Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: replacement

Feb 26 2012

I’m a depressed special needs father: Update 02/27/2012

I have been pretty open and honest about my personal struggle with depression. Once again,  I think it’s important to be honest about this because there is already such a stigma attached to things like depression.

Periodically,  I like to post updates as to how my personal struggle is going. I want people to know that there is nothing to be ashamed of and I for one am not embarrassed by it.

Today is the 27th of February, 2012. I have been back on Paxil for about 8 months now.  Not to long ago my dose was doubled to 40mg/day.

The increase in medication was a necessary evil as thing in my life were getting harder and harder to manage. I started feeling better after a few weeks.  However,  as of late,  I have been starting to struggle again.

Recently, the Lost and Tired family van was stolen and subsequently totaled out.
This has put a great deal of pressure on me. Perhaps I put the pressure on myself,  but regardless, the pressure is there.  I had to scramble to find a replacement when we were not in a position to absorb the expense.  Our move has been put on hold because we sank everything we had into a new car.

Shortly after that, I started noticing that I was beginning to worry more than I should and kinda get stuck in cyclical thinking.  In other words,  I get focused on some obscure thing and begin worrying about it until it becomes all consuming. It’s completely irrational but it directly impacts me.

I have even noticed that I’m developing little tics. I see the doctor in a week or so but I think I may need to add an additional medication on top of the Paxil. I don’t know if I can go higher than 40 mg/day.

All I know is that I need to do something before this gets any worse.

I have way to much to worry about and I’m referring to legitimate worries. I can’t afford to lose my center. I have 3 special needs boys that depend on me for a great deal.  My wife is disabled and is very limited to what she can do most of the time.

That, in-and-of-itself,  is enough pressure to push me over the edge. I need to get my family stabilized but I need to get myself stabilized first.

Does that make any sense?

Look,  I really want people to know that depression is nothing to be ashamed of.  In fact, it’s probably more of a fact of life when it comes to special needs parenting.

If you are struggling with depression or think you may be depressed,  please,  please talk to someone.  Talk to your doctor if you need help.  Asking for help tales courage and is not a weakness.

Please take care of yourselves.

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Permanent link to this article: http://lostandtired.com/2012/02/26/im-a-depressed-special-needs-father-update-02272012/

Feb 15 2012

How to kill a toilet

You might remember,  earlier this week we had another issue with the toilet in our only bathroom.

A quick recap for those who missed out on the fun earlier this week.

Basically,  Emmett flushed several,  empty toilet paper rolls down the toilet. Now,  in his defense,  they had been collecting and proved to be a temptation that he simply couldn’t resist.

Anyway, this is the 2nd or 3rd time this has happened in the last few months.

I spent a good portion of the day plunging the crappie out of that toilet.  Oh..look.. I made a funny :-)

The plunger actually broke, so Elliott -who was still manic at the time- and I had to go buy a new one.  Elliott at the store is tough on a good day.  However,  Elliott at the store while manic because of a bad reaction to Zoloft…. Well,  I’ll leave that to your imagination.

But I digress…..

Back to the point. 

Did you know that not all plungers work on all toilets?  I found that out the hard way. The replacement plunger I bought didn’t work.

I ended up having to use the old,  broken plunger.  It actually worked after awhile.  I managed to clear out most of. The cardboard from the back of the toilet.

Sadly,  the damage had already been done.

When we flush the toilet now,  it sounds like it’s gasping for air.  It no longer rains on the parade, if you follow my drift.

I think whatever else he flushed is plugged up somewhere and it’s stopping the water from flowing through the system properly.

I’ll give you an example.  Don’t worry,  it will be a clean example.

Gavin blew his nose today and dropped the tissue into the toilet and flushed it.  While the water in the toilet flushed away the tissue remained.  There is simply no water coming down to whoosh the tissue away,  so it just sticks to the side of the bowel.

I’m afraid that our toilet,  when less than a year old,  is in its final days.

RIP dear friend.  As my good friend. Hank Hill would say,  you provided us with 12 months of reliable service.

You will be missed.  Unfortunately,  I can’t pull the plug just yet,  I need to interview for a replacement first. 

**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/02/15/how-to-kill-a-toilet/

Jan 29 2012

Do you ever feel like a complete failure?

Do you ever feel like a complete failure?  I mean,  everything can’t go right all the time but to have everything go wrong….

This is one of my really honest posts where I’m just sorta spilling my guts.  I say what I need to say,  so that I can hopefully be able to walk away from it when I’m done and feel a bit lighter.

It’s no secret that things could be going better for the Lost and Tired family.

What I don’t often share is how that makes me feel. To put it bluntly,  I feel like a complete failure,  as both a father and a husband.

Maybe it’s the fact that I missed a few days of antidepressants while I was sick or maybe it’s the reality of life slapping me in the face. Either way,  I’m feeling pretty low right now.

I want so much better for my family then what I’m doing. 

We’re in a bad neighborhood,  my kids can’t play outside and our goddamm van was stolen in broad daylight,  right in front of us. As badly as we need to move,  now we have to buy a new van or rather a replacement. 

We have 3 days left on the rental and I have no idea what we are going to do.

At least half of what we get for the settlement is going to pay off the repairs we had to have done right before Christmas.

I’ve been trying to remain as positive as possible but I don’t know if I can do it anymore.

I’ll tell you something about my wife and kids,  they never complain.  They are all worried but they don’t complain..ever. In some weird way,  that almost makes it worse because it’s like they are content with what little I have been able to do.

I asked the boys today if they were happy and they said they were.  The problem is that I know how much better I need to be doing and they just don’t understand the difference.

I still have to get school figured out for Emmett John and get Elliott in to OT ASAP.

Gavin needs to get into to see the mitochondrial doctor at Akron Children’s Hospital but we are having trouble getting all the records transferred.

Lizze needs to get into the Cleveland Clinic as well for better treatment options.

I’m simply,  completely and utterly overwhelmed with every single aspect of my life right now. 

I really need to remember to take my Paxil tonight.

Alright,  I’m done venting.  I appreciate you all listening.  I just needed to get that out.  I’m not looking for anything.  I just needed to get that off my chest.  My stomach was getting upset and I don’t want to get sick again because I’m so upset that I relapse.

Thank you all for listening…

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Permanent link to this article: http://lostandtired.com/2012/01/29/do-you-ever-feel-like-a-complete-failure/

Jan 22 2012

Thank you Best Buy

I’ve mentioned a few times about Elliott’s broken DSi.  I explained that while we have the extended warranty,  Elliott picked the sticker with the serial number,  of the bottom.

This has prevented us from getting his DSi replaced. 

Yesterday,  on a whim,  I went to best Best Buys and spoke with the general manager, Bob Lewis.  I explained that Elliott has Autism and picked the serial number sticker off the bottom of his DSi.

I told him that since that had happened,  his DSi had stopped working correctly.  We had wanted to get it replaced but I was told it wasn’t possible because the serial number was missing.

He asked me to wait a few minutes and he would look into it. 

He came back and explained that the problem with doing the exchange is that the store would likely not receive credit from Nintendo for the return.

However,  having said that,  he said he would be happy to take the loss.  He gave me his business card and write a note,  approving the exchange.

I can’t even begin to explain how awesome that made me feel.  This DSi has been really frustrating Elliott and we were gonna try to replace it with tax return.  However,  since we will likely be out of a van now,  we had to re-prioritize.

I was so excited.

As soon as Elliott came home from his grandparents,  I told him we could get it replaced.

He and I went to Best Buy and approached the customer service counter.  I explained that we had spoken to the manager and he said we could exchange his broken DSi under warranty.

Not only did they replace it,  they let him pick out a 3DS as a replacement. They evolved Elliott and made sure it was what he wanted and they did the exchange.

He is beyond thrilled. 

Later on,  traded my PS3 games in to GameStop,  so that he could get some 3DS games.

Between the trade-ins and their buy 2 get one free,  he walked out with used copies of Mario 3D, the Zelda remake and the new StarFox without having to spend anything other then the trades.

It felt so good to be able to do that for him.
I want to thank Best Buy for their understanding and compassion.  They didn’t have to replace the DSi.

I was very impressed by their actions and the fact that they involved, Elliott in the process to ensure he got what he wanted.

For that reason,  I consider Best Buy to be an Autism friendly store. 

Thank you Best Buy.

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Permanent link to this article: http://lostandtired.com/2012/01/22/thank-you-best-buy/

Dec 06 2011

Out for breakfast

We got a call this morning from Lizze’s parents. They wanted to take Lizze, myself and Emmett to breakfast. 

It was really nice to be able to get out.  After breakfast,  they took Emmett with them to Amish Country to look at furniture. 

I took to replacement her favorite pen and do so window shopping.

It didn’t last long because she couldn’t walk anymore and needed to go home and sleep. It was fun while it lasted.  It may not have been a lot of time,  but I’m grateful to have spent it with her. 

Thanks for taking us out to breakfast and hanging out with Emmett.  :-)

Permanent link to this article: http://lostandtired.com/2011/12/06/out-for-breakfast/

Nov 21 2011

Consequences and Accountability

I have been asked a few times for advice on disciplining.  This is a pretty touchy subject and while I’m happy to share my personal experience,  I’m not claiming to be an expert…at all.

It should also be noted that we work very closely with our doctors and therapists when constructing and implementing any new discipline plan.

Over the years we have struggled with the idea and the logistics of disciplining our children.  The main reason for this struggle is because we were never sure what was within their control and what wasn’t. We didn’t want to punish them for something outside of their control but at the same time,  in the real world,  their actions have consequences.

We do not spank and we try not to assign consequences while in an emotional state. I believe very strongly that it sends the wrong message.  That’s just my opinion and I’m not attacking anyone that believes otherwise.

There are a number of reasons we don’t spank,  but one of the main ones is that there is no progression from there.  For example,  if you use time outyou can progress as needed by extending the amount of time they are in time out.  However,  with spanking,  all you can do is spank harder or longer and that leads to very murky waters, and sends the wrong message, at least in my opinion.

One of the things that we have been very careful to do is make sure the consequences are developmentally appropriate. Not only should the punishment or consequences fit the crime,  so to speak,  but also it should fit the developmental age of the child in question.

Does that make sense?

One of the other things we have made a priority,  whenever possible,  is to ensure that a lesson is learned.

In my opinion,  it’s more important that my kids learn from their mistakes,  than simply experience the consequences of them.  If they don’t learn from their mistakes they will likely just repeat the behavior,  thus beginning an endless cycle.

Just to give you an idea of some of the things we have used, I’ll list a few.

We have used time outs,  early bedtime,  loss of a toy or something else for a period of time,  restricted TV or movies,  removed video games and provided oatmeal as a meal replacement (I’ll explain that one in a minute).

We have used sticker charts and treasure boxes as well as other positive reinforcement techniques.

The oatmeal is one of our outside the box solutions.  We have only done this with Gavin because he doesn’t respond to anything else.Gavin is very, very complex and so we have to employ things that are a bit…..unusual.

Basically,  when Gavin needs to be held accountable for his actions and attempts to address the behavior with other methods is ineffective,  we will substitute his next meal for a bowl of plain oatmeal.  I know some people take issue with this but all our doctors are onboard because we have tried everything else and this is all that works.

Gavin loves oatmeal but not when it’s plain and unsweetened.  Also,  we never just whip out oatmeal for every little thing.  Usually,  the situation needs to be more extreme to warrant oatmeal. We never withhold food as a punishment.  There have been times though that due to his behaviors he has gone to bed without dinner,  however,  our doctors assure us that he will be just fine.

As parents,  we have to decide what is best for our own,  personal situation.  No one knows your kids better then you.  My only bit of advice is to make sure whatever method you do employ is developmentally appropriate. Speaking from experience, it’s very easy to get caught up in the heat of the moment and overreact, sometimes it benefits everyone involved to take a step back and gather yourself before assigning consequences for a particular situation.

Never be afraid to ask for help. You can work with local agencies or behavioral specialists.  They are all great resources but in the end,  you are the one that will make the decisions.  You are the one that your child will learn the most from, so lead by example. :-)

Seize the opportunity to do so and make a positive impact on your child’s life.

Permanent link to this article: http://lostandtired.com/2011/11/21/consequences-and-accountability/

Jul 10 2011

Shopping with Emmett and a side of Autism

Emmett and I went to Home Depot this afternoon to get the replacement parts for the sink. I took Emmett cause he really wanted to go and I thought I could take advantage of the time together and teach him a few things. I always try to incorporate learning in our everyday activities. Even the little things can make the difference in the life and future of an ASD child. Well it turned out not to be to educational for him but it was a good time none-the-less. Emmett seems to have a taste for shopping….as long as he doesn’t have to pay for anything himself. :-) Enjoy.

Part 1

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Part 2

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Permanent link to this article: http://lostandtired.com/2011/07/10/shopping-with-emmett-and-a-side-of-autism/

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