Autism,Aspergers Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: root

Jun 14 2012

My love/hate relationship with Lego’s


My relationship with Lego’s is complicated to say the least. I love the fact that my boys are so creative with them but at the same time,  I hate finding them with the bottom of my foot.

No matter how many times I try to get them all picked up,  they always seem to reappear shortly after.

Lego’s have brought my kids together and also been the root cause of much of the fighting in the Lost and Tired household.  They always fight over individual pieces and it drives me crazy. Part of me wants to just take a break from Lego’s all together and see if their relationships improve.

Some of the boys tend to hoard the Lego’s….cough cough Gavin cough cough.
I don’t think that he’s trying to be selfish.  I think he just really,  really likes his creations and does want to see them dismantled. I can totally understand that.  However,  at the same time, we don’t have an endless supply of Lego’s and it’s not fair to the other boys who want to build as well.

This always leads to a meltdown and makes me hate Lego’s even more. The only reason we even still have them is because of how much the boys love them. If I didn’t love my boys so much,  I would have killed off the Lego population long ago.

My goal is to try to find a nice balance where the kids can play with their Lego’s without fighting and I don’t have to step on them in the middle of the night anymore.

Do you folks have a toy that you really dislike or drives you crazy? Please share with the class:-)

Permanent link to this article: http://lostandtired.com/2012/06/14/my-lovehate-relationship-with-legos/

Aug 25 2011

Android4Autism supporters


This post contains a list of all the current supporters of Android4Autism.

I plan on building a more elaborate page but this will do for now.

 

I would like to thank the following organizations for their support:

Intellijoy:   the #1 creator of educational apps on the Android Market. Intellijoy has very generously donated full versions of ALL the educational Android apps.

 

 

Stuart Duncan: Autism Father.  Stuart has graciously provided the hosting for both Android4Autism and Lost and Tired. He is a pillar in the Autism community and not only a good friend but a source of inspiration.

 

 

Bonsai:The Art of Growing Android:   The Bonsai Android development team provided the kernel, root and recovery for the ROM used in this device. They will also be assisting in development on various other devices going forward. They are a great resource for  the Android community and a group I have been able to rely on time and time again.

 

PPCGeeks:   For all their support and assistance spreading Autism Awareness and spreading the word and helping to drum up attention for my Android4Autism campaign.

XDA-Developers:   For all the support the community as a whole has provided for my mission to spread Autism Awareness and provide these devices to families and children that need them.

 

Android Creative Syndicate: From Spontaneous Ingenuity Come Creative Brilliance.   ACS as a whole has taken a stand and are actively helping to spread Autism Awareness. They have provided networking support as well as friendship. They are a great Android resource for the community.

 

Android Activist :   Providing networking and also helping to raise Autism Awareness as well as funds for the Autism Society.

Permanent link to this article: http://lostandtired.com/2011/08/25/android4autism-supporters/

Aug 24 2011

Android4Autism is donating it’s very first device


Lost and Tired  and Android4Autism are very excited to announce the first recipient of an Android4Autism device. The McKay family will be receiving a Samsung Epic 4G fitted with a custom ROM built specifically to meet the needs of children. I had the pleasure of speaking with Jennifer McKay by phone yesterday afternoon to make arrangements and explain a bit about this particular device.

I’m so happy to be able to provide this device to the McKay family for their daughter, Kiersten. I look forward to delivering this device to them.

Here is a quote Jennifer McKay made to a previous post:

“My name is Jennifer and I received amazing news yesterday. My 6 year old daughter is going to receive this amazing item. Kiersten is non-verbal and it has been a pretty tough road. Not many people understand how frustating it can be to not know what your child needs when then can’t tell you. I am overflowing with joy to know that this product could change her life in such a positive way. This is amazing and I will keep updating to let everyone know of Kiersten’s progress. Thank you so so so much to Rob for giving us hope!!”

 

I would like to thank the following organizations for their support:

Intellijoy: the #1 creator of educational apps on the Android Market. Intellijoy has very generously donated full versions of ALL the educational Android apps.

Stuart Duncan: Autism Father. Stuart has graciously provided the hosting for both Android4Autism and Lost and Tired. He is a pillar in the Autism community and not only a good friend but a source of inspiration.

Bonsai:The Art of Growing Android: The Bonsai Android development team provided the kernel, root and recovery for the ROM used in this device. They will also be assisting in development on various other devices going forward. They are a great resource for  the Android community and a group I have been able to rely on time and time again.

PPCGeeks: For all their support and assistance spreading Autism Awareness and spreading the word and helping to drum up attention for my Android4Autism campaign.

XDA-Developers: For all the support the community as a whole has provided for my mission to spread Autism Awareness and provide these devices to families and children that need them.

Android Creative Syndicate: From Spontaneous Ingenuity Come Creative Brilliance. ACS as a whole has taken a stand and are actively helping to spread Autism Awareness. They have provided networking support as well as friendship. They are a great Android resource for the community.

Android Activist : Providing networking and also helping to raise Autism Awareness.

If I accidentally left anyone out please let me know.

 

If you would like to support Android4Autism please feel free to contact me

Permanent link to this article: http://lostandtired.com/2011/08/24/android4autism-is-donating-its-very-first-device/

May 15 2011

So I had this idea…..Android and Autism



Autism and Android

 

So perhaps you are already aware and perhaps you aren’t but I develop on Android smartphones, specifically the Epic 4G from Sprint. My ROM’s are pretty popular and you can view them here on my Android Development page. I use these ROM’s and the

attention they create to spread Autism Awareness through out the Android community. You would be amazed at just how much Autism Awareness has taken root within the community. I have mentioned before that I use Android devices to help Emmett communicate. It works really well and gives us another means of bridging the communication gap.

Now here is my idea. I’m thinking about trying to set up a program in which I can take donated Android devices and turn them into a means of communication for Autistic children. I would wipe the devices down and strip out most of the software The second part to this would be to get these devices into the hands of special needs families that maybe couldn’t afford to purchase these Android devices, as they can be pretty expensive. I know just how helpless it feels when you can’t communicate or communicate with your Autistic child. It’s heartbreaking to not know how to comfort your child because you don’t know what’s wrong. My goal to help as many people overcome that as possible.

A few things would need to happen in order for this to work.

1) I would need Android devices (phone’s with bad ESN’s ect) Any ideas?

2) I would need a company willing to donate the communication software ( I may actually have that already)

3) A way to identify families in need. You can ALL play a role in that. Perhaps through nominations?

4) Some skilled coders to address security issues on the device.  (I have that covered)

I would like to help as many families as possible…if at all possible. So what do you guys think?

 

So what do you guys think.

Permanent link to this article: http://lostandtired.com/2011/05/15/so-i-had-this-idea-android-and-autism/

May 07 2011

The blink of an eye: Autism and aggression



~Autism and aggression~

I have blogged many times about the injuries we deal with as a result of meltdowns and rages associated with Autism. Right now the main aggressor in the house is Emmett. Gavin is by far the most violent but as of late he only “attacks” himself. Emmett on the other hand typically goes after Lizze and Elliott. No one knows exactly why that is but there are schools of thought. It’s most likely due to the frustration of not being able to effectively communicate. If that’s true then why is it typically Lizze and Elliott that get “attacked”?

Often times these “attacks” are completely unprovoked and seemingly come out of nowhere. Sometimes the injuries are pretty bad. Lizze gets cuts on her face and neck. Elliott gets the same but also on his back as well. Elliott was hit in the face. Emmett was upset about something so he through what he had in his hands at Elliott and hit him right above his eye. Luckily, it just missed his eye. We are working really hard to figure out how to properly address these situations…..and….NO….spanking WILL NOT work.

~Triggers for Autism related outbursts~

Why are so many people so quick to address violence with more violence? It simply doesn’t work, especially with Autistic kids.. What DOES work is redirection but that takes a great deal of effort. Also understanding the “triggers” will help to reduce the behavior. Did you know that most Autism related meltdowns are simply the result of over-stimulation. Basically, this means that an Autistic child has absorbed SO much of the world around them they simply can’t cope. Imagine if you heard every single sound around you and that sound was so loud it hurt your ears (clocks ticking and lights humming). What if the lights around you were so bright you could barely see? These are just a few of the things that are constantly assaulting kids with Autism on a sensory level. 

When you identify a trigger you can work to reduce or eliminate what is overwhelming your child and potentially reducing the outbursts as well. It takes time, patience and understanding to work through these situations. It is, however, very rewarding. Not only are you reducing the meltdowns but you are providing your child relief from whatever is causing them pain and discomfort.

While understanding these behaviors is a step in the right direction the behaviors themselves still need to be addressed. Violence shouldn’t be tolerated and there are consequences for hurting others. The consequences should be appropriate for the child and the situation (you are the best judge of that). We have to teach our kids different, more appropriate ways of coping with stress. People have the right to feel and actually be safe from violent outbursts. In my house when Emmett attacks someone we intervene as quickly as possible and attempt to redirect him. Emmett is a tough situation because of the significant language barrier, so we have to improvise. We are working on the root problem which is, communication and language. OT has started as well, so we are addressing the sensory issues at the same time. Hopefully over time we can reduce or eliminate these outbursts so things like what happened to Elliott’s eye don’t happen again.

The important thing to remember is NOT to respond to Autism related outbursts with more violence. It doesn’t work and it sends the WRONG message.

 

Permanent link to this article: http://lostandtired.com/2011/05/07/the-blink-of-an-eye-autism-and-aggression/

Apr 08 2011

Here’s my new banner for Autism Awareness


Here is the banner that my friend Johnny Bravo from ppcgeeks.com helped me to design. He did a great job with this banner and I simply made a few changes to the text. Autism Awareness has taken root in the PPCGeeks and xda-developers communities. Many people are showing support by using this banner in their signature. Others have created their own. There are several threads now dedicated to Autism Awareness and I think that’s awesome. This is proof that Autism Awareness can work in even the most unlikely of places. Thanks everyone for the support….

Here is the one associated with my ROM.

Here is an unbranded version as well.

Permanent link to this article: http://lostandtired.com/2011/04/08/heres-my-new-banner-for-autism-awareness/

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