Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: parking

Feb 23 2012

Life After My Broken Heart

A message from the author, Rob Gorski:

This post is a day late and a dollar short. I have been wanting to write a follow up to My Broken Heart for quite sometime now. It’s really hard for me to put into words just how much meeting the bare-handed man has affected me. I was so upset and depressed in the months following this experience that I ended up back on antidepressants. I just couldn’t understand how this kind of thing could happen and I still don’t. We live in a world that has its priorities in the wrong places.

As a society, we seem to value money, power, fame and fortune. We can put a man on the moon and pay an athlete millions of dollars a year to play a game. However, when it comes to helping those in need, the ones that society has failed and forgotten or otherwise devalued and dehumanized for being different it’s a whole other story. That is something I will never understand or accept.

Life After My Broken Heart

It was one year ago today, that I met the bare-handed man for the first time.  I say for the first time because I have actually met him several other times this past year. I have wanted to write about this for awhile but to many things happened this year that captured my attention and held it hostage. Among those things were my youngest and middle child both being diagnosed, officially, with Autism.

Meeting the bare-handed man last year, was a truly profound experience. There are few things in my life that have had this type of complete, all encompassing impact on me.  The most important of these life altering events being the birth of my children. Trying to put the impact these events had on me into words is no easy task.

It’s like somewhere,  buried deep inside me, is this pocket of emotion.  Very much like the magma buried deep beneath the cauldron of a volcano. This pocket of emotion, over time, builds up pressure. As more time passes, it works its way closer and closer to the surface and yet never quite reveals its presence. It takes a truly earth shaking event to trigger a release of this built up pressure. When it does eventually release, it’s in the form of an uncontrollable eruption. In the case of the the volcano, the eruption consists of hot ash and molten rock. In my case, it’s an eruption of uncontrollable emotions.

When I witnessed the birth of my children, I experienced one of these emotional eruptions to such a degree that I literally wept and was unable to stop.  There is such a vulnerability attached to this type of experience and perhaps that’s why they are so few and far between.

Meeting the bare handed man and witnessing the cruel way in which he was treated, led to the only other time I have experienced such an emotional eruption. Since I first met him on February 22 of last year,  I have spoken with him several times.  I’ve never set out to find him but it seems he always finds me. To be honest, I’m not sure how I feel about that and I don’t mean that in a negative way. I suppose I just wasn’t prepared to go through this multiple times.

A few months after I wrote My Broken Heart our paths crossed again for the first time since that snowy afternoon. This time however, I was at the Walgreens by my house, picking up prescriptions. What I thought was amazing was that he actually remembered me. I’m not sure why that really surprised me, but it did. I took the opportunity to introduce myself and learn more about him.

I introduced myself as Rob and asked him what his name was. He told me his name was Tim and he told me where he lived. Although he used the word stayed and not lived. I have a feeling that was significant. We spoke for a few minutes and he asked me for help again. I couldn’t drive him anywhere but I gave him what little I had before we parted ways, this time as friends…or at least knowing each other a little better.

Each time I’ve met him since, I was with someone.

Hands_by_rE_Fuuused

The second time I saw him again, I was with my wife at the Giant Eagle Get-Go putting gas in the car. Ironically, that encounter took place just across the parking lot from where I initially met him. I didn’t have much to offer him, other than the change in my car. He didn’t remember at first but I reminded him that we had met twice before and that seemed to spark something and the memory returned.

The third time we ran into each other, I was with my Dad. We had stopped to pick up some ice cream at the local shop. As we were leaving, I saw Tim approaching people in the parking lot.  It soon became our turn and I introduced him to my Dad. My Dad reached out to shake his hand. I could tell that Tim wasn’t accustomed to the friendly gesture and so to say it was a bit awkward would be an understatement. I didn’t have anything to offer him that night, however, my Dad gave Tim all he had on him at the time. My whole family already knew the story. They knew I had experienced something truly profound on that fateful 22nd day of February. However, being able to meet Tim put things into perspective.

I guess it would be like wearing glasses for the first time. Once you put on the glasses, everything changes. Well, in reality, everything is the same but you just see more clearly. It was a really amazing experience.

My path has crossed with Tim’s only a few times this year. While the few encounters were brief, the experience has taught me a great deal. When I look back over this past year, I realized that meeting Tim had opened my eyes to things I had been closed off to or simply unaware of. I learned just how important it is for me to see what lies just beneath the surface. I learned that beneath the tattered, inappropriately dress for the weather surface, lies a person that needs our understanding and compassion.

You see, there are people out there, all around the world. Just like my friend Tim. They are real and not only need but deserve our love, understanding, acceptance. They are people, human beings and were once, if not still, someone’s child.

Meeting Tim, for me, was like being graced with a glimpse of the future. While there was much about that day that should never have happened, some good did come of it. I was reminded that someday, my kids will be all grown up and I may not be around anymore, something that oddly enough, had escaped me until then. Reality can sometimes leave you feeling like you were kicked in the gut and this was one of those times for me. However, I have become much more aware of what needs to be done in order to both prepare my kids for the world and prepare the world for my kids.

I would like to think that my experience that day, the things I witnessed those people do in that frozen parking lot to my friend Tim, was an isolated incident. Sadly, I know it’s not. Things like this happen all the time. To this writer and father of 3 beautiful boys on the Autism Spectrum, this is simply unacceptable.

We need to make sure that this kind of thing doesn’t happen to anyone else. We need to do what we can today to help the world better understand kids and adults with Autism. I’ll be completely honest with you. I’m terrified of what the future might hold for my children. I have witnessed just how cruel and unforgiving the world can be to people that are perceived as different. It an ugly reality but one that I’m working to help change.

By working together, we can help those in need and at the same time, lay the foundation in which to help build a better future for our own kids. This blog is dedicated to spreading Autism Awareness and providing support to those traveling on this most challenging of journeys.

Life AfterMy Broken Heart isn’t easy but nothing worth having ever is. Please help spread Autism Awareness, even if it’s one person at a time. Remember that the Autistic children of today will be the Autistic adults of tomorrow. Let’s help to ensure that what happened to my friend Tim in the parking lot of the Giant Eagle, doesn’t have to happen to anyone else, ever again.

 


Permanent link to this article: http://lostandtired.com/2012/02/23/life-after-my-broken-heart/

Nov 15 2011

Dammit all to hell

Pardon my french but that’s all I can think to say.  Actually,  it was more like the cleanest thing I could think of at the moment to say.

Lizze took Emmett to therapy this afternoon and then ran to the store.  The freakin’ van started shaking,  well the engine rather.  It stalled out several times but she managed to get it into a parking lot before it completely died. 

As she was pulling into the parking lot,  smoke began to come from underneath the hood. 

I hate the bloody van.  It has been nothing but trouble.  We have had it for just about a year and it has been in the shop about 12 times already.  Brand new transmission,  deep engine work has been down several times now,  new sub frame,  new fuel pump,  electrical work,  more vacuum leaks than I can count and every time it get fixed,  something else breaks.  Oh..yeah,  I forgot to mention the ABS braking system. 

The body is in great shape and it met our needs,  so that’s why we put the money into it over the past year,  I believe almost $5, 000 in total.  Aside from this new issue,  the driver side window doesn’t go down, the power sliding doors are broke and they actually won’t even unlock all the time. 

I have gone in with a pair of pliers, in order to try to unlock the doors and have had no luck.  Then to my frustration,  they will simply unlock all by themselves.  When they do unlock by themselves I get so frustrated because I couldn’t manually unlock them.  I’ll look at whoever is in the van at the time and say “I loosened it first”. 

I have to find humor in even the most frustrating of times or else I’ll completely lose my mind. 

My mom is going to pick up Lizze,  Emmett and eventually Gavin,  and bring them home.  My dad canceled his plans tonight so him and I can go look at it and see whether or not it needs towed. 

Either way,  it’s back to the shop once again…  Sigh

I’m very grateful that our families are willing to drop what they are doing and rescue us in our time of need.  Thanks everyone…

- Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

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Permanent link to this article: http://lostandtired.com/2011/11/15/dammit-all-to-hell/

Sep 28 2011

Bad parenting??????

I make it a point to never judge someone for their parenting.  I feel like,  you never have the whole story so how could I possibly begin to understand what is actually going on. 

With that said,  I became a judge wudgy angry person today.  I was at the local WalMart to pick up a few things before getting the kids from school.

As I was leaving the store I heard screaming and I mean screaming.  I look over and off to the side there is this woman screaming, at her daughter.  This little girl is maybe alittle older than Emmett and Emmett is only 3 years old. 

She had 2 other young children with her along with her boyfriend or husband. 

This woman is screaming at the top of her lungs,  which by the way were filled with smoke because she was smoking right in front of her kids.  She was screaming,  “you will not hurt yourself” over and over again to this little girl.  The more this woman screamed the more this little girl got upset.  She had tears streaming down her face as this woman was blowing smoke into her face. 

She even got physical with the little girl as well.  She picked her up of the ground by her arms and tried getting her to stand.

The whole time I’m standing in the middle of the parking lot desperately trying to keep myself from going over there and giving this woman a piece of my mind.  I couldn’t believe it,  everyone just walked by like nothing was happening.

I mean,  if this woman would be this abusive in public,  what do you think happens behind closed doors. 

I tired to rationalize what I was seeing by saying to myself,  “Rob,  you don’t know the whole story”. 

I’ll be real honest,  I don’t care what the whole story is,  nothing that child could ever do would justify what I was seeing. I am very guilty of judging the crap out of this woman this afternoon and I’m not ashamed to admit it.

What I am ashamed to admit is that I did nothing.  I figured that by the time the Police would have gotten there,  due to their amazing slow response time,  they would be long gone.

Perhaps I should have walked over and said something,  but that would not have ended well and I was afraid the kid would pay for my actions later and I didn’t want that.

So I did nothing but be very obviously disgusted by what I was seeing and I stood there in the middle of the parking lot until this woman was done. 

I know that being a parent isn’t easy…  Trust me,  I know that.  However,  at no point have I or my wife ever lost it like that.  We all say things we regret but this was abuse,  pure and simple.

It honestly took everything I had not to try and intervene.

At what point do you involve yourself in something like this? 

Have any of you witnessed anything before that you wanted to go over and knock some heads?

I would love your feedback on this.

- Lost and Tired

Posted by WordPress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-)

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Permanent link to this article: http://lostandtired.com/2011/09/28/bad-parenting/

May 11 2011

I just don’t get it…..why?

I feel like we are a “good” family. I feel like we have a great deal of challenge in our lives. What I don’t really get is why we just can’t catch a break. I spent yesterday driving all over to get the kids everywhere they needed to go. We ended our day at the doctors getting Gavin’s blood work done for this week. On the way home I pulled up to an intersection under construction. I was getting ready to turn right and head home. This intersection is all torn up and the right hand lane I was turning into is VERY narrow at the moment due to the construction. As I was making my right hand turn the van “shook” and then died. It wouldn’t start again. I put on the hazards and called for help.

We were in a really bad spot on the road and ALL the kids were in the car but there was no safe way to get them out. We had a HUGE line of traffic behind us and apparently everyone was seeing hazard lights for the first time because NO ONE seemed to understand that they meant we were stranded. We were getting cursed at and screamed at. There cars almost crashing right in front of us. People were so angry with us that they would zoom around us, flip me the “bird” and literally almost crash into oncoming traffic. I mean there were cars slamming on their brakes and squealing tires. All the while the kids are FREAKING out. The tow truck was on it’s way along with my Dad and North Canton PD.

We counted about 150 people that either completely ignored us or cussed us out. At one point even 2 construction workers were examining the repair work on the road RIGHT next to us and they ignored us as well. I kept trying to start the car so I could get us off the road as we were almost hit twice. The car would crank but wouldn’t run. We were stuck there for about 30 minutes. When my dad arrived we figured out the best place to push the van but we needed the road blocked off. North Canton PD arrived and blocked traffic so we could push the van through the intersection and into a parking lot to await being towed. I had the van finally towed back to Waterloo Transmission and they dropped it off in it’s “usual” spot. Have I said how much I HATE this van.

I HATE this van. I hate it, I hate it, I hate it.  It was just in the shop last week for the water pump. Since then our Mother’s Day plans were ruined because the ABS brakes went crazy and we couldn’t drive the van. We have been avoiding driving it but we had NO choice yesterday. We could disable the ABS system and just use the regular brakes for right now so that was temporarily addressed. Now it appears the fuel pump is DEAD and we still have brake problems and electrical issues.  The bottom line is that this Van just isn’t SAFE or RELIABLE. I kick myself everyday for deciding to buy it. We were desperate and we could afford it but it has turned out to be a curse that is bleeding us to death. I have to figure out how to replace it but that’s simply not possible now or in the foreseeable future. What really gets me is why. Why does this happen to us? Don’t we have enough challenges in our life already? I’m not asking for anything to be handed to us but at LEAST make it POSSIBLE for us to get up and move forward.

I really hate being so negative but it’s really hard not to be anymore.

Permanent link to this article: http://lostandtired.com/2011/05/11/i-just-dont-get-it-why/

Apr 25 2011

Our lives are on hold…AGAIN

Today just needs to be over already. How much more can we possibly take much more of this.  It’s only Monday so that doesn’t hold well for what the rest of the week has to offer us. Today got off to such a rough start and to make matters worse, I forgot to give Gavin his meds this morning. I realized this after we rushed out the door to get Lizze to her appointment this morning. I figured no problem, the appointment is at 9:15am and we should be out no later then 10:00am. I was thinking that we would swing by and pick up the boys from my parents house and then grab Gavin’s meds and give them to him at school. An easy fix to a serious problem, right? WRONG.

As we are driving to pick up the boys the power steering goes out and smoke pours out from under the hood. I manage to pull over into a Steak and Shake parking lot. Then the van just stalls out. Have I mentioned just how much I HATE this van. I get out and pop the hood and wait for it to stop smoking. I can smell the burning coolant but can’t see where it’s leaking from. Upon closer examination I found the leak. I actually got video of it this time because Lizze had something similar happen while she was driving the van a few weeks ago but we could finds a problem. Well I definitely located the problem. My mom came to pick Lizze up and I decided to avoid the tow bill is possible and so I drove it home. I managed to get the van to Waterloo Transmission (as it was on my way) and one of the guys came out to take a look. It appears to be a metal tube that comes off the water pump.

The power steering loss is because the coolant is spraying onto the belt and so the belt is slipping causing us to loose power steering. I HATE this van. It’s a never ending money pit. We have electrical issues and the rear passenger doors won’t even unlock much of the time anymore. I made it home and parked her [van] in the driveway. It will be sitting there indefinitely until we can do the repairs.

The reason I’m sharing this (aside from venting) because the impact this is going to have on us. The special needs family is a very fragile entity and things like this come up and are very destabilizing to say the least. We have doctors appointments and therapies to be at this week. We are supposed to be in Cleveland this Friday for Emmett but that won’t be happening now. I’m just frustrated a lot right now and overwhelmed right now.

 

On a positive note, at least Lizze wasn’t the one driving the van when this happened because with everything she has going on  she wouldn’t have been able to steer the van. Also Gavin should be ok as far as his meds go because the are only going to be late today. He’ll get then the second he walks in the door this afternoon.

 

In this video you can see the coolant squirting out towards the left side of the screen.  The video is shaky because I’m SO stressed out I was shaking.

 

YouTube Preview Image

Permanent link to this article: http://lostandtired.com/2011/04/25/our-lives-are-on-hold-again/

Apr 20 2011

My Broken Heart: The bare handed man

Reposted in honor of Autism Awareness Day

To my readers:

The story in the below post happened to my on February 22, 2011. This event has forever changed my life. Please help me share it. This is why we desperately need Autism Awareness. Thank you for reading and helping me share my story…

-LT


It’s been a few days since I have spoken with all of you. Something happened to me a few days ago that I have been struggling to deal with it. I hope you all truly hear what I’m about to share with you. I want everyone to read this and know what happened. Not because of what I did but because of what I learned… Please share this story and help spread awareness.

A few days ago I went to Giant Eagle to pick up some groceries. We had a winter storm on the way and I needed to pick up a few things in case we got snowed in again. I pulled into the parking lot and found a spot right in front of the entrance. My back is out again so I can’t walk very far. As I was pulling into the spot I had to wait for some people to move out the way. They were just standing in the parking spot. Their car was in the next spot over but they just stood there and shot me a few dirty looks,  like “who was I to expect them to move”. I just waited, it wasn’t a big deal. I wasn’t even upset. They eventually started to get into their car and moved out of the way so I could pull in.

The snow had already started to fall and we were getting about 1″ per hour. I sat there a second collecting what I needed to take into the store. I just happened to look over at the people that were still getting into their car and I saw a large black man standing there. I didn’t see where he came from but in one minute he wasn’t there and the next minute he was.  Then I realized what he was doing. He was wiping the snow and ice off their windshield with his bare hands. The woman looked at him, like, “how dare you touch my car”.
She was clearly disgusted just breathing the same air. Instead of asking him to stop or giving him a few dollars she tried to run him down. She gunned the car forward so fast that her friend who was trying to get into the back seat had the back passenger door slammed on him and he was left standing in the snow. The man who had been trying to clean the windshield was knocked back. This woman just kept shouting things to the man with the

bare hands.

I was in shock. I had never seen anything like that before and I never want to again. A few seconds later the man gets up and walks over to me and knocks on my window. I hadn’t even begun to process what I had just seen. Now he was coming over to me and I had no idea what I was going to say. Shamefully, I was thinking “please not now, I just want to get what I need and get home”. Where I live it’s not uncommon for people to approach you for money. So I knew what was probably about to happen. I took a deep breath and started to open the door. The bare handed man opened it the rest of the way, being careful not to hit the car next to me.

The bare handed man was under dressed for the weather and obviously cold. He asked me for change. I gave him everything I had, $2.37. He started talking to me but couldn’t look me in the eye. As he was telling me how cold and hungry he was, I watched as he was unable to control his hands. It was like he was playing an invisible piano. He had a very hard time talking to me and I could see he was much more uncomfortable then I was. He clearly had boundary issues but I never felt threatened in any way. He kept staring off and would occasionally look in my direction but never at me and I never saw his eyes. He stood about 1 or 2 feet in front of me and asked me to drive him to a shelter because it’s “warm there and they have food”.  He informed me that he was “homeless and very hungry”. He then told me that he “was not lying to me”. He said “if I lie to you then you might not help me”. He asked me to buy him some food and gloves. I thought about what to say. I knew he would have hard time understanding. I don’t have any money. My family is struggling to survive each day. I would literally be taking away from what little my family has and I just couldn’t. I was trying to figure out how to explain to him that I couldn’t help him. I was lost for words.

Then something happened that shook me to the core and completely broke my heart. As I was trying to form the words I needed to tell him “no”, he looked me in the eyes. All of the sudden I was looking at Gavin. Gavin is the oldest of our three special needs boys (all Autistic). Gavin is 11 years old and is also diagnosed with schizoaffective disorder as well. Looking at the bare handed man was looking through some special window at my son Gavin, 20 or 30 years from now. It was a kick in gut. I was overcome with emotion. It was like I was run over by a freight train. I can’t put words together to really describe what that moment was like.

He again asked me to buy him food because he was hungry and gloves because his hands were cold. Something about him was so familiar and yet I’d never met him before. I looked at him and told him I would buy him some food. He smiled in my direction and took my hand (without looking at me) and led me into the store. He didn’t fit in with the rest of the people in there. His clothes were old, beat up and didn’t smell very good. He had clearly been through a great deal in his life and it showed in his face. I noticed the looks people gave me as I walked with the bare handed man into the grocery store. He asked me to buy him a gift card so he could buy food later on when he is hungry again. So we walked over to the rack and he picked out a Giant Eagle gift card. He asked for other ones but I just couldn’t. We went to the register to ring it up and I explained how to use it. I put $25 on the gift card and the cashier asked if I wanted any cash back. I had them give me $25 cash back. I gave it to the bare handed man and asked him to please buy himself some gloves and a bus ride to the shelter. The last thing he asked was to have the receipt so “when the police stop me, I can prove I didn’t steal this”.

He told me again that he wasn’t lying. I told him I knew he wasn’t. He turned to walk away and he stopped and looked in my direction as to say “Thank You” but didn’t. What he did said more than a simple thank you. He showed me his eyes again for a brief moment before he turned around and left. I stood there completely heartbroken as I watched my son Gavin walking away into the cold.  I was beside myself with grief. How could someone I didn’t know have such a profound effect on me?

I just couldn’t shake just how much the bare handed man reminded me of Gavin. I tried to finish the shopping I had to do but I couldn’t remember anything I was supposed to get. I walked up and down the aisles on “autopilot” doing everything I could not to burst into tears. I got to the end of the store and realized I still had an empty cart. All I could think was “how does that happen”. I was smacked in the face with reality. Someday I won’t be here to take care of my kids. What if this happens to them? What if they are the ones wiping off a windshield with their bare hands and almost getting run over by someone who clearly doesn’t care.

I screwed up grocery shopping. I just couldn’t focus on anything. I got what I could remember with what little I had left and drove home.  I was completely lost at that point. I just couldn’t process what had just happened. All I could think about was not allowing this to happen to my kids in the future. The horrifying truth is that someday I won’t be here for my kids and I pray they are never in that same situation. I truly hope that if they are, someone will show them kindness and compassion. These are my babies and I get sick to my stomach thinking about what their future holds.

I got home and unloaded the groceries and was in the kitchen with Lizze. I wasn’t going to say anything to her about it but I had to because we already were struggling and now things were going to be even tighter and she deserved to know why. I looked her in the eyes and told her what had happened. I just sobbed and sobbed on the floor in my kitchen. I couldn’t control myself or keep my emotions in check. That has only ever happened to me when I watched Lizze give birth to our kids. The past few days have been rough because I just can’t seem to get past this. All I can think about is my kids and their future. My heart has been broken and I live with the reality that this could be one or more of my kids in the future.

This has been very difficult for me to write. I’m still very emotional. Most parents will never know this fear but I do. Parents of special needs kids live with this indescribable fear each and every day. I wanted to share this story because we CANNOT allow this to happen to our kids. Please help me spread Autism Awareness. I don’t care what it takes but the world needs to be better. These people NEED compassion and understanding. My kids need your compassion and understanding… Please give them that much, I beg you….

 

Permanent link to this article: http://lostandtired.com/2011/04/20/my-broken-heart-the-bare-handed-man/

Feb 24 2011

My broken heart

Please check out the follow up post to My Broken Heart. It’s a look back over the past year since this whole thing took place. See: Life After My Broken Heart

To my readers:

The story in the below post happened to me on February 22, 2011. This event has forever changed my life. Please help me share it. This is why we desperately need Autism Awareness. Thank you for reading and helping me share my story…

-LT

My broken heart: The Story of The Bare-Handed Man

It’s been a few days since I have spoken with all of you. Something happened to me a few days ago that I have been struggling to deal with it. I hope you all truly hear what I’m about to share with you. I want everyone to read this and know what happened. Not because of what I did but because of what I learned… Please share this story and help spread awareness.

A few days ago I went to Giant Eagle to pick up some groceries. We had a winter storm on the way and I needed to pick up a few things in case we got snowed in again. I pulled into the parking lot and found a spot right in front of the entrance. My back is out again so I can’t walk very far. As I was pulling into the spot I had to wait for some people to move out the way. They were just standing in the parking spot. Their car was in the next spot over but they just stood there and shot me a few dirty looks,  like “who was I to expect them to move”. I just waited, it wasn’t a big deal. I wasn’t even upset. They eventually started to get into their car and moved out of the way so I could pull in.

The snow had already started to fall and we were getting about 1″ per hour. I sat there a second collecting what I needed to take into the store. I just happened to look over at the people that were still getting into their car and I saw a large black man standing there. I didn’t see where he came from but in one minute he wasn’t there and the next minute he was.  Then I realized what he was doing. He was wiping the snow and ice off their windshield with his bare hands. The woman looked at him, like, “how dare you touch my car”.
She was clearly disgusted just breathing the same air. Instead of asking him to stop or giving him a few dollars she tried to run him down. She gunned the car forward so fast that her friend who was trying to get into the back seat had the back passenger door slammed on him and he was left standing in the snow. The man who had been trying to clean the windshield was knocked back. This woman just kept shouting things to the man with the bare hands.

Hands_by_rE_Fuuused

I was in shock. I had never seen anything like that before and I never want to again. A few seconds later the man gets up and walks over to me and knocks on my window. I hadn’t even begun to process what I had just seen. Now he was coming over to me and I had no idea what I was going to say. Shamefully, I was thinking “please not now, I just want to get what I need and get home”. Where I live it’s not uncommon for people to approach you for money. So I knew what was probably about to happen. I took a deep breath and started to open the door. The bare handed man opened it the rest of the way, being careful not to hit the car next to me.

The bare handed man was under dressed for the weather and obviously cold. He asked me for change. I gave him everything I had, $2.37. He started talking to me but couldn’t look me in the eye. As he was telling me how cold and hungry he was, I watched as he was unable to control his hands. It was like he was playing an invisible piano. He had a very hard time talking to me and I could see he was much more uncomfortable then I was. He clearly had boundary issues but I never felt threatened in any way. He kept staring off and would occasionally look in my direction but never at me and I never saw his eyes. He stood about 1 or 2 feet in front of me and asked me to drive him to a shelter because it’s “warm there and they have food”.  He informed me that he was “homeless and very hungry”. He then told me that he “was not lying to me”. He said “if I lie to you then you might not help me”. He asked me to buy him some food and gloves. I thought about what to say. I knew he would have hard time understanding. I don’t have any money. My family is struggling to survive each day. I would literally be taking away from what little my family has and I just couldn’t. I was trying to figure out how to explain to him that I couldn’t help him. I was lost for words.

Then something happened that shook me to the core and completely broke my heart. As I was trying to form the words I needed to tell him “no”, he looked me in the eyes. All of the sudden I was looking at Gavin. Gavin is the oldest of our three special needs boys (all Autistic). Gavin is 11 years old and is also diagnosed with schizoaffective disorder as well. Looking at the bare handed man was looking through some special window at my son Gavin, 20 or 30 years from now. It was a kick in gut. I was overcome with emotion. It was like I was run over by a freight train. I can’t put words together to really describe what that moment was like.

He again asked me to buy him food because he was hungry and gloves because his hands were cold. Something about him was so familiar and yet I’d never met him before. I looked at him and told him I would buy him some food. He smiled in my direction and took my hand (without looking at me) and led me into the store. He didn’t fit in with the rest of the people in there. His clothes were old, beat up and didn’t smell very good. He had clearly been through a great deal in his life and it showed in his face. I noticed the looks people gave me as I walked with the bare handed man into the grocery store. He asked me to buy him a gift card so he could buy food later on when he is hungry again. So we walked over to the rack and he picked out a Giant Eagle gift card. He asked for other ones but I just couldn’t. We went to the register to ring it up and I explained how to use it. I put $25 on the gift card and the cashier asked if I wanted any cash back. I had them give me $25 cash back. I gave it to the bare handed man and asked him to please buy himself some gloves and a bus ride to the shelter. The last thing he asked was to have the receipt so “when the police stop me, I can prove I didn’t steal this”.

He told me again that he wasn’t lying. I told him I knew he wasn’t. He turned to walk away and he stopped and looked in my direction as to say “Thank You” but didn’t. What he did said more than a simple thank you. He showed me his eyes again for a brief moment before he turned around and left. I stood there completely heartbroken as I watched my son Gavin walking away into the cold.  I was beside myself with grief. How could someone I didn’t know have such a profound effect on me?

I just couldn’t shake just how much the bare handed man reminded me of Gavin. I tried to finish the shopping I had to do but I couldn’t remember anything I was supposed to get. I walked up and down the aisles on “autopilot” doing everything I could not to burst into tears. I got to the end of the store and realized I still had an empty cart. All I could think was “how does that happen”. I was smacked in the face with reality. Someday I won’t be here to take care of my kids. What if this happens to them? What if they are the ones wiping off a windshield with their bare hands and almost getting run over by someone who clearly doesn’t care.

I screwed up grocery shopping. I just couldn’t focus on anything. I got what I could remember with what little I had left and drove home.  I was completely lost at that point. I just couldn’t process what had just happened. All I could think about was not allowing this to happen to my kids in the future. The horrifying truth is that someday I won’t be here for my kids and I pray they are never in that same situation. I truly hope that if they are, someone will show them kindness and compassion. These are my babies and I get sick to my stomach thinking about what their future holds.

I got home and unloaded the groceries and was in the kitchen with Lizze. I wasn’t going to say anything to her about it but I had to because we already were struggling and now things were going to be even tighter and she deserved to know why. I looked her in the eyes and told her what had happened. I just sobbed and sobbed on the floor in my kitchen. I couldn’t control myself or keep my emotions in check. That has only ever happened to me when I watched Lizze give birth to our kids. The past few days have been rough because I just can’t seem to get past this. All I can think about is my kids and their future. My heart has been broken and I live with the reality that this could be one or more of my kids in the future.

This has been very difficult for me to write. I’m still very emotional. Most parents will never know this fear but I do. Parents of special needs kids live with this indescribable fear each and every day. I wanted to share this story because we CANNOT allow this to happen to our kids. Please help me spread Autism Awareness. I don’t care what it takes but the world needs to be better. These people NEED compassion and understanding. My kids need your compassion and understanding… Please give them that much, I beg you….

 

I also published this article on CNN Health Check it out by clicking the CNN

logo. I rewrote the article so that more people, especially those unfamiliar with special needs parenting could relate. The article collected 37,000+ “Likes” and counting.

 

Please check out the follow up post to My Broken Heart. It’s a look back over the past year since this whole thing took place. See: Life After My Broken Heart

 

If you liked this piece, you might also like: 10 Things My Autistic Kids Wish You Knew or Thank You For Judging Me

Permanent link to this article: http://lostandtired.com/2011/02/24/my-broken-heart/

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