Autism, Aspergers, Rob Gorski,Special Needs Parenting, Reactive Attachment Disorder, Fibromyalgia,

Tag Archive: video

Dec 22 2012

How does this rank on the scale of weird?

Lizze and I were watching a movie tonight and someone very quietly began knocking on our front door.

It was really late and the guy was knocking so quietly that Maggie hadn’t even taken notice.

As soon as I realized someone was at the front door, I immediately was on my feet and Maggie and Bella both were on point.  I opened the front door but left the storm door closed and I actually physically held it shut in case this guy was stupid enough to try and do something with both dogs there.

This guy claimed to be my neighbor, which he wasn’t and kept asking for an extra audio /video cable.

It was really creepy because he kept asking, over and over again.  Then he turned around and walked away. 

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Shortly after, a strange car pulled up in front of my house and sat there for about an hour.  Lizze actually called the police because we were getting concerned and felt uncomfortable. 

We both feel like we were being cased

Like they were feeling us out to see if we would be a good house to rob. Who the hell knows, I just know I feel uncomfortable enough to let the dogs have free reign of the house tonight. 

Gotta love the City of Canton. I’m mean who comes up to a strangers house at 10pm and asks for an audio/video cable?  Really??

Permanent link to this article: http://lostandtired.com/2012/12/22/how-does-this-rank-on-the-scale-of-weird/

Jun 13 2012

Mt. Gavin has erupted

Gavin has been meltdown free for the past 3 days.  However,  his attitude has been unpleasant and his treatment of Lizze has been unacceptable. The way he talks to her really make me sad and extremely upset.

We had been very carefully picking our battles the past few days because we really enjoyed the lack of violent outbursts. 

Today however,  was the last straw. He wasn’t listening all morning and when Lizze would tell him to do something,  he would give her a hard time. Finally I had had it.  Whether any of us like it or not,  his little brothers look up to him and mimic is behavior.  I can’t let his attitude and treatment of his mother go unchallenged. 

I informed him that he would not be allowed to play video games during his next infusion on Friday. We had allowed that to go on,  even though Gavin and video games don‘t mix well. We did this because we felt so bad that he had to have the infusion in the first place. From now on,  his ability to play video games during his infusions will directly depend on his behavior.

He didn’t like that and so he freaked out and eventually started to self-injure once again.

I reminded him what the consequences would be if he didn’t get this under control.  This time,  he was so angry at me that I don‘t think he cared. He was in in control because he would stop in occasion to make sure he didn’t get to close to something he values. 

As promised,  I took away his favorite blanket and he will have to earn that back. He didn’t think I would actually go through with it,  and he would have been right,  if anything else would have worked.

He began freaking out even more until I walked over to his teddy bear and began to walk out the door with it. I told him that if I reached the door and he hadn’t stopped,  that he would have to earn that back as well. Wouldn’t you know it,  it was like he flipped a switch and shut everything off.  Honestly,  it’s almost creepy because it’s literally like it never happened. I don‘t know own how he does that but it’s unsettling to say the least.

We see Dr.  Pattie tonight and will talk about additional options she has come up with since the last time we talked.  However,  she informed me that she’s only human the other day and pretty much shattered my world view.  It was kinda funny because while I know she’s only human,  we had tended to see her as superhuman and with all the answers.  :-)
Hopefully,  we can all put our human heads together tonight and come up with a few options or ideas to address the problems we are facing at home with Gavin.

Permanent link to this article: http://lostandtired.com/2012/06/13/mt-gavin-has-erupted/

Apr 27 2012

#Autism: When teachers are the bullies

I wanted to share this video with you all. This video is by a man named Stuart Chaifetz and is in response to to his son Akian being bullied by his teachers at school. This is so important to watch because Stuart is making this public in order to shine the spotlight on what is happening to kids with Autism while at school. Obviously not all teachers and schools are a problem but Stuarts story is not uncommon at all and that’s really sad.

Please watch and share this video and help Stuart in his quest to end bullying. He is handling this very, very well and with a great deal of tact and class, which is much more than these teachers involved deserve. I have crazy mad respect for Stuart because not only is he taking the high road but also holding those involved accountable for their actions. 

I don’t know Stuart Chaifetz personally, but I don’t have to know him to understand and support his cause. As many of you know, Gavin and Emmett’s experience with the public school system was very similar to what Akian was subjected to by his cruel and heartless teachers, especially in Gavin’s case. This is very personal to me and I think it’s an eye opener to all parents, teachers and anyone that considers themselves a human being.

This type of cruelty is absolutely unacceptable and anyone involved in such abuse of children with special needs should not only be ashamed of themselves but also be prosecuted. That’s just my personal opinion.

Please watch and share. Below, please find all of Stuarts information.

Please follow Stuarts story on Facebook: ——-> NoMoreTeacherBullies

Sign the petition: ———–> Petition 

Teacher/Bully: How My Son Was Humiliated and Tormented by his Teacher and Aide
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Permanent link to this article: http://lostandtired.com/2012/04/27/autism-when-teachers-are-the-bullies/

Mar 21 2012

How I got a PlayStation Vita

This is more for the techies out there that like video games.  :-)

I have been playing video games since before Nintendo was even know the radar. I was always fascinated by them. 

Fast forward to present day and my kids have all followed in my footsteps. I’m sure you have heard me talk about Elliott and his 3DS -thanks to Best Buy- as well as Gavin obsession with video games.

I have had a game console on and off for years. I would purchase an XBOX 360 or PS3 with tax return,  when money allowed for it. 

Inevitably,  at some point throughout the year something would happen and I would either sell it to come bills or trade it in to GameStop because it was causing to many problems with the kids,  namely Gavin. I would get tired of the drama in the house because of something related to video games.

I hated getting rid of them because they were an escape for me. I loved Call of Duty and burned off a great deal frustration online playing team deathmatch.

Last year at tax return I decided to get an XBOX 360 back with tax return in January 2011. It worked out great for a long time and the kids loved Kinect.  However,  it started to die and rather then deal with Microsoft,  we I traded it in to GameStop.  They said they would refurbish it anyway.

Between,  in store credit I had been sitting on and everything I was trading in,  it was an even swap into a PS3 and a few used games.

That worked out well for a few months but within the past 30 days or so, it became a source of frustration once again because,  when anyone would play it,  Emmett would rip the controller out of their hands.  Then of course,  the screaming and the yelling would follow.  As much as I liked it,  I couldn’t deal with all the fighting. We had tried all kinds of things to make it work but Emmett is very challenging and it just wasn’t worth it.

What I would do typically,  is trade it in and just sit on the credit.

However,  recently Best Buy began taking in trades and so I thought I would check it out.  I ended up trading in some old electronic stuff,  all my PS3 games and cashing in my reward zone points I had been saving for a rainy day and getting a PlayStation Vita.  I actually got more in credit than what I needed,  so that was cool.

I took the actual PS3 system into GameStop and had it added to my in store credit.  I grabbed a few accessories for the Vita and saved the rest for later.

This worked out quite well because I didn’t have to spend a single penny and I have credit left over for other things later.  Now I can play my games anywhere and then put it up and out of the way.  Hardware-wise,  it’s pretty darn close to the PS3 in terms of graphics,  which is really cool.

But the most important thing is that I found a way to have my escape and not have it create drama in the house.  It’s kinda like having my cake and eating it to.

Sometimes I have to be creative in order to make things work.  Since I couldn’t stand the fighting over what we had,  I turned it into something I could still enjoy and it didn’t cost me anything.  When you don’t have a lot of money or any at all for that matter,  it takes patience and some creativity to obtain any type of luxury item.

This is the only material thing I have left and I feel good that I was able to still have my escape and solve a problem at the same time. 

If you have old TV’s, computers, printers ect,  take them into Best Buy and get a gift card in exchange.  They aren’t worth anything to sell for cash but maybe you can get something with the gift card that you wouldn’t have been able to otherwise, like I did.  :-)

**Thanks for reading**

       -Lost and Tired

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Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye. :-)

Permanent link to this article: http://lostandtired.com/2012/03/21/how-i-got-a-playstation-vita/

Permanent link to this article: http://lostandtired.com/2012/03/17/how-i-keep-the-lost-and-tired-family-organized/

Mar 06 2012

Coping with meltdowns

I’m really struggling with Gavin and these meltdowns.  They happen anytime he is held accountable for his actions. I’m to the point where I feel like I have to choose between disciplining Gavin and putting the entire Lost and Tired family through one of his meltdowns.

Tonight was no exception.

Gavin went into the kitchen and on his way he just shoved his way through those of us standing there and he almost stepped on the puppy.

I pulled him aside to talk to him about what he did and why he shouldn’t do that.  He basically ignored me because he was to worried about getting back and watching TV.  So as he blew me off and went back upstairs,  I told him that he was to go shut his TV off.

That’s all it took to send him stomping up the stairs and into his room.  He was literally shaking the ceiling with each successive slam of each foot into the floor.

I called him down and told him that he was going to have oatmeal.  That is the only thing that works with him. It’s a very long story that if you have been following me for awhile,  you likely already know.

My whole point with talking to Gavin was to help him understand that he has to pay attention to what’s going on around him.  He can’t just shoved his way through people like they aren’t there. He needs to learn these things and it’s my job to teach it to him.  Lucky me…

Anyway,  he launched into a meltdown that sent Elliott and Emmett scrambling for safety.

I’m so sick of having to go through this every time Gavin is held accountable for his actions.  He is starting to self-injure again and that can’t be allowed to continue.  I’m not sure what to do about this but I do know that Gavin cannot be allowed to dictate what happens through his behaviors.

This is a longer video than I would normally post.  The reason I did this is because I want people to see what a meltdown can be like.  I also want to share how I manage situations like this.  I don’t always say or do the right thing in these situations but there aren’t any instructions and no one to guide you through.

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Permanent link to this article: http://lostandtired.com/2012/03/06/coping-with-meltdowns/

Mar 04 2012

What happened 6 years ago today?

Elliott Richard turned 6 years old this morning. I know that many of you are new to my blog so I thought I would introduce you to Elliott and share with you something about him. :-)

Elliott Richard (ER) is our 6 year old miracle child. He survived a VERY complicated pregnancy and was born premature, 6 years ago today. Shortly after birth his left lung burst followed by his right lung. He then battled pneumonia. It was honestly the most helpless I have ever felt in my life. We were told to prepare for the “worst”, At one point he was almost life flighted to the Cleveland Clinic. He spent about 2 weeks in the NICU but fought through it and came out the other side. He is now, ironically, the healthiest of all the kids. Elliott Richard is extremely advanced for his age.

He loves animals and anything his big brother Gavin likes. He likes playing his Nintendo 3DS and drawing in bed. He is a gentle soul and a very sweet and compassionate little boy. He struggles with anxiety and may have a touch of ADHD as well. Elliott Richard went through the Akron Children’s Hospital Autism Clinic in order for us to become more “Autism Aware” of him. We got a better idea of what makes him tick and how we can help him with his struggles. Elliott Richard is a “big little” brother. Meaning he is a big brother to both Emmett John and Gavin.

He was diagnosed as having Aspergers and is on the very high end of the spectrum. Elliott Richard is our “lady killing” social butterfly. He is in kindergarten this year and is doing very well. We are struggling with anxiety issues but academically he’s doing great.

He is always looking out for his brothers but takes a lot of abuse physically from Gavin and physically from Emmett John. We do everything in our power to help Elliott Richard along his journey and we are truly BLESSED to have him in our lives.

This video is a something I put together 5 years ago to celebrate Elliott making it to the 1 year mark. This was a tribute to the NICU that saved his life.  I cry every single time……still. It often helps me keep perspective. I have made it a point to share this on his birthday  every year. I reminds me just how preciously fragile life can be….

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Permanent link to this article: http://lostandtired.com/2012/03/04/what-happened-6-years-ago-today/

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