Autism,Aspergers Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: Vaccines

Jun 27 2011

Emmett and the vaccine debate


Today Emmett was due for 3 vaccines, MMR, Hep A and something else…can’t remember. While I’m pro-vaccines I still like to talk to the doctor about them before they are given go our boys.
I was introduced to a family that had a child seriously injured by the MMR. It’s a real life situation and while I still don’t think vaccines are linked to Autism I do know that some kids are seriously injured. These are well documented cases and my heart goes out to these families.

Elliott was hospitalized after the MMR and so I have concerns about Emmett. Dr. H discussed those concerns and collectively we decided to split everything up. He received the other 2 vaccines today and the MMR as well as Elliott’s chicken pox booster is scheduled for a month out.

I encourage everyone to share your concerns with your child’s doctor and really listen to what they have to say before you just decide to not vaccinate. There are other options, like, breaking them up or simply waiting a bit. The more informed you are about vaccines the better decisions you will be able to make because you have actually talked with your doctor. Your decision to vaccinate or not to vaccinate should not be based on some fringe website but based on what you feel is best for your child after having a “real life” talk with your child’s doctor.

We personally choose to vaccinate but we do so after educating ourselves and talking to our doctor.

- Lost and Tired

Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

MyFreeCopyright.com Registered & Protected

Permanent link to this article: http://lostandtired.com/2011/06/27/emmett-and-the-vaccine-debate/

Jun 27 2011

We have arrived 6/27/2011


We just arrived at NCMF with Elliott and Emmett for the respective appointments. We will be here a while and have bloodwork and vaccines to look forward to.  I have no idea how this is going to go. Gavin is with my mom and she is taking him to OT so he doesn’t miss his appointment.

image

- Lost and Tired

Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

MyFreeCopyright.com Registered & Protected

Permanent link to this article: http://lostandtired.com/2011/06/27/we-have-arrived-6272011/

Jun 27 2011

Emmett has his 3 year checkup today


Emmett has his 3 year appoint today with Dr. H. He’ll check all the usuals and let us know where he is at as far as weight and height. We will discuss vaccines and what he needs and doesn’t need. I’m not sure if he’s due for any or not but we always like to talk to Dr. H about any and all vaccines prior to blindly vaccinating any of our kids. We do our best to responsibly vaccinate our children. As I have made very clear in the past we are pro vaccines but we still do our research and seek the advice of our trusted Dr. H before we decide to give one of our children a vaccination.
It will be interesting to see where Emmett is compared to other kids his age.   

- Lost and Tired

Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

MyFreeCopyright.com Registered & Protected

Permanent link to this article: http://lostandtired.com/2011/06/27/emmett-has-his-3-year-checkup-today/

May 01 2011

Autism: We’re all on the same side….right?


The great “Autism debate” rages on and divide or rift inside the community was the inevitable result. Aren’t we all on the same side?

Since watching the movie Loving Lamppost: Living Autistic I’ve been thinking. Why all the “infighting” ? Aren’t we all on the same side? Don’t we all want the same thing?  I realize that in any debate there has to be two sides and Autism is no exception. We have the “recovery movement” and the “ neurodiversity movement”.

Proponents of the “recovery movement” believe Autism is caused by vaccines and/or other environmental toxins. This movement is considered to operateoutside the realm of mainstream science and medicine. There is little or no scientific evidence to support their theory of the origins of Autism. They believe that Autism can be cured and children recovered using “alternative” treatments such as GFCF diethyperbaric therapy and detoxification.

Proponents of “neuordiversity” choose to look at things like Autism or ADHD for example, as natural conditions. They acknowledge that these conditions can be challenging or even disabling. However, they see Autism as more of a variation of the human condition. They promote acceptance but are not against medical or biomedical intervention as deemed necessary to address certain symptoms and improve the overall quality of life.

Now I feel that everyone is entitled to there own opinion. However, we CANNOT let our differences of opinion come between us and what we are trying to accomplish. The problem with a debate like this, in my opinion, is that we lose focus on what’s most important. Instead of the community coming together for a common goal we are waging war on each other. Who’s right and who’s wrong becomes the most important issue.  Do you know who pays the price? It’s our kids that pay the price. This is unacceptable and needs to stop. We should be working together and not against one another.

So I propose a new movement. Call it the “reality Autism movement” and everyone is invited. What is the “reality Autism movement”? We recognize that despite some fundamental differences WE ARE ALL ON THE SAME TEAM working to get to same place. We know that everyone…EVERYONE, regardless of opinion, plays a VERY important role in the spread of Autism Awareness. We also believe we stand a MUCH better chance of building a better, more understanding world for our children if we stand together….despite our differences. One UNITED front. We DO NOT condone or tolerate the bullying of others that may not share our beliefs. We realize that while research is VITAL to the future, there are families struggling with Autism NOW.

The “reality Autism movement” believes:

 

-The “reality” of Autism is that we DON’T know what causes it. While we will NEVER agree on this, we also recognize everyone’s right to have an opinion about what happened to their child. We respect these opinions…even if we don’t agree.

-The “reality” of Autism is that most people have NO idea what Autism REALLY is. We share our personal experience with Autism in order to help the world see Autism though the eyes of persons and families affected by it.

-The “reality” of Autism is that it’s different for each person and can impact a family in profoundly different ways. Because of this we recognize that Autism can and will mean different things to different people. We believe that’s okay.

-The “reality” of Autism is that we have no “cure”. While not everyone believes Autism can or even should be “cured”, we recognize that everyone’s opinion is relative to their experience with Autism. Some are more profoundly impacted then others and so a the idea of a “cure” means hope and we understand and support them. Some people do just fine and so the idea of a “cure” holds no value and that’s perfectly okay as well.

-The “reality” of Autism is that we don’t know enough about it to really know much of anything but we are learning more and more each day.

-The “reality” of Autism is that Autistic kids grow up to be Autistic adults and there is NOT enough support for these people. We push for better understanding, support and acceptance so that adult persons with Autism can meet their own potential and lead healthy, happy lives.

-The “reality” of Autism is that the world as a whole may never understand or accept persons with Autism. We recognize this as an “unpleasant truth”  but a reality none-the-less. We realize that we must prepare our children for the world WHILE we prepare the world for our children.

So who’s on board? The “reality Autism movement” is open to EVERYONE because the only way we are going to succeed is if we ALL work together .

Permanent link to this article: http://lostandtired.com/2011/05/01/autism-were-all-on-the-same-side-right/

Apr 07 2011

11 years old….


With everything that has gone on since Gavin’s 11th birthday in January his 11 year check up has pushed back. He’s at the doctors all the time so it’s really more of formality but we wanted to get it done.

We went into this knowing Gavin had at least 2 vaccines today. Gavin was getting more and more anxious the longer we had to wait. That’s a very common trait amongst Autistic kids in general.

Gavin is physically growing well. He is 58.3 inches tall and weights in at a whopping 79.75 lbs. While we were waiting Gavin was becoming increasingly more aggitated. I tried distracting him by talking about the story he’s writing. Gavin decided that he didn’t want to wait anymore and wanted to get it over with. I told Gavin that he should tell the doctor just that when he comes in. I want Gavin to learn to stick up for himself and tell people what he wants and how he feels. I think that’s very important.

So when Dr. H came in Gavin shouted out he just wanted to get the shot(s) now so he doesn’t have to worry anymore. Dr. H was great about it. He told Gavin that would be just fine but that he has to make sure Gavin is healthy first. When the nurse came in with the vaccines Gavin’s anxiety went through the roof and he started jumping around and shouting. As it turns out he was supposed to get 2 shots today, the tetanus booster and the menengitis vaccine. Well thanks to Emmett biting Gavin last week he only needed the menengitis vaccine as the tetanus was already given last week for the bite.

Gavin sat on my lap and it only took me to hold him. He screamed but it was manageable. Now if he had needed that second injection it would have been a different story entirely. So in some really weird and inappropriate way, I guess we have Emmett to thank for today going relatively smooth.

It’s amazing how kids on the spectrum perseve things. Gavin actually had a much more difficult time getting his toe nails or finger nails trimmed then he did getting a shot. My guess is that many people reading this would not know that.

image

Permanent link to this article: http://lostandtired.com/2011/04/07/11-years-old/

Apr 07 2011

Not looking forward to today….


We have to get Elliott of to school as usual. Shortly after that Gavin has his 11 year appointment at the pediatrician. The kicker is that he’s getting shots, at least 2, and possibly 4. This is NOT going to go over well. One shot….mayber but more then that is going to cause Gavin to go over the edge. It will take many people to accomplish this. When he was younger it would sometimes take up to 6 or 8 people to hold him still long enough to get this done. I have having to do that but the vaccines are to important not to.

This will be much more challenging because he’s already disorganized and so he will less control over himself. He’s also much stronger now. The problem with be the anticipation of each additional shot. This is what will cause the panic and subsequent meltdown. Many times having to do this whille he’s begging for help makes me cry. He doesn’t understand that I’m doing this because I love him and want to keep him safe for diseases we CAN actually prevent. This will set the tone for the rest of the week and it will take him days to recover. The hallucinations will likely become worse at least for a while due to the anxiety.

After that we have to get Emmett to school and then pick Elliott up and then back to get Emmett. We are meeting with Elliott’s teacher tonight and then Lizze has an appointment.

Permanent link to this article: http://lostandtired.com/2011/04/07/not-looking-forward-to-today/

Feb 02 2011

Death of a bouncy house


I regret to inform you that as of 12am this morning the bouncy house is no longer with us. I was running around last night charging batteries and gathering blankets when I noticed. She just didn’t look the same. Even from a distance I knew something was wrong. She was all slumped over in the corner. My instincts kicked in and tried to resuscitate her with mouth to mouth. Despite my best efforts it wasn’t enough. I quickly moved to the already charged (so as not to awaken the kids) air compressor because I knew time was of the essence. She responded and  thought we were in the clear but then I heard the sound no one wants to ever hear coming from a bouncy house, whoosh. It was a fruitless effort. Sure we could keep her hooked up to

the  compressor but what kind of life is that. It just wasn’t fair. So at 12am this morning Feb 2, 2011 I pulled the plug and it was over. I will look back fondly on the 3 days of memories we had with her. She will be laid to rest in a large square box, gently placed in the back of the van and driven back to Toy’s R Us so I can get my $150 back for this stupid,defective piece of sh!t. :)

image

Permanent link to this article: http://lostandtired.com/2011/02/02/death-of-a-bouncy-house/

Older posts «

» Newer posts

Switch to our mobile site