Tag Archive: Wednesday

Dec 12 2012

Meeting a Nutritionist at @AkronChildrens today

Categories:

Akron Children's Hospital, Allergies, Elliott

by Lost and Tired

December 12, 2012

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Lizze and I don‘t our best to be proactive parents. We like to head things off before they can become a problem, at least whenever possible.

We also never shy away from seeking get out additional help, especially when it comes to our kids.

Having said that, we will be meeting with a nutritionist at Akron Children’s Hospital today. Lizze and I spoke with our immunologist and they made the referral right away. In fact, they actually have a nutritionist in the office every Wednesday for this type of thing.

We’re hoping to get some guidelines and ideas on how to ensure Elliott is meeting go his nutritional goals, while at the same time, being on a pretty restrictive diet.

At the moment, Lizze and I are fully aware that we are in over our heads and welcome the guidance of a professional.

I’ll let you know how everything goes.

Tags: Akron Children Hospital, Akron Children's Hospital, aspergers, Autism, Children Hospital, don, immunologist, Lizze, lost and tired, meeting, moment, office, parenting advice, Rob Gorski, special needs parenting, today, Wednesday

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Dec 03 2012

The Leap of Faith: Plans may change again

Categories:

Cleveland Clinic, Fibromyalgia, Lizze, Murphy's Law

by Lost and Tired

December 3, 2012

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On Wednesday of this week, Lizze is scheduled to have a sleep study at the Cleveland Clinic. This is a prerequisite to entering the Chronic pain rehabilitation program.

They want to rule out sleep apnea as a contributing factor to her chronic fatigue.

However, Lizze has been and currently still is, sick. Apparently, if she isn’t feeling 100%, they sleep study will be scrubbed and rescheduled.

On top of that, services for her Grandfather, who past away Sunday night, will be on Wednesday as well.

Lizze is going to be an emotional wreck that day and I can’t see her being in a position to take part in a sleep study. My guess is that we will have to reschedule.

Unfortunately, that will put her entering the Chronic pain rehabilitation program in limbo.

We don’t know how soon we can reschedule the sleep study and the follow up appointment with her sleep neurologist.

I know this sucks but right now, we have no control over these things and so we are going to do our best to take them in stride.

This is going to be a tough enough week as it is. Perhaps it’s all for the best.

Tags: aspergers, Autism, Cleveland Clinic, Fibromyalgia, going, Lizze, lost and tired, pain, pain rehabilitation, parenting advice, program, Rob Gorski, sleep, sleep study, special needs parenting, study, Wednesday, week

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Permanent link to this article: http://lostandtired.com/2012/12/03/the-leap-of-faith-update-in-the-airair/

May 23 2012

Wednesday Night Therapy: 05/23/2012

Categories:

Autism

by Lost and Tired

May 23, 2012

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Every other Wednesday, we have an additional therapy session. This week is one of those weeks. The boys get two sessions this week and they love it.

Tonight, Dr. Pattie is running about 30 behind and we found out as we were arriving.

Right now we are waiting 30 minutes while the boys play with toys and read books.

**Thanks for reading**

-Lost and Tired

Please join our Autism Help Forum

Look for “Autism Help” app at the Google Play Store

Posted from WordPress for Android

Tags: 30 minutes, app, Autism, Forum, read, reading, Thanks, Therapy, Wednesday, week

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Permanent link to this article: http://lostandtired.com/2012/05/23/wednesday-night-therapy-05232012/

May 10 2012

Van drama: Did it get fixed?

Categories:

Autism

by Lost and Tired

May 10, 2012

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I spoke with Downtown Ford on Wednesday morning. They informed me that the transmission has been rebuilt and was indeed part of the recall.

They wanted to address the electrical issues that were a result of the remote start before turning the van back over to me.

They have decided to replace the after market remote start with a Ford, OEM remote start. Apparently these are easy to come by, but they have tracked a few down and are trying to get their hands on one.

Hopefully this will give us the feature back that we need and eliminate the nightmarish and bizarre, electrical issues that have plagued us since we bought it a few months ago.

Now we just wait for the call and go pick it up. Hopefully, God willing, this will be it for awhile.

**Thanks for reading**

-Lost and Tired

Please join our Autism Help Forum

Look for “Autism Help” app at the Google Play Store

Tags: address, app, Autism, back, drama, Forum, reading, result, Thanks, Wednesday

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Permanent link to this article: http://lostandtired.com/2012/05/10/van-drama-did-it-get-fixed/

Mar 22 2012

Wednesday Night Fever

Categories:

Autism

by Lost and Tired

March 22, 2012

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I’m sooooo friggin’ tired. Between Emmett and now Elliott, sleep was had by none. Elliott is running a fever this morning, most likely courtesy of Mr. Emmett John.

I’m pretty sure I saw it written somewhere that if you have special needs kids, only one child can be sick at a time.

If that isn’t written somewhere, it should be.

**Thanks for reading**

-Lost and Tired

Please join our Community Autism Support Forum

Posted from WordPress for Android so please forgive any typos as auto-correct and I don’t see eye to eye.

Tags: aspergers, Autism, babble.com, community, Community Autism Support, Community Autism Support Forum, Elliott, Emmett, Family, fever, Forum, one, Parenting, reading, special needs, Thanks, Wednesday

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Permanent link to this article: http://lostandtired.com/2012/03/22/wednesday-night-fever/

Feb 27 2012

#Autism and Anxiety

Categories:

Autism

by Lost and Tired

February 27, 2012

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Elliott’s anxiety is absolutely through the roof. He’s been crying all morning because he doesn’t want to go to school.

These are fake tears either, he actually in distress and I’m not sure what we can do to help him.

I know he needs medication but the last time didn’t go very well at all. We’re back to see the psychiatrist on Wednesday morning and hopefully walk away with a better solution.

The one thing that’s always consistent with Elliott and this anxiety issue is that he says things like, it’s going to take to long, I can’t wait that long or it takes forever.

When he says these things, he’s not coming across to me as simple impatient. This seems like he is absolutely in distress.

Do any of you folks experience anything like this? If any of my adult friends with Autism could provide me with insight, I would be eternally grateful.

Thank you

**Thanks for reading**

-Lost and Tired

Please join our Community Autism Support Forum

Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Tags: "Autism Speaks", adhd, adult, android, anxiety, anything, aspergers, Autism, Auto-correct, babble.com, community, Community Autism Support, Community Autism Support Forum, distress, Elliott, Family, Forum, going, insight, issue, lost and tired, medication, midNIGHT ROM, morning, ocd, Parenting, PICA, psychiatrist, reading, roof, schizophrenia, schizophrenic, solution, support, Thanks, time, tired, wait, Wednesday, WordPress

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Permanent link to this article: http://lostandtired.com/2012/02/27/autism-and-anxiety/

Feb 24 2012

Changing of plans is no surprise…again

Categories:

Autism

by Lost and Tired

February 24, 2012

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I mentioned last night that we have rescheduled Elliott and Gavin’s appointment with the neurologist until after they have their EEG’S done next week.

There were a few reasons for this but one of them was that Elliott wasn’t feeling well.

Elliott woke up this morning and all he really has is a runny nose. He has an occasional cough but it’s related to post nasal drip and not some kind of respiratory infection. He also hasn’t run fever since Wednesday.

He was up early and immediately bouncing off the walls. Lizze and I decided that he was well enough to go back to school.

He did not like that idea at all. He lost it and soon came the river of tears that that we have become accustomed to, especially lately. He literally had to be carried out to the van because he refused to walk. I also had to wrestle him to get his coat on.

It feels really bad to have to do these things but he needs to be back at school. Aside from the fact that he’s driving us crazy, there was no reason for him to be home today.

He’s gonna do just fine at school today. The teachers know what to expect and are more than capable of handling him.

It just never ceases to amaze me how frequently our plans change or have to be adjusted at the last minute. That is something that many people don’t seem to get or don’t understand.

**Thanks for reading**

-Lost and Tired

Please join our Community Autism Support Forum

Posted from WordPress for Android so please forgive the typos. Auto-correct and I don’t get along very well.

Tags: "Autism Speaks", adhd, android, aspergers, Autism, babble.com, back, coat, Community Autism Support, Community Autism Support Forum, don, drip, EEG, Family, fever, fine, Forum, gonna, home, idea, infection, kind, last, lost and tired, midNIGHT ROM, minute, ocd, Parenting, PICA, reading, reason, schizophrenia, schizophrenic, something, support, surprise, Thanks, tired, today, van, Wednesday

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Permanent link to this article: http://lostandtired.com/2012/02/24/changing-of-plans-is-no-surprise-again/

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The Author

Rob Gorski is a husband and father of 3 boys on the Autism Spectrum. Gorski began his writing career in June of 2010 with his multiple award winning blog Lost and Tired: Confessions of an Autism Dad. Recently cited as the 3rd most influential Autism Blogger on the internet by Dr. Oz's Sharecare website, where he is an expert on Autism.

His mission is to create dialogue, spread Autism Awareness, educate the public on how technology can benefit a special needs family and do so in ways that society can relate to and understand.

Gorski advocates for special needs families and those on the Autism Spectrum, both young and old.

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Tag Archive: Wednesday

Meeting a Nutritionist at @AkronChildrens today

The Leap of Faith: Plans may change again

Wednesday Night Therapy: 05/23/2012

Van drama: Did it get fixed?

Wednesday Night Fever

#Autism and Anxiety