22 2012

Are you ready for Christmas??


It never ever fails that we are always scrambling to get things done at the very last possible minute. This year is more exception.

I always promise myself that I’ll do better next year and I end up breaking my promise to myself, year in and year out.

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I think I just get too distracted with everything else going on and there’s always something more important at the moment that needs to be done first. It’s stressful and exhausting…..

Once again we find ourselves scrambling at the last minute to finish preparations for Santa Clause.

Are you ready for Santa Clauses arrival?

Permanent link to this article: http://lostandtired.com/2012/12/22/are-you-ready-for-christmas/

Jul 30 2012

Dear Monday, please be kind to us


This week is going to be crazy busy.  So far,  we have about a dozen appointments this week. That’s not including any pending appointments or ones that will come up at the last minute.

We are hoping to see the mitochondrial doctor and are waiting on the call.  We also have to make a return trip to Cleveland as soon as we get the call.

It’s honestly a bit daunting with just appointments that I know are there and frightening to think about any surprises that may pop up at the last minute.

I’m really hoping that Monday is kind to us and for that matter,  all of you as well.

**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/07/30/dear-monday-please-be-kind-to-us/

May 13 2012

Happy Mother’s Day 2012


I wanted to take a minute and wish all the Mother’s on my life,  especially my amazing wife,  a very Happy Mother’s Day.

It’s safe to say that none of us would be here without you…  :-)

**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/05/13/happy-mothers-day-2012/

Mar 20 2012

#Autism, Seizures and EEG’s: Elliott


Elliott’s appointment was pretty straight forward.  They got a detailed history and reviewed the EEG. I chose to go with Elliott first because he was the easiest or least complicated.

Elliott was very well behaved and just played his 3DS for most of the time. The doctor was totally awesome and was great with the boys.  You could tell that he loves his job.

Now for the bad news.  Elliott had 2 small seizures during the 5 minute sleep part of the EEG.

Before we explore medication,  we decided that it would be best to do a longer study so we could qualify what was going on. They are going to schedule a 24 hour VEEG.  This will provide more detailed information and we’ll have a better idea of whether or not he needs medication.

I hope it turns out to be minor enough that he won’t need intervention,  however,  I’m at the point where I just want him to get relief from whatever is happening.

They also talked about some expansive genetic testing to see what’s going on.  Just more to add to the list of things to do.  :-(

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Permanent link to this article: http://lostandtired.com/2012/03/20/autism-seizures-and-eegs-elliott/

Mar 02 2012

Are we crazy?


Are we crazy? Well,  simply put,  yes.  We decided at the last minute to throw together a small part for Elliott’s 6th birthday.  It started out really small but will end up being about 20 people.

I’m realizing,  once again,  that this was probably not the best idea.

The boys are already bouncing off the walls. I’m going to say we were smart about things and have kept it to exactly 1 hour,  but that would imply that we were smart about any of this in the first place.

Well the party has started so I’ll catch you later.   Wish me luck….

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Permanent link to this article: http://lostandtired.com/2012/03/02/are-we-crazy/

Feb 24 2012

Changing of plans is no surprise…again


I mentioned last night that we have rescheduled Elliott and Gavin’s appointment with the neurologist until after they have their EEG’S done next week.

There were a few reasons for this but one of them was that Elliott wasn’t feeling well.

Elliott woke up this morning and all he really has is a runny nose. He has an occasional cough but it’s related to post nasal drip and not some kind of respiratory infection. He also hasn’t run fever since Wednesday.

He was up early and immediately bouncing off the walls. Lizze and I decided that he was well enough to go back to school. 

He did not like that idea at all.  He lost it and soon came the river of tears that that we have become accustomed to,  especially lately. He literally had to be carried out to the van because he refused to walk.  I also had to wrestle him to get his coat on.

It feels really bad to have to do these things but he needs to be back at school.  Aside from the fact that he’s driving us crazy,  there was no reason for him to be home today.

He’s gonna do just fine at school today.  The teachers know what to expect and are more than capable of handling him.

It just never ceases to amaze me how frequently our plans change or have to be adjusted at the last minute. That is something that many people don’t seem to get or don’t understand.

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Permanent link to this article: http://lostandtired.com/2012/02/24/changing-of-plans-is-no-surprise-again/

Feb 23 2012

Autism, Regression and My Littlest Angel


Of our 3 boys on the spectrum, Emmett,  our 3 year old is the most profoundly affected by #Autism. He is considered pre-verbal as he has developed some language and speech skills.

However,  despite the great strides he has made in the last year or so,  he is still severely speech and language delayed. It’s really easy for me to forget just how much he struggles with communication because we are so used to it that we are able to decipher a lot of what he is trying to say.

Having said that,  it’s an immediate crash back to reality when I see Emmett with a neurotypical peer.  The difference in speech and language is undeniable,  especially when it comes to expressive language.

I haven’t written about this because in some weird, irrational way,  I thought by  not writing about it, it would be less real.  If that even makes sense.

At Emmett’s last session with Dr.  Pattie,  the discussion centered around how Emmett is showing more and more Autistic traits as time goes on. He has,  over time,  become extremely sensitive to things like imperfections in a sucker or water on his shoes. He has become a perfectionist and an extreme one at that.

It’s gotten to the point where we will have a 45 minute meltdown over a slight imperfection in a chicken nugget that he is only going to chew up anyway.

We have also noticed that he is using less and less speech as time goes on.  We are always working with him and I do my best to incorporate him into many of my daily tasks,  if for no other reason than to work on conversational skills. We always make him use his words but anymore,  we hear more screaming than anything else.

What literally terrifies me,  is that he is approaching the age that Gavin began to regress. That doesn’t mean it will happen to him but it already seems to be happening,  just not as rapidly as Gavin did. There is always a part of me that will fear this.

When you lose a child to the regressive form of Autism,  that sticks with you for the rest of your life. When your other kids approach that same age,  you worry.
I truly hope and pray that Emmett is just in a phase and that we will pick up and continue to move forward.

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

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Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Permanent link to this article: http://lostandtired.com/2012/02/23/autism-regression-and-my-littlest-angel/

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