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Tag Archive: priority

Jul 23 2012

Safety is priority, not comfort


I wanted to update you all as to what is going to happen this week with Gavin.  At this point, honestly, I think he’s coming home. I don’t like the idea because I know that nothing has changed with Gavin and it will only be a matter of time before this happens again.

I don’t mean to sound cold but it’s not safe to have Gavin in the house right now. 

At this point in time,  barring some miracle,  when Gavin is released this week,  he will return home. Lizze and I both,  have mixed feelings about this. 

One one hand,  we miss our son.  However,  on the other hand, we can’t absorb much more of his behavior.  The stress in the house when he’s home is unbearable and I can’t allow it to continue.

Right now we are making plans for him to return.  Those plans include major safety precautions. 

We are going to move Elliott’s bed into our room.  At night,  we are going to lock ourselves in our room.  That means that Elliott,  Emmett,  Maggie, Bella,  Cleo, Lizze and myself will all sleep behind a locked door.

I’m reinstalling an alarm on Gavin‘s door.  I say reinstalling because he broke the one currently in place.

We are going to put a padlock on the closet in the bathroom as well as the cabinets in the kitchen.  All silverware and knives will be moved into those locked cabinets.  Anything that can be used as a weapon will have to be secured or removed from the house,  not that we have weapons but you get the point.

I don’t mean this to sound dramatic but I think it’s pretty much a common sense move.

We’ve done the lock ourselves in our room thing before when things got bad. It’s not fun and I can’t imagine it sends a good message to Gavin but the reality is that safety is the priority here and Gavin has proven to be very dangerous.  We can’t afford to take any chances. 

Our options are extremely limited at this point because of his complexity.  Aside from the Cleveland Clinic,  Rainbow Babies and perhaps something in Columbus,  there is nowhere that is equipped to handle his needs.
I’m really trying to find a silver lining here but I just do the see one.  I’m really nervous about Gavin coming home.  I love him tremendously but he’s a threat to himself and those around him, when he gets upset.  I have to keep everyone safe and until we figure something else out,  we’ll have to run the Lost and Tired household like a prison.

I know this may seem like I’m making a big deal out of nothing hut those of you out there that have personal experience with things like this,  know exactly what I’m talking about.

Perhaps Akron Children’s Hospital will be able to figure something out. Maybe they can get him into Cleveland,  I think that would be ideal for right now. 

Fingers crossed…

**Thanks for reading**

       -Lost and Tired

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Jun 19 2012

Finding new doctors


My goal for today,  aside from physically surviving,  is to find replacements for several doctors. The priority right now is to locate a new psychiatrist for Gavin. 

The reason we have to do that is because his current shrink has spread himself way to thin and can no longer devote the time needed to help Gavin. We have no hard feelings because he has been a godsend to our family since 2005.

However, trying to find a psychiatrist that is qualified to handle a child as complex as Gavin,  is next to impossible.

As soon as we get this done,  I have to get Lizze to the Cleveland Clinic for help with her migraines. We are hoping that they have more options available for treatment than we locally.


**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/06/19/finding-new-doctors/

Mar 19 2012

A 104°F wrench in our plans


To further complicate matters,  Emmett’s fever has almost hit 104°F.  I think this is going to put a wrench into our plans for tomorrow. 

It’s one thing to send him to my parents with just a bad cough but with a fever of 104°F,  I don’t want him going anywhere. It looks as though Lizze and I will have to split up in the morning.  I hate having to do this because this is a pretty big appointment for the boys and we should both be there.

At this point,  my priority has to shift to Emmett and managing his fever.  Typically,  it wouldn’t be a huge deal,  but since he started with the fever disorder a year or so ago,  he hasn’t been typical when it comes to fever.

I need to go stock up on Gatorade to keep him hydrated.

It going to be a very long night…..

image

**Thanks for reading**

       -Lost and Tired

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Feb 09 2012

Problems at school


Yesterday,  for the first time in quite a while,  Gavin had major problems at school.

We haven’t been able to get much from him without him melting down.  What we know is that he was escorted to the principles office at least twice.  This only happens when he completely loses control.  In other words,  things have to be pretty bad for him to go to the office.

From what we know,  Gavin wasn’t listening to the directions during an assignment and that led to him not knowing what he was supposed to be doing. 

That of course,  led to at least 2 meltdowns.

The concern I have is that I think this may have more to do with him not being able to hear what the teacher was saying and less about him not paying attention.

The problem is that his teacher told him that if he had been paying attention,  he would know what he was supposed posed to be doing.

At this point Gavin is saying that wasn’t paying attention and that’s why he got in trouble.

The reality is that if his teacher had said he was bouncing a ball on his head and that’s why he didn’t know what he was supposed to be doing,  he would believe them. 

Gavin is very easily influenced by authority figures. 

I will not tolerate anyone making assumptions about any of my kids and I will be speaking with the teachers very soon to get their side of the story.

Lizze and I have been concerned about Gavin’s hearing for awhile now.  The last me we went into to have him checked, they found another problem that took priority over the hearing test.

A hearing test will take place very soon.

We need to know how to help him,  whether it’s simply paying more attention at school or getting him help with his hearing. I’ve been saying that something is wrong for quite some time now. We just can’t seem to figure out what that something is.

**Thanks for reading**

       -Lost and Tired

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Jan 02 2012

2011 Tax Return


So,  it that time once again.  Tax season is quickly approaching I was wondering what your plans are?

For the Lost and Tired family,  tax return is about the only time we can make major purchases.  Things like broken appliances, outstanding bills ect,  are only possible when our tax return comes in.

This year,  I have quite a few things that need to be accomplished with tax return.

Obviously,  not everything will happen but we have made a relatively short list of priorities.  I thought I would share our goals for this tax season.

Things we want to accomplish with our 2011 Tax Return

1)  We have to pay for the repairs to the van.

2)  We need to replace our mattress,  Gavin’s mattress and Emmett and Elliott need bunk beds.

3)  I need to get a treadmill so I can get back to running.  I can’t get away anymore and so that would help me to improve my health.

4)  Relocation.  This is a HUGE priority.

5)  Get caught up on some bills.

6)  Move forward with Android4Autism.

Now,  as I said, some of these things simply won’t be possible.  This is the list of priorities that have been narrowed down.

Relocating is easily at the forefront right now.  Everything else will hopefully happen in time.

I have my taxes done already but can’t e-file for a few days.  Hopefully our return will arrive before the end of the month. 

Fingers crossed :-)

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Permanent link to this article: http://lostandtired.com/2012/01/02/2011-tax-return/

Nov 28 2011

Dealt another blow


Lizze kicked off the week of appointments with a follow up at pain management. She has been off her fibro medications for about a week because insurance needed a priority authorization for the refill.  Apparently,  there was a policy change and Lyrica (spelling?)  is no longer covered. 

It took a week to work out the prior authorization and so she ran out about a week ago.

When she saw her doctor this morning,  they informed her that because she has been off the Lyrica for a week,  she has to start all over again.  This is a huge blown to her because it took her well over a year to build up to where she was,  just 7 days ago. 

She is in horrible amounts of pain, now she won’t see any relief for many,  many months.  The worst part is that now it may not work again. Lyrica was the last medication she had to help manage the fibro flare ups. 

To say she is demoralized right now would be a gross understatement. It looks like things are going to get a whole lots worse for her and subsequently everyone else in the house. 

I don’t know who to more passed off at,  the insurance company or pain management. The pharmacy spoke with pain management last week about the need for the prior authorization and they never sent it in.  Now my wife has to suffer for God only knows how long because someone else dropped the ball. 

From a purly selfish standpoint,  we were barely surviving with her fibro relatively managed by the medications. Now I don’t know what we are going to do…..

This is the most fanfreaking-tastic way to start the week.  I only have 17 more appointments to look forward to.  I totally honest they go better than this. 

Permanent link to this article: http://lostandtired.com/2011/11/28/dealt-another-blow/

Nov 21 2011

Consequences and Accountability


I have been asked a few times for advice on disciplining.  This is a pretty touchy subject and while I’m happy to share my personal experience,  I’m not claiming to be an expert…at all.

It should also be noted that we work very closely with our doctors and therapists when constructing and implementing any new discipline plan.

Over the years we have struggled with the idea and the logistics of disciplining our children.  The main reason for this struggle is because we were never sure what was within their control and what wasn’t. We didn’t want to punish them for something outside of their control but at the same time,  in the real world,  their actions have consequences.

We do not spank and we try not to assign consequences while in an emotional state. I believe very strongly that it sends the wrong message.  That’s just my opinion and I’m not attacking anyone that believes otherwise.

There are a number of reasons we don’t spank,  but one of the main ones is that there is no progression from there.  For example,  if you use time outyou can progress as needed by extending the amount of time they are in time out.  However,  with spanking,  all you can do is spank harder or longer and that leads to very murky waters, and sends the wrong message, at least in my opinion.

One of the things that we have been very careful to do is make sure the consequences are developmentally appropriate. Not only should the punishment or consequences fit the crime,  so to speak,  but also it should fit the developmental age of the child in question.

Does that make sense?

One of the other things we have made a priority,  whenever possible,  is to ensure that a lesson is learned.

In my opinion,  it’s more important that my kids learn from their mistakes,  than simply experience the consequences of them.  If they don’t learn from their mistakes they will likely just repeat the behavior,  thus beginning an endless cycle.

Just to give you an idea of some of the things we have used, I’ll list a few.

We have used time outs,  early bedtime,  loss of a toy or something else for a period of time,  restricted TV or movies,  removed video games and provided oatmeal as a meal replacement (I’ll explain that one in a minute).

We have used sticker charts and treasure boxes as well as other positive reinforcement techniques.

The oatmeal is one of our outside the box solutions.  We have only done this with Gavin because he doesn’t respond to anything else.Gavin is very, very complex and so we have to employ things that are a bit…..unusual.

Basically,  when Gavin needs to be held accountable for his actions and attempts to address the behavior with other methods is ineffective,  we will substitute his next meal for a bowl of plain oatmeal.  I know some people take issue with this but all our doctors are onboard because we have tried everything else and this is all that works.

Gavin loves oatmeal but not when it’s plain and unsweetened.  Also,  we never just whip out oatmeal for every little thing.  Usually,  the situation needs to be more extreme to warrant oatmeal. We never withhold food as a punishment.  There have been times though that due to his behaviors he has gone to bed without dinner,  however,  our doctors assure us that he will be just fine.

As parents,  we have to decide what is best for our own,  personal situation.  No one knows your kids better then you.  My only bit of advice is to make sure whatever method you do employ is developmentally appropriate. Speaking from experience, it’s very easy to get caught up in the heat of the moment and overreact, sometimes it benefits everyone involved to take a step back and gather yourself before assigning consequences for a particular situation.

Never be afraid to ask for help. You can work with local agencies or behavioral specialists.  They are all great resources but in the end,  you are the one that will make the decisions.  You are the one that your child will learn the most from, so lead by example. :-)

Seize the opportunity to do so and make a positive impact on your child’s life.

Permanent link to this article: http://lostandtired.com/2011/11/21/consequences-and-accountability/

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