Tag Archive: Someone

March 21, 2012

Sorry for the delay is getting this up but I fell asleep early last night..

I already shared what happened with the neurologist, as far as Elliott is concerned. What I haven’t done yet is getting into what went down with Gavin.
Traditionally, Gavin is significantly more complex and honestly, that an understatement. I’m gonna keep this short and sweet because I’m just super tired today and the words are blending together.

Basically, Gavin tolerated the exam very well. They spent a lot of time on Gavin’s reflexes, or rather, trying to find them.

The doctor took me back to his office and actually showed me the EEG results for Gavin as well. Gavin is clearly having seizures and for the life of me, I can’t remember the name of them. These are more background seizures. Let me give you an example of what I mean. In this example, Gavin will be saying the alphabet.

Basically, Gavin experiences things like this, A, B, C, D, E, F…………..G, H, I, J, K, L, M, N, O, P……….. Q, R, S, T, U, V, W, X, Y, Z.

Gavin’s seizures seem to be more like someone hits the pause button. He essentially freezes for short period of time and them picks up where he left off,having no memory of the pause.

These episodes were triggered by hyperventilation, flashing lights and sleep. This might explain the bedwetting as well. Of course, I forgot to mention that yesterday though. In Gavin’s case, it’s pretty clear cut. The reason is hasn’t been picked up until now is likely because Gavin’s seizures don’t present with any obvious symptoms.

Gavin seems to zone out at times but we he also gets lost in what he’s doing as well, so it’s tough to tell the difference.

The reason we are seeing more problems lately is that Gavin was on Depacote for a really long time. This was used for management of his bipolar symptoms, but was likely treating the seizures as well.

They all want to do extensive genetic testing as well. There are specific disorders that were mentioned that I can’t remember.

We restart Depacote tonight and hope that will help to control his seizures. Now that we know what we are looking for, we’ll have to keep a closer eye on him.

I don’t even know to say anymore. I’m so far beyond overwhelmed that I don’t know what to even say…..

Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye.

Tags: "Autism Speaks", adhd, android, aspergers, Autism, babble.com, Bipolar, button, course, doctor, don, EEG, eye, Family, flashing lights, Gavin, gonna, life, lost and tired, midNIGHT ROM, name, neurologist, ocd, office, Parenting, pause, PICA, reason, schizophrenia, schizophrenic, seizures, sleep, Someone, time, today, Tonight, understatement

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Mar 19 2012

#Autism, Anxiety and Risperdal: Day 6

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March 19, 2012

Today is day 6 of Elliott’s journey with Risperdal. For those new to the Lost and Tired blog, Elliott struggles with rather extreme levels of anxiety.

His anxiety had reached a point that it was/is interfering with his life, not to mention, driving those around him crazy. The poor kid worried about everything and we don’t want that for him.
I wanted to share with you all how the first week or so goes. I thought someone might benefit from our experience….

So far, we have had some mixed results with the Risperdal. Having said that, he is having much better days now.

He seems much more relaxed and able to enjoy life. While he still struggles from time to time, the experience thus far has been overwhelming positive. In fact, Elliott had another no warnings day at school. That’s awesome…

Check out the picture below. Elliott is sharing with you how many warnings he received at school today….. Zero.

I’m sooooo proud of him…

**Thanks for reading**

-Lost and Tired

Please join our Community Autism Support Forum

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Tags: "Autism Speaks", adhd, android, anxiety, aspergers, Autism, babble.com, blog, community, Community Autism Support, Community Autism Support Forum, day, Elliott, everything, experience, extreme levels, Family, Forum, journey, kid, life, lost and tired, midNIGHT ROM, ocd, Parenting, PICA, POSITIVE, reading, Risperdal, schizophrenia, schizophrenic, Someone, sooooo, support, Thanks, time, tired, WordPress

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Mar 17 2012

I received an award today

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March 17, 2012

I received an award this morning. To be completely honest, I’m not exactly sure what I did to deserve this but someone sure felt I deserved it and that someone was Emmett.

He told me that it was my award and that had to put in on my shirt and not my skin.
On my shirt it went and I wore it proudly, until it feel off at some point and I lost it.

**Thanks for reading**

-Lost and Tired

Please join our Community Autism Support Forum

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Tags: "Autism Speaks", adhd, android, aspergers, Autism, Award, babble.com, community, Community Autism Support, Community Autism Support Forum, Family, feel, Forum, lost and tired, midNIGHT ROM, morning, ocd, Parenting, PICA, point, reading, schizophrenia, schizophrenic, shirt, skin, Someone, support, Thanks, tired, today, WordPress

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Mar 17 2012

Headache Infusion: conclusions

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March 17, 2012

Lizze had her final headache infusion session, yesterday afternoon. She basically underwent 12 hours of pretty hardcore narcotics being pumped into her via IV.

This was split up over two days and the sole purpose was to break her five weeks old migraine.

She can only have this done one time a year, at least as far as I know. It was almost exactly a year ago that she had this done to break a migraine that she had that lasted for months.

The good news is that it appears to have worked. I say appears to have worked because she still pretty heavily medicated. We should have a better idea of where we stand as time goes on.

The downside to this is that it only treats the current migraine and doesn’t prevent it from coming back

As someone that doesn’t suffer from these debilitating migraines, I can’t imagine what it’s like. When I asked her if it was worth it, she replied, any amount of time without having to feel the pain of a migraine is worth it.

Here’s to hoping that Lizze can get a well deserved break from the constant migraines.

I want thank Lizze’s parents for watching the two oldest last night and my parents for getting her to the appointments.

I also want to thank all of you for your thoughts and prayers. I truly appreciate it…..

**Thanks for reading**

-Lost and Tired

Please join our Community Autism Support Forum

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Tags: "Autism Speaks", adhd, Afternoon, amount, amount of time, android, aspergers, Autism, babble.com, community, Community Autism Support, Community Autism Support Forum, conclusions, downside, Family, Forum, hardcore, headache, idea, Lizze, lost and tired, midNIGHT ROM, migraine, news, ocd, pain, Parenting, PICA, purpose, reading, schizophrenia, schizophrenic, Someone, support, Thanks, time, tired, WordPress, worth, year, yesterday

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Mar 15 2012

#Autism and those little quirks

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March 15, 2012

As many of you know already, kids with #Autism can very often have little quirks. For those of you unfamiliar with Autism, I thought I would help you understand what I mean when I say quirks.

When I think of quirks, I think little oddities that seem to make up part of someone’s personality.

In Emmett’s case, he has quite a few quirks. Some are cute and even a bit endearing, while others can almost interfere with his life at times.

For the purposes of this post, I want to share one of Emmett’s more consistent little quirks. While he doesn’t do this all the time anymore, he does it more often than not.

Emmett hates and I mean hates getting anything on his shoes. Recently, he has been doing better, especially when his puppy, Bella is involved. However, the big thing with him is his avoidance of walking on the ground when it’s wet.

He has this quirky little routine that he does whenever he walks out of the house or gets out of the car. He asks me if there is water on the ground or if the ground is wet. If I say no, then he will hop out and then feel the ground with both hands to make sure that it is indeed dry.

This has become very commonplace for him. It’s one of those things that really never interferes with anything and makes him feel more comfortable with his surroundings. We have incorporated this into our everyday lives as the need presents itself.

There are other quirks like smelling things, just as an example.

Below are pictures to help illustrate one example of Emmett’s quirkiness.

**Thanks for reading**

-Lost and Tired

Please join our Community Autism Support Forum

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Tags: "Autism Speaks", adhd, android, anything, aspergers, Autism, babble.com, Below, bit, car, community, Community Autism Support, Community Autism Support Forum, Emmett, Family, Forum, ground, house, life, lost and tired, midNIGHT ROM, need, ocd, one, Parenting, personality, PICA, Post, quirks, reading, routine, schizophrenia, schizophrenic, Someone, support, Thanks, time, tired, water, WordPress

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Mar 14 2012

F*ck you time change

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March 14, 2012

#Autism: Being their teacher, Autism

There are few things I dislike more in this world than the time change. I mean, I personally handle it just fine, however, my three. Autistic boys don’t.

The simple act of moving the clocks ahead by one hour is completely disruptive. It’s like someone took their world and shook it up like a snow globe. It becomes total chaos for them and subsequently for us as well.

I say this every spring and fall because the time change is like my worst enemy.

I try to bring peace and order to our world and time change seeks to bring confusion and chaos. The confusion and chaos, typically lasts for a few weeks. Those few weeks are among the worst of the year.

This may sound dramatic, but the switch to and from day light savings time is extremely disruptive. The worst part is that their sleep schedule is thrown off. This results in very early mornings, following really late nights.

When it was decided that this time change would be a good idea, I assure you, the creators of this idea didn’t have three Autistic boys.

As I’m writing this, Elliott has already been up for well over an hour (4:30 am). Trying to keep him from waking Emmett is not easy and it means that I must remain awake at this most unholy of hours.

This is why, every single year I climbing to the highest roof of the tallest tower and scream,fuck you time change.

**Thanks for reading**

-Lost and Tired

Please join our Community Autism Support Forum

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Tags: "Autism Speaks", adhd, android, aspergers, Autism, babble.com, Change, chaos, community, Community Autism Support, Community Autism Support Forum, confusion, day, don, enemy, Family, fine, Forum, fuck, Globe, idea, light, lost and tired, midNIGHT ROM, ocd, order, Parenting, PICA, reading, schizophrenia, schizophrenic, Snow, Someone, spring, support, switch, Thanks, time, time change, tired, year

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Permanent link to this article: http://lostandtired.com/2012/03/14/fck-you-time-change/

Mar 13 2012

#Autism: Being their teacher (episode 1)

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March 13, 2012