Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: sanitizer

Feb 12 2012

When medications do more harm than good

The Lost and Tired family is no stranger to medications. Gavin has been medicated for a very long time.

In all the years Gavin has had to take medications,  we have only ever had one major problem.  That one problem was a very,  very serious and life threatening one,  but we made it through.

Medications,  while not something we take lightly,  have become a necessary evil.  They have become a fundamental part of our lives and for the most part,  they have brought about positive change.

Over the past few months,  we have been discussing the possibility of having to put Elliott,  our 5 year old,  on medication for his anxiety.

Elliott has been struggling with anxiety for awhile now. 

It really began to get out of control last year when he became very preoccupied with germs.

You may recall,  from past blog posts,  that Elliott began obsessively washing his hands with hand sanitizer.  It got to the point that he was sneaking away to wash his hands.  You could see the relief in his eyes when he would rub the hand sanitizer on his hands.

Over the last year,  his anxiety levels have continued to climb.  They reached a point where they are now compromising his quality of life.

As I mentioned earlier, a few months ago we began discussing the possibility of providing relief to Elliott in the form of medication.  He was already in therapy every week and we had really run out of ways to help him.

Medications have always been a last resort for us, especially when it comes to our kids. 

However,  we also realize that medications serve a very real purpose,  when used correctly and for the right reasons.

While it’s true that the entire Lost and Tired family benefits from improvements brought on by these medications,  that isn’t the deciding factor. 

When we are trying to decide what to do,  we talk to our doctors,  therapists,  teachers ect. Lizze and I do exhaustive research on the potential medication and then weigh the pros and cons.

Then and only then,  will we make a decision.

Of course, life and death situations are the exception to this rule. If the kids are sick,  we give them whatever they need to get better. I’m referring to mental health related issues,  that may require the use of medication.

Having said that,  even when you try and cover every possible angle.  Even when you research as much as you possibly can,  or learn everything there is to know about the particular medication in question, there are no guarantees.

We were recently reminded of this very fact.

We started Elliott on 5 mg of Zoloft.  That is an extremely low dosage.  Elliott’s doctor wanted the low dose because we were only looking to treat the anxiety.  Zoloft,  in low doses,  is used for that exact reason.

Instead of relieving his anxiety, it made things worse. He went into a manic state and experienced rapid and extreme mood swings.

We contacted the doctor and after only three days and a total of 15 mg of Zoloft,  we were told to discontinue the medication.

We were told watch Elliott for the next 48 hours and call them back if he doesn’t get better.

He missed two days of school last week and will be missing school again on Monday,  as a result of the reaction he is having to the Zoloft.

I said, the reaction he is having because he is still struggling.

This is the third night in a row that he won’t go to sleep.  We tried melatonin,  our usual go to sleep aide,  but it doesn’t help anymore.

We spoke with the doctor again today and they told us to give him 1 mg of benadryl
at 5:30pm tonight. If he didn’t fall asleep within 30 minutes,  we were to give him another 1 mg of benadryl.

Since the melatonin was not working,  this was a safe alternative to help him fall asleep.

Unfortunately,  that was 5 or 6 hours ago.  As I’m writing this,  I sitting on the floor in his room watching Rugrats as he laying in bed kicking his feet like he’s swimming.

He isn’t even close to falling asleep.

There was absolutely no way we could have predicted this when deciding to try the Zoloft.

Every person is different and so their particular body chemistry can react uniquely to a medication. This can lead to undesirable results.

No matter how careful you are,  or how much you research, when giving any child a medication,  there are no guarantees. There are no guarantees that it will work the way it’s supposed to.  There are no guarantees that there won’t be any side effects.

As I said,  we were reminded of that a few days ago. Will this make us anti-medication?  Of course not. 

While we made need to try a different medication in order to help Elliott,  we will exercise a bit more caution this time around.

Elliott needs relief from his extreme anxiety. If we refuse medications in the future because of our experience with Zoloft,  we may miss an opportunity to provide Elliott with the relief he so desperately needs.

**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/02/12/when-medications-do-more-harm-than-good/

Sep 18 2011

Bless his little heart

So I went up to the bathroom today to clean it. I noticed that the previously, almost empty bottle of hand sanitizer was full.

Upon closer examination, I realized what had happened. Emmett in is never ending quest to keep everything full, discovered the hand sanitizer was almost empty. He took it upon himself to refill the bottle so that it was no longer empty.

He actually umscrewed the lid and refilled the bottle without saying anything to anyone and without making a mess. Of course, he filled it with water, but still.

I love finding these little surprises because they always make me smile.

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- Lost and Tired

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Permanent link to this article: http://lostandtired.com/2011/09/18/bless-his-little-heart/

Aug 31 2011

Bloodwork Wednesday

Today has been a busy day and I’m only half way done. This has been an a-typical day because 2 of our 3 boys needed bloodwork today. 

Elliott had a bunch of blood drawn this morning to test for the genetic immunological disorder Gavin was recently diagnosed with……  Also extensive allergy testing will be done as well. This sucked because I had to hold him down.  This took me back to his days in the NICU.  I think it was also the smell of the hand sanitizer.  Ever since he was in the NICU I have associated that very specific smell with the weeks we spent there. 

Gavin is having is regular,  weekly,  medication related blood draw as well. He also is having follow up on some worrisome labs dealing with his bones and liver.

It would be really nice if these could all come back negative or positive…whichever would be good news.

- Lost and Tired

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Permanent link to this article: http://lostandtired.com/2011/08/31/bloodwork-wednesday/

Aug 14 2011

Help with OCD in young kids

Over the past few weeks we have noticed something with Elliott. That something bares a striking resemblance to OCD (obsessive compulsive disorder).  In Elliott’s case it has to do with hand washing. 

Elliott is very preoccupied with germs and this is relatively new.  We did realize exactly what was going on at first.  Then over the past day or so I started paying closer attention to Elliott’s activities throughout the day.  I thought he was going upstairs to play or get a toy but he was going to the bathroom to wash his hands. 

I’m completely for good hygiene but not like this. He is constantly washing his hands with hand sanitizer.  Since I have noticed this,  I have very tactfully talked to Elliott about what he is doing.  I was curious as to why he would feel the need to wash his hands all the time.  I was hoping there was something I could clear up for him that would help him to relax and maybe let go of this obsessive behaviors. 

Basically,  Elliott doesn’t like to think that there are germs in his hands.  So if he touches his nose or something along those lines he has to wash his hands.  He is embarrassed by this behavior because he tries to hide it now.  He will say he’s going upstairs to get a Lego or something and instead go wash his hands. 

This absolutely breaks my heart and I don’t what to do to help him.  He very clearly doesn’t want to do this but he just can’t seem to help himself.  I have been trying to distract him when he feels the need to wash his hands but sometimes he gets really upset.  I could obviously hide the hand sanitizer but I don’t know if that’s the right way to handle this.  Elliott is so stressed out by our lives and I was hoping that something like this wouldn’t happen to him. 

I have been spending as much time with him as possible to try and help him to feel safer or more secure about his life but it doesn’t seem to be helping.  What he desperately needs is normalcy.  He needs to be around typical peers and away from all the chaos that living with 2 brothers that have rather extreme behaviors.  I also know he’s worried about Lizze and Gavin as well.  My fear is that the longervthis goes on the harder this is going to be to get under control.

I don’t want him feel ashamed or embarrassed because this isn’t his fault,  it’s mine.  I’m not doing enough to shield him from some of things that are disrupting his life.  I can’t provide him with a better neighborhood where he could more freely and safely be a kid.  I have failed to make him feel safe and in control of his life. 

Elliott,  getting booted out of his school is only going to make things worse.  That school was going to provide him the one big thing that I can’t and that was a sense of normalcy.  All his friends were there and he loved being there. He felt safe and secure there.  Now that’s gone and if things were rough for him now,  what will happen when he finds out?

Does anyone have experience with this?  His therapist is out of town for 2 weeks and I need to start helping him now.

I want help him work through this… Any advice would be greatly appreciated……

Permanent link to this article: http://lostandtired.com/2011/08/14/help-with-ocd-in-young-kids/

May 05 2011

Progress in pottyville

We made some more progress today with potty training Emmett. He wanted to wear his little Finding Nemo underwear this afternoon. He didn’t have any accidents. He almost has “number 1″ down to a science. He will say potty and then strip down and run upstairs to the bathroom. He can do the whole thing by himself. He climbs up on the potty and does his thing and then hops off. He shuts the lid and flushes. Then he takes the hand sanitizer and washes his hands.

“Number 2″, however, is a much different story. That is an area we seem to be stuck at. As far as Emmett is concerned, “number 2″ is done in his diaper and ONLY in his diaper. This is something we are going to have to really work on. One would think that potty training an Autistic child would be pretty easy. I thought that the routine of going to the bathroom would be more easily added to their already existing routine. I also thought that sensory wise wet underwear and or diapers would be bothersome. Maybe it’s just my kids but this certainly doesn’t appear to be the case.

Either way I’m pleased with the progress Emmett is making and proud of him for getting here. Hopefully, in short order I will NEVER have to buy diapers again.

Here’s to hoping……..

Permanent link to this article: http://lostandtired.com/2011/05/05/progress-in-pottyville/

May 01 2011

Emmett: Potty Training Progress

~Potty training a child with Autism can be a challenge~

Potty training and Autism don’t always go well together.

We REALLY struggled with Gavin but Elliott was pretty easy once he was “ready”. Emmett is a challenge because communication is such a constant issue. Emmett is VERY big into routine so that works to our advantage…..at times.

Right now Emmett will use the potty on his own. He just struggles a bit with timing of it. He even has his little routine. He will say “potty” and then take his diaper off where ever he is (he not bashful, so you imagine the rest) and runs to the bathroom. He lifts up the lid and literally climbs onto the toilet and sits

there. He will ONLY pee in the potty. As far as he’s concerned, poop still belongs in a diaper (we need to work on that).

When he has finished, he tears off a single piece of toilet paper and tosses it in the toilet, closes the lid and then flushes. This is where we STRUGGLED with Gavin. Gavin was, and sometimes still is TERRIFIED of the “flushing toilet” noise.

Once he has flushed the toilet he washes his hands. He goes to the sink and grabs the giant bottle of hand sanitizer and puts the bottle on the lid to the toilet and squirts some onto his hands and washes them. We will move to soap but for right now this is something…..right. Then he runs into our

bedroom to get a diaper.

So we are making progress in the land of potty training. The problem right now is that if we deviate from his routine then he falls apart and reverts back to his diaper.

Autism is complicated to say the least but baby steps will get us there.

Permanent link to this article: http://lostandtired.com/2011/05/01/emmett-potty-training-progress/

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