Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: road

Aug 14 2012

The road to recovery


Apparently,  the road to recovery for Bella,  is paved with countless trips back and forth to the friggin Vet.

That’s right,  Bella was back into the Vet’s office this afternoon.  In fact,  we had to cancel this afternoon’s therapies as a result.

We noticed that there was some bleeding going on and that made us very concerned.  The 50 mg of benadyrl only slowed her down for an hour or so and her activity level is interfering with the healing process. 

Thankfully,  everything actually checked out okay.  The antibiotics are helping and the blood is not anything to be concerned about.  The interior of the incision is healing nicely.  On the outside there is a little gap that made us think that it was separating.

In fact,  she may actually get the stitches out on Thursday,  as planned. 

All I can say is thank God. This whole thing has been a nightmare.  They are giving her a sedative at a much higher dose.  It’s safe and necessary,  because she can still make things worse.  We’re supposed to try and keep her sleeping until Thursday, as much as possible.

I can’t wait to get things back to normal, whatever the hell that is. 

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**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/08/14/the-road-to-recovery-2/

Jun 28 2012

Oh the road to being a fantastic parent


Elliott is in the road to being a fantastic parent,  don’t you think? His baby only fell out of the carrier a few times.  Don’t worry,  she’s mostly okay ;-)

He was so cute at therapy the other night.  He was really trying to take care of the baby and will someday make a fantastic parent. :-)

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**Thanks for reading**

       -Lost and Tired

Please join our Autism Help Forum

Look for “Autism Help” app at the Google Play Store

MyFreeCopyright.com Registered & Protected

This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/06/28/oh-the-road-to-being-a-fantastic-parent/

Apr 29 2012

Lost and Tired comments on intolerance


One of the things that my wife and I have always tried to do was take the high road.  We felt that it was always better to set an example for our kids. We addressed anything that needed addressed but not in a half-cocked or unproductive way.

However,  having said that,  I’m beginning to rethink my approach.  For those of you that haven’t seen this yet,  I want you to read this letter.  It was originally posted by Phillip Haines over at Autism Speaks. Please be aware that this letter is offensive and you might want to punch something when your done reading it.  Please do so in a safe and conditions constructive manner.

 

 

After reading this I was really, really angry. I know this wasn’t written to me about my kids, but that doesn’t matter. The reality is that this letter, in a way, was written to anyone that has a special needs child that can be disruptive at school.

I don’t even know where to begin, as this letter is wrong in so many ways. I was going to pick the letter apart and point out all the ignorance and judgement but you can do that for yourself. I think the more important thing to do is figure out how to best address this type of situation.

What more can we do to better educate people so that this type of disgusting behavior never sees the light of day again?

Is the problem the ignorant cowardly parents that wrote this letter? Is the child referred to in this letter, in the right classroom? These are both good questions. However, as with many things in life, nothing is ever cut and dry.

The only thing I know for sure is that the people that wrote that letter are not special needs parents and thank God for that.

So often we, as the special needs community, face this type of cruelty. Our kids face this kind of cruelty all to often as well. How can we expect our kids to be treated with understanding and respect by their classmates, when their classmates parents are idiots.

I realize that my words aren’t very diplomatic but this kind of ignorance really pisses me off.

It shows how much work we have to do and what we have to fight against.

I understand that a parent could be concerned about the safety of their child if my child is aggressive and violent in the classroom. Having said that, this was not the way to handle it.

I can honestly say that when Gavin was extremely aggressive in the classroom, we approached the school several times about whether we needed to pull him. The last thing in the world we wanted was for someone to get injured.

I hope that this letter is an eye opener for everyone. We need more education and absolutely more compassion and understanding.

If I ever received a letter like this, I don’t know what I would do. I would be very interested to hear how this situation was addressed. My heart goes out to this family. As if life wasn’t challenging enough, now they have to wonder who to trust and who their friends are.

Please, we need to put an end to this type of ignorance. How can we expect the next generation to be understanding and compassionate if they are being raised by parents like this.

If these parents felt that something needed to be done, they should have contacted the school directly and expressed their concerns. Because of that way this was handled, it stinks of intolerance to me. If the parents were that concerned, they should have addressed it with the school. If they did and the school didn’t do anything, than perhaps it isn’t as bad as they are making it out to be.

Let me end with this. I understand that my kids can be disruptive at times. I know that school can be difficult for them and their classmates. However, if you have a concern about my child, sack up and address the issues face to face and in a mature, productive manner. Hiding behind a screen name or an anonymous letter as a means of attacking my family while concealing your identity makes you a spineless coward.

I’m always open to discuss something if it’s presented in a tactful, respectful and compassionate way.

What are your thoughts on this letter? How would you have handled receiving something like this? Please feel free to share in the comments or if you prefer, take it to the Autism Help Forums.

Permanent link to this article: http://lostandtired.com/2012/04/29/lost-and-tired-comments-on-intolerance/

Apr 27 2012

#Autism: When teachers are the bullies


I wanted to share this video with you all. This video is by a man named Stuart Chaifetz and is in response to to his son Akian being bullied by his teachers at school. This is so important to watch because Stuart is making this public in order to shine the spotlight on what is happening to kids with Autism while at school. Obviously not all teachers and schools are a problem but Stuarts story is not uncommon at all and that’s really sad.

Please watch and share this video and help Stuart in his quest to end bullying. He is handling this very, very well and with a great deal of tact and class, which is much more than these teachers involved deserve. I have crazy mad respect for Stuart because not only is he taking the high road but also holding those involved accountable for their actions. 

I don’t know Stuart Chaifetz personally, but I don’t have to know him to understand and support his cause. As many of you know, Gavin and Emmett’s experience with the public school system was very similar to what Akian was subjected to by his cruel and heartless teachers, especially in Gavin’s case. This is very personal to me and I think it’s an eye opener to all parents, teachers and anyone that considers themselves a human being.

This type of cruelty is absolutely unacceptable and anyone involved in such abuse of children with special needs should not only be ashamed of themselves but also be prosecuted. That’s just my personal opinion.

Please watch and share. Below, please find all of Stuarts information.

Please follow Stuarts story on Facebook: ——-> NoMoreTeacherBullies

Sign the petition: ———–> Petition 

Teacher/Bully: How My Son Was Humiliated and Tormented by his Teacher and Aide
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Permanent link to this article: http://lostandtired.com/2012/04/27/autism-when-teachers-are-the-bullies/

Mar 25 2012

The road to recovery


It’s Sunday and we survived a week of the kids being sick.  I happy to report that they seem to be doing much better. While they’re not 100% yet,  they are getting there and for that,  I’m extremely grateful.  :-)

I want to thank each and every one of you for your thoughts and prayers.  Things could have definitely gone much worse,  especially for Emmett. 

Please accept my sincerest thank you.  I truly appreciate everything. :-)

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/03/25/the-road-to-recovery/

Mar 20 2012

On the road again


Akron Children’s Hospital,  here we come.

Elliott seems to be fine this morning. Emmett on the other hand,  is fighting his fever again.

It looks like I’ll be taking the boys to Akron Children’s Hospital today and Lizze will stay with Emmett. Having Elliott present for Gavin infusion makes me nervous.

As a special needs family,  we have to be able to evolve and meet the current circumstances. This is part of what makes things so exhausting.

**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/03/20/on-the-road-again/

Mar 07 2012

Better safe than sorry


We finally made it home,  relatively unscathed.  Elliott got 2 boosters and was not a very happy camper but he survived.

His doctor took a great deal of time with us today and I totally appreciate that.

It was decided that the risk to Elliott significant enough to warrant a consult with his immunologist.  That is the safest road to take right now.  If he had a reaction this time it’s very likely that it could be worse. 

We are going to have his antibodies checked to see if the vaccine boosters is even necessary.  If it is,  well,  we’ll just have to cross that bridge when we get there. 

For now we just need to watch him for the next day or so to make sure he doesn’t have a reaction to the ones he did get today.  Hopefully,  all will be well and there won’t be any return trips to the hospital in his future.  :-)

**Thanks for reading**

       -Lost and Tired

Please join our Community Autism Support Forum

MyFreeCopyright.com Registered & Protected

Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Permanent link to this article: http://lostandtired.com/2012/03/07/better-safe-than-sorry/

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