Autism,Aspergers Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: self

Dec 21 2012

Learning life skills at @GiantEagle


I’ve written about this before but I’m going to write about it again.  I really feel strongly about trying to use everyday activities as a chance to teach my 3 boys with #autism important life skills.

We have some wintery weather blowing in soon and I wanted to pick up a few items at the grocery store, in case we get snowed in.

I grabbed Elliott and we headed off to our local Giant Eagle.  I swear it’s like we live at that store. 

Anyway, Elliott is 6 years old, has aspergers and loves learning new things.  Whenever he comes with me to the store, I always make sure to let him practice things like making good food choices, working within a budget, ringing up the groceries in the self-checkout and even bagging the groceries afterward. 

Some might be wondering what the point is.

That pretty easy to answer.  The point is that he’s gaining real life experience in a very important life skill. He’s going to need to know how to do this on his own eventually. 

The way I see it, it would be a crime not to take advantage of his eagerness to learn and desire to help.

During today’s trip, Elliott was ringing things out while I was bagging them up. When it came to the bananas, they have to scanned and weighed a little differently.  One of the cashiers that sorta floats around making sure no one else needs help, took it upon herself to teach Elliott how to manually enter the produce.

He was able to duplicate what she taught him and use that new knowledge on the next batch of bananas that needed scanned and weighed. 

He did a fantastic job and I was really impressed with the cashiers willingness to walk him through what he needed to do and tell him how good of a job he did, instead of trying to rush him though our cart of groceries and get us out the door.

This is one of the reasons I really loves hoping at Giant Eagle.

Taking the time to allow Elliott to get hands on experience might seem pointless to some but I see this as one step closer to his independence. 

Every skill he learns and masters now is one less that he has to learn in the future. 

I strongly encourage everyone to embrace these opportunities to teach. After all, you are your child’s most important teacher. 

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Permanent link to this article: http://lostandtired.com/2012/12/21/learning-life-skills-at-gianteagle/

Dec 17 2012

Confessions of a depressed #Autism Dad: 12/17/2012


It’s been awhile since my last confession. Having said that, I reached a milestone that I’m not proud of and I want to share this with all of you.  My goal with this is to continue opening a window into our lives but also, help someone if they happen to be dealing with the same thing.

I mentioned that I have reached a milestone. That milestone is my physical weight and I’m not happy with it at all.

10 years ago I was body building and in excellent physical condition. 

Between life happening, my poor coping skills and lack of motivation, I have reached 294lbs. Now, I don‘t necessarily look that heavy because of my previous body building but I certainly feel it.  To be completely honest, I’m ashamed and embarrassed by this. 

Truth be told, that’s one of the reasons that I’m not in very many pictures.  I’m really self conscious.

One of my big problems is that I can’t easily get out of the house anymore because of all that’s going on. In the rare cases that I can, I’m too tired to actually do anything. 

Another problem is that I’m depressed.  That of course, isn’t a secret.

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However, there’s only so much that medications can help you with and I fall into that category.  The anti-depression meds help. They actually help a great deal. Having said that, things are just so bad at times that they simply aren’t enough.

Between inadequate coping skills and lack of self control, I have turned to stress eating for comfort.

That I believe is my biggest problem at the moment. I really do try to watch what I eat. However, I think it’s the quantity of things that I eat, which is really contributing to the weight gain.

I’m really struggling with this and it sets a horrible example for my boys. 

I realize that sometimes, you have to do what you have to do, in order to survive. Truth be told, I think I hide behind that far to often.  It’s just too easy to justify my eating by saying that it will help me make it through the day. I also have a lot of days that I say something like, after the day I’ve had…………

There are a great many things I’m good at and there are also just as many that I struggle with. Coping with my life, in healthier ways, is definitely something I’m struggling with.

Granted, it could be worse. I mean, I don‘t drink, smoke or do drugs. 

However, my stress eating and subsequent body weight is definitely impacting not only me as a person but also a parent. I don‘t have the energy to do everything that needs done. 

My goal is to change this.  The first step towards my goal is to admit that I have a problem and go from there. 

I know what I need to do, it’s just reclaiming my self-control and discipline that I need to figure out. 

With 2013 rapidly approaching, I’m going to be focusing on improving myself, body and soul.  It’s not going to be easy at all however, my family is worth and so am I.

Permanent link to this article: http://lostandtired.com/2012/12/17/confessions-of-a-depressed-autism-dad-12172012/

Jun 30 2012

#Autism: Teaching personal hygiene


One of the most challenging things more me as a parent to an #Autistic almost teenager, is personal hygiene.  Gavin simply has not concept of self care type things. 

I’m trying to help him become a little more self-aware. 

I think that I’m actually going to make up some signs that will help him remember a few of the basics. You might be wondering what I mean by personal hygiene? Basically,  I’m referring to things like wiping food,  drink or toothpaste off his face instead of walking out the door to school without cleaning his face.

I’m working on helping him recognize things like his nails needing trimmed or his clothes need changed because they’re dirty.

I have tried to make up little quizzes to aide in the process of remembering.  For example,  before he walks out the door to go to school,  I’ll ask him what he should check before leaving the house? Sometimes that will spark a memory and other times it won’t. I haven’t figured that out.

Another hygiene concern and honestly,  my personal pet pieve, is when he wipes his nose on his shirts.  He can never wear a shirt for more than a day because it’s literally covered with unwanted visitors from his nose.  It’s really gross and most definitely not sanitary.  No matter how many times I remind him about this,  it never sticks,  at least not as well as the boogers do to his shirt.

With all that said,  he is making some progress,  it’s inconsistent,  but progress nonetheless.

He does really well in the bathroom department,  thank god for that. He washes his hands and brushes his teeth etc. He will even ask if he can trim his nails at times. I find that reassuring because he has to have at least a minimum level of self-awareness to notice that his nails need trimmed. 

He also takes a shower all by himself,  and recently started setting the shower up for himself,  all by himself as well.  That’s progress if I’ve ever seen it.

This process is slow,  frustrating and sometimes even painful so.  However,  I believe that this is something that is extremely important for Gavin future independence.  Honestly,  at times it feels like I’m just beating my head into the wall,  but everytime he does something on his own, it makes all the effort totally worth it.

How have you handled teaching your child personal hygiene? I would love to hear your stories. 

**Thanks for reading**

       -Lost and Tired

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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Permanent link to this article: http://lostandtired.com/2012/06/30/autism-teaching-personal-hygiene/

Apr 01 2012

#Autism: How I manage a meltdown and self-injurious behavior


The Lost and Tired family is once again struggling with daily meltdowns and ever increasing self-injurious behaviors. This is one of my very least favorite things to deal with because there is no clear cut right or wrong answer. As my son gets older and stronger, the severity of these meltdowns and self-injurious behaviors becomes greater and greater. We have been coping with severe meltdowns and self-injury for many, many years.

What makes this particularly challenging for me is the fact that more traditional methods or interventions don’t work with Gavin.

As with many Autistic children, everyone is unique in their own right and so it would stand to reason that behavioral interventions would vary as well. In Gavin’s case, we have had to employ a more aggressive approach. It’s not fun for me or my wife but it does have a proven track record of success. I’ll be real honest with you, when you’re dealing with meltdowns of this caliber, it becomes more about  bringing it to an end, than taking a softer approach.

When these occur, the entire family is thrown into upheaval. The younger siblings are terrified and there is the constant fear or someone getting hurt, not mention that one of my neighbors are going to call the police.

The priorities are to immediately ensure everyone’s safety. That often times means evacuating the the rest of the family to an upstairs bedroom, while I deal with the meltdown. When self-injury becomes a problem, I have to find a way to restrict his movement without making physical contact, at least as much as humanly possible. If he is being unsafe with his hands, I require him to sit on them, until they are once again under control and not a threat to anyone or anything.

Likewise, when his feet and legs become dangerous, he is instructed to sit like a pretzel. This, at least in theory, limits his movement and ability to kick anyone or anything.

When these events occur, it’s not about making Gavin comfortable, it’s about literally surviving the meltdown and limiting the risk of injury.

As Gavin gets older and struggles more and more with self-injury, it becomes so important that I document as much as possible because there needs to be a clear record of what happened and why he’s injured. It’s sad, but we have to protect ourselves in the event that any of Gavin’s injuries are ever called into question. If you asked me 11 years ago if I ever thought I would have to be taking these measures, I wouldn’t even be able to imagine why that would ever be necessary.

Time changes many things and sometimes, those changes are not for the better.

 

In this video, this is meltdown number 2 for that day. I’m out of patience and it was really hard to remain as calm as I did. I have to use a very gruff voice and be very direct with him. I can’t play into anything that he says because a large portion of what he says if for the sole purpose of manipulating me by attempting to make me feel bad. There is a long documented history of this type of manipulation. I’m not being cruel, this is simply the only way we can survive these meltdowns and minimize the fallout. 

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Permanent link to this article: http://lostandtired.com/2012/04/01/autism-how-i-manage-a-meltdown-and-self-injurious-behavior/

Mar 31 2012

Gavin is rapidly decompensating


Gavin is massively struggling right now.  He had 2 enormous meltdowns today.  We are once again walking down the dark path of self-injury

Today he beat himself up pretty good.  The 2nd meltdown was the worst,  by far.  He bruised his knuckles punching himself in the face. I’m not sure what we are supposed to do at this point. If the self-injury gets any worse,  we have have the consider the psychiatric ward at Akron Children’s Hospital,  once again.

Today has been exhausting for me and everyone else as well. 

I’ll have more information about what happened at some point tomorrow.  Right now,  I’m going to try and get some desperately needed rest tonight.

I have begun losing track of the days.  I don’t think that’s a good thing.  I need to sleep…

**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/03/31/gavin-is-rapidly-decompensating/

Mar 24 2012

#Autism: How I manage a meltdown


For many years we dealt with meltdowns in solitude. We didn’t ever let anyone see these because we didn’t think they would understand.  It seemed like something we should keep private. However, all that did was further isolate us from the rest of the world. We would explain to our friends and family about the meltdowns but never allowed them to witness one. Anytime Gavin would get all worked up we would leave and deal with that at home, away from everyone else.

That was one of the biggest mistakes we could have made. I say that because, there is no way I could expect anyone to understand the gravity and impact of one of these meltdowns. I mean, how could they. It’s difficult to put into words what not only Gavin experiences but we experience as well. When we would tell someone, that we couldn’t come over because it would inevitably lead to overstimulation and then a huge meltdown, they didn’t understand. The problem that their definition of meltdown and what we were experiencing with Gavin were completely different. We were told we were overreacting or making a bigger deal out of it than we should. After all, Gavin was so cute and small, how could he possibly do the things we were saying he does?

At some point and I don’t remember when, it hit me that the only way they would ever understand is if they experience it first hand. This meant that when we were at someone’s house and Gavin was winding up, we would deal with it onsite, meltdown and all.

Needless to say, it only took once before most people finally got it. They could not believe what they were seeing. Maybe this is wrong of me but there was something liberating about someone else witnessing what we went through every single day. I was such an awesome moment to know that people were finally starting to understand.

I can’t tell you how many of our family members, teachers, therapist and doctors have told us that if they hadn’t seen it with their own eyes, they would never have believed what he was capable of.

Having said everything above, I want you to understand why I share these videos.

I truly think that people won’t understand until they experience it themselves or at least witness it first hand. I’m not ashamed that Gavin has these meltdowns and neither should he. In Gavin’s case, he is emotionally about 3 or 4 years of age, when his body is a 12 year old boy. Gavin reacts like this at times it affects the entire Lost and Tired family. We do our best to help him work through them in the only way that works for him. To someone without first hand knowledge of Gavin and what works and what doesn’t, might think this approach is cruel or without compassion. All I can say is that we have tried everything over the years that we could think of and this approach is the only one we have ever had success with.

Plus, we have other children to worry about as well. If it were just my wife and I, perhaps we could afford to handle things a bit differently. However, our two other boys are terrified during these meltdowns and so I have to try and defuse them as rapidly as possible.

Gavin doesn’t have these as often as he used to but they are still very intense and disruptive. Lately, he has begun the whole self-injury thing again. In this video you even hear me remind him what happens if that starts up again.

My hope is that these videos will help others to better understand what we mean when we use the word meltdown. Every child is different, but I think this will help get the point across.

 

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Permanent link to this article: http://lostandtired.com/2012/03/24/autism-how-i-manage-a-meltdown/

Feb 16 2012

Do you dread parent teacher conferences?


There is something I’m grateful for and it’s that we don’t have to dread dealing with my boys school. I think parent teacher conferences are a source a stress for many parents, especially those with special needs kids. When our kids were in the local public school system, it was an absolute nightmare. I’ve been very open and upfront about that. The public school system, in my experience, is grossly inadequate to properly and effectively handle children on the Autism Spectrum.

Having moved our oldest to Summit Academy many years ago, school has taken on new meaning. In fact, our middle child, Elliott began attending there this year as well.

The school is absolutely one of the best things to happen to my kids. The staff is very capable and highly trained. Summit Academy specializing in educating children on the Autism Spectrum, as well as those struggling with things like ADHD. 

IEP meetings are quick and painless as well. I know how difficult those can be with other school systems. I think our last IEP meeting was done in less than 30 minutes. We never have to fight for anything. They do such a great job of providing for the needs of our kids.

I can honestly say, that we no longer dread parent teacher conferences either. In fact, we had conferences this afternoon. Typically, Lizze and I have to divide and conquer when it comes to things like this. Seeing how Emmett was in a bad place already, we decided it was best if I stayed home with him and Lizze go to conferences. While it isn’t easy for Lizze to get around much of the time, it’s better for her to handle the meeting and I handle Emmett.

I’m pleased and very proud to report that both Gavin and Elliott are doing very well. They are’t without their issues but the teachers are going to work through those issues with them.

I can’t tell you how comforting it is to be able to hear things like that. As a parent who has dealt very negative experiences in the past with other schools, I know what it’s like to go to meet the teacher and hear about everything your child is doing wrong. My heart goes out to those of you having to endure that. Hang in there.

If you’re in the Ohio area, Summit Academy has locations over much of Ohio. They are a great and affordable option. They also base everything at the schools around the martial arts. This is truly a beneficial thing as it teaches the kids, self-discipline, self-respect, control over ones body and build self-esteem. Our boys absolutely love this. Check out the video below of one of their martial arts promotions.

I can’t say enough about our experience with Summit Academy. I hope that if anyone is having issues with school that they give Summit Academy a look, I would highly recommend them.

1620 Market Avenue South, Canton, OH 44707
Phone: 330-458-0393
Fax: 330-458-0518

We no longer dread parent teacher conferences. :-)

I hope this helps someone…

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Permanent link to this article: http://lostandtired.com/2012/02/16/do-you-dread-parent-teacher-conferences/

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