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Tag Archive: Thursday

Jun 05 2012

The struggle for power continues


Gavin is already struggling today.  He’s not been listening and has already had a meltdown this morning.

However,  Lizze put her foot down and called him out.  She said she was tired of the drama and that he had three seconds to stop before he had oatmeal until Thursday morning.  He kept freaking out and so she counted. 

Wouldn’t you know it,  he stopped before she reached 3. Tell me that’s not control.
Honestly,  it’s upsets me even more that he can stop this whenever he wants. It means that he’s doing this on purpose. Regardless of the impact on his family,  he chooses to do this,  not only to himself but us as well. That bothers me.

I realize that he’s likely more prone to meltdowns but still this is pretty messed up. I don’t know what his motives are but I know that the meltdowns are a willful act and an act that is impacting every person in this house.

The only thing we can do is hold him accountable and stand firm and with resolve.

Honestly,  I feel really bad that we keep having to hold him accountable but he has the power to stop this whenever he wants.  He just chooses to be violent and aggressive instead. You would think he would learn by now that these tactics do not work.  However,  he simply continues to escalate in an attempt to get his way.

My biggest concern going forward is,  how far is he willing to take this?  I mean,  right know and for the foreseeable future,  I could easily overpower him.  What happens when can’t?

Permanent link to this article: http://lostandtired.com/2012/06/05/the-struggle-for-power-continues/

May 16 2012

Dysautonomia: Following up from the hospital stay


Gavin in will be returning to see the neurologist in the morning.  This is an epilepsy and Dysautonomia follow up.

While he hasn’t been officially diagnosed with Dysautonomia,  we expect that to be soon.  When he was admitted 2 weeks ago, that’s what they treated him for.

Tomorrow is a follow up from the EEG and the hospital stay.  Hopefully,  it will be uneventful and quick and painless.

I’m anxious to get to Cleveland on Thursday and to get this diagnosis under way.  When we know for sure what we are dealing with,  than we will be better prepared and perhaps have a treatment as well. 

**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/05/16/dysautonomia-following-up-from-the-hospital-stay/

Mar 14 2012

The next 10 days…


Last night Emmett woke up in pain once again.  It appears as though he has hit another cycle as his mouth is breaking out in cold sores. 

I also mentioned that this could last the next 10 days. 

That got me thinking about what the next 10 days has in store for the Lost and Tired family.

Last night,  Elliott began talking Risperdal for his anxiety.  We have no idea if he will react the same way to Risperdal as he did Zoloft.  His previous reaction was indicative of bipolar disorder.  Hopefully,  it was just a freaking reaction and don’t continue down the path to a diagnosis of bipolar disorder.

We should know pretty quick if the Risperdal is going to help him or instead,  make things worse.

In Thursday,  Lizze will undergo a procedure called a headache infusion. Her last one was about a year ago.  Basically,  she will spend Thursday and Friday at the neurologist.  They will have her hooked up to an IV and she will be receiving hardcore narcotics, among other medications,  in an attempt to break her month old migraine. 

This will basically zombify her for the following days and into this weekend. Hopefully,  she can get some much needed relief from this migraine that just won’t go away.

This means that I’ll be on my own for the next few days. I’ll be real honest,  I’m gonna need all the help I can get because Elliott and Emmett on a good day is challenging enough. Now we have Elliott starting new meds and Emmett starting a new cycle.  They are gonna be at each other’s throats.

Once we make it through the weekend,  next week isn’t any better.  Elliott and Gavin both will be at the neurologist getting the results from last week’s EEG.

Gavin also has an antibody infusion as well. 

I have no idea what shape Elliott,  Emmett and Lizze will be in as Monday rears it’s ugly head. 

This could prove to be on of our most challenging weeks in recent memory. However,  despite all the stress this next week or so will bring with it,  I’m gonna try to make the best of it. 

Thoughts and/or prayers would be greatly appreciated.  :-)

**Thanks for reading**

       -Lost and Tired

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Permanent link to this article: http://lostandtired.com/2012/03/14/the-next-10-days/

Jan 07 2012

Hello Anxiety


I made the mistake of mentioning to Elliott on Thursday night, that he was having a hearing test, Friday after school. I was thinking…..well to be honest, I don’t know what I was thinking.

Elliott is our most typical child. While he has Aspergers, most people wouldn’t notice anything.

Having said that, Elliott is not without his challenges.  The biggest of which is anxiety. Elliott is a walking, talking, compressed balk of anxiety that can meltdown at the slightest disruption.

I said above, that I didn’t know what I was thinking when I mentioned to him about his doctors appointment.  No sooner did the words leave my mouth…..Elliott slipped into full blown panic mode.

There is no rationale to his panic and absolutely no calming him down. He literally cried and cried, all because he was having his hearing checked. He couldn’t sleep that night and had a rough day at school the following day.

God love him, Gavin even offered to go with Elliott so that he wouldn’t be scared.

Elliott was very difficult to work with until the appointment ended and he realized everything was going to be OK. Honestly, hearing tests are as benign as they get. No needles or bloodwork.

Still, Elliott struggled. Oddly enough, he actually had fun at the test and the staff did a great job of working with him.

When they called him back for his turn, you would have thought we walking the green mile on our way to his execution.  He had tears pouring down his little face and he was shaking as he held on to my hand for dear life.

He ended up doing great though and his hearing is perfect.

This is just another example of why you shouldn’t judge a book by its cover. Though Elliott appears to be like most other kids, it doesn’t take much for him to slip into a crippling anxiety attack.

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Permanent link to this article: http://lostandtired.com/2012/01/07/hello-anxiety/

Permanent link to this article: http://lostandtired.com/2012/01/03/operation-relocation-update-01032012/

Nov 25 2011

Waking up to more crime


Thursday morning about 12:30am, I woke up because Maggie was barking. I took her outside and found that police were scouring the area for someone who had gotten away or something. I don’t know what this person had done, but whatever it was, they definitely wanted him. The police were walking around my house with their guns drawn and the little flashlights (on the guns) turned on, as they searched for the person they said was hiding out in either my or my neighbors yard.

What a great way to welcome Thanksgiving morning. Sigh..

 

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Permanent link to this article: http://lostandtired.com/2011/11/25/waking-up-to-more-crime/

Nov 22 2011

It’s gonna be one of those days


While I’m personally in a good mood and feeling quite well,  I already know how this day is gonna go.

Lizze is in really rough shape.  She is in a great deal of pain and getting sick almost every time she eats.  She’ll spend a large portion on the day sleeping,  just trying to survive it. 

Mr.  Emmett John is all over the place.  He spiked another fever last night so therapy is once again canceled for this afternoon.  He’s actually in a good mood but very energetic.

Elliott’s doing pretty well today and will be going to my parent’s house this afternoon to make home made pumpkin pie for Thursday.

Gavin is still not feeling well.  Actually,  he says he’s fine but his body language and aggressive cough say otherwise.  He has already fallen down the steps,  which seems to be happening more frequently as of late.  He didn’t hurt himself but he did scare the crap out of me.  As he gets worse, I feel like I should wrap him up in bubble wrap and make him stay in one place. Sigh

Aside from that,  I have some writing to do today,  along with laundry and dishes.

Today is one of those days where I set my expectations accordingly,  hunker down and hope for the best.  :-)

Permanent link to this article: http://lostandtired.com/2011/11/22/its-gonna-be-one-of-those-days/

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