Sorry for the delay is getting this up but I fell asleep early last night..
I already shared what happened with the neurologist, as far as Elliott is concerned. What I haven’t done yet is getting into what went down with Gavin.
Traditionally, Gavin is significantly more complex and honestly, that an understatement. I’m gonna keep this short and sweet because I’m just super tired today and the words are blending together.
Basically, Gavin tolerated the exam very well. They spent a lot of time on Gavin’s reflexes, or rather, trying to find them.
The doctor took me back to his office and actually showed me the EEG results for Gavin as well. Gavin is clearly having seizures and for the life of me, I can’t remember the name of them. These are more background seizures. Let me give you an example of what I mean. In this example, Gavin will be saying the alphabet.
Basically, Gavin experiences things like this, A, B, C, D, E, F…………..G, H, I, J, K, L, M, N, O, P……….. Q, R, S, T, U, V, W, X, Y, Z.
Gavin’s seizures seem to be more like someone hits the pause button. He essentially freezes for short period of time and them picks up where he left off,having no memory of the pause.
These episodes were triggered by hyperventilation, flashing lights and sleep. This might explain the bedwetting as well. Of course, I forgot to mention that yesterday though. In Gavin’s case, it’s pretty clear cut. The reason is hasn’t been picked up until now is likely because Gavin’s seizures don’t present with any obvious symptoms.
Gavin seems to zone out at times but we he also gets lost in what he’s doing as well, so it’s tough to tell the difference.
The reason we are seeing more problems lately is that Gavin was on Depacote for a really long time. This was used for management of his bipolar symptoms, but was likely treating the seizures as well.
They all want to do extensive genetic testing as well. There are specific disorders that were mentioned that I can’t remember.
We restart Depacote tonight and hope that will help to control his seizures. Now that we know what we are looking for, we’ll have to keep a closer eye on him.
I don’t even know to say anymore. I’m so far beyond overwhelmed that I don’t know what to even say…..
Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye.